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Post Info TOPIC: START OF MAVYRET!
Tig


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RE: START OF MAVYRET!
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Well done, Heidi! Big ol WOOT on your first week completed! As Canuck and the others have already mentioned, the first of your treatment may be filled with highs, lows, and fog. These are easy meds in one respect, side effects, but extremely powerful anti-viral drugs. Think about what they are doing right now. Destroying a once elusive Dragon, with ease. Just a few years ago, things were very different and very difficult. Success rates in the 30-50 percentile, if you were lucky. The drugs, considered chemotherapy agents in most circles, were so harsh.

Sit back and allow these miracle “Magic Beans” to do their thing, mostly and thankfully under the side effect radar. Don’t push yourself too hard. Save some of the renewed vigor for Dragon fighting and getting through treatment. You’ll have plenty of great days ahead, spend these days taking it slow and measured. If you have to do something, I’ll permit you 20 minutes per day doing the “Happy Dance”! Imagine your Dragon laying on the floor and dance circles around it. I know for a fact, it really iritates the crap out of them, lol! 

 

 



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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wow, i just realized i don't feel that daze right now; i had it for weeks and it felt like auto pilot. this feels strange but good.

i still work out on my days off; not on working days and usually only 2 out of the 3 days...........and def not too intense; but it does feel good.

it's def a strange mix of feel so good, feel not so good....very interesting



__________________

GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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C. is writing in red ...
Dishbrat wrote:

 

First week of Mav, is complete! biggrin  YAY!

I do NOT have any really bad issues to report! Wonderful. Nausea on day 2 for a few hours, non stop potty breaks from water consumption, and I almost feel like I'm in a daze at times LOL! Not LOL (necessarily) - you might be in a little bit of a "daze", some people do go a bit dazed-feeling, at first, on these potent and new-to-us (and our virus) anti-virals.  My blood sugar has been excellent, my morning numbers have even dropped a bit. Yay, whee, very good mornings then, we'll see how you do as you go along - but so far, so (very very good) smile

I've been taking my dose at 6 pm, with my dinner, and have been in bed sound asleep by 10 pm every night. I do get up for a bathroom run during the night, but I quickly go right back to sleep. Good! Lotsa sleep, lotsa water and peeing. wink This is the most soundly I have slept, in years I think? Do you think (partly) it may be the relief of finally getting on/being on treatment? As soon as I got in my trial, got the meds in my hands, and that first pill past my lips, i felt a great relief, maybe you sense some of that too? Mornings, are easy to get moving, and I have SO much energy! Wow, lucky! I am actually going to start going to the gym BEFORE work, beginning tomorrow! Hey, hey, whoa, girl, take er easy, save time for working fulltime and such! Early days, slow and steady wins the race, pace yersef!

I do realize that not every day may be this easy during treatment, but, I do have to say I did all that worrying for NOTHING! This is a piece of cake for me! I hope all of you that are currently in treatment of some type, are having an easy time of it as well! 

It is true, one can have your cake and eat it too. heehee. C.

 


 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hey DB, my labs show that my glucose is lower than it's been in years, so i guess this means our livers are working better already.



__________________

GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Hi Heidi,

Glad to hear you are doing so well after week 1. Excellent news. smile

I am now 1/2 way with my Epclusa and all is going great with me. Can't wait to be free of this Virus. All is very positive with us all. Fantastic!



__________________

65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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great news DB! i had it easy for my first few weeks too and that sure helped to get me thru it. 

i have other stomach probs that seemed to have flared, but probably not from the drug,just aggravated toward the end of my treatment.

it def is easier than living with the virus

have fun, good to hear from you and that your sleep and numbers are good. yay.



__________________

GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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First week of Mav, is complete! biggrin

I do NOT have any really bad issues to report! Nausea on day 2 for a few hours, non stop potty breaks from water consumption, and I almost feel like I'm in a daze at times LOL! My blood sugar has been excellent, my morning numbers have even dropped a bit.

I've been taking my dose at 6 pm, with my dinner, and have been in bed sound asleep by 10 pm every night. I do get up for a bathroom run during the night, but I quickly go right back to sleep. This is the most soundly I have slept, in years I think? Mornings, are easy to get moving, and I have SO much energy! I am actually going to start going to the gym BEFORE work, beginning tomorrow!

I do realize that not every day may be this easy during treatment, but, I do have to say I did all that worrying for NOTHING! This is a piece of cake for me! I hope all of you that are currently in treatment of some type, are having an easy time of it as well! 

 



__________________

45, F, Dx2000, VL 5.3M, ALT 113, AST 45, F0 (Bloodwork), GT 2 (? Couldn't establish subtype??), treatment naive, type 2 diabetic, recovering addict 11/22/02

RX Mavyret, 8 wks. SOT: 6/5/18



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Congrats Heidi...

I just finished my 8 week Mavyret TODAY.

Awesome...awesome...awesome.

I had no side effects and went to work everyday.

You will be fine.  You are on the way to your cure.

Water...water...water.  biggrin

Ziggy



__________________

52 yrs female, Northern California, DX 2007, GT1b.  Let it go for 10 years.  First Treatment:  Mavyret 8 week starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment.  See Pre-Treatment Test Results in Bio.



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DB , so awesome! good for you , and so it begins.

 

so glad to hear you have  transitioned  from "getting the meds" to "starting the meds" yay

5



__________________

GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Hey DB!,

Sorry, I've been wanting to post sooner than this, but I have had an "away", and just trying to catch up now. I did check in a bit while I was out of town and saw your 8 week start of Mav was imminent tho! Big congrats on that first pill past the lips - this is going to be good! biggrin

I was so happy to hear things are falling into better circumstances for you, as far as slightly less family responsibilites and job demands, lovely you are down to "only" one job instead of three, and that your workplace will be "understanding", and that you will have a wee bit less of family "minding" to take care of whilst you are on treatment. Takes a little bit of the worry out of it, that your schedule has opened up a bit. Room to move. Always better. But I bet ya anything you are not going to be troubled by much of anything while on treatment.

Nice you are getting 4 week and 8 week bloods.

Yay Heidi, on her own "on treatment thread!!!!!!" . biggrin You go girl.  Kill, KILL, KIIIIILLLLL! wink C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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WooHoo! Good for you, Heidi! I’m thrilled for you and since STL nicknamed your first pill, the “Magic Bean”, I found this example to start your treatment. It represents Joy and Good Fortune. Both will be yours, I guarantee it! Don’t forget to hydrate, hydrate, hydrate!

641FE9A7-84E4-45A8-BE87-53864BDE8A0E.jpeg



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



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Hi Heidi,

Glad you are finally set to go. Thats fantastic. All the best with your first magic bean tonight. Looking forward to hearing how you are doing with it, so be sure to post us some updates. There are a few of us currently being treated posting and it is great to hear how everyone is doing. It is a great place for sharing and asking questions. So many lovely people to help if there is a problem. Some very knowledgeable people here apart for us newbies. Hope you don't have any issues with your blood sugar.



__________________

65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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My Mavyret finally arrived today! I decided to go ahead and start my treatment this evening with my dinner, instead of waiting until tomorrow as I initially planned.

Dr already put orders in for my 4 week, and 8 week blood work....so that'll take me to July 3rd, and July 31st (I'll be visiting my parents in South Carolina,  during the last week of my treatment, so my 8 wk blood work won't be done until Aug 1st or 2nd.)

I'm nervous, but so excited to start this journey! I'll be checking my blood sugar 3x a day as well, to see if there is any issues with it.

Have a great night everyone!

~Heidi~



__________________

45, F, Dx2000, VL 5.3M, ALT 113, AST 45, F0 (Bloodwork), GT 2 (? Couldn't establish subtype??), treatment naive, type 2 diabetic, recovering addict 11/22/02

RX Mavyret, 8 wks. SOT: 6/5/18

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