Ok people, I think this is getting a bit out of hand here so can we please leave it here. I don`t believe Code had anything but good intentions when he posted here nor do I believe he was trying to sell anything or trying to make false claims. As Steff has already said this forum is not pro- or anti- tx and should be a safe place for anyone with the virus to discuss all aspects of it.
For those reasons I am now closing this thread.
Many thanks, and good wishes to you all. Jill xx
James10500 said
Oct 21, 2011
Code
I treated and I'm "cured" as you say. Why you put the word in quotation marks leads me to believe you are insinuating HCV is not curable. You do anything you want but lying to people about herbs lowering VL is not acceptable.
Deidre said
Oct 21, 2011
cODE,
i'M SORRY, BUT YOU ARE WRONG IN THINKING THAT IF YOUR LIVER ENZYMES
ARE FINE, THAN NO DAMAGE IS HAPPENING TO YOUR LIVER. tHE ONLY WAY TO TELL ACTUAL LIVER DAMAGE IS BY BIOPSY.
MY LIVER FUNSTION BLOOD TESTS HAVE NEVER BEEN OUT OF NORMAL RANGE.
sTILL ON MY FIRST BIOPSY, i HAD NECROSIS, FIBROSIS, AND PORTAL BRIDGING.
THERE HAVE BEEN PEOPLE THAT HAVE FOUND OUT THEY HAD CHIROSIS BY LIVER BIOSY, EVEN THOUGH THE BLOOD TESTS WERE ALWAYS NORMAL.
SOMETIMES ( I WAS ONE OF THEM) EVEN LIVER ULTRASOUND CAN APPEAR PERFECTLY NORMAL, YET IT IS ACTUALLY DAMAGED.
i HAD MY GALLBLADDER TAKEN OUT IN JULY, FOR STONES THAT DIDN'T SHOW UP ON ULTRASOUND. THEY WENT ON A HUNCH, BECAUSE OF MY OFF AND ON PAIN.
THERE IS A REASON THEY SAY HEP C CAN BE A SILENT KILLER. IT'S BECAUSE THE PEOPLE FELT FINE, AND TESTS WERE ALL NORMAL, YET IT URNED OUT THEY HAD CHROSIS. ( IT'S A COMMON STORY)
VL, AND BLOOD TEST, ARE NOT THAT ACURATE. if you have an active vl,there is a high possability that your liver is being damaged right now! Not to mention mutations, or the fact that you can still give it to others.
people with hep c need to be careful about taking vitamins and herbs.
So wouldn't it be smarter to wait till testing has been done, before telling others they should do it, without any medical expertease, instead of just using yourself as a guinny pig. When in all actuality you don't know if it could harm somebody else.
It's fine for you to test on yourself if that what you choose to do, but it's completely another story when you try to test your theories on others, without knowing if there is a chance it could harm them.
For this very reason places like vertex have to spend millions, and tests for years, to make sure it's safe. how things mix together can also change how they function.
Tylenol is safe effective, and FDA approved. Yet it's bad for people with liver disease.
Scientists around the world have been testing for years , who are extreamly bright,
Part of the reserch involves saftey. Not all things effect people the same.
What makes you think that a scientist hasn't already thought of what you thought of, and found it to not work, or be dangerous.
If it doesn't completely eradicate the vl. then it's not a cure.
I understand this is your choice, but you are asking people to trust you, when you have no credentials, and yet weren't willing to consider even trying, the current cures.
That sounds to me like someone selling snake oil. Why would someone trust their lives, into your recomendations, when you yourself, are not willing to try methods that have been proven?
This is not meant as an attack, just pointing out, that you aren't as open minded as you are askng others to be.
If you are only interested in lowering your vl, then just take vitamin D. pRETTY SIMPLE.
OF COURSE YOU WILL STILL HAVE THE DISEASE, STILL BE ABLE TO SPREAD IT, AND STILL ACTIVELY HAVING YOUR LIVER DAMAGED. bUT YOUR vl WILL BE LOWER.
mINE WENT FROM 12 MILLION 6 THOUSAND IN 07 TO UNDER 3 MILLION IN 4 YEARS, ON JUST VITAMIN D ALONE.
aND YES IT HAS BEEN PROVEN. tHEY DID A STUDY ON IT IN ISREAL.
greenqueen said
Oct 21, 2011
Hi Code and welcome
I fully respect your decision not to do conventional tx and certain herbs and supplements can improve liver function, although they don't kill the virus.
I would like to state that this forum is a place where people can openly discuss their choices and opinions, without fear of being ridiculed, unless they are making false claims. I don't see any claims of herbs being a cure in Code's posts, rather a means of trying to keep the liver in better shape.
This is NOT a pro tx or anti tx forum, it's here for ANYONE affected by Hep C, to share experiences, info and support each other and treat each other with respect, regardless of differing opinion.
Thanks
Love Steff xx
PS have moved this thread to "Nutrition and Complimentary Therapies".
code said
Oct 21, 2011
i have no intention on arguing with you nor putting you down simply because we differ on a subject. if you choose to try this remedy then thats lovely, and if not then thats lovely as well.
i bid you good day sir ;)
James10500 said
Oct 21, 2011
Ya we all know what the sx are, the difference between 99% of the forum and you is we have the courage to deal with our illness. Where you kid yourself that some home remedie is working against a virus like HCV. Perhaps you can cure HIV,Ebola, and Yellow fever too.
code said
Oct 21, 2011
heres what it boils down to for me.
tea: $20-50. makes you feel good. ingredients have known and published properties that aid in liver healing and viral load reduction. no bad side effects. what do you have to lose by trying this? nothing; except maybe the 20-50 bucks that it costs to make your own. i invite you to do a little research if you want to give it a shot.
interfuron/ribavirin: $20,000. side effects: flu like symptoms, fatigue, decrease in the white blood count as well as in the platelet count, depression, irritability, sleep disturbances, anxiety, personality changes, hemolytic anemia, cough, shortness of breath and birth defects. in most cases the disease has come back, often with triple the amount of when the patient began treatment.
my not taking the traditional therapy is my personal choice, and others on this forum have this choice as well. i have tried this tea and it worked. my viral load after 3 weeks of drinking this tea dropped drastically from 168,000 to 12,400. my ast/alt are now in the normal range *also lower than i have ever seen them* both at 29. i also realize that the ast/alt have nothing to do with liver damage however; while my liver enzymes are in the normal range i know that my liver is not being attacked and has time to heal.
i appreciate that the new "cure" is now actually helping and possibly curing some people and i respect their decision to use the treatment as their way of coping with this horrific disease. i ask that the members of this forum respect that there are possible other alternatives to this therapy and perhaps one or more of them might try it. this is no way means that i am suggesting that they Not do the traditional therapy if that is their choice. i am simply giving out the information that i learned through my own personal choice and attempting corroboration at my findings.
i would appreciate some respect to the other members of this forum that choose alternative therapies.
for myself, i tried this tea and it worked, however; this is after 3 weeks of drinking it, and one week off. those are my results after that time period. i am going to continue to drink this tea and when i get my next test i will post the results here as well. so far so good!
good luck to everyone!
James10500 said
Oct 21, 2011
Just read in a preview of the Steve Jobs biography, he put surgery off for nine months and thought Herbs were the answer. Guess not, this is the problem when people "wish" things to be true that simply are not.
Please take into consideration, the fact that herbs have never been proven to cure anyone of HCV, or lower viral load.
Cinnamon Girl said
Oct 20, 2011
Thank you code, and yes, this is a forum for people with HCV whether on tx or not and there are other people here on the forum who are either not considering tx at the mo for various reasons, or who have not responded to tx, who will be interested in hearing about any alternative remedies which may possibly help them.
We have a section called `Living with Hep C` which has been created especially for people in your situation who want to share and exchange info (although of course it`s fine to post here in General Discussion).
i dont correlate vl with liver function however, i do understand that hep c does damage the liver. no vl means no liver damage from hepatitis.
i might point out that in the past the ribavirin/interferon combo has not been effective in many patients as the hep has come back in most cases. i do realize that they have a new "cure" however it is my belief that the drugs given do a great deal of damage to the body, and that some people might take an interest in the idea that there are ways of lowering the viral load and liver functions naturally.
this forum is about hep c; and i am simply trying to gain and pass on information that i am aware of.
as i stated; in the past i have done MANY viral load checks, and none have been this low in 20 years. again; if anyone else on this forum is interested in giving this tea a shot please contact me and let me know the results!
thank you for your input :)
Cinnamon Girl said
Oct 19, 2011
Hi code and welcome, we all have to make our own decisions whether to treat or not, and I respect your right not to do it, but James is right, viral loads do fluctuate naturally over time, and the only proven way to eliminate HCV is by doing treatment.
The treatment options for gen 1`s have improved considerably and we are seeing some excellent results from people here who are doing the new triple combos.
All the best, cheers, Jill xx
James10500 said
Oct 19, 2011
This simply is not true. VL fluctuates. You are HCV positive, and if you correlate VL with damage to the liver you're making another mistake. You will never be HCV free unless you treat with the drugs PROVEN to kill the virus.
code said
Oct 19, 2011
hi everyone!
i have had hepc1a for around 20 years or so and been fighting to get rid of it for ages. i refused the traditional treatment but my liver enzymes were around 86, viral load around 168,000.
i decided to give making my own concoction of herbal tea a shot. i took organic olive leaf, organic roasted dandelion root, powdered organic liquorice and organic milk thistle seeds *bought for around US $20 on the web combined* and used a mortar and pestle to crush them altogether then boiled a gallon of water and steeped the concoction using a large tea strainer for about 2 hours. i begain drinking this tea a lot! for around 3 weeks i drank about a quart of it daily then i quit for a week and went in for another test.
results: alt/ast normal
and heres the big part
hep c viral load 12,000.
i have NEVER in the 20 years that i have had hep c had my viral load this low. i can't for sure say this is why my viral load totally crashed but i can tell you that i am going to continue drinking this tea!
i was wondering if anyone else on here would be willing to give this tea a shot and see what their viral load and ast/alt do and post it on here for me? i sure would be interested in having some corroboration about this!
Ok people, I think this is getting a bit out of hand here so can we please leave it here. I don`t believe Code had anything but good intentions when he posted here nor do I believe he was trying to sell anything or trying to make false claims. As Steff has already said this forum is not pro- or anti- tx and should be a safe place for anyone with the virus to discuss all aspects of it.
For those reasons I am now closing this thread.
Many thanks, and good wishes to you all. Jill xx
I treated and I'm "cured" as you say. Why you put the word in quotation marks leads me to believe you are insinuating HCV is not curable. You do anything you want but lying to people about herbs lowering VL is not acceptable.
cODE,
i'M SORRY, BUT YOU ARE WRONG IN THINKING THAT IF YOUR LIVER ENZYMES
ARE FINE, THAN NO DAMAGE IS HAPPENING TO YOUR LIVER. tHE ONLY WAY TO TELL ACTUAL LIVER DAMAGE IS BY BIOPSY.
MY LIVER FUNSTION BLOOD TESTS HAVE NEVER BEEN OUT OF NORMAL RANGE.
sTILL ON MY FIRST BIOPSY, i HAD NECROSIS, FIBROSIS, AND PORTAL BRIDGING.
THERE HAVE BEEN PEOPLE THAT HAVE FOUND OUT THEY HAD CHIROSIS BY LIVER BIOSY, EVEN THOUGH THE BLOOD TESTS WERE ALWAYS NORMAL.
SOMETIMES ( I WAS ONE OF THEM) EVEN LIVER ULTRASOUND CAN APPEAR PERFECTLY NORMAL, YET IT IS ACTUALLY DAMAGED.
i HAD MY GALLBLADDER TAKEN OUT IN JULY, FOR STONES THAT DIDN'T SHOW UP ON ULTRASOUND. THEY WENT ON A HUNCH, BECAUSE OF MY OFF AND ON PAIN.
THERE IS A REASON THEY SAY HEP C CAN BE A SILENT KILLER. IT'S BECAUSE THE PEOPLE FELT FINE, AND TESTS WERE ALL NORMAL, YET IT URNED OUT THEY HAD CHROSIS. ( IT'S A COMMON STORY)
VL, AND BLOOD TEST, ARE NOT THAT ACURATE. if you have an active vl,there is a high possability that your liver is being damaged right now! Not to mention mutations, or the fact that you can still give it to others.
people with hep c need to be careful about taking vitamins and herbs.
So wouldn't it be smarter to wait till testing has been done, before telling others they should do it, without any medical expertease, instead of just using yourself as a guinny pig. When in all actuality you don't know if it could harm somebody else.
It's fine for you to test on yourself if that what you choose to do, but it's completely another story when you try to test your theories on others, without knowing if there is a chance it could harm them.
For this very reason places like vertex have to spend millions, and tests for years, to make sure it's safe. how things mix together can also change how they function.
Tylenol is safe effective, and FDA approved. Yet it's bad for people with liver disease.
Scientists around the world have been testing for years , who are extreamly bright,
Part of the reserch involves saftey. Not all things effect people the same.
What makes you think that a scientist hasn't already thought of what you thought of, and found it to not work, or be dangerous.
If it doesn't completely eradicate the vl. then it's not a cure.
I understand this is your choice, but you are asking people to trust you, when you have no credentials, and yet weren't willing to consider even trying, the current cures.
That sounds to me like someone selling snake oil. Why would someone trust their lives, into your recomendations, when you yourself, are not willing to try methods that have been proven?
This is not meant as an attack, just pointing out, that you aren't as open minded as you are askng others to be.
If you are only interested in lowering your vl, then just take vitamin D. pRETTY SIMPLE.
OF COURSE YOU WILL STILL HAVE THE DISEASE, STILL BE ABLE TO SPREAD IT, AND STILL ACTIVELY HAVING YOUR LIVER DAMAGED. bUT YOUR vl WILL BE LOWER.
mINE WENT FROM 12 MILLION 6 THOUSAND IN 07 TO UNDER 3 MILLION IN 4 YEARS, ON JUST VITAMIN D ALONE.
aND YES IT HAS BEEN PROVEN. tHEY DID A STUDY ON IT IN ISREAL.
Hi Code and welcome
I fully respect your decision not to do conventional tx and certain herbs and supplements can improve liver function, although they don't kill the virus.
I would like to state that this forum is a place where people can openly discuss their choices and opinions, without fear of being ridiculed, unless they are making false claims. I don't see any claims of herbs being a cure in Code's posts, rather a means of trying to keep the liver in better shape.
This is NOT a pro tx or anti tx forum, it's here for ANYONE affected by Hep C, to share experiences, info and support each other and treat each other with respect, regardless of differing opinion.
Thanks
Love Steff xx
PS have moved this thread to "Nutrition and Complimentary Therapies".
i have no intention on arguing with you nor putting you down simply because we differ on a subject. if you choose to try this remedy then thats lovely, and if not then thats lovely as well.
i bid you good day sir ;)
heres what it boils down to for me.
tea: $20-50. makes you feel good. ingredients have known and published properties that aid in liver healing and viral load reduction. no bad side effects. what do you have to lose by trying this? nothing; except maybe the 20-50 bucks that it costs to make your own. i invite you to do a little research if you want to give it a shot.
interfuron/ribavirin: $20,000. side effects: flu like symptoms, fatigue, decrease in the white blood count as well as in the platelet count, depression, irritability, sleep disturbances, anxiety, personality changes, hemolytic anemia, cough, shortness of breath and birth defects. in most cases the disease has come back, often with triple the amount of when the patient began treatment.
my not taking the traditional therapy is my personal choice, and others on this forum have this choice as well. i have tried this tea and it worked. my viral load after 3 weeks of drinking this tea dropped drastically from 168,000 to 12,400. my ast/alt are now in the normal range *also lower than i have ever seen them* both at 29. i also realize that the ast/alt have nothing to do with liver damage however; while my liver enzymes are in the normal range i know that my liver is not being attacked and has time to heal.
i appreciate that the new "cure" is now actually helping and possibly curing some people and i respect their decision to use the treatment as their way of coping with this horrific disease. i ask that the members of this forum respect that there are possible other alternatives to this therapy and perhaps one or more of them might try it. this is no way means that i am suggesting that they Not do the traditional therapy if that is their choice. i am simply giving out the information that i learned through my own personal choice and attempting corroboration at my findings.
i would appreciate some respect to the other members of this forum that choose alternative therapies.
for myself, i tried this tea and it worked, however; this is after 3 weeks of drinking it, and one week off. those are my results after that time period. i am going to continue to drink this tea and when i get my next test i will post the results here as well. so far so good!
good luck to everyone!
Please take into consideration, the fact that herbs have never been proven to cure anyone of HCV, or lower viral load.
Thank you code, and yes, this is a forum for people with HCV whether on tx or not and there are other people here on the forum who are either not considering tx at the mo for various reasons, or who have not responded to tx, who will be interested in hearing about any alternative remedies which may possibly help them.
We have a section called `Living with Hep C` which has been created especially for people in your situation who want to share and exchange info (although of course it`s fine to post here in General Discussion).
All the best to you, Jill xx
Good luck.
i might point out that in the past the ribavirin/interferon combo has not been effective in many patients as the hep has come back in most cases. i do realize that they have a new "cure" however it is my belief that the drugs given do a great deal of damage to the body, and that some people might take an interest in the idea that there are ways of lowering the viral load and liver functions naturally.
this forum is about hep c; and i am simply trying to gain and pass on information that i am aware of.
as i stated; in the past i have done MANY viral load checks, and none have been this low in 20 years. again; if anyone else on this forum is interested in giving this tea a shot please contact me and let me know the results!
thank you for your input :)
Hi code and welcome, we all have to make our own decisions whether to treat or not, and I respect your right not to do it, but James is right, viral loads do fluctuate naturally over time, and the only proven way to eliminate HCV is by doing treatment.
The treatment options for gen 1`s have improved considerably and we are seeing some excellent results from people here who are doing the new triple combos.
All the best, cheers, Jill xx
hi everyone!
i have had hepc1a for around 20 years or so and been fighting to get rid of it for ages. i refused the traditional treatment but my liver enzymes were around 86, viral load around 168,000.
i decided to give making my own concoction of herbal tea a shot. i took organic olive leaf, organic roasted dandelion root, powdered organic liquorice and organic milk thistle seeds *bought for around US $20 on the web combined* and used a mortar and pestle to crush them altogether then boiled a gallon of water and steeped the concoction using a large tea strainer for about 2 hours. i begain drinking this tea a lot! for around 3 weeks i drank about a quart of it daily then i quit for a week and went in for another test.
results: alt/ast normal
and heres the big part
hep c viral load 12,000.
i have NEVER in the 20 years that i have had hep c had my viral load this low. i can't for sure say this is why my viral load totally crashed but i can tell you that i am going to continue drinking this tea!
i was wondering if anyone else on here would be willing to give this tea a shot and see what their viral load and ast/alt do and post it on here for me? i sure would be interested in having some corroboration about this!
thanks all!