Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: The Sovaldi-Riba Train is now boarding


Moderator

Status: Offline
Posts: 1494
Date:
RE: The Sovaldi-Riba Train is now boarding
Permalink  
 


evange wrote:

also, what do u mean when u say the last 3 months were bad?


  Hi again Mary. Sorry about that typo. I did mean 'weeks' although at that time it sure felt like 'months'. The main side effects that affected me during my Sovaldi/Ribavirin treatment were fatigue and depression. Also, as Tig was referring to, and the main reason I referred to the last 3 weeks in particular was that I had a bad accident requiring extensive recovery/surgery's etc. near the end of my treatment which really made things that much worse, including my immune system becoming very weak. As you can see in my signature I also suffer from a weak immune system due to being a long term survivor of HIV.

 

 

 


 
 
 
 
 



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

If you have any questions, don't hesitate to ask. For now, if you have a question about anything, just place it here and one of us will help. There are sections for everything and you'll figure it out. We'll help you with it! 

The profile page has a section for private messages. If you want to ask me or anyone else a private (confidential) message, just place their user name in the address box and enter your message. There is also a Whitebox area for chatting, you have to use the other member's Whitebox to send them a message. Confused yet? Don't be, it'll all come to you. If you're searching for information, use the search function at the top of the page. A keyword or two will provide links to discussions we've had here.

Take your time and you'll be a Pro before you know it!



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 9
Date:
Permalink  
 

hello again, im confused as to how to reply to questions here. ( Forgive my naivete , I'm a newbie to technology. )  Thank u for your patience.



__________________
Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

The title of this thread (section) came to be after our moderator, Matt Chris, named another section similarly (Harvoni Train). So the train theme kind of stuck. If you look at the On Treatment main index page, you'll see the first three sections listed are "Train" related. It's just a fun theme and you board when you begin and reach the station when you end. You'll be able to follow the treatment journey of people contributing to these threads. Everyone is invited to participate in those open threads. It brings us all together under the banner of care and friendship. Take a few moments and read through them, it can be very enlightening! 



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 9
Date:
Permalink  
 

Hello, I am so unfamiliar with your website. I just want to encourage people that may be in my situation that there IS help out there!

 



__________________


Member

Status: Offline
Posts: 9
Date:
Permalink  
 

oh, thank u so much for the update!?" What does : The Sovaldi-RibaTrain is now boarding mean?Thank u in advance.



__________________
Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Hi Mary,

Mike is still here! He retreated successfully with 24 weeks of Harvoni after failing treatment the first time around. He had an accident and there were some problems during that previous treatment that compromised his regimen. 

I'm responding to his post because he has been involved in some ongoing care and may not see your question in a timely manner. As soon as he checks in, he will be able to add to my comments.

I sent you the instructions on adding your signature and the abbreviations. Many of us have listed our treatment history in our signature lines.



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 9
Date:
Permalink  
 

does this mean he is no longer here?



__________________
Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Mary,

Mike was referring to the last 3 weeks of his treatment on Sovaldi and Ribavirin. He meant 24 weeks, not months. I remember that he had a hard time with side effects throughout treatment, but a particularly rough time during the last 3 weeks. He failed due to complications.

I'll let him describe the road he traveled during that period. He had some difficult things to overcome. He's a Warrior and a Survivor in every sense...



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 9
Date:
Permalink  
 

also, what do u mean when u say the last 3 months were bad?



__________________


Member

Status: Offline
Posts: 9
Date:
Permalink  
 

Also, before I got any treatment , I was told that I would have to pay thousands of dollars for the meds. Thankfully, Integrated Health Systems went to bat for me & " suddendly" my insurance company agreed to pay for it. My monthly cost was $ 15.00!!! 



__________________


Member

Status: Offline
Posts: 9
Date:
Permalink  
 

Hello, I was diagnosed on approximately August 2014.   My dr was about to retire but he suggested I take a blood test before he did.  Lo & behold , that's when I was 1st diagnosed. Long story short, I was referred to  a Hep C dr & he told me that I could either take a shot, once a month, ( which would make my hair fall out & make me so tired) or I could ask my insurance company to pay for the meds.  They declined at 1st but thankfully I found a middleman ( Integrated Health Systems) who went to bat for me & the next thing I knew I was approved for the medication!!TBI

 



__________________
Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

wmlj1960 wrote:

 Welcome to the forum evange. Me too, glad to "get it (Sovaldi / Ribavirin) over with". I did 24 months of it in 2014 and the last 3 were not pretty. How long were you on it, when, and did you acheive SVR?


 24 months in 2014? Boy, that was a long year, lol! wink



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

Hi Mary,

Welcome to the forum, it's great to hear that your Tx is complete, did you just finish?

I too rode the Riba Train so know exactly what you mean about having that past you.

Do tell us more as you get settled in here.

 

Linux

... ah here we go:

"was diagnosed 08/2114. finished treatment june 2016! sovaldi & riboflavis worked for me!"



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Moderator

Status: Offline
Posts: 1494
Date:
Permalink  
 

 I just now saw your info in the chatbox. Are you scheduled for a follow-up viral load test dated at 12 weeks after you finished treatment?



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum



Moderator

Status: Offline
Posts: 1494
Date:
Permalink  
 

 Welcome to the forum evange. Me too, glad to "get it (Sovaldi / Ribavirin) over with". I did 24 months of it in 2014 and the last 3 were not pretty. How long were you on it, when, and did you acheive SVR?



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum



Member

Status: Offline
Posts: 9
Date:
Permalink  
 

Hello, when I 1st started taking Ribovirin & Sovaldi, my head was really itchy!!!  When I went to bed,  my back was itchy.  Thankfully these symptoms subsided after a couple of weeks.  While I was under the meds I felt like I would always feel this way but then ,  the side effects went away.  I'm soo grateful that I got this over with!



__________________


Guru

Status: Offline
Posts: 893
Date:
Permalink  
 

Hi Michele,

I'm glad you're coping. I thought I'd add some more information on top of Tig and Dave. The reason why they continue treatment after undetected, is because although its undetected in the blood, the same cannot be said about the liver. Research has shown, the reason why a small percentage don't clear the virus is because in people with some damage there can be pockets in which the virus can hide. To ensure that these stragglers are taken care off, they found a length that gave the best outcome and shortest duration. The reason why they now want to treat before damage occurs is because the worse it is, the harder it is to treat, so the longer the duration, and the more costly it becomes.

I hope you are feeling much better now and more relaxed. I hear you about the heat and fatigue. Here was nearly 30 degrees today, I'm so not used to hot, it normally rains all the time. :)



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

I remember the fatigue well, Michele. That's probably the Ribavirin causing it. It's a great drug, but they didn't frost it with goodness either! It's very effective though and without it, Sovaldi wouldn't work. Together they will put your Dragon to sleep for good. Just stick to it and it'll be over before you know it.

Sleep when you can, I survived on naps because I couldn't sleep for extended periods. I was fortunate that I didn't have to work through treatment, so taking naps turned out to be a great way to make it through the day! Take it easy and I hope you get a good nights sleep tonight. 

(Gotta love that auto correct, lol)



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Girlfriend was suppose to say GI....Dang this phone.

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Thanks for the info TIG and Dave, very interesting info I have decided to wait until my appt Aug 2nd for 1st viral load check then I'm going to go see a liver specialist to over see the duration of my treatment, my girlfriend guy can stick to colonoscopy. TIG My GP told me if the zoloft keeps me awake then change to am......I'll start that regime tomorrow....uhgg, I'm tired guys I'm fixen to hit the sack and record The walking dead tonight Night night ALL Xoxoxo Michele

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Hi Michele,

Don't be too concerned about your doctor's use of the term Chemo. The old standard of care with Interferon could be considered a form of chemotherapy, as well as antiviral in nature. They use Interferon in some cancer treatments. It added greatly to the horrid side effects that we had on those protocols. All prescriptions are a form of chemical therapy, it's just semantics. The new HCV DAA protocols are considered antiviral therapies. 

Sorry you had a sleepless night, I remember them well! Take your Zoloft in the morning and leave the Temazepam for bedtime. I take Zoloft in the morning and when I need a sleep aid, there's no interaction. If your doctor told you to take them together, then call the office and see if you can change the administration time. It shouldn't be a problem at all. 

The reason you MUST take the entire course of medication is because it takes that long to assure everything has been exposed to the treatment long enough. Sovaldi/Riba is well known for causing rapid viral load reductions, but there have also been people here that weren't undetected until the end of treatment. Yes, they were still detected at week 12, but went on to SVR when they had their testing done 12 weeks after the end of their treatment. It happens, not often, but it does. Generally, most people will be undetected between weeks 4 and 8. These drugs reduce the virus to undetected levels and allows your own immune system to take over and maintain that sustained viral response.



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

Hi Michele,

Glad to hear that you are working with your GP in finding the right antidepressants, they should help you tolerate treatment well and let you concentrate on getting rid of the virus, taking good care of yourself (Drinking LOTS of Water and getting good nutrition and a little exercise as you feel up to it) and healing.

"1. Why do some gi doctors tell you that this treatment is equivalent to chemo therapy??"

I've never heard any doctor refer to Hepatitis C treatment as "chemo". Some doctors may consider old treatment regimens such as Interferon as being a form of chemo, I don't know but these newer DAA medications are quite unlike "Chemo" like the medications used to treat cancer. I wondered the same thing early on in treatment but I think the term "chemo" is a subjective one. I'll go out on a limb here, others please correct me if I'm wrong, but I don't think the term chemo applies at all to today's Hep C treatments.

2. If viral load is undetectable for some at 4 weeks why 8 more weeks of treatment??? Is it just sovaldi protocol???

Treatment protocols are based on drug manufacturer trials and data. They have found these guidelines to be the most effective at ridding the system of the virus. At 4 weeks it's likely most of the virus is actually gone. Tests can only detect down to a specified count of the virus (i.e. the tests are accurate to a specific degree, e.g. <15 IU/mL). Even a very small amount of the virus left can replicate so even after the virus is Undetected at wk 4 it may be possible that it is not complete eradicated. Therefore the continued treatment to be ensure that the virus is completely gone. This is also why you are officially cured 12 wks after treatment. After 12 wks, enough time has passed that it can be assumed that the virus will not ever replicate.

When it comes to Dragon fighting, the more that you can be absolutely sure it will not replicate, the better. Insurance companies usualy are the restriction to longer treatments (treatment is extremely expensive), so you can be sure that if it were as simple as the virus being Undetected at 4 weeks, they jump on the chance to stop treatment then ... but they do NOT because they have read and know the drug manufactures studies and recommendations.

So the answer is a combination of things, drug manufacturer's recommendations based on trials, doctors recommendations, and what the insurance companies will pay for ... not really a simple question to answer, I'm afraid.

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Hello everyone, I just returned from gi guy, we took blood to check 1st rbc count, he said he is sure that I will be undetectable at week 4 I have a couple questions, 1. Why do some gi doctors tell you that this treatment is equivalent to chemo therapy?? I actually refused treatment some years back because of being told that by a gi guy, I have NEVER had a hepatologist tell me that. That's scary 2. If viral load is undetectable for some at 4 weeks why 8 more weeks of treatment??? Is it just sovaldi protocol??? I'm just curious. I'm doing well today, alittle sleepy, the zoloft actually trumped the temazepam last night so I've pretty much been awake since 2am I pray everyone is well today..... Xoxoxo Michele

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



Senior Member

Status: Offline
Posts: 261
Date:
Permalink  
 

Thanks Tig!   With today's cure rates we're going have to add some new cars to the train.  I can see it from here.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Whaddaya mean Cheddy? I've got my Tony Lama xhit kickers all polished and ready to go! All I need is to borrow a nice brown Stetson from one of our Texas members. I need a real Texas hat if I'm to do it right! I believe we could burn down one of those Ft Worth honky tonks if you're ready! Woohoo, let's party!! 

I'm sending the this train to pick ya'll up, be ready when you hear the whistle blowing! I ain't waiting long, ha, ha!!! Michele is back in the First Class Club Car and will our Social Director for the trip. Dress code is blue jeans and boots!



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 261
Date:
Permalink  
 

Gosh.  I guess nobody wants to dance with me.  LOL

 

Didn't mean to hijack your topic, Michele.  I'm so glad you are taking the steps you need and extra glad you didn't give up.  Keep up the good work!



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Moderator

Status: Offline
Posts: 861
Date:
Permalink  
 

Hi Michele, glade to see your Dr is on top of your situation. The new treatment drugs are so new the  G.P. Dr's don't know the S/X- so you educating them is a good thing.Sounds like things are settling down for you. I hope it's smooth sailing ahead for you.   RC



__________________

 M-61 (3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017) On my way to SVR.    SVR-12. 3-13-18

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Hey Michele! 

That's okay with me. Nobody has called me Tiger in decades, lol! Grrrrrrrrrowl   biggrin

 

(Okay, back to plain ol Tig now!)



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Oops, I meant TIG, victim of auto correct

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Hi Tiger, Lol I asked her (gp) if she is familiar with this treatment side effects, she said "NO, but I've heard of the meds" hahahahaha, I told her I would teach her, I feel kinda special, she might always remember her first patient who was cured from the dragon. Xoxoxo Michele

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Hi Michele,

Glad you got some help from your GP. Those meds should make dealing with the stresses of treatment much easier. Keep your doctor informed on their effectiveness. That will help them when dealing with others on treatment. GP's are good but they don't understand the side effects of these protocols. If we can help them learn, it's a wonderful thing! 

Good luck tomorrow! smile



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Nice to hear the good news from Michele and K8! It does get better, sometimes quickly sometimes slowly. 

 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Good Afternoon everyone!

I just got back from my GP, she put me on 50mg Zoloft, 15mg temazepam, and increased my Xanax to 1mg 3 times a day.

I'm not doing real bad today as far as side effects I am grateful for everyone on here, ya,ll have helped me tremendously.

I go see the GI guy tomorrow, I believe he will do a first RBC check, ill keep ya,ll updated.

 

 

xoxox

Michele



__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



Senior Member

Status: Offline
Posts: 261
Date:
Permalink  
 

Thanks, Dave.  

Yes, I'm really excited already.  My hep specialist suggested I plan a celebration to look forward to, so I booked a long awaited raft trip down the Colorado River in the Grand Canyon.  I travel a few days after that EOT12 blood test whether I have the results back or not.  I've had a long desire to make the canyon trip and my husband and I earned the reward.  It has also inspired and necessitated an increase in fitness and I've been feeling good enough to enjoy doing it.  I'm back to walking, some hiking, some biking and riding my horse consistently.  

Who would have believed that the Sovaldi-Riba side effects would dissipate that quickly.  They were really taxing and I wasn't confident that I would ever be the same.  I still take it easy whenever I need to, and have that option when I travel, too.

I'm posting this, in part, to share my excitement but mostly to encourage others.  I know I'm lucky that HCV hadn't done more damage.  I'm sure that helps with recovery.  But then, maybe it's a matter of diet,water intake and all those spinach smoothies.  It sure wasn't my rotten attitude when I was taking riba.  I needed ADs to give that the boot.,

Yep, this is premature.  I may not even reach SVR12 yet, but it feels unlikely so I'm going to live it up anyway!  I guess this is better than feeling terribly anxious awaiting the Big12.

Please join me in a forum wide happy dance.  

 

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Thank you k8 and congratulations on your EOT your journey sounds like how mine is starting, I am also easily frustrated with my little dogs, I have sit on the couch for hours on my lap top not being able to move, I also live in Texas, (Houston) The heat is killing me!! My horse has been good for me and xanax, xanax is helping. I'm going to see my GP today and ask for anti depressants and something to help me sleep....any suggestions on meds would be appreciated I don't think my GP is well educated on this treatment. Thanks for all the encouraging posts ya,ll I must end this because I feel my concentration slowly leaving me. Xoxo Michele

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



Guru

Status: Offline
Posts: 893
Date:
Permalink  
 

Congrats KB, it takes 6 months for Riba to leave the body, so keep taking care of yourself, and have a good cry, with relief I hope. I am so happy you have finished, riba is a naughty but needed drug. I look forward to hearing about your recovery and that you're finally cured! :D 

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Guru

Status: Offline
Posts: 1516
Date:
Permalink  
 

Greetings K8,

Wonderful News ... you've arrived at the EOT Station!

So nice to get there, it's like a huge weight has been lifted from the shoulders ... soon the fog will dissipate and your on that last stretch to SVR just ahead. Nice Work!

 

Cheddy,

You are fast approaching your SVR, it all they say and oh, so much more!

All sweet news, so glad for you both .. smile

 

Dave

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Senior Member

Status: Offline
Posts: 261
Date:
Permalink  
 

K8.  I think you rocked it. 

So glad we can help each other.  I'm not sure what I would have done without the empathy and experience that I found here.  I'm pretty cautious about internet info, but I found many helpful prescriptions here.

I had the same treatment which was so much easier than I hear about the old stuff, but I felt pretty bad sometimes, but, no longer (I did need a low dose of antidepressants to break the cycle of depression).  For me, this has been worth it.  Wish me luck for SVR mid August.  I'm feeling confident.

Thanks to all who are kind enough to reach out.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Congratulations K8! I have a reliable Magic 8 Ball that says "You May Rely On It"! I'll even send you a photo to prove it, lol! Take some time to reflect and recover, life is going to improve, I know that to be true. Just remember that it takes up to 6 months to clear all of that Riba, but the sides, if you're having an issue with them now, will improve on a steady basis. This is a moment to celebrate and polish up those dancing shoes!!

Good luck with your EOT testing and we'll be waiting on the good news!

magic 8 ball.small.jpg

PS: "I tried to eat healthy but sometimes, chips and salsa plus brisket was all I wanted. ( I live in TX)"

 Just wanted to say that JimmyK may be to blame for your craving Brisket and good TX Salsa. He's the one that posted all those photos of his new BBQ and the half Beef he made us watch him smoke to perfection. I heard him laughing as he was eating every bite! 

 



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 

K8


Veteran Member

Status: Offline
Posts: 33
Date:
Permalink  
 

Hi Michele,

Tonite is my last 2 pills of the Solvadi- Riba train after 3 month treatment.

I know how you are feeling, most of us do and I just wanted to cry with gratitude when I read the posts for you.  And the way the folks here support me and all of us.

The forum has saved me many times, just knowing others understand and have been on this wild journey.  


The first week was good but then the weariness kicked in and the brain fog. A dash of dizziness sometimes and a inertia combined with an unquenchable thirst and equal hunger for meat!  Mornings were definitely the best time when I woke up and felt almost normal.


I am sorry you are having a tough time right now, it does ebb and flow. I became obsessive about taking this medicine and would cry every night when I needed to take the nightly dose. 

The crying stopped after 6 weeks and the anxiety lessened a bit.  I had great anxiety about starting this journey again ( I did the interferon & Riba 7 years ago, definitely don't think I would have made that one with out an anti depressant).  
The forum helped a lot by folks reminding me of how powerful the medications are and to remember the side effects will not last forever.
I tried to eat healthy but sometimes, chips and salsa plus brisket was all I wanted. ( I live in TX)
As time went on, the doc lowered the Riba, the exhaustion lifted but the impatience and sometimes " Riba rage" was so upsetting.

Keep on, the water helps immensely, the forum suggested good green shakes (which I would drink in the morning but then food intake went downhill,  I gained a few lbs and I have sat on my couch for hours without moving. ( had no choice as I just couldn't seem to move).  I did limit my activities, surrounded myself with positive books that I couldn't  seem to read. Facebook was about the only thing I could have an interest in and I was mean to my sweet kitty and sweet dog. Which caused more crying.  hmmm, nothing about this sounds pretty, except you can do it and it will be worth it.

 My last two blood test show undetectable and as I write this note of hopefully, encouragement, I can't believe the 3 months are over. It got very dark at times, I had to remind myself that this is due to the meds and it is not going to be like this forever.

Days where I thought I couldn't take one more pill.  I would take the pills with prayers for people who will never know medicine like this, please do whatever you need to do to get through the treatment, I take something to sleep  and wish I didn't but it is what it is right now.

We are with you on this crazy journey. And with no judgement, what a gift that was to me and I hope to you.
Blessings

K



__________________

K8

65 yr female.Gt 2 B.  Contracted Hep C approx 71, 

tested 2007 - vl 10mil   RIBA/PEGI in 2007 6 months,  undetected EOT,  VL 600,00 in 2008

tested in Feb,2016 VL less than 2 mil, SOT 4/25/16  SOL/RIBA for 3 months , EOT July 17th, 2016

AUG 12th blood work - undetectable 

 



Veteran Member

Status: Offline
Posts: 57
Date:
Permalink  
 

Michelle,

just wanted to clarify. I started treatment 12/14. In 1/15 my blood tests showed clear and have continued to be. 

I have been prescribed Effexor as anti-depressant. 

Hope you have a good 24 hours. 

 

Phyllis



__________________

PZ

genotype 3

sot. 12/11/14

eot. 5/15

Sovaldi and Ribavirin for 24 weeks

clear of virus as af 4 /16

 



Senior Member

Status: Offline
Posts: 362
Date:
Permalink  
 

Tig56 wrote:

 I had the displeasure of Interferon, too. That stuff was depression in injectable form.


 So true, Tig.

Michelle - glad to hear you are a bit better.



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.



Veteran Member

Status: Offline
Posts: 57
Date:
Permalink  
 

Hi Michelle. I was on Sovaldi/Ribavirin and I have been clear of the virus for over a year. But I think it's a really good idea to take the time off work. I did that. 

My doctor has prescribed an antidepressant and an anti anxiety. Thank heavens. 

I am still on the meds because of lingering side effects. It has taken awhile for the depression, etc to go away. 

Best of luck to you!

Phyllis



__________________

PZ

genotype 3

sot. 12/11/14

eot. 5/15

Sovaldi and Ribavirin for 24 weeks

clear of virus as af 4 /16

 

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

That's fantastic Michele! What an excellent decision and I know you'll feel so much better without the added stress of work. We have had other members that did the same thing and they noticed immediate relief. 

There are so many AD options available, your doctor will be the best source of advice on what's going to provide the best help for you. When I was started on treatment, I was prescribed Wellbutrin. It's an easy one to start and stop when the time to do so comes around. The first time I treated back in 1996, I was prescribed Zoloft and it worked well too. There are so many, my advice is to trust your doctor and let them know how well they work. They can adjust or change the medication according to the relief you gain from them. The important thing is to be part of your health care, not just the recipient of it. When you help make the choices, you'll feel better about those choices. Good luck tomorrow!



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 261
Date:
Permalink  
 

Good girl, Michele.  Now that's taking some action.  This can really help with keeping your stress down.  The privacy will help when you are feeling out of whack, too.  You can just identify it as the meds and give yourself a break and some rest.  Remember dear, you are "slaying a dragon".

As for the antidepressants, there are many SSRis and many of them help with anxiety.  Your doctor will help you determine which one is the best to try, based on the rest of you medical profile.  If one doesn't help, another one will.

I'm very glad you are taking care of yourself.  See, you're braver alreadysmile



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Hi All, I was able to get an ok to take 3-4 weeks off work. I think that's going to help tremendously and give me time to adjust to meds and anti depressants. Any suggestions on antidepressants I can talk to dr about tomorrow?

__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



Senior Member

Status: Offline
Posts: 261
Date:
Permalink  
 

Good going, Michelle.  It looks like we are all on the same page.

Try to sleep as much as you can.  If you can't sleep, add that to the list of topics to take up with your medical team.

Take it day by. 

 

 

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

Status: Offline
Posts: 7950
Date:
Permalink  
 

Hi Michele,

I'm glad to hear things are a bit calmer today. Keep seeking those same methods of dealing with these feelings when they come along. For me, Ribavirin caused several issues, skin troubles, moodiness, anemia and a dry cough. Some people develop a nagging cough from it. If your throat is dry, some of the sugarless lozenges will help. They did for me.

I am another one in our group that required anti depressants during treatment. I had the displeasure of Interferon, too. That stuff was depression in injectable form. As everyone has recommended, talk to your docs and they may have an idea that will make a difference. Do everything you can to get through the next 11 weeks. Once done, this will be one for the history books. One day at a time, and avoid the things that can set off those unwanred emotions. 

These drugs are powerful antivirals, but they affect your immune system too. I had episodes of cold sores, which are the herpes virus. Had them as a kid but they went away as an adult, but treatment brought them back a few times. Once treatment was finished and things returned to normal, those sorts of things went away too. That's something you can ask your doc about. They make a topical cream, Zovirax and others that will help greatly for those periodic outbreaks. Ask if you can use that while on treatment, it may be the ticket.



__________________

Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 18
Date:
Permalink  
 

Gosh, I'm sorry you guys, I'm a bit more calm now. I have been coming along just fine, dealing with the mild side effects I started having then last night while eating at Dennys an overwhelming feeling of tiredness and fatigue hit me, I was in this slump alittle longer than the others, I have developed an annoying dry chest cough also but today I got into a slump of despair I was shaky, soooo dizzy all I wanted to do was cry. I didn't start my new cholesterol meds yet and I am drinking 4 32 oz glasses of water every day, I made me some spinach and salmon wraps that I eat for lunch.

I'm trying to be strong and I do think about the people who were/are not as fortunate as me to receive such a great gift to get their life back, I don't mean to seem ungrateful at all, I'm just so scared sometimes, I feel to much, If it hadent been for my stupid fears I probably would have worked on my anxiety a long time ago.

Taking that first dose of meds was a huge huge huge step for me.

Can someone please chime in on this? I usually get a cold sore under my nose about twice a year, usually after a cold, I woke up today with a cold sore straight from the devil himself! This thing is like 3 cold sores in 1, I look hideous! its very painful, I'm on pretty powerful antivirals, Whats up with this????

I will continue my 7pm riba this evening, thank you all sooo much!!!

 

xoxoxo

Michele



__________________

45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377

Page 1  >   Last »  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.