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Post Info TOPIC: The Unsung Heroes of HCV


Guru

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RE: The Unsung Heroes of HCV
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Long ago ... 2015, while very pre-occupied learning EVERYTHING I possibly could about my new found HCV condition, I stumbled across a whole bunch of "archived" Advocate newsletters, they were good. I will never forget the one old issue I read where there was this very almost perplexed, exhausted, lonely tone from the writer - who sounded near burnt-out but steely dedicated - asking "where is everybody, come on folks, get vocal/active, look how good HIV folk have done for themselves, speak up, do something, get involved!) Lucky so many people have stick-with-it-ness. Many of the publications/info from this group of hardworking, never-give-up folk are excellent (in so many ways). It reminds me of some of the good folk around here (Tig)!, and all mods/admins. past and present, and all of us here, who form part of this nucleus of good.†biggrin†C. †

Bimini! I remember you! Especially your kind face which I instantly recognized - I had to remind myself of your journey, I re-reviewed some of your old posts, and was amazed to find that I do not think I ever once wrote to you, although I read your posts some back then! My only excuse must have been that about the time I ever came here mid-2015, you were already well on your way, and I was still bogged and pre-occupied with myself! Nice you feel HCV was a long time ago ... your 1 year SVR must have been about Oct/or Nov 2017??

Agree Tig, we need some juicy updates from our "old" timers here (bimini and dharmabum and hsretrdr)!†biggrin†C.†



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)

Tig


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Good to hear from you, Tim! There have been so many improvements and advances in care. Itís night and day better. Iím still thankful for Interferon, Ribavirin and Vic, but also thankful that nobody else will have to experience it...

Best to you in the New Year! Hope you check in soon†smile

Tig



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

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Thanks for posting this, quite interesting document, what a long way we've all come.

Best wishes to everyone for 2018. ;)



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.† 6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

Tig


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Hi Dave,

Good to hear from you, Brother! Hard to believe all of the advances in care since we first found out we were packing around some scaly beast in our livers. Iím dealing with the same arthritis problems, but they are blending in nicely with all my age related difficulties! Life would certainly have resulted in many more of them had we not stopped the virus.†

The advocacy we encourage and strive for, is so important. Helping a friend, an educator or offering a shoulder to lean on, is what itís all about...

- itís a new day!



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

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Thanks Tig.† That was an absolutely awesome thing to read, and yes, this is an awesome forum.† Thanks to you all for showing me the ropes before and during my Harvoni ride.† I'm still dealing with reactive arthritis, but the HCV has been gone for what seems like a long time.



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Age 64 Geno 1a† Diagnosed 11/14/14 with 6.3 mill VL after 40ish years of infection.† Harvoni tx started 8/15.† SVR12 Feb 4, 2016† Last appt with specialist was told to have my gp order metabolic testing once or twice a year because his services weren't needed any longer.† Still happy dancing.



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You are too funny.† We could do that.† But, make sure you have your wits about you, 'cause these small people know how to get anything that they want.† They're ruthless, I tell 'ya!!!

Be well-

Joann



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Joann

Geno 1a† - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 -†UND at EOT†4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16

Tig


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Only if youíll explain it to my grand daughter! Maybe we can sit them down together and educate them about abstinence and theology careers! Ha, ha!



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



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Right back atcha, Tig.† I know that I was a very frightened woman when I first found this community.†

What I learned about HCV, I learned from all of you here.† You guys go where the doctors fear to tread!† So having said that, Tig, do you think you could speak with my grandson and explain to him where babies come from.† We're all chickens-

And, Happy New Year everyone!



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Joann

Geno 1a† - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 -†UND at EOT†4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16

Tig


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Time to thank all of you that continue to make our forum the best it can be! We have thousands of you to thank for being there for each other through our journey. We are just one of the support groups that have made a difference. A tip of the hat to each of them!

Unsung Heroes



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance

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