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Post Info TOPIC: Newbie here!


Guru

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RE: Newbie here!
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Hey, YAY shortstack! Glad you got started on your Mav! 

You need a signature line! biggrin Try something this for now ...

 

... "Female, age 26, Dx 8 years ago, GT1a, VL 399,260, Fibrosis score 0.7 (F0), Pre-treatment ALT ___, AST ___, Bili ___, AFP ___ . (U/S done?).

     Tx: Mavyret 12 weeks - SOT Apr 4, EOT Jun27" ...

(or, if you are on an 8 week tx?, then, your EOT date will be May 30).

 

If you have trouble figuring out how to post a sig. line for yourself, just let us know. Click on and have a look at the "sig. line instruction link" (in Tig's sig. line) for some helpful info in how to set up your sig. line up. Once you get one set up you can add and update it, how you wish to, as you go along. It is a very handy way for all of us to recall your particulars and for you to chart (in brief and at a glance) the results of your treatment.

Do try to feed yourself well enough, regular and with good healthy food. Take your meds with a meal, and do pour lots of water into you, as Tig reminds you. Try to get good rest too. It won't take too long and you will be finished with this virus forever! 

We assume you did check with the doc about when to go to the lab for your blood tests (and when the doc want to see you for appointments) what dates for things did he give you? Do you go for your first blood draw at the end of week 4?

Did you confirm that they were finished checking your HepA/B immunity levels?

About your F0, I am assuming that result was from a blood test? (not from a fibroSCAN test)? Did you have a fibroSCAN test done as well? Nor do we know yet, whether you did (or didn't) have an abdominal ultrasound done - so, did they fibroSCAN you (to help determine fibrosis levels), and did they also (additionally) "image" your abdominal organs by doing an abdominal ultrasound (U/S)? 

I am very glad you are feeling OK so far on the Mav., and so glad you got started!, and that you did not keep getting denied, or be made to wait longer - very good to get started now, get all cured up asap, sooner is always better than later. Yes, I agree!, you are very lucky to be treated nowadays with these very good new and improved modern DAA's! Hoorah! biggrin C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Do NOT fail to drink one full gallon of water per day! I’m not joking... If you don’t, you will experience fatigue, sometimes profound and headaches. Do your level best to follow that simple recommendation and you’ll be far better for it. Best of luck!

Here’s our favorite guide:  

9E34E247-AA39-44A3-BCC4-EC6C41096F27.jpeg



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Veteran Member

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...

Hi Shortstack:

I am new to this forum as well.

I am starting my Mavyret NEXT Weds the 11th.  So it looks like we will be one week apart.

It will be nice to compare notes as too how we are both doing with the treatment.  That is, if you are willing.

These guys here are so helpful and awesome.

Welcome to the forum.

Ziggy

 



__________________

52 yrs female, Northern California, DX 2007, GT1b.  Let it go for 10 years.  First Treatment:  Mavyret 8 week starting April 11th to June 5th, 2018.  Viral load was undetected after 4th week of treatment.  See Pre-Treatment Test Results in Bio.



Newbie

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So i started the mavyret wednesday and i feel really good. I dont have much of an appetite most of the day and do get a little tired and even more so if i do not drink enough water but it's nothing. So glad they improved medications over the years!!



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Guru

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Ah! I see! So that's how it went down - so, you must have really been quite surprized to get that phone call (kinda unexpectedly) from the pharmacy people!

Good they told you to contact your doc's office (about setting up the ongoing appointments/and bloodwork dates you will need through treatment, DO do that - call your doc first to make sure they are finished assessing you (your doc probably IS finished at this stage) but it is always wise to ask if everything has been done, whether there is anything else the doc needs to do/or to complete before you take your first dose. Specifically ask about whether your hep B immunity check has been finished.

I am guessing you will need to have bloods drawn at just before the end of week 4, (perhaps earlier) and then at least end of treatment (EOT). How many draws you need through through treatment and/or how soon the first blood draw occurs, will be up to the doc, but it can also depend on how long your course is. Your first blood draw might occur earlier than 4 weeks,  length of course (8 weeks or 12 weeks) may have a bearing on how soon the first blood draw gets done (and will have bearing on when your EOT blood gets drawn too, of course).

Nice that we have such effective drugs (nowadays) that can cure us in as little a 8 - 12 weeks! I too was cured in only 8 weeks! Short treatment times are appealing to many. 8 or 12 weeks and hep c will never be a concern for you ever gain!

So, you have a lot of good and lucky things going on for you, that they did not deny you, yet again, and that you were able to get the drugs sooner than later, YAY! Good you are getting good drugs. Good you are F0. Good you are young, all to your favour. 

Just be sure to check with doc before you start, in case he needs to do some more bloods before you start, and to make sure they have finisheded assessing your hep B immunity status. Sometimes certain tests have to be "current" (within 6 months) of the last test, so even though it may not be likely in your case, it could be possible you might be asked for some lab to be done before you start.

Thanks for the further details , nosey aren't I! But it all helps for our conversations.

Other than how to take your meds (with food/ same time every day), and drinking that all important LOTS of water, there isn't too much to be in the dark about! All you have to do is show up for appointments and labs! I know this has come to you kinda "all of a sudden", it will feel unnerving, but don't be unerved -THIS is a VERY good thing you are about to do! Wonderful really, best thing you could do for your future health! Dumping this nasty virus out of your life forever! Be excited instead - you are about to wop the heck out of this nasty hitchhiking foe and rid yourself of it's health harming ways! biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Hello and welcome to the forum! Congratulations on getting the good news. At your young age and with little damage having been done, your future looks very bright. It’s when you get up in years and have been packing around this disease unknowingly or deniably, when the problems tend to develop. That lovely F0 fibrosis score is great news. 

I‘ll check back later and we can chat more. I’m on my phone and old age effects your vision, especially on these little phones in the middle of the night! Don’t worry, this will be a breeze for you and before you know it, the Dragon will be history. Mavyret is the real deal, good luck!

D9C79767-7408-418B-AA17-043A8E6BE02D.jpeg



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

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Newbie

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Thank you so much. So genotype 1a, fibrosis score of .07 stage f0, viral load 399260 iu/ml as of 8/3/17. Im not sure about the immunity levels i was positive last year for hep A as well as hep c. As far as the rest i did know those but after being denied 3 times by my insurance for treatment i just figured it wasnt gonna happen and it was something i would just have to revisit when either, a) i made better money to pay for it myself or b) the hep c had gotten bad. So i literally just got a call I'd be starting mav this wednesday(tomorrow) this past saturday. So i kind of feel like I'm floating in the dark and was told to call my doctors office once i get it to set up bloodwork. When i spoke to my doctor about it in september he said 12 weeks but maybe not? 



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Hi shortstack,

Welcome here! Glad you found us and are all ready for your HCV treatment.

This is a good place to come for questions, learning, sharing of experiences or just some company. Lots of experienced (and nice helpful folk here) who will assist you where we can.

Advice? At this point (with your imminent start of Mav as soon as tomorrow), all I can really say is to pick your best time of day to take your dose (decide what time of day that will be, now - may I suggest that time be with breakfast, lunch or supper, as long as that meal is at the same time every day) and then stick with that same pill/meal time every day. Take your Mav with a meal. Strive to drink a LOT of water every day (all day long) up to a gal per day. Do those things and I am sure you will breeze through this and will soon be cured of your virus.

We had earlier members who were in the first Mav "trials", and now, many more since tthen. With Mav coming to the open market and treatments more readily available to people, we have had an increase on the site of more people who have completed Mav or are being treated with Mav, and all have or are doing well. You will too. You are in good company and you have been given a good drug treatment.

You are right, the new DAA's (like Mav) have a low side profiles, nothing like the old days and the old-time treatment drugs we have all heard about. Doing Mav should VERY tolerable for you. Drink lots of water and you might not feel a thing! We are getting good feeback from many of the Mav people here which all backs the low incidence of sides.

Here is the Mav monograph - note that it says to take your Mav with a meal. https://www.rxabbvie.com/pdf/mavyret_pi.pdf

If you have any burning questions - just fire away! We will try to help. Until then, I have questions for you ... smile

So, are you a GT1a or a GT1b? Do you know what your viral load (VL) is? Do you know what your Fscore is? Has you doc double-checked that your hep A/B immunity levels were up to snuff? Did you have an abdominal ultrasound (U/S), or a fibroscan done? Do you know what your Fscore is? Have you been prescribed a 12 week treatment or 8 weeks? Do you know what your ALT/AST/billirubin or AFP is?

Try not to be too nervous, (I know) nervousness sometimes cannot be helped, we all feel that prior to our starts, it's just the fear of the unknowns, but fear not, just know that it will work, you just got yourself some of the very best drugs ever developed on this planet!, and you will be easily cured of this virus. Tomorrow, or your "Day One", is going to be a very good day! , your lucky day!, as you were lucky to get the likes of Mav and will be cured. biggrin C.

 



-- Edited by Canuck on Wednesday 4th of April 2018 06:10:59 AM

__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Newbie

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Posts: 3
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Hey I'm completely new to this. I found this forum trying to look for some answers about how I'll be feeling once i start treatment tomorrow. I have genotype 1 and I'll be starting mavyret tomorrow once the pharmacy drops it off. I'm 26 years old and contracted hep c around 8 years ago. The insurance company seems to not want to pay for it but they are for now. I guess I'm just nervous even though I've been told the medication is nothing what it used to be. Any info or advice is much appreciated. Thanks!



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