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Post Info TOPIC: Doc visit - 18 months post TP


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Doc visit - 18 months post TP
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We're batting 1,000 here, Canuck.

I sound more worried than I am. It's just that my new doc is very thorough - appointments last an hour and then I parse through his comments for a couple of days. That's the fun part. Can't just celebrate and celebrate, eh? Gotta do my part and pay attention. It's tough to ignore all the new data that pours in after these 6 month service calls. 'specially when it's all good news.

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70 YO M, Dx 1999, 1a, cirrhosis; Pegasys/Riba Neupogen Aranesp in 2001, partial responder; PegIntron Riba 2002, partial; Phase 2 Clinical Trial Pegasys/Valopocitabine 2004, relapse at EOT; Sovaldi/Olysio 2014, SVR; HCC 2015, TACE 2016, Transplant 2016



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SS,

hm, the keys words striking out at me are ... "probably" (like maybe not very likely at all!), "if" - another big undefined maybe nothing!, "could be" which most usually gets disproven - "early" could be dead wrong, like ... as in you could be waiting decades and decades in following nothing! I know googling up on these conditions tells you a lot more, but um, aren't we getting a little ahead of ourselves here ... you might be very, VERY old before you will see the what if's and maybe's were all wrong, and that perhaps, at best, you possibly own a tad of crud, liver dust that's all! I agree with your doc, let you and happily functional liver live it up. Just walks, fun walks, not ruminating ones are called for.

So neat, we have RC coming in with good reports at 9 months, your 18 month miracle, and now Boxers brand new one!  A-maz-ing! smile



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Hi Observer 

I still have the book. 

 



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70 YO M, Dx 1999, 1a, cirrhosis; Pegasys/Riba Neupogen Aranesp in 2001, partial responder; PegIntron Riba 2002, partial; Phase 2 Clinical Trial Pegasys/Valopocitabine 2004, relapse at EOT; Sovaldi/Olysio 2014, SVR; HCC 2015, TACE 2016, Transplant 2016



Guru

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sailing shoes, i love that quote from ram dass...... indeed "be here now" ; you have a great outlook. it's nice that you have your doggy to walk to get you moving



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Great results and great attitude.

Be here now was a pivitol book for my siblings and me. smile

 



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Congrats on your fabulous labs. I hope to be following in yours and RC's footsteps in 9 and 18 months. I know it is easy to say not to stress about your glitch...but I really believe stress is our worst enemy or I prefer living in denial :)
Boxers

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65 yo female

dx. 1996

TX with interferon/riba 2001..failed

Uncompromised 2015

TX with Harvoni  2015..virus undet.

Meld 14 7/2017  TIPS 1/2017

 

TP 5/12/18 



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I tell ya, RC, the walking ain't easy sometimes. Old knees and old legs. And gouty feet. But, I have one of those old Schwinn Airdyne stationary bikes. It will often loosen things up enough to walk.

I expect, RC, you'll be passing me somewhere down the road ... once you get your motor running.

Meanwhile, like Ram Das said in the 60's, "Be Here Now." Its a miracle we're able to do that.



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70 YO M, Dx 1999, 1a, cirrhosis; Pegasys/Riba Neupogen Aranesp in 2001, partial responder; PegIntron Riba 2002, partial; Phase 2 Clinical Trial Pegasys/Valopocitabine 2004, relapse at EOT; Sovaldi/Olysio 2014, SVR; HCC 2015, TACE 2016, Transplant 2016



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WoW SS, You have such a great outlook on your Transplant and your Life. After what you have been through and at 18 months post you are the tail lights I will follow in the dark!! Showing us the way!!   I dont feel 20 myself, not even 21-   62 going on 80 perhaps?  I will be in deep thought often with my higher power discussing your liver and healing. I just had my 9 month check up and everything is good. I just wish I would have kept my body moving in early recovery, I am so locked up! But all in all Im ok and things will get better.    RC



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 M-61 (3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017) On my way to SVR.    SVR-12. 3-13-18

Tig


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That’s fabulous! I agree with your doc, live life and have fun. For now, your test results are stellar and I have to believe they will stay that way. You were given a gift and I know you’ll take care of it. Even if the obstruction worsened, I want to believe there are options available before retransplantation would be required. My recommendation? Dispense with those thoughts, continue your recovery and enjoy every day! 

PS: I would be happy with 40, ha! wink



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I had my 18 month doctor visit this morning - With my hepatologist instead of transplant surgeon.  Everything is good with a couple of wrinkles.  First, here's my labs:

Tacrolimus      5.7

AST               17

ALT                10

Total Bilirubin   0.9

Albumin          4.4

Creatinine       1.1

Platelets        169

Reds/Whites/blood chemistry, calcium and minerals, are all in line and unremarkable.

 

However, a new thingy was noted on the MRI report that I did not notice before, but the doc did:  

     " .... T1 hyperintensity, probably early cast at the biliary confluence."  Here's the link for BCS - Biliary Cast Syndrome:

http://www.journalmc.org/index.php/JMC/article/view/2467/1828

Layman terms, it's a buildup of bile-crud at the confluence of the left and right biliary tubes in the liver, where they splt.  Could be the result of the donor liver being without blood for a period of time.  It shows up in one out of six liver transplants.  Difficult to treat.  If it grows, they will use a catheter and balloon to clean it up.  If that is unsuccessful, possible re-transplant.  

Nothing to do but watch it.  First sign will be a change in AST/ALT.  So monthly labs and 6 month MRIs will continue.   

That said, the doc said I'm doing very well, enjoy the gift, and go live a life.  He says, with a twinkle, "What, you were maybe expecting to come out of this feeling like a 20 year old?"

I was thinking maybe a 21 year old - certainly not 20.smile

I'm going to take my doggie for a walk in the park and think about all this.  lovin life

 



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70 YO M, Dx 1999, 1a, cirrhosis; Pegasys/Riba Neupogen Aranesp in 2001, partial responder; PegIntron Riba 2002, partial; Phase 2 Clinical Trial Pegasys/Valopocitabine 2004, relapse at EOT; Sovaldi/Olysio 2014, SVR; HCC 2015, TACE 2016, Transplant 2016

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