Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: New here, will be starting treatment soon and terrified.


Newbie

Status: Offline
Posts: 3
Date:
RE: New here, will be starting treatment soon and terrified.
Permalink  
 


Thank you all SO much for your kind and helpful words. It comforts me more than you know ! Oh and Tig, your photo made me smile, I WILL remember the water I promise! I'll keep you all posted, and again, thank you all !!

__________________


Guru

Status: Offline
Posts: 715
Date:
Permalink  
 

yep, try to think about the water as being part of the treatment



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


Admin

Status: Offline
Posts: 8597
Date:
Permalink  
 

Listen to these wise folks! Here’s your pictorial guide

 

 



Attachments
__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 130
Date:
Permalink  
 

We are not kidding about the water. Fill a gallon jug and make sure you drink a full gallon of water a day when you are taking your Hep C medication. We all have learned from experience that the gallon of water a day is key to minimizing side effects. This is one area where our advice may differ from that of your treating physician.



__________________

Male, 65, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.



Veteran Member

Status: Offline
Posts: 83
Date:
Permalink  
 

Welcome lilbrownie,You couldn't have found a better place.I waited 18 years for the new DAA's but still had a lot of anxiety about treatment.I still work so I didn't know how TX would effect my job.What if I can't work?What about side effects?What if,what if,what if.I was making myself nuts.My Doc prescribed lorazapam.It really didn't do much for me.The thing that really carries me through are the good people on this forum.The good folks here have celebrated my highs and carried me through my lows.You have found a brotherhood(or sisterhood) if you will.I started Mavyret 11 1/2 weeks ago,3 days to go Yeaaaaa.Take it 1 day at a time.You can do this.After you start treatment and you get your first bloodwork back and you see that word UNDETECTED! It's a feeling you can't put into words.And, in case you havn't heard.DRINK LOTS AND LOTS OF WATER.  All Aboard.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018



Senior Member

Status: Offline
Posts: 329
Date:
Permalink  
 

Hey Lil! Glad youre here. Drink a full gallon of water each day, get as much sleep as you need even if its 12 hours a day, and try to meditate if you can. Let us know any and all questions you may have. Please dont hesirate to bring us your questions and concerns.



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Senior Member

Status: Offline
Posts: 192
Date:
Permalink  
 

Welcome lilbrownie!! You found the right place as you have most likely read and realized already. We are a great support group here, plus many folks that are knowledgeable on HepC and related illnesses. You will hear a lot about drinking plenty of water on a daily basis once you start your treatment. We are here to help -- smile

ps 



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks and 6 months!

Club Zero Member.

PoloSilver



Guru

Status: Offline
Posts: 974
Date:
Permalink  
 

Greetings Lil!

I understand having fear about the unknown, that is enough to really get one going down the scary road in our minds..I do it too.  Hoodie and I try to meditate whenever possible, We've found that it really is a stress reliever. (check out you tube there are tons to choose from, start short though 2 to 5 minutes) One of the things that used to make me panic all the time was living in the next moment instead of this one right now. When I could break from that I started to feel better, so one of my favorite is active listening...just sitting and listening to the sounds around me, without putting too much analysis in what is making the sound, another one is Body scan)

Personally I wouldn't add another drug to the cocktail if you are getting treatment. But your hepatologist should know if it is safe to add. I wish you the very best on your healing journey, smile You got this!

BB, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Senior Member

Status: Offline
Posts: 200
Date:
Permalink  
 

Hi lilbrownie, Welcome  to the forum and your new HepC free life ahead. You will find plenty of people to help you in your journey around here.  Follow your instincts and try not to stress!



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Moderator

Status: Offline
Posts: 475
Date:
Permalink  
 

Yeah, that's right, Canuck!!

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 715
Date:
Permalink  
 

hi lilbrownie, welcome to the new day of daa's

i too used to enjoy the drugs and now fear them , seems a bit odd but that's how it is.

i'm so happy you found us here and are ready to get rid of the hepC. 

we are all here for you

5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



Guru

Status: Offline
Posts: 2956
Date:
Permalink  
 

Hi lilbrownie,

Welcome here.

Good for you to get things underway. You can make it right now. Your long awaited treatment. You will not be sorry you decided to dump this virus.

Work ahead, but it won't be bad - you WILL get through this, and be so much better for it.

Always listen to your instincts - you said .... "I am more anxious about being on an SSRI than any hepC meds ", heed this, do not get feeling "stuck"in a rx war between your docs, just remember YOU are also party to the decision, YOU DO have the deciding say-so about whether it is wise/best or necessary to take SSRI's now, in future, or ever.

Just see how things play out as far as the "consensus" about you starting a new drug at the same time that you would be getting rid of your HCV, decide how you feel about doing so, and go from there. And keep in mind, any decision can be changed in future should you all decide to do so.

I have found, that just the fact of oneself taking control of a situ, such as making the decision to go ahead and get rid of this HCV, the taking of this strong position and stance in making this decision, helps greatly in carrying us through to the end with strength and conviction, even when we have fears and doubts, the good gleaned will far outweigh any bad we are afraid of. You will find no shortage of folk around here who will remind you that what you have decided to do is correct and good. There is only one direction to go, forward, the direction you are already going in!

Be happy in your decision, be hopeful and brave - it will turn out good! You'll see.

If you have not had a fibroscan done, or, a recent abdominal ultrasound done, ask about getting those done as well (aside from getting the blood work you mentioned), also make sure they have tested and assessed your immunity levels for HepA/B and whether you might need an influenza shot and other immunization.

Do you know what GT you are, or what drug treatment choiced the doc has been thinking about for you (you mentioned Mav or harvoni)?

A signature line will be helpful once you can do one up. 

Welcome again. Glad you found us and this place. It is a good place to find and come to! C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 130
Date:
Permalink  
 

Hi lilbrownie,

A big welcome to the forum! You are in the right place. Before I was treated earlier this year my Hep C was progressing more rapidly and I was having a terrible problem with anxiety which my psychiatrist handled. I had to take Xanax for panic attacks and the problem was severe to the point I was put on Valium daily. Since the Hep C was the major stressor in my life once I took Epclusa for three months and was cured I have been able to wean off the tranquilizers.

I almost never have a panic attack anymore but do have Xanax prescribed if I do. I had to wait until I was covered by Medicare to afford treatment or I would have gotten Epclusa a year ago. I do have a problem with depression and anxiety so have been taking Remeron for years. Not familiar with Lexapro but I agree the fewer drugs the better if you can get by with an occasional Xanax.

You are starting treatment at the best possible time because the new direct acting antivirals have a very high success rate. We need to know which one of the six genotypes of HCV you have and other test results like liver enzymes and viral load to let you have a second opinion (from the perspective of patients who have been cured) on what the best options for you are. The fact that you were F0 five years ago is good news, do you know if your treating physician is going to order a FibroScan to non-invasively check your F score or is ordering a FibroSure blood test?

I can tell you my gastroenterologist mainly prescribes Mavyret and Epclusa now rather than Harvoni. Great to have you here and waiting for you to be able to provide those test results.



__________________

Male, 65, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.



Moderator

Status: Offline
Posts: 475
Date:
Permalink  
 

Welcome lilbrownie.  Yes, this place has been of great help too many.  It's hard for anybody who hasn't been through this to understand all of the personal nuances and variations.

I bet you will cut your anxiety way down when you get rid of this beastly virus. It's been nagging you for a long time.  Do your doctors consult with one another?  It seems that if Xanax has things under control that you may not need the Lexapro.  Why not wait to see if it is needed before doling it out?  I don't even play a doctor on TV but personally, I alway go with the least treatment necessary.  There will probably be others here who can shed more light, and more research, on the matter.

The main thing is that you have decided to start treatment!!!!! Good on you. Let's get your doctors talking with one another.  The gastro will probably have the final word.

Please fill out a signature line and give us more information to support any hep we may give.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

Status: Offline
Posts: 8597
Date:
Permalink  
 

Hello Anne,

Welcome to the forum and your new group of friends! You’re very welcome here and after you get to talk with these good people, your anxiety will hopefully begin to melt away. We all know where your head is right now and I my best advice is to just take a deep breath and do your best to relax.... You’ve made a great decision and treatment now is a piece of cake. It’s short and extremely effective. Add to that the low side effects and you’ll be virus free in no time. I’m sure of it!

The anxiety is real and if it’s the thought of treatment causing it, let it go. Let your mind find that happy place. We will do our best to help you secure the confidence you need to sail through this, without fear of failure or judgement. You see, we know you’re going to be successful.

Get onboard the treatment train, first class accommodation awaits you! You’re going to do great. When you have the information on your tests, share them in your signature line. Knowing your genotype, viral load and liver function tests, help us when replying. You can see how we set ours up. There’s a link to instructions in mine if you need help. I’m glad you’re here. If you need anything, just holler!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

Signature Line Set Up/Abbreviations   Payment Assistance

 



Newbie

Status: Offline
Posts: 3
Date:
Permalink  
 

Hi everyone, I'm so glad I found this site.

I was diagnosed in 2007,  in 2013 I had a biopsy that showed F0 damage, only slight inflammation.  Since I suffer from Panic Disorder and a drug phobia,  I decided to forgo treatment, which at that time was Interferon and ribo.

It is ironic that I used to misuse drugs, and now I have a phobia hmm    I have come to the conclusion that living with HepC is actually adding to my anxiety and panic, as it is ALWAYS in the back of my mind.  I just want it gone.  I see commercials on the television, and finally realize I don't have to do Interferon, and why not give this a try. 

 

My therapist wants me to go on Lexapro prior to treatment,  for my anxiety,  but my primary care physician adamantly disagrees.  He notes that my panic is well under control with Xanax, and does not want me to have even more drugs to be anxious of, on top of whatever treatment option my Gastro discides on. (I assume Mavret or Harvoni).   It is kind of disconcerting to be in the middle of their disagreement, although he is right.  I am more anxious about being on an SSRI than any hepC meds.

At any rate, I go in for bloodwork next week, my insurance company has approved it.  I will be on this site regularly for the foreseeable future, so.................Hello!



__________________
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.