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Post Info TOPIC: Health Updates - Among Friends


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G'day Tig,yes seems like fires are everywhere ATM ,I'm about 10 miles from nearest fire,the smoke is a problem and staying indoors with windows doors closed plus temp is in90s ,seems rediculous trying to quit cigarettes with so much smoke in the air ,IV been getting a few stabbing type pains lately almost like a cramp or muscle spasm only lasts few minutes seems to happen if reaching or stretching or drying yourself after shower, apparently asthmatics sometimes get it or coughing too much I read somewhere, anyway Tig take care of yourself ,your not alone on this crazy trip ,,Greg made some interesting points about socks ,I don't like much ok in winter if comfortable don't like if tight and leave a ring around your ankle cutting circulation,IV been trying to elevate legs couple times day to help circulation .



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Hi ya'll,

Thanks again for all the great responses. I'm surprised at how fast it all occurred. I haven't had anything like this happen in the past, outside of the constant discomfort from the back and hips. The numbness, especially being so uneven, is perplexing. How the heck does just half of each leg and foot/toes go dead and the other half is just fine? Weird. It has to be the lower back that's firing it up, but honestly, I've been in the medical field most of my life and never heard of this half and half stuff before.

Hey Obs, the feeling of a lumpy sock comes with or without socks or shoes, but really is noticeable when I do wear them. Strange feeling. Kind of like that shock or surprise when you step on a wet hairball from the cat. One minute you're motoring around in good shape and then you take a step and you know right away, there's something under your foot! It's not a painful thing, just annoying and startling. I'm about as used to it as I ever want to be and hope for improvement, knowing it probably isn't coming. The lumpy feeling is always under the heel and on the numb half. Very strange indeed!

Hey Harry, I've been watching the news about your fires and it doesn't look very healthy. Sorry you're having to deal with it. We've had our own fires and California is in a bad way because of them. The speed they can obtain is mind blowing! Hopefully we'll all get a break from them soon. With your lung issues, do your best to avoid the smoke. Hard to do when it's coming from all angles.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Yikes Tig!

how annoying and scary. I agree with Cheddy, it sounds way more nervous system related than arthritis.... specially with your history of problems in/from your back.

and ummmm isnt arthritis defined as swelling and pain in joints and I doubt you magically have joints on your calves. If it was just the toes and they were swollen and painful Id agree with your Dr but its numb...big difference ! Btw..that feeling with your sock that would drive me nuts ...I rarely wear socks 


Acupuncture might be worth a try, massage of course, even some qigong might be worth the effort 

Take care Tig

 



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Tig ,sounds same as I get must be arthritis or nerve pain ,ok so how can it be fixed,that always slows them down when asked !we have fires over hear atm ,plus hot days doesn't seem to help numbness,will keep trying to find out what's going on ,my dr said to me oh you smoked for yrs can't expect not to have problems ,said stress test could show circulation problem maybe it could,I'm stressing about the heart stress test ,lol then diabetes can be passed on my mother got when in 60s,so sick of getting tested ,will let you know if I hear of any thing that may help your numbness,I often get stabbing pains, as well ,anyway take care of yourself will let you know if I hear anything ,you've probably heard before ,reckon we've done ok so far still on planet.



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Thanks for the input everyone. It’s a strange sensation and hard to ignore on a good day! I’m leaning toward a combination of old HCV damage, compounded by my already damaged spine. I hate to admit it but, something did something, lol! wink I know Harry has had some issues with numbness, maybe he’ll check in.

I realize it’s a real problem for those of us that were infected for decades and experienced Interferon and Riba, then the first NS3-4’s, Victrelis and Telapravir. Remember those beauties? How could we ever forget?!? 



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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sorry to say but it could be a blood clot..happened to a boss of mine....better be safe and go to hospital :(



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Not an expert by any means but I agree with Cheddy. Never had the nerve thing but several years ago I stopped wearing socks that cinch tightly around my calfs, fit loosely. Made sense that maybe good thing for circulation. I always wear loose slip on shoes too. Runners with lases not tight.

After treatment had hard time with itchy spaces between my toes, drove me nuts. It wasn't athletes foot. Some of the itchy spots had little scabs...scabs weren't from me scratching the areas and my thought was they were a consequence of my hep c treatment, even though it was years after treatment. Anyways doctor gave me a steroid cream I think or did I get it over the counter at the drug store? lol memory is gone but it was 1% Hydrocortisone- Anti itch cream plus moisturizer. Did the trick for the itch after most of a 30 gram (1 ounce) tube.

I hope this helps friend. Cheers.



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Hey Tig!  Well that sucks.  That sounds like nerve pain to me.  It may be time to try another route, like acupuncture, chiro, or a really good PT. As I understand arthritis, that's usually pain and not numbness (?). At any rate, you want to get the flow back to those nerves.  Does walking, stretching, massage make it better or worse?

I hate to see this happen to you. You are much appreciated around here and we want you well. Seriously.



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Okay, I've got to ask for your opinion, whomever has one! Over the last two weeks, aside from the increasing pain in my neck and lower back, another problem has developed. It started with my left leg, sharp, knifing pain in the left hip socket, radiating down into my left quadracep and knee. Saw the doc, he did X Rays and said arthritis. No sh*t Sherlock, I didn't need to come here to know that! All he wants to do is more tests on top of more tests. The deductibles are ridiculous. I've had more MRI's and X Rays than most people will have in 10 lifetimes. Seems to me they are simply testing for something to do. I'm really starting to get concerned about all of the radiation I've had passed through my body.

Anyway, over the last 2-3 weeks, I developed bad numbness in my left calf and foot. I mean dead numb! The odd thing and what brings me to ask for an opinion, is the fact that it only effects the outside half of my leg, not the inside, just the outside aspect of the calf and foot. My little toe and the one next to it are dead, the other three and the inside of my foot is just fine. I've never heard of neuralgia just affecting part of the leg and foot. So I'm a bit perplexed, because now the exact same thing has happened to my right leg and foot! Exact same thing. When I put my shoes and socks on, it feels like my socks are in a big wad under my foot. I have taken my shoes and socks off dozens of times now, because I'm convinced there must be something there, only to find out there's nothing there. Talk about irritating! The worst is the spaces between those numb toes, itch like hell. Nothing there to see.

Before I make another trip to the doctor, I thought I'd ask my good friends here what they think and if this has ever happened to you. Opinions welcome! Thanks.

 



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Oh, don't even get me started on the reckless behavior I enjoyed back them. I'm no angel now. I think I still have a pirate's heart but I really love being healthy, mostly for vitality's sake.  

I am sooo glad your heart is good, Big (as if we didn't know that metaphorically) but am concerned about the rest.  Please promise to do your best. We love you here and you are needed by many.

xoxoxo Ched



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UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Tig,so true about being young an bullet proof ,ha ha. The government over here has decided to increase price of cigarettes packet of camel or marlbora at least $55.00 $60.00 or a 25gram of rolling tobacco$40.00, plus they sell them all in yummy dark brown packets no brands  on packets that you can see easily only health warnings with gross pictures on them the gov must be making a heap on taxes, don't know if has made any difference to amount of people smoking.vaping nicotine is illegal over here as well, I remember the first car I had my stepfather who I always thought was a crook lined me up to get a mini van off one of his sleazy friends and I could pay it off about $700.00 in those days was a fair bit of money Trouble is it wasn't till I signed all the papers that I realised it was an ex pest control vanhad the most disgusting smells probley DDT and what ever poisons they were allowed to use in those days ,was impossible to get rid of nasty odours even going through car washes.I had ccar for about 6months before it rusted away, I often wonder what kind of poisons we breathed in driving and sleeping in this dam pest control van,it wouldn't be allowed on the road these days.was kinda glad to see the end of it,but we weren't really clued up on dangers of poisons in those days,just wanted to be on the road and maybe go to the drve in now an again.take care have nice weekend



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tig, that is good news about your heart. i do wish they could help you with all the other problems



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

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Hey Harry,

I'm rather fond of that old saying as well, "what doesn't kill you, makes you stronger". It has certainly applied to me personally on more than one occasion! The truth of that though, in retrospect, makes me believe that saying applied better when we were in our 20's and 30's, back when we all felt like we were bullet proof. All those stupid, reckless and fun things have now come home to roost! Ha, ha! I did smoke, a lot, but quit back in 1990, so I probably had a smoking history of 1-2 packs of Camel Filters for 20 years, thereabouts. I have never had trouble before, XRays were always good, no emphysema, asthma, but I have suffered with bronchitis over the years and a few bouts of pneumonia. Nothing more than most people. I guess it's a cumulative thing. I worked in the welding field for decades and breathed in a lot of fumes. Lots of chemical exposure, unintended consequences of making a living in an industrial world. I also have an old brass Zippo that I got decades ago in the Navy. No inscription on it, but I still find myself using Brasso polish on it, those old Navy habits die hard.

Obs,

Good grief! That soy allergy is terrible. I never imagined how many things they use that stuff in. I envision you in one of the bubble rooms, but then we find out they made the bubble out of a soy product! Yikes!! I'm so glad you found out quickly and got those sheets replaced. Sounds like you're snoozing a whole lot better, hooray for that.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hi Tig ,I bought a Zippo cigarette lighter in Viet Nam years ago never worked very well it was supposed to be relic from Viet Nam war ???don't know about that !anyway had engraved on it "what doesn't kill you makes you stronger''always thought that was good saying even if lighter didn't work very well !! Must be a relief hearing heart ECT ok,I have to see heart specialist on 18th november,kinda makes sense that might be a blockage or something going on,I've been getting sooo tired lately have trouble keeping eyes open often also numb toes and fingers sometimesmore I think about it more sense it makes especially stuffed lungs as well,I know he is going to freak out when I tell him I smoked roll your owns for so many years oh well Did you ever smoke? It's like more I stress about what there going to find the more I feel like a cigarette !!take care Harry.



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Hi Harry, yes soy is used in sooooooooooooo many things....from dog collars to automotive wiring casings.disbelief 

Because of my allergies I have researched it a lot and I am horrified at the amount of products it is in....  I dont touch newspapers because of the soy based ink but I never thought about the dyes in  sheets (and clothes probably too)

I have always tried to eat organic foods when I can access them...  my children were never allowed to eat at McDonalds ....and used to whine that they wanted to eat like normal kids do....now they thank me for protecting them from the scourge of big unscrupulous agriculture. 

People still complain to me about the higher cost of organic foods  ....  I always tell them illness costs more. 

Monsanto ...grrrrrrrrrrrrrrrrrrrrrrrrrrrrr Dont get me started on them furious

 

Tig your heart IS good   Sorry about the hip, lungs and spine

Iris  

 

Good news for me from all my sheet debacle ...I got white organic cotton sheets and have been sleeping really well, my arthritis and all my other symptoms that were triggered have calmed right down. I realized Ive always slept (or tried to) on coloured sheets and they probably all have soy dye so I have been always exposing myself to 8 hours a night of soy for ever. No wonder I have had hives for 5 years and insomnia etc... so it may be a really good discovery I have made smile  Thanks for caring friends...

 



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Tig


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I grew up in Monsanto country, the Pacific Northwest. They are responsible for poisoning the aquifer to the city. Just like so many, they promised all the agricultural communities of the safety of their products. The poison leeched into the water supply, over decades and what was once a pristine aquafer, is now another underground dumping ground. Like so many of these medications (poisons), they aren't studied long enough to really know. Think about the 50's and 60's, they used to think LSD was the answer to mental illness, ha!

I got the results of my recent tests. Looks like my heart is doing okay, no major blockages or plaque deposits. Yeah for that! The lungs are shot, spine is bad and arthritis in my left hip is obvious. Their answer? We need another MRI, more XRays, maybe an enema filled with invoices. No wonder people get tired of this crap...

Forgive me, I'm in a bit of a sour mood. no



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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BOO HISS on Monsanto. and Disneyland tried to make it look so wonderfulfurious



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Hi Harry here I was recently reading where in regards to allergies that soy is in a lot of things besides sauce,unfortunately Monsanto  chemical company the makers of roundup pesticde ,also have a monopoly on soy, so because the seeds are gen modified they can use as much round up to clear the ground and the soy is not effected not sure what it does to allergy sufferers but it didn't sound very natural,in fact round up is banned in a lot of countries ,unfortunately not Australia,anyone interested look up Monsanto roundup cheers



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Hi Tig ,yeah well looks like I'm gonna learn about statins ECT,went to drs this morning ,said keep up the pumicort suppose to help breathing not aggravate it takes a while to kick inmeanwhile i have been given appointment to see if my heart is working ok,as that may cause numbness toes fingers ,also could be reason IV been getting shortness of breath lately IV been making up excuses hot weather smoke from fires ECT, the thought of having stents or surgery worries me a bit, but as my dr said you don't smoke for years and expect no damage !!plus the hcv and lifestyle that went with it anyway be good to find out why I'm so lazy lately ,keep up good work 5, still trying the excercises ob think they help with my breathing take care all. From Harry



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aaawwweee obs cry

as a fellow allergy sufferer my heart goes out to you. i am not even close to being that allergic but know the pain.

that sounds like a sad awful experience. i'm glad you tracked down the soy and hope you can return your allergy sheets.... you shouldn't have to keep them if they give you hives.

since i started on the azelastine antihistamine spray all my allergies seem to be better. i got the lowest dose so can use more or less as needed.

i hope you do have an easy, restful sleep tonite



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Heres my latest frustrating situation...thanks to my decades of HCV, I am super allergic to soy...in any form from candles to lecithin...well....its getting cold here in rainy Vancouver so I got some nice plush flannel sheets...dark blue...washed them and then last night we put them on the bed

 Well...I felt restless and uncomfortable as soon as I got in bed and at 1 am my legs started having burning pain..my hives on my back activated and were super itchy ...my hands and knee got very swollen and arthritic ...my pn was painful...my sciatica started up . I couldnt get comfortable and I tossed and turned and couldnt sleep a wink all night...  

so when I got out of bed I started googling and low and behold...soy is in the dyes that they use in sheets...they were saying it like its a good natural product not realizing that some of us are gravely affected by even touching it...

its not on any labeling disbelief

i ran into this issue many moons ago when I was using a natural laundry detergent and first got hives which at the time I thought were bug bites so I washed my sheets and clothes almost everyday until I started thinking....laundry soap from plant based...hmmmmmmm wonder what plant...furious the company confirmed it was 60%soy.

anyhoo I went and bought another set of sheets not flannel and just organic cotton and white

hope I sleep tonight



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If you are stopping steroids I think you have to wean down and not do cold turkey... I dont know the medical wisdom behind this rule but I believe it is important to do..i do not know about inhaled steroids but I assume if they say to wean down, it is for a reason...

That being said...I was put on prednisone a number of years back...it was for a horrible rash ...I had to slowly build the number of pills to get up to the amount my Dr wanted me on...I took  them for almost a month, then I suddenly realized they were causing me very serious manic episodes and sleep problems (my health/life was such a mysterious mess it took me a while to pinpoint the cause) .....I did quit cold turkey and did not suffer any problems from doing so.

Our livers affect our immune system so having had a damaged liver for umpteen years is going to affect your immune system 



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Having bit of trouble signing in ,think ok now

 I forgot my pass word I can't keep up with all the names and numbers these dsys bank numbers phone numbers ECT must be the brain fog maybe ,so glad your going ok 5,Tig hope your going ok I'm still doing exercises  on,IV recently been put on steroid inhaler called pulmicort turbohaler with budesonide in it for mage onsdt asthma dr prescribed it because he said I'm using my Ventolin too much any way I told him I was using it more becourse smoke from nearby fires were giving me more asthma issues,anyway I read where it said. line somewhere that if youhave had liver issues budesonide should be avoided I'm on twice a day also read that it can weaken immune system an cause serious infections,!has anyone else heard of this,as I really don't want infections after being infected for so darn long,my dr just doesn't seem to understand or care that much it seems any thoughts really appreciated ,they also say don't stop taking steroid med strait away ???IV only been taking 5 weeks I don't think it would hurt if I stopped it,seem to be really putting on weight Edema around stomach I really don't feel right with it,maybe having liver problems for so long effects me.any clues anyone.hope this mess gets through .thanks Harry



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Yay 5! Glad it sounds like all is going OK, and will be OK. : )  C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

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hi obs,

oh the pain is from the incisions, they are healing but they are still sore. when i move in certain ways it does hurt.....not a lot of pain. just enough to remember i had surgery.

i don't want the ultrasound till the wounds heal up but do want to know what they think.

the surgery went well , i just heal slow from surgeries. the same happened when i had other surgeries. i do well but it's only two weeks after the weekend.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Oh good 5

it will be interesting to have the notes to look over

when is your ultrasound booked for...?

i hope they dont make you wait too long if youre having pain.



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yay, the GI office will get the notes to review so i can see them or get copies there or call the surgery office later. 

for now i'm not doing the abdominal ultrasound cos my abdomen is too sore.... but it will be fun to have no gallbladder on the next one



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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yea, for some reason i felt awkward pressing him..... like i didn't want to put him on the spot since he was not there to diagnose my liver. 

i'm just going with "looked pretty good" and keep doing what i've been doing to take care of myself.

i emailed the GI spec. and asked them if they were gonna get reports and that i think it's a good idea.

i'll have to call the surgeons office tomorrow and maybe ask for medical records and see if i can do it that way....

i was still actually kind of in "stunned" mode when i went for post op..... still mesmerized by the whole thing and that it turned out so well and i didn't want to ruin the moment by investigating too much.

so here's hoping that  the surgery notes say something interesting.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Id sure want to know how your liver looked when they were in there... 

if you can decipher the report and they will send it to you...Id say for sure ask

Do you have a follow up apt booked with your GI Dr so you could go over it with him/her?

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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4 years.... successful dragon slayer 



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hahhaahaa, well i made it thru the day with the buns in the house and i didn't have even a bite

hey guys, what do you think.... should i ask the surgeons office for any reports they have? or have them sent to my GI dr? just wondering if there is anything in them that might be useful to me to have.

or will they auto send them since the GI spec. did refer me to them..... 

i'll do the same with the hospital i think.

i feel weird doing this but it does give me something to think about.

thanks for input friends.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5  

         



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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hahahaha, just realized we wrote cinnamon buMs..hahahahaha, that's where it will go if i eat more



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Ohhh Canuck      nice to see you sweetheart 

 

5...cinnamon bums are my favourite!!!!! I make an ooey gooey mixture of butter, brown sugar and of course ...maple syrup (being Canadian its a staple in my house)

I do my second proofing with them sitting in it..... all filled and rolled and almost ready to bake...then after I bake em I flip them onto a plate and the goo drips down the sides and hardens a bit...sooo yummmm  I wish I could make some for you  

Im so glad you could digest your cinnamon bun and are not going back to work this month...

pamper yourself and continue to heal 



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tx Holkira pak/moderiba 12 weeks

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oh oh, no problems with the cinnamon roll , so now i have to be careful not to eat all day every day

back to normal tomorrow , but what a joy that cinnamon bum was



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5-1, so sorry to hear you had a gall bladder operation. Sounds like you are recovering. BUT it's still tough to have another health incident. Glad you enjoyed your cinnamon roll. That sure sounds good to me. 

'



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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

8/19 (EOT): NO HCV DETECTED!!



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well it's all good news at my post op.

the gallbladder was inflamed so it was the right thing to do. i even said i feel better so it must have been making things worse for me and am thankful i had it out...

he said my liver actually looked pretty good , not sure if he meant "for someone with fibrosis" or in general. but i'm going with "it looked pretty good".

i'm off till the end of the month so i don't have to strain in pain at the job

i ate some cinnamon roll so we'll see how that floats.... since it's more like bread it should be ok. pumpkin cake was harder to digest.

and i got new windshield wipers today too! 

now to relax and realize that i am stress free for a cpl weeks to heal and enjoy easy stuff

i wish good news for all of you friends

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

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There you are, Chuck! We’ll be right here, with bells on. When you hear us ringing, it means the party has started! Thanks for checking in... smile



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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no worries C ;

it's good to see you socialize a little bit. take care of your wonderful selfie



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hey, Hi everybody! 

Sorry for being MIA - just happens sometimes (shrugs). I have been peeking in (off-line) quite regular, and reading and checking up on everyone, being concerned or celebrating right along with you (where appropriate, given your circumstances!) - and, as usual, i have been tempted to write scads and scads, but ... just have not been able to, and/or made a judicious choice not to, as i have been  - PRE-occupied! ... shat happens ya know - and, I have been having to spending some time doing shat stuff of late. Oh well, shat stuff interfering with my communication style should not last, bear with me please! Not to worry - "aw'll bay bach" (like they say). Boo to too much cholesterol, yay for GB-light 5. Wish i could respond in full to all the posts I have been seeing of late. I'll try to get back in the "posting" saddle (pun intended)  as soon as I can.  ; )  C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

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I’m happy to hear you’re doing so well, 5! It’s good news and I know you’re taking your recovery period seriously. That’s what it’s all about! Keep doing what you’re doing, it’s working for ya.

WOOHOO!!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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your thanks giving sounds wonderful obs, happy thanksgiving

yea, i was pushing my luck for sure

i can eat my low sugar organic grape jam with anything so that will have to do for now... and oatmeal with sweet potato.

def am back on the lean cuisine now , lighter for now ..... home made chicken broth is my best friend along with low sodium breads and that jam .

i felt much better today so tomorrow i should be back to where i was before the fun fest. 

but if i'm a little bloated the doc might make sure i get the time off i think i need , not gonna stuff myself before the appt tho.



-- Edited by 5-1-18 on Monday 14th of October 2019 06:20:33 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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It is a good  idea to re-introduce previously problematic foods one at a time so you can read your bodys reaction (or hopefully lack of reaction)... 

I have found if I eat processed or manufactured foods (like cakes) I will react to them but if I bake stuff myself ...the only problem I have is overconsumption. 

If you are craving sweet and you know you can digest oatmeal...perhaps make some oatmeal cookies.

im glad youre getting out and about 5, and Im glad youre letting others help you with lifting and carrying.

 

We had our thanksgiving dinner tonight..all our children came and we had a wonderful time 

 

 



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hhahahaha,

i had a boiled chicken sandwhich with the lettuce. 

after that i ate the pumpkin cake

since my stomach is still swollen anyway, i think that was just too much for my digestion.

i can eat otameal and babyfood sweet potato but not the harder to digest stuff yet i guess.... gonna have chicken without lettuce today... maybe in a few days.

and no cake for a week or so cry



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Okay 5, I’m concerned about something. Other than being thrilled about your continued improvement, I’m worried about your diet. Did you actually say you ate Lettuce and Pumpkin Spice cake? Please say they were on different plates? Ha, ha!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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i am feeling better now so at least i know i can recover from test foods ; so it was worth it to get a bit of lettuce and pumpkin cake, but gonna put the cake on the back burner and try lettuce again for sunday dinner.  fingers crossed for the lovely lettuce

and sneezing is the worst, at least i didn't have any sneezes the first few days... i got lucky there.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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day 5 i got out of the house and drove to the smaall strip mall. made some returns and got some groceries. the checker loaded my basket and i unloaded each little bag , hubby hauled it into the house

today i added lettuce and half a mini pumkin bundt cake.... i think it was too much too soon cos i'm bloated.....i hope it's not the lettuce :( . i ate some shredded chicken too. 

i will go back to a milder diet and see how it goes. maybe i just ate too much at one time.... trial and error here

i started pooping friday , just normal so that's good... i'm taking my fiber and actually had one half of a senokot on thursday morning. just to get things motivated in there. now i'll just see how it goes...hopefully easy

i sure did love the lettuce and pumkin cake , i don't have indegestion, just bloated..

i see the dr on tuesday so all of this is good data

friday i had 4 mini meatballs and that didn't seem to bloat me, so i like that 

i usually wake up not bloated, so here's hoping that is good...... so tums for now and ice and heat and tv

oh and yea, the incision under my bra was not happy even tho i put padding there... i'll get to tell the doc that i'm not going back to work till i can wear a bra and lean against a table while reaching forward.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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yep, nothing seems easy

i don't think the bbq is as bad as cakes, pies ,ice cream, cookies ,chips, deep friedcry 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

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Atorvastatin is the same statin he’s considering. It’s common and doesn’t cost a fortune. I find it odd that the results did such a flip in a 3 month period. I know I eat too much junk and don’t pay much attention to my diet, never had to. I’m sure I can get it down some, just by diet alone. That said, I know it’ll be a struggle, because I like to eat. I’m a big fan of the BBQ, I do it all year. Meat is my friend, lol! 

I‘ll work on it and see what happens. I was told previously, to try Niacin daily, to reduce cholesterol, which I’m doing. When my doctor talked to me about it, he referenced a study that said they used to encourage that, but now find it only reduces the numbers, not the actual cholesterol. Guess it was worth a try, didn’t work anyway. Nothing’s easy!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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I take my prescribed statin (Atorvastatin) before I go to bed. For me, I have not noticed any side effects but it may be that I have gotten used to it over the past two and a half years.

Happy Thanksgiving to my Canadian neighbours and a sincere thank you to all of you amazing people here as well. (Yes, Canadians spell neighbours with a 'u'...British thing lol.)



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60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 



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Tig,

If you start an oral statin I really hope you don't have side effects like muscle pain or fatigue. Doctors used to tend to choose to not believe us when we told them the statins were making us feel bad, there have been enough reports in the literature about side effects they are taking it seriously now.

I have high cholesterol and really need a statin, diet did not help but I could not tolerate oral statins. Muscle pain and fatigue. They have a new injectable called Repatha but Medicare won't approve it until you have tried four different oral statins and had side effects.

I finally got approved for Repatha and can take it without muscle pain or fatigue. Have not been on it long enough to get my lipid panel redone that comes next month. If you search Repatha it comes with its own set of side effects though. So far I am doing OK.



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Male, 66, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.

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