failed treatment with Harvoni... 4 week post treatment labs .. virus detectable
Tess said
Feb 21, 2015
Connie, I'm so sorry about the relapse. You have an amazing attitude! You really put it in perspective and I thank you for that. As more and more of us are finishing treatment on Harvoni some of us will probably be in the same boat. You set the standard for how to deal with it and move on with life.
I am curious about why they don't check for variants before treatment? Is it maybe too expensive to test everyone? or do they only show up after the treatment? Just wondering.
Keep the faith Connie. New and better treatments are on the way.
- Tess
angelseven said
Feb 21, 2015
Yes connie relapsed but don't get all down in the dumps...I did 8 weeks of treatment, virus undetected after 4 weeks, barely detected at 2 weeks... at 4 week post treatment viral load test... viral load 6,000 or so... whatever... my liver got a 2 month rest.... if I had done 12 weeks it would have only increased my chances by 2% .. I knew this and this is why I did not push for 12 weeks....insurance would not approve 12 and I felt like it was worth the hassle for 2 percent... There are variants you can have that prevent the treatment from working...they are Q30, Q30H, w30R, y.93H or n, L32...
OK, the doctors office did a N53Genotype test which checks for all variants....so the only one that popped up was the 80K, so they did their job 80 K is only a factor for solvaldi/olysio ... I am the only one from their office that has relapsed... ... gilead was in the doctor's office yesterday and they are coming out with another new drug to go with Solvaldi.... i will have to retreat with that... I will be waiting... feeling better now
OK, so please don't freak out if you are currently treating, I have always been a strange person which figures I would have a strange response... hehehe
-- Edited by angelseven on Saturday 21st of February 2015 03:50:11 PM
Connie, I'm so sorry about the relapse. You have an amazing attitude! You really put it in perspective and I thank you for that. As more and more of us are finishing treatment on Harvoni some of us will probably be in the same boat. You set the standard for how to deal with it and move on with life.
I am curious about why they don't check for variants before treatment? Is it maybe too expensive to test everyone? or do they only show up after the treatment? Just wondering.
Keep the faith Connie. New and better treatments are on the way.
- Tess
Yes connie relapsed but don't get all down in the dumps...I did 8 weeks of
treatment, virus undetected after 4 weeks, barely detected at 2 weeks... at
4 week post treatment viral load test... viral load 6,000 or so...
whatever... my liver got a 2 month rest.... if I had done 12 weeks it would
have only increased my chances by 2% .. I knew this and this is why I did
not push for 12 weeks....insurance would not approve 12 and I felt like it
was worth the hassle for 2 percent... There are variants you can have that
prevent the treatment from working...they are Q30, Q30H, w30R, y.93H or n,
L32...
OK, the doctors office did a N53Genotype test which checks for all
variants....so the only one that popped up was the 80K, so they did their
job
80 K is only a factor for solvaldi/olysio
... I am the only one from their office that has relapsed... ... gilead was
in the doctor's office yesterday and they are coming out with another new
drug to go with Solvaldi.... i will have to retreat with that... I will be
waiting... feeling better now
OK, so please don't freak out if you are currently treating, I have
always been a strange person which figures I would have a strange
response... hehehe
-- Edited by angelseven on Saturday 21st of February 2015 03:50:11 PM