wow CG that sounds great and working as well ..dont over do it .i still find it really hard to stay up past 8pm.
elizabeth
cloudguard said
Apr 4, 2011
I actually stayed up til 10:00 pm. and got up for work at 5:00 am for work 2 days in a row. I think I'll go to bed early tomorrow.
Cloudguard
Cinnamon Girl said
Mar 28, 2011
That`s good Aaron. I`m sure I lost enough hair to stuff a small pillow, and am still shedding.
Ty, good news from you too. It`s so good to feel that the old enjoyment of life is coming back. That made me smile about you having to carry Buster home, yes, maybe no wallks for a while yet!
Hi Dee, hope you`re doing ok now. Nice that your hair is getting back into condition. I love the emo! I can`t seem to use them any more, my post disappears.
Take care all, love from Jill xxx
DGiga said
Mar 28, 2011
Hi Aaron, Congratulations to you on your blood results, especially the und part. Your doing great! Back to the hair thing, mine started to fall out around 4 months of tx. As soon as the tx was over, it stopped falling out. It's coming in slowly now and it acturally shines, once again. It is still thin but it looks better.Ha ha ha nobody seems to use this 'emotion" it's "Grandma". Good luck to you Aaron, Hugs Dee
ty said
Mar 28, 2011
Yes, that's Buster. Seventy-five pounds and half that is his head, lol. He's a big baby though and just loves running around with the grand kids and their friends. My sister also has two Bull Terriers They're known as the clowns of the dog world, but they are almost impossible to train, they don't take anything very serious! Take care, ty
Aaron said
Mar 28, 2011
Hey Jill I think it has stopped falling out as much just a little here and there now not as bad as it was. Thats great ty that your getting some of your old desires coming back its good to get back in the flow of things and is that a pic of buster for you profile pic? if so nice dog :)
ty said
Mar 28, 2011
Hi Aaron,
I'm glad to hear that things are improving each day, I feel the same way. I also have the itching all over. I tried antihistimines, but they make me spacey and don't seem to help me much. I have noticed my mind clearing a little and some of that old desire to do things coming back.
I'm almost ready to take Buster for a walk, which is always a major event. He walks great until I decide that that's far enough and then he lays down and won't get up. I have to carry him back to the house and I'm not quite ready for that yet!
It's great you're back in the gym, I can't wait...
Take care, ty
Cinnamon Girl said
Mar 28, 2011
Hi Aaron, nice to hear how you`re doing. I`m sill itching too, but not so badly I don`t think. Has your hair stopped falling out yet? Great news that you`re getting back to the gym.
Take care, love from Jill xx
Aaron said
Mar 27, 2011
Thanks guy's everything seems to be getting a little better day by day :) I went back to the gym day before yesterday couldn't handle a big work out but got in a small one the only problem I still have is my whole body itches if I don't take an antihistamine never had the pre TX then like a couple month's in with the itch Doc said start taking that but it still won't stop so I still take them I guess its a little price to pay though hope all is well with all of you :)
Minerva said
Mar 22, 2011
Congrats Aaron!! Brilliant news!! Wishing you all the best post-tx. Hugs Heather xxx
ty said
Mar 18, 2011
Congratulations Aaron, that is fantastic news! All the best, ty
Cinnamon Girl said
Mar 18, 2011
Well done Aaron, excellent news! So happy for you.
Love, Jill xx
bethland said
Mar 18, 2011
Thats great Aaron your doing well
elizabeth x
borowif said
Mar 18, 2011
Hi Aaron congratulations & well done!! Luv Lesley x
Hep Me said
Mar 18, 2011
That's the stuff we like to hear Aaron. You're online late (or early) man, you a 2nd shifter too?
Take care, Randy
Greg said
Mar 18, 2011
Hi Aaron, That's great news mate well done. Cheers Greg
James10500 said
Mar 17, 2011
Sweet ! Go a Aaron.
Mashar said
Mar 17, 2011
Congrats Aaron! Great news. This is an interesting thread since I am still new to
learning about the blood work stuff and what it means.
Mary
Aaron said
Mar 17, 2011
Well it took forever lol but the results came in still UND :)
Cinnamon Girl said
Mar 14, 2011
Hi Elizabeth - oh I hadn`t thought about all the brushing making it worse, thanks for mentioning that! To top it all my vac has broken so I`m having to go round picking up mine and my cat`s hairs off the floor, lol. I love your idea of doing something constructive every day - that is such a positive thing to do.
Hi Lesley - that`s really funny! I haven`t put any mascara on for months, just slapped some foundation on - I don`t think I`ll even try for a while. I`ve learned to embraced my inner slob while on tx. lol.
Take care all, love form Jill xxx
bethland said
Mar 14, 2011
Leslie that is to funny..me same with the eyelashes.
Ty i am feeling like shaving my head ...lol ..but seriously i feel like there is so much dead energy in there .
Jill i am not sure that brushing twice a day is such a great idea ..the more it gets pulled on the more it will fall out. i know what you mean tho its a bit confronting seeing it all over the floor.
ok all you moulting people have a good day...or sleep for you OS i am working on doing something constructive everyday from my diary,involving something that motivates and gets me out in the world, to recreate a life ..and take my mind off the same old stuff that goes around in my head..be happy all elizabeth
borowif said
Mar 14, 2011
Hi Guys, I forgot to mention before:- I think I've lost some of my eye lashes too. I wore mascara for the first time in ages & it looked like a spider had crawled up my cheeks into my eye socket & left its legs dangling out there. They looked a bit longer but definately missing a few (lot).
Take care you all Luv Lesley xx
ty said
Mar 14, 2011
Hi Aaron, Beth, Jill, Fnzol and Leslie, My hair started falling out at about month four. I decided the other day I'm going to chop it off and start over, lol. Great pic! I don't want any sx either, but I guess it's a little late to be wishing for that now... Take care, ty
Aaron said
Mar 14, 2011
Thanks guys yea I didn't notice it untill after treatment.... That pic is a riot :)
borowif said
Mar 14, 2011
Hi Aaron,Beth Jill,Fnzol
My hair seems to be falling out more since I finished tx than during. My vacuum cleaner is clogged up with them cos they're quite long. I'm certain its the meds but wish it would stop. Does anybody have an idea how long its likely to go on for?
Fnzol, the pics a scream what was the dog doing?
Hope everybodys feeling as well as can be.
Luv Lesley xx
Cinnamon Girl said
Mar 14, 2011
Hi Aaron, that`s been happening to me too for about the last 2 months or so - I feel like I`m moulting! I have to remember to brush my hair several times a day so it doesn`t drop out all over the carpets. Oh the joy. Hope your energy is still improving.
Love the photo Fnzol!
Take care everyone, Jill xxx
bethland said
Mar 14, 2011
i reckon that sounds about spot on Fnzol..was definatly around about month 5 for me.. tho it only thinned ..but went as dry as sandpaper.. i actually didnt want any of the sx but seemed t get most of them anyway..hilarious pic.
eliabeth
Fnzol said
Mar 14, 2011
It's scalp and follicle dehydration from the ribavirin. My case nurse said that it usually presents around month 5. It was about 4 months for me. I've lost about 1/4 of my hair and about 1/2 my mustache.
Lulz.
bethland said
Mar 14, 2011
Hi Aaron i believe its all part of the interferon/ribo etc..experience. I am still having hair fall out as well.Mostly when i wash it. i just went to Freo to have my passport photo done and felt like a scarecrow...lol
stress elizabeth
Aaron said
Mar 13, 2011
So this is odd and not sure if this has to do with the med's I would think not since I am not on them any more but not sure noticed the last couple day's that when I shower and am shampooing my hair that some hair's are coming off and staying in my hands and not like just on or two hair i'm talking quite a few each time i run my hand threw my hair what is going on??????
Aaron said
Mar 11, 2011
Ok feel better my nurse said that levels will up and down over time that it is nothing that I should worry about at all that my bloods were looking great :) now for that PCR to come back and I will feel great again lol
ty said
Mar 10, 2011
Wow Aaron, If I had those bloods I wouldn't be worried, I'd have a party!
Aaron said
Mar 10, 2011
ok so most of my bloods are back just waiting for the PCR test to come back, they are as follows WBC = 4.1 RBC = 4.50 Hemoglobin = 13.7 Platelet count = 265 So these all look good so far and are all now in the normal range again now here is what kinda worries me and one that is good with bloods let me know if I should be worried or not thanks :)
ALK normal range = 30 - 110 mine is at 111 same as last blood a little high still at one point in treatment it had droped down to 99
AST normal range = 19 - 45 mine is at 29 up from last blood which was 27
ALT normal range = 9 - 47 mine is at 49 up from last blood which was 47 thanks for you time :)
bethland said
Mar 10, 2011
Yes Brenden i had a PCR on finishing tx..
Aaron said
Mar 10, 2011
Thanks guy's I'm getting ready to leave here and get my behind to work lol and do this test and brendan I don't have it all the way back I can just feel my body feel a lil better each day I'm starting to take stairs again insteed of all those elevators as much as I can well you all have a blessed day and will let ya know what results I get back today and as far has the PCR results go they should be in tomorrow before I get off of work last time it took about 36 hours for them to come back
ChinsUp23 said
Mar 10, 2011
Aaron,
We are waiting anxiously,,, let us know asap! BUT,,, as Brendan pointed out, no worries, you're negative.
BJ said
Mar 10, 2011
Gidday Aaron,
Welcome to the post-tx, s'pose I should hang a shingle somewhere, maybe later... Heh' nice little perk you've got goin' there in a 2 week post-tx PCR sport, and in my book, you were only a short-term geno 3 tourist.
No wuckers there mate, you'll bolt it in, although I can't really see why they do a PCR at 2 weeks. I had one when I finished (did you Elizabeth?) did you, or maybe no and this is why you are having it now ?
2 weeks and you are getting your energy back ? You're kidding, I've been finished 5 weeks and I had to look up what energy was !!
Only kidding:) Good onya' mate, that is impressive tho' you lucky bugger, I'm still struggling a fair bit, things are pretty hard and I feel like being back in the real world is like the first time I've been here, and you just walk back into life like gettin' off a bus. !
I don't think there's any need for nerves about the test. I was going to say tomorrow but I guess it's now today, (see were not even on the same page !!) You went UND in under 4 weeks, so that virus can't even get a visa it's that far gone, so rest easy mate. It's no accident you are bouncing around like a teenager, you haven't had to deal with that virus for 6 months, it's dead and buried.
If by some unfortunate error you were positive it would be better to know asap, but that's not gonna happen, beside you were banging interferon into ya two weeks ago mate, that's why I'm amazed you feel energy period.
Good luck with the results mate, they are a forgone conclusion......negative. Keep up the recovery rate mate, you'll be breaking some records with those blood tests:)
Cheers,
Brendan.
P.S. You won't get the PCR results on the same day as the test mate, sorry, it's gonna be a couple of days on that cold tile floor before the results to that'll pop out
-- Edited by BJ on Thursday 10th of March 2011 12:39:04 PM
Cinnamon Girl said
Mar 10, 2011
Great to hear that Aaron! Good luck with the blood results - fingers crossed for you. Love and all the best from Jill xxx
James10500 said
Mar 9, 2011
Echo that Beth. Good luck Bro.
bethland said
Mar 9, 2011
Good Luck Aaron i am pleased to hear that you are doing well....we aussies dont get tested till 12 wks post tx.
elizabeth
ty said
Mar 9, 2011
Hi Aaron, It's great to hear that your energy is coming back after only two weeks, that's fantastic. I get a PCR test in two weeks, but they haven't told me about any viral testing after that. I have to keep going in for blood and liver testing weekly for awhile longer. I assume they are going to keep testing so they can make the decision as to when they can put me back on phlobotomy for my excess iron, who knows? Good luck on those tests! Take care, ty
Aaron said
Mar 9, 2011
Hi all I am now two weeks post tx and am starting to get my enery back which is a plus :) kinda nervous about tomorrow my doc want's bloods done 2 weeks post 3 months post and then at 6 months out of all my blood test's to date tomorrow's for me is the scariest this far but on the other hand atleast I will know most of the results before the end of the day perk's of working at the hospital I guess but then again it could be a disatvantage if I find out bad news.
wow CG that sounds great and working as well ..dont over do it .i still find it really hard to stay up past 8pm.
elizabeth
Cloudguard
That`s good Aaron. I`m sure I lost enough hair to stuff a small pillow, and am still shedding.
Ty, good news from you too. It`s so good to feel that the old enjoyment of life is coming back. That made me smile about you having to carry Buster home, yes, maybe no wallks for a while yet!
Hi Dee, hope you`re doing ok now. Nice that your hair is getting back into condition. I love the emo! I can`t seem to use them any more, my post disappears.
Take care all, love from Jill xxx
Hi Aaron, Congratulations to you on your blood results, especially the und part.
Your doing great! Back to the hair thing, mine started to fall out around 4 months of tx. As soon as the tx was over, it stopped falling out. It's coming in slowly now and it acturally shines, once again. It is still thin but it looks better.
Ha ha ha nobody seems to use this 'emotion" it's "Grandma". Good luck to you Aaron, Hugs Dee
Yes, that's Buster. Seventy-five pounds and half that is his head, lol. He's a big baby though and just loves running around with the grand kids and their friends. My sister also has two Bull Terriers They're known as the clowns of the dog world, but they are almost impossible to train, they don't take anything very serious! Take care, ty
Hey Jill I think it has stopped falling out as much just a little here and there now not as bad as it was. Thats great ty that your getting some of your old desires coming back its good to get back in the flow of things and is that a pic of buster for you profile pic? if so nice dog :)
Hi Aaron,
I'm glad to hear that things are improving each day, I feel the same way. I also have the itching all over. I tried antihistimines, but they make me spacey and don't seem to help me much. I have noticed my mind clearing a little and some of that old desire to do things coming back.
I'm almost ready to take Buster for a walk, which is always a major event. He walks great until I decide that that's far enough and then he lays down and won't get up. I have to carry him back to the house and I'm not quite ready for that yet!
It's great you're back in the gym, I can't wait...
Take care, ty
Hi Aaron, nice to hear how you`re doing. I`m sill itching too, but not so badly I don`t think. Has your hair stopped falling out yet? Great news that you`re getting back to the gym.
Take care, love from Jill xx
Thanks guy's everything seems to be getting a little better day by day :) I went back to the gym day before yesterday couldn't handle a big work out but got in a small one the only problem I still have is my whole body itches if I don't take an antihistamine never had the pre TX then like a couple month's in with the itch Doc said start taking that but it still won't stop so I still take them I guess its a little price to pay though hope all is well with all of you :)
Congrats Aaron!! Brilliant news!!
Hugs
Heather
xxx
Love, Jill xx
Thats great Aaron
your doing well
elizabeth x
congratulations & well done!!
Luv Lesley x
Take care,
Randy
That's great news mate well done.
Cheers
Greg
Mary
I love your idea of doing something constructive every day - that is such a positive thing to do.
Hi Lesley - that`s really funny! I haven`t put any mascara on for months, just slapped some foundation on - I don`t think I`ll even try for a while. I`ve learned to embraced my inner slob while on tx. lol.
Take care all, love form Jill xxx
that is to funny..me same with the eyelashes.
Ty
i am feeling like shaving my head ...lol ..but seriously i feel like there is so much dead energy in there .
Jill
i am not sure that brushing twice a day is such a great idea ..the more it gets pulled on the more it will fall out.
i know what you mean tho its a bit confronting seeing it all over the floor.
ok all you moulting people have a good day...or sleep for you OS
i am working on doing something constructive everyday from my diary,involving something that motivates and gets me out in the world,
to recreate a life ..and take my mind off the same old stuff that goes around in my head..be happy all
elizabeth
I forgot to mention before:- I think I've lost some of my eye lashes too.
I wore mascara for the first time in ages & it looked like a spider had crawled up my cheeks into my eye socket & left its legs dangling out there.
They looked a bit longer but definately missing a few (lot).
Take care you all
Luv Lesley xx
My hair started falling out at about month four. I decided the other day I'm going to chop it off and start over, lol. Great pic! I don't want any sx either, but I guess it's a little late to be wishing for that now... Take care, ty
My hair seems to be falling out more since I finished tx than during. My vacuum cleaner is clogged up with them cos they're quite long.
I'm certain its the meds but wish it would stop. Does anybody have an idea how long its likely to go on for?
Fnzol, the pics a scream what was the dog doing?
Hope everybodys feeling as well as can be.
Luv Lesley xx
Love the photo Fnzol!
Take care everyone, Jill xxx
tho it only thinned ..but went as dry as sandpaper..
i actually didnt want any of the sx but seemed t get most of them anyway..hilarious pic.
eliabeth
i believe its all part of the interferon/ribo etc..experience.
I am still having hair fall out as well.Mostly when i wash it.
i just went to Freo to have my passport photo
done and felt like a scarecrow...lol
stress
elizabeth
Ok feel better my nurse said that levels will up and down over time that it is nothing that I should worry about at all that my bloods were looking great :) now for that PCR to come back and I will feel great again lol
WBC = 4.1
RBC = 4.50
Hemoglobin = 13.7
Platelet count = 265
So these all look good so far and are all now in the normal range again now here is what kinda worries me and one that is good with bloods let me know if I should be worried or not thanks :)
ALK normal range = 30 - 110 mine is at 111 same as last blood a little high still at one point in treatment it had droped down to 99
AST normal range = 19 - 45 mine is at 29 up from last blood which was 27
ALT normal range = 9 - 47 mine is at 49 up from last blood which was 47
thanks for you time :)
i had a PCR on finishing tx..
Gidday Aaron,
Welcome to the post-tx, s'pose I should hang a shingle somewhere, maybe later... Heh' nice little perk you've got goin' there in a 2 week post-tx PCR sport, and in my book, you were only a short-term geno 3 tourist.
No wuckers there mate, you'll bolt it in, although I can't really see why they do a PCR at 2 weeks. I had one when I finished (did you Elizabeth?) did you, or maybe no and this is why you are having it now ?
2 weeks and you are getting your energy back ? You're kidding, I've been finished 5 weeks and I had to look up what energy was !!
Only kidding:) Good onya' mate, that is impressive tho' you lucky bugger, I'm still struggling a fair bit, things are pretty hard and I feel like being back in the real world is like the first time I've been here, and you just walk back into life like gettin' off a bus. !
I don't think there's any need for nerves about the test. I was going to say tomorrow but I guess it's now today, (see were not even on the same page !!) You went UND in under 4 weeks, so that virus can't even get a visa it's that far gone, so rest easy mate. It's no accident you are bouncing around like a teenager, you haven't had to deal with that virus for 6 months, it's dead and buried.
If by some unfortunate error you were positive it would be better to know asap, but that's not gonna happen, beside you were banging interferon into ya two weeks ago mate, that's why I'm amazed you feel energy period.
Good luck with the results mate, they are a forgone conclusion......negative. Keep up the recovery rate mate, you'll be breaking some records with those blood tests:)
Cheers,
Brendan.
P.S. You won't get the PCR results on the same day as the test mate, sorry, it's gonna be a couple of days on that cold tile floor before the results to that'll pop out
-- Edited by BJ on Thursday 10th of March 2011 12:39:04 PM
Love and all the best from Jill xxx
i am pleased to hear that you are doing well....we aussies dont get tested till 12 wks post tx.
elizabeth
It's great to hear that your energy is coming back after only two weeks, that's fantastic. I get a PCR test in two weeks, but they haven't told me about any viral testing after that. I have to keep going in for blood and liver testing weekly for awhile longer.
I assume they are going to keep testing so they can make the decision as to when they can put me back on phlobotomy for my excess iron, who knows? Good luck on those tests! Take care, ty