Hi everyone,
Thank you all very much for understanding what I am going through. It sounds silly but knowing that other people went through the same exact thing makes me feel much, much better...I just need some time to transition. I will explain to my friends that we will celebrate but just not right now.
Again thank you all for your wise and very kind words,
J.
Mashar said
Jun 16, 2011
GG,
I never really thought about that tx security but now that I read your post I do totally relate because while on the meds that virus is beat but once you get off there is a whole new waiting game waiting for SVR. I can not wait to get there yet feel hesitate as well. You will do just fine take it one day at a time.
hugs and congrats,
Mary
ty said
Jun 16, 2011
Hi GG,
Yes, you sound normal to me. I had to learn how to be on tx. How much energy I could use, when I could drive (or not), when I could handle being around people, etc.
Now I'm learning how to be well. I can tell that it gets easier each day, but I'm not quite back to the full me yet. Don't worry (be happy!?), your life will start to make sense soon enough. Treat yourself exactly like you do on tx, be extra kind to yourself and take it one day at a time. Take care, ty
PJ said
Jun 16, 2011
Hi GG,
Glad you are on your last shot and I understand now how it will be. It's not like, poof, there you are, all as good as new....it will take some time. This is strong stuff that we are dealing with......going to take time to figure out what's normal again. Hang in there!
xoxo pj
Cinnamon Girl said
Jun 16, 2011
Hi Gnome, I know exactly how you feel, and it`s perfectly normal. I`m 3 mnths post tx now and feeling a lot better and back to `myself`, but it took a while. While you`re on tx you`re totally focused on getting through it week by week, shot by shot, and realising you`re at the end can be quite disorienting.
I think we all lose touch with our `normal` lives during tx, that`s inevitable, and I found I felt quite lost when I first finished, especially as I was still feeling so rough, irritable, and unsociable.
Peoples` expectations have a bearing on this too - a couple of my friends imagined I`d be out and about socialising as soon as tx finished too. Far from it! Of course your friends and family are happy for you, but please don`t feel you have to do anything beyond what you feel like in order to please anyone. You have been through some tough tx so just go at your own speed and give yourself plenty of time to recover.
Congrats on getting to the last shot, be proud and take care of yourself.
Love, Jill xxx
-- Edited by Cinnamon Girl on Thursday 16th of June 2011 07:38:45 PM
James10500 said
Jun 16, 2011
Oh Gg,
Congrats.
Be well,
James
Gnome gardener said
Jun 16, 2011
Dear James, Greg and Steff,
Thank you all very much for your kind words...yes I guess I was not expecting to feel this way and it is a surprise to me...a big part of me is very happy to be almost done but too tired to celebrate. There is definitely a huge difference between how friends and family react and how I feel, even my doctor yesterday was congratulating me and looked really excited for me when I was just trying not to scratch the rash around my eye!!
I guess you guys are right...one day at a time...
Steff, thanks for the excellent links,
James, I will be thinking of you for that 6 month PCR,
Greg, may you have a smooth ride,
J.:)
greenqueen said
Jun 16, 2011
Hi Gnome,
Wise words form Greg and James - there's nothing wrong with you. You've just been through a harrowing physical and emotional experience and it takes time to recover.
You will find that family and friends are unlikely to grasp this and expect you to be bouncing around like a teenager with a big grin on your face the minute you finished your last shot. Your treatment team may tell you that you'll feel great within a month or so and send you on your way
Bethland posted a link a while back to a brilliant blog about the post treatment experience.
I can't imagine how your feeling, I'm only on week 20 and I know that during that time I have felt safe and secure in my "Treatment Zone" for want of a better description. If for any reason I needed to venture completely out of that zone I felt scared.
I'm not talking about running down to the local shops or anything like that, but about two months ago I had to drive a fair distance to a big city and I got myself so worked up over it my knuckles were white from gripping the wheel and I broke out in a rash all over my body, all because I was stressed about doing something normal.
This is a big step for anyone to take and if you have completed 48 weeks of treatment you can do anything, just take your time same as before "one day at a time" and you will get your normal life back, a healthier life back and achive SVR and remember we are still here for you. There is nothing wrong with you at all, your human and your a Dragon Slayer.
As James has said the meds will be in your body for some time and you will recover.
Well Done, Greg
James10500 said
Jun 15, 2011
You still are on meds so you're still effected by them, be patient. I'm just about 5 months done and I feel pretty darn good most days, I still have a crash day every now and then. But I'm not complaining life is good again. If I achieve SVR it will be REALLY good. That six month test is my only stress, my fingers are still crossed been that way for so long I think they are going to stay like that !
Hang in there,
James
Gnome gardener said
Jun 15, 2011
With only one shot to go I should be relieved and happy right now but for some reason I feel confused and SCARED... The meds kept the virus under control and my AST and ALT in the normal range...in a way that felt very safe although it was a tough ride.
Everyone is so excited for me, they want to celebrate and I just want to hide a little longer.
What is wrong with me?
J.
GG,
I never really thought about that tx security but now that I read your post I do totally relate because while on the meds that virus is beat but once you get off there is a whole new waiting game waiting for SVR. I can not wait to get there yet feel hesitate as well. You will do just fine take it one day at a time.
hugs and congrats,
Mary
Hi GG,
Yes, you sound normal to me. I had to learn how to be on tx. How much energy I could use, when I could drive (or not), when I could handle being around people, etc.
Now I'm learning how to be well. I can tell that it gets easier each day, but I'm not quite back to the full me yet. Don't worry (be happy!?), your life will start to make sense soon enough. Treat yourself exactly like you do on tx, be extra kind to yourself and take it one day at a time. Take care, ty
Glad you are on your last shot and I understand now how it will be. It's not like, poof, there you are, all as good as new....it will take some time. This is strong stuff that we are dealing with......going to take time to figure out what's normal again. Hang in there!
xoxo pj
Hi Gnome, I know exactly how you feel, and it`s perfectly normal. I`m 3 mnths post tx now and feeling a lot better and back to `myself`, but it took a while. While you`re on tx you`re totally focused on getting through it week by week, shot by shot, and realising you`re at the end can be quite disorienting.
I think we all lose touch with our `normal` lives during tx, that`s inevitable, and I found I felt quite lost when I first finished, especially as I was still feeling so rough, irritable, and unsociable.
Peoples` expectations have a bearing on this too - a couple of my friends imagined I`d be out and about socialising as soon as tx finished too. Far from it! Of course your friends and family are happy for you, but please don`t feel you have to do anything beyond what you feel like in order to please anyone. You have been through some tough tx so just go at your own speed and give yourself plenty of time to recover.
Congrats on getting to the last shot, be proud and take care of yourself.
Love, Jill xxx
-- Edited by Cinnamon Girl on Thursday 16th of June 2011 07:38:45 PM
Congrats.
Be well,
James
Hi Gnome,
Wise words form Greg and James - there's nothing wrong with you. You've just been through a harrowing physical and emotional experience and it takes time to recover.
You will find that family and friends are unlikely to grasp this and expect you to be bouncing around like a teenager with a big grin on your face the minute you finished your last shot. Your treatment team may tell you that you'll feel great within a month or so and send you on your way
Bethland posted a link a while back to a brilliant blog about the post treatment experience.
http://evaday.blogspot.com/
Here's another link with some good tips.
http://www.hcvadvocate.org/hepatitis/factsheets_pdf/After%20treat_10.pdf
Love Steff xx
Hi Gnome,
I can't imagine how your feeling, I'm only on week 20 and I know that during that time I have felt safe and secure in my "Treatment Zone" for want of a better description. If for any reason I needed to venture completely out of that zone I felt scared.
I'm not talking about running down to the local shops or anything like that, but about two months ago I had to drive a fair distance to a big city and I got myself so worked up over it my knuckles were white from gripping the wheel and I broke out in a rash all over my body, all because I was stressed about doing something normal.
This is a big step for anyone to take and if you have completed 48 weeks of treatment you can do anything, just take your time same as before "one day at a time" and you will get your normal life back, a healthier life back and achive SVR and remember we are still here for you. There is nothing wrong with you at all, your human and your a Dragon Slayer.
As James has said the meds will be in your body for some time and you will recover.
Well Done,
Greg
Hang in there,
James