Hi there HBP, I answered a comment you posted in another thread a couple of days ago, and just wanted to say I`m thinking of you and hoping it all went well.
It`s natural for you to feel nervous and scared for your father, and it`s also understandable that he doesn`t want to worry you (I always tell my grown up kids I`m ok, even when I`m not!).
That`s really kind and thoughtful of you cleaning and getting food in ready for him, he is lucky to have you by his side, and I`m sure he appreciates it.
Keep us posted won`t you.
Take care, Jill xx
HairByPaco said
Jan 4, 2012
Strike that. The appointment is today. 2 hours. Nervous.
HairByPaco said
Jan 4, 2012
Thank you everyone. We gone in tomorrow and hopefully the bone marrow results won't be bad. I'm really scared. Dad seems to be feeling stable. It's hard to say because he always tells me he is ok. Even when he had to be hospitalized. I want him to feel better though. Not the same or worse. I am afraid to go home is a few days. I don't want something to happen after I leave. I've cleaned his house and stocked him up with easy to prepare foods but I don't know if I've done enough.
Minerva said
Jan 3, 2012
Hi there HairByPaco and a warm welcome to the forum.
I hope things are improving with your Dad. As Greg says, i also think that his bloods will improve. Mines were very low when i finished treatment but then within a month or so, had returned to normal. I know this has been the case for a few people as treatment does often send them all over the place.
Keep us posted how things go with your Dad's bone marrow results. It's perfectly natural for you to be feeling upset and for your Dad to be feeling a little scared. It is/can be a very scary time. Hopefully things will continue to improve and everything will settle down again.
All the best to you both.
Hugs
Heather xxx
Greg said
Jan 2, 2012
Hi HairByPaco,
Just wanted to welcome you to the forum as well, and hope your Dad improves which I'm sure he will. Treatment really does knock the red blood cells for a six but now that he has finished treatment his body will bounce back very quickly, it's amazing how good you feel so soon after stopping tx.
By the sound of things his medical team are on top of it and he is in the best place to be at the moment. We're all in his corner with you.
Our very best wishes,
Greg
krowdog said
Jan 1, 2012
Hi.
For what it's worth, I was told that even the hemo promoting agents like Procrit and Aranesp take about a 3 weeks to begin working, sometimes longer. So if he just finished 3 weeks ago, things may be fine, especially if he is stabilizing now. It sounds like thingss are being closely watched. I surely wouldn't worry yet.
My best wishes to you and your father.
Brad
HairByPaco said
Jan 1, 2012
Thank you John. Appreciate it. Thanks for pointing me in the right direction. This is all really hard. We are just waiting for the bone marrow results Thursday. It's a hard wait. I have yet to come across anyone developing aplastic anemia post tx, but I guess it's still a possibility. I sure hope that's not the case.
Everyone who has gone through this is incredibly brave and I admire you all.
For me there is nothing harder than seeing my father, who has always been strong physically and emotionally, crying and fearing death.
I just feel helpless. Thanks again.
John William said
Jan 1, 2012
Hello, I do not have the answers that you are looking for but you might get some direction here. Perhaps try to Private Message some of the more senior members that have completed treatments like the Greenqueeen, CinamonGirl or Minerva, perhaps they can lead you to some answers.
I hope you find what your looking for and that your father is back up on his feet soon. Keep your chin up!
Warm regards, John
HairByPaco said
Jan 1, 2012
Anything?
HairByPaco said
Dec 31, 2011
Bump
HairByPaco said
Dec 30, 2011
Also sorry for misspelling and poor grammar. I am using my phone. :)
HairByPaco said
Dec 30, 2011
Hello everyone. I am new here. Just found the forum.
My father is 60 years old and completed 45 weeks of interferon/ribavirin treatment for HCV type 1. His viral load was 41,000 before beginning treatment. He cleared the virus within 4 weeks and was having few side effects aside from feeling very worn out and depressed at times.
In te last month or so of treatment he began needing blood transfusions because of low red blood cell counts and then for low platelets.
His doctor decided to stop treatment a little earlier than planned a few weeks ago. He was getting transfusions weekly at that point.
2 weeks ago I received a call from my aunt saying he had been hospitalized. (I live in Oregon and he is in California.)
He levels were so low no one could believe he was alive. He stayed for about a week and was released after a couple more transfusions.
He went in and got a bone marrow biopsy to check for permanent damage. At that time they also gave him platelets but no red blood.
The marrow results will hopefully be done within this next week and in the meantime we are trying not to stress too much. I am staying with him to help him as much as I can.
He was scheduled for a transfusion yesterday but for the first time in months his levels stayed stable. It been two weeks since receiving red blood and six days since platelets. Hopefully this will continue.
Basically, after all that ranting, what I/we are wondering is if this is te case for anyone else and if recovery of red blood and platelets can take longer than expected. His gastrointestinologist seemed to think it would be right away but looking online that doesn't seem to be te case always.
It really hasn been that long (december 7th was his last day) but we weren't expecting this. Sorry for the long post. We are just havin trouble finding answers. Thank you all so much.
Hi there HBP, I answered a comment you posted in another thread a couple of days ago, and just wanted to say I`m thinking of you and hoping it all went well.
It`s natural for you to feel nervous and scared for your father, and it`s also understandable that he doesn`t want to worry you (I always tell my grown up kids I`m ok, even when I`m not!).
That`s really kind and thoughtful of you cleaning and getting food in ready for him, he is lucky to have you by his side, and I`m sure he appreciates it.
Keep us posted won`t you.
Take care, Jill xx
I'm really scared.
Dad seems to be feeling stable. It's hard to say because he always tells me he is ok. Even when he had to be hospitalized. I want him to feel better though. Not the same or worse.
I am afraid to go home is a few days. I don't want something to happen after I leave.
I've cleaned his house and stocked him up with easy to prepare foods but I don't know if I've done enough.
Hi there HairByPaco and a warm welcome to the forum.
I hope things are improving with your Dad. As Greg says, i also think that his bloods will improve. Mines were very low when i finished treatment but then within a month or so, had returned to normal. I know this has been the case for a few people as treatment does often send them all over the place.
Keep us posted how things go with your Dad's bone marrow results. It's perfectly natural for you to be feeling upset and for your Dad to be feeling a little scared. It is/can be a very scary time. Hopefully things will continue to improve and everything will settle down again.
All the best to you both.
Hugs
Heather xxx
Hi HairByPaco,
Just wanted to welcome you to the forum as well, and hope your Dad improves which I'm sure he will. Treatment really does knock the red blood cells for a six but now that he has finished treatment his body will bounce back very quickly, it's amazing how good you feel so soon after stopping tx.
By the sound of things his medical team are on top of it and he is in the best place to be at the moment. We're all in his corner with you.
Our very best wishes,
Greg
Hi.
For what it's worth, I was told that even the hemo promoting agents like Procrit and Aranesp take about a 3 weeks to begin working, sometimes longer. So if he just finished 3 weeks ago, things may be fine, especially if he is stabilizing now. It sounds like thingss are being closely watched. I surely wouldn't worry yet.
My best wishes to you and your father.
Brad
Everyone who has gone through this is incredibly brave and I admire you all.
For me there is nothing harder than seeing my father, who has always been strong physically and emotionally, crying and fearing death.
I just feel helpless.
Thanks again.
Hello, I do not have the answers that you are looking for but you might get some direction here. Perhaps try to Private Message some of the more senior members that have completed treatments like the Greenqueeen, CinamonGirl or Minerva, perhaps they can lead you to some answers.
I hope you find what your looking for and that your father is back up on his feet soon. Keep your chin up!
Warm regards, John