When Hb drops below 8 ( or 80), it is thought to be getting serious. I am at 8.8 ( haematoctit .28) and my Hb has been in the low 9's for 4 months. My doc has a number of patients in the low 8's. He will treat ( with transfusion and Riba reduction) when you get near 8. Obviously between US and Aust. there are differing opinions.
news said
Sep 1, 2012
Renee,
I would inject half and dispose of the rest by shooting it out the front door or into the trash can, and doing the normal thing with the syringe and needle. You have enough setups to last the regular time. So no need to keep partials around the house.
Alan
LadyAlaise said
Aug 31, 2012
Just got a call from my doc; my hemoglobin and hemocrit are low; ugh. would explain the nosebleeds and feeling like I am weak, the headaches, and when I walk; sometimes I walk like I am drunk; last night I felt like I was going to passout. Got the bloodwork done yesterday at abt 2:30pm, it took to near 10 pm for the needlestick to stop bleeding. :( They want me to take half a dose of interferon this sat (it comes premeasured in a syringe) so either I think I need to just inject half of it and put it back in the fridge??, or they said if I can't do half to skip a week. (wth?)
Bills said
Aug 31, 2012
Alan made a good point
For me in Dec I had severe short breath even walking on level ground I was being grilled to tell them if I had chest pains HG wes around 9. 1 or -3 ? I felt like I was in court They got me to say maybe a little tight 20 Mins later I was in Emergency room cardiac section saying no I'm OK BAMM 3 days in the the hospital for testing Luckily i was fine as I said but they did not take any chances My original HB was 16.5??? so for me a 7 point decrease was a big deal
I was reduced to 3 ribv and half interferon till things went back up maybe 2 weeks
They expect to see a large drop in HG and Platelets but watch it carefully You Doc should know when to reduce and Alans right low HG + short breath and easy fatigue could turn into a heart problem
Bills
Alen said Well, the dangers would probably be heart related, since the old boy is going to be working double hard to get oxygen to the body. Organs that are starved for oxygen get unhappy real fast. Like the brain, the heart, etc. But it seems to me you would be way past uncomfortable if you got that far. Is it easy for you to get an "on demand" CBC test? Maybe the emergency room would do a quick hgb test for you and give the results right away. If you are feeling really bad maybe you should try it. Can someone take you there?
Alan
-- Edited by Bills on Friday 31st of August 2012 10:11:12 PM
Kellyw said
Apr 1, 2012
Yeah I was there too! I've been on procrit for 1 month as well as neupergin (WBC) longer. I feel so much better. I'm worried now about going off the procrit.
Sunrise747 said
Apr 1, 2012
My doc ordered a transfusion for me when I hit 8.5 HGB. For weeks I was so wiped out I could not walk more than 25 feet without having to sit down. That improved dramatically within 24 hours after the transfusion. She also lowered me to 600 mg on the Riba from 11th week until now (16th week). Every doctor seems to handle this drill differently. She instsis staying at 600 mg will have no impact on my successful outcome but said I can go up to 800 mg if I want to (but to expect my HGB to drift down again). Still debating that one.
LanaiSurferGirl said
Apr 1, 2012
it depends on the person what "dangerously low" is. Some people have pre-existing conditions that can make a higher hemoglobin dangerous for them. There have been reports of people with hemoglobin ranges in 4-5 and they feel ok. When mine was at it's lowes (6.3) I was actually feeling better.
Your body adapts to the lack of oxygen in that your heart pumps more blood per beat and your body becomes effecient at sending the blood to the proper organs that need it most. Talk with your doctor about what a dangerous low is for you but moniter it in the meantime. I was getting a blood test every week for a while to check on the levels. :)
aloha,
Meghan
jrc209 said
Mar 31, 2012
i am 31 years old and on tx my hgb went down to 8 and other members have gone below that. My dr didnt give procrit until 8. It varies per person but i made it and still worked!
innerview said
Mar 31, 2012
thanks Alan (which happens to be my middle name). I may do that tomorrow if I'm not feeling any better. I'll keep you posted. Mark
news said
Mar 31, 2012
Well, the dangers would probably be heart related, since the old boy is going to be working double hard to get oxygen to the body. Organs that are starved for oxygen get unhappy real fast. Like the brain, the heart, etc. But it seems to me you would be way past uncomfortable if you got that far.
Is it easy for you to get an "on demand" CBC test? Maybe the emergency room would do a quick hgb test for you and give the results right away. If you are feeling really bad maybe you should try it. Can someone take you there?
Alan
innerview said
Mar 31, 2012
Thanks Alan. Here, it looks like they have removed the decimal on the hemoglobin.... average is 134-170. When I started tx it was 144 (14.4), last Monday it was 93 (9.3). (and that was the day I was feeling pretty good) But the hematocrit I don't see on the lab report, or it is under a different name.
Do you know what the dangers are? the nurse had mentioned briefly something about heart...
innerview said
Mar 31, 2012
Hi.
My Hemoglobin level is still dropping. I am feeling so wiped out! I go for labs on Monday but as I am feeling worse by the day/hour, I just wonder if I should go in this weekend for blood test... ??? Or am I being over worried?
At what level would it be considered dangerously low?
And what can occur when levels get that low?
thank you!
Mark
news said
Mar 31, 2012
I was told that my low hgb needed treatment when the hematocrit got below 30. Now the trouble becomes how to convert hematocrit to whatever units you are using. Let me lok around and I'll be right back.
Alan
OK, normal hemoglobin for a man is 13.7-17.2 . Normal hematocrit is 42-54 . So the gives us a relationship, anyway. Based on these I would say a hemoglobin of around 9 would be getting pretty serious. The symptoms you describe fit my symptoms when my ematocrit was at 26.4 and they put me on procrit.
Alan
-- Edited by news on Saturday 31st of March 2012 05:24:02 PM
When Hb drops below 8 ( or 80), it is thought to be getting serious. I am at 8.8 ( haematoctit .28) and my Hb has been in the low 9's for 4 months. My doc has a number of patients in the low 8's. He will treat ( with transfusion and Riba reduction) when you get near 8. Obviously between US and Aust. there are differing opinions.
Renee,
I would inject half and dispose of the rest by shooting it out the front door or into the trash can, and doing the normal thing with the syringe and needle. You have enough setups to last the regular time. So no need to keep partials around the house.
Alan
Alan made a good point
For me in Dec I had severe short breath even walking on level ground I was being grilled to tell them if I had chest pains HG wes around 9. 1 or -3 ? I felt like I was in court They got me to say maybe a little tight 20 Mins later I was in Emergency room cardiac section saying no I'm OK BAMM 3 days in the the hospital for testing Luckily i was fine as I said but they did not take any chances My original HB was 16.5??? so for me a 7 point decrease was a big deal
I was reduced to 3 ribv and half interferon till things went back up maybe 2 weeks
They expect to see a large drop in HG and Platelets but watch it carefully You Doc should know when to reduce and Alans right low HG + short breath and easy fatigue could turn into a heart problem
Bills
Alen said Well, the dangers would probably be heart related, since the old boy is going to be working double hard to get oxygen to the body. Organs that are starved for oxygen get unhappy real fast. Like the brain, the heart, etc. But it seems to me you would be way past uncomfortable if you got that far. Is it easy for you to get an "on demand" CBC test? Maybe the emergency room would do a quick hgb test for you and give the results right away. If you are feeling really bad maybe you should try it. Can someone take you there?
Alan
-- Edited by Bills on Friday 31st of August 2012 10:11:12 PM
My doc ordered a transfusion for me when I hit 8.5 HGB. For weeks I was so wiped out I could not walk more than 25 feet without having to sit down. That improved dramatically within 24 hours after the transfusion. She also lowered me to 600 mg on the Riba from 11th week until now (16th week). Every doctor seems to handle this drill differently. She instsis staying at 600 mg will have no impact on my successful outcome but said I can go up to 800 mg if I want to (but to expect my HGB to drift down again). Still debating that one.
it depends on the person what "dangerously low" is. Some people have pre-existing conditions that can make a higher hemoglobin dangerous for them. There have been reports of people with hemoglobin ranges in 4-5 and they feel ok. When mine was at it's lowes (6.3) I was actually feeling better.
Your body adapts to the lack of oxygen in that your heart pumps more blood per beat and your body becomes effecient at sending the blood to the proper organs that need it most. Talk with your doctor about what a dangerous low is for you but moniter it in the meantime. I was getting a blood test every week for a while to check on the levels. :)
aloha,
Meghan
i am 31 years old and on tx my hgb went down to 8 and other members have gone below that. My dr didnt give procrit until 8. It varies per person but i made it and still worked!
Mark
Do you know what the dangers are? the nurse had mentioned briefly something about heart...
Hi.
My Hemoglobin level is still dropping. I am feeling so wiped out! I go for labs on Monday but as I am feeling worse by the day/hour, I just wonder if I should go in this weekend for blood test... ??? Or am I being over worried?
At what level would it be considered dangerously low?
And what can occur when levels get that low?
thank you!
Mark
-- Edited by news on Saturday 31st of March 2012 05:24:02 PM