JoAnne, it's nothing special, just a topical hydrocortisone. It's sold as 'Eleuphrat' here, made by MSD. Make sure you get the 0.05% stuff, and use it sparingly. Cheers.
JoAnneh said
Sep 28, 2012
The rash went away after a extreme flare up the week after I finished Invicek. Now at 20 weeks it has reappeared and it itches. Not bad as while on Invicek. Glad Brad mentioned it came back after Invicek. I was worried this meant the med had stopped working. Malcomb, I am going to mention the name of the onimonent You are using to my NP. You hang in there Malcomb!!! JoAnne
mallani said
Sep 28, 2012
After being rash-free for 26 weeks, I have developed some small itchy lesions on my back and butt. These disappear after 2 applications on betamethasone ointment. I guess this is a Riba rash, but it's taken a long time to appear. I have also developed numbness and tingling in the hands ? peripheral neuropathy. My doc accepts this as part of Rx. Sigh.
Rich said
Sep 28, 2012
I get the itch and rashes when I get warm and sweat in cooler temps. And I haven't started treatment yet. I wonder if this going to be an issue if and when I start treatment.
Sorry for the high-jack.
krowdog said
Sep 27, 2012
For me the itch got worse, or at least was just as bad after the Incivek.
I'm sure it was the Ribavirin, and it slowly built up right to the end, and a little past.
My incivek rash was larger, under the skin, red blotches, though I didn't get it too bad. These reddish purple areas took about 3 to 4 months for the color to go away completely.
The Riba was smaller, rough, sort itch all over, stuff.
Nothing much helped, except staying out of the sun, staying hydrated, and antihistamines.
Hang in there...
Brad
iggle said
Sep 27, 2012
I didn't itch while on Incivek (except for my backside). Since I stopped Incivek I itch like crazy! I rub lotion on all over about 3-4 times a day now. It's annoying, but I'd much rather deal with this than the rectal problems from incivek. Do your best not to scratch, because it makes things worse. Good news for me: my energy levels are definitely going up! I also feel pretty good in general.
Lornadoone57 said
Sep 24, 2012
Happy Monday, I've been on treatment for less than a week and developed the rash. It seems to fly around my body. Last night I had my husband put benedryll lotion all over my body and this allowed me to sleep. i called my doc and he'll be in tomorrow to prescribe something. I don't want to quit treatement so I'm going to bear with it unless doc makes me quit.
Sed3 said
Jul 4, 2012
I had to stop Incivek after 8 weeks due to the rash. It was so bad I had to ice down my knees and elbows to sleep. After 3 days the rash was healing, but the itch was essentially gone.
Margo said
Jul 3, 2012
wnose wrote:
My personal finding is that the rash disappeared within 2 weeks of stopping Incivek.
Glad to hear, some people complained after incivek as well the rash or itchiness becomes worse.
wnose said
Jul 3, 2012
My personal finding is that the rash disappeared within 2 weeks of stopping Incivek.
peanutbutter said
Jul 3, 2012
wnose wrote:
My personal finding is that the rash disappeared within 2 weeks of stopping Incivek.
Ditto. I got some relief from desitine and aquaphor. Also, drinking water helped me with almost ever side effect. My rash got a little worse after stopping but that only lasted maybe a week, then it got better kind of quickly.
-- Edited by peanutbutter on Tuesday 3rd of July 2012 09:14:50 PM
Margo said
Jun 28, 2012
Thank you Tim, I will read the articles.
Margo said
Jun 28, 2012
Tim, I came across information that this tingling/prikling sensation that I describe as itch is due to the damage of the nerve endings. Someone posted before that Vitamin B12 has shown improvement within a week.( I hav eto find that post, it was a few other things). Also, Ive read that anemia increases itchiness as well, which I developed recently. But the most concerning thing is that people say that the itch becomes worse AFTER stopping Incivek, like a withdrawal effect...wow how freaking bad can it possibly get?
hrsetrdr said
Jun 28, 2012
Margo wrote:
No Tim, no sun. It's quite cold where I am now and windy.I saw that a lot of people develop rashes after week 8. It went away, but as soon as I begin to itch one part on my body, it spreads like crazy everywhere else. Controlling Myself not to itch, is the hardest...
You know, I have noticed a distinct increase in new rash sites with myself, in the last week or two; very unsettling if this trend continues...
hrsetrdr said
Jun 28, 2012
The B-12 is reported to benefit in healing periphral nerve damage, I've been taking the following B-12 product for about six months:
...for the periphral neuropathy in my feet. I don't expect any dramatic results, as it may be possible that the periphral neuropathy is caused by Cryoglobulinemia, which is a condition that is common in HCV patients .
...as a support forum they really have alot on their plate, with all the topics they have sub-forums for!
-- Edited by hrsetrdr on Thursday 28th of June 2012 06:19:14 AM
-- Edited by hrsetrdr on Thursday 28th of June 2012 06:19:30 AM
hrsetrdr said
Jun 27, 2012
Margo wrote:
No Tim, no sun. It's quite cold where I am now and windy. I saw that a lot of people develop rashes after week 8. It went away, but as soon as I begin to itch one part on my body, it spreads like crazy everywhere else. Controlling Myself not to itch, is the hardest...
Margo,
Yes, controlling one's urge to scratch the itch is the biggest challange for us mortals, here on Earth.
Once Pandora's box has be opened, it's so very hard to turn back the hands of time.
Margo said
Jun 27, 2012
No Tim, no sun. It's quite cold where I am now and windy. I saw that a lot of people develop rashes after week 8. It went away, but as soon as I begin to itch one part on my body, it spreads like crazy everywhere else. Controlling Myself not to itch, is the hardest...
hrsetrdr said
Jun 27, 2012
Margo, did you get too much Sun? I got a horrible rash due to too much Sun, and use Betamethasone lotion as needed.
-Tim
Margo said
Jun 27, 2012
Besides the horrible itching, I was granted a rash on top! Mild, patch like appearance on my upper arms, chest and upper back. That's just what I needed. Miserable then ever, overdosed myself on hydrozyzine and Benadryl I'm trying to fall asleep or I'll take my skin off. I thing god is trying my Tolerence...
JoAnne, it's nothing special, just a topical hydrocortisone. It's sold as 'Eleuphrat' here, made by MSD. Make sure you get the 0.05% stuff, and use it sparingly. Cheers.
Now at 20 weeks it has reappeared and it itches. Not bad as while on Invicek. Glad Brad mentioned it came back after Invicek.
I was worried this meant the med had stopped working.
Malcomb, I am going to mention the name of the onimonent
You are using to my NP.
You hang in there Malcomb!!!
JoAnne
After being rash-free for 26 weeks, I have developed some small itchy lesions on my back and butt. These disappear after 2 applications on betamethasone ointment. I guess this is a Riba rash, but it's taken a long time to appear. I have also developed numbness and tingling in the hands ? peripheral neuropathy. My doc accepts this as part of Rx. Sigh.
Sorry for the high-jack.
For me the itch got worse, or at least was just as bad after the Incivek.
I'm sure it was the Ribavirin, and it slowly built up right to the end, and a little past.
My incivek rash was larger, under the skin, red blotches, though I didn't get it too bad. These reddish purple areas took about 3 to 4 months for the color to go away completely.
The Riba was smaller, rough, sort itch all over, stuff.
Nothing much helped, except staying out of the sun, staying hydrated, and antihistamines.
Hang in there...
Brad
I didn't itch while on Incivek (except for my backside). Since I stopped Incivek I itch like crazy! I rub lotion on all over about 3-4 times a day now. It's annoying, but I'd much rather deal with this than the rectal problems from incivek. Do your best not to scratch, because it makes things worse. Good news for me: my energy levels are definitely going up! I also feel pretty good in general.
I've been on treatment for less than a week and developed the rash. It seems to fly around my body. Last night I had my husband put benedryll lotion all over my body and this allowed me to sleep. i called my doc and he'll be in tomorrow to prescribe something. I don't want to quit treatement so I'm going to bear with it unless doc makes me quit.
My personal finding is that the rash disappeared within 2 weeks of stopping Incivek.
-- Edited by peanutbutter on Tuesday 3rd of July 2012 09:14:50 PM
Tim, I came across information that this tingling/prikling sensation that I describe as itch is due to the damage of the nerve endings. Someone posted before that Vitamin B12 has shown improvement within a week.( I hav eto find that post, it was a few other things). Also, Ive read that anemia increases itchiness as well, which I developed recently. But the most concerning thing is that people say that the itch becomes worse AFTER stopping Incivek, like a withdrawal effect...wow how freaking bad can it possibly get?
You know, I have noticed a distinct increase in new rash sites with myself, in the last week or two; very unsettling if this trend continues...
The B-12 is reported to benefit in healing periphral nerve damage, I've been taking the following B-12 product for about six months:
Jarrow Formulas, Methyl B-12, 5000 mcg
...for the periphral neuropathy in my feet. I don't expect any dramatic results, as it may be possible that the periphral neuropathy is caused by Cryoglobulinemia, which is a condition that is common in HCV patients .
Edited- forgot to insert links!
Some external reading:
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001567/
http://www.hcvadvocate.org/hcsp/articles/Bonkovsky-2.html
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1808770/
http://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/cryoglob.shtml
Here's where I initially made inquiries regarding PN(periphral neuropahty): neurotalk.psychcentral.com
...as a support forum they really have alot on their plate, with all the topics they have sub-forums for!
-- Edited by hrsetrdr on Thursday 28th of June 2012 06:19:14 AM
-- Edited by hrsetrdr on Thursday 28th of June 2012 06:19:30 AM
Margo,
Yes, controlling one's urge to scratch the itch is the biggest challange for us mortals, here on Earth.
Once Pandora's box has be opened, it's so very hard to turn back the hands of time.
Margo, did you get too much Sun? I got a horrible rash due to too much Sun, and use Betamethasone lotion as needed.
-Tim