So far I've been able to complete the incivek. my counts are stable and normal. Sorry to hear about your complications.
Phil G said
Dec 19, 2012
By week 6, most of my main blood counts were below normal, and by week 8, all were below. They continued to drop until my riba was reduced from 1000 to 600 at week 17 for the duration of tx. The white stuff leveled off although low and erratic. The reds leveled off at a higher level, HGB>10. Felt much better after that. I did achieve SVR!
2willy said
Dec 18, 2012
Yes so have mine, it seems I am in week 13, and finally sort of stable, Hgb 100; Wbc2.4; Aanc 1.4 plats jumed back up to 181 and Alt dropped to 58 so all in all we are all different and this treatment needs to be fined tune to each of us, I guess. my only problem is my Creat or kiddneys it is 145 but dropped was 217 needed more water. I was will see Doctor at end of week and maybe they will send me for a Viral load finally so I can see if all the ups and downs is beating this Virus
Bill and Family
Biggyb said
Dec 18, 2012
Yep, i am on triple with Vict. Low blood count reduced peg, rash reduced ribivirin to 2 in morn 1 at night, vict unchanged. Almost had to quit due to extreme rash which Merck is aware of now and updated their label.
elizabeth said
Jul 19, 2012
Damdifino wrote:
Still, I have to wonder, is anyone else getting their meds changed on a weekly basis?
Yes. My husband's meds have been adjusted / changed / started / stopped so often it's hard to keep up. But like you, he's been UND since week 4 and he's almost through week 15. Currently he's had the riba stopped (again), taking procrit (again) and got two units of blood yesterday (again). Who knows what tomorrow brings!
Hang in there if you can. I'm sure the end result will be worth it.
Damdifino said
Jul 19, 2012
I'm in treatment week 16 with triple/Victrelis. I'm fortunate that I was UND at week 4 and have been ever since. The problem is that my blood chemicals are in the tank: I'm on Procrit for low red cells and my ribivirin has been reduced to 2x200mg tabs a day. As soon as it arrives, I'll be starting neupogen for low white cell count. I'm also taking Allopurinol to control uric acid. The doctor says if my blood levels don't improve I'll need to cut my Pegintron to 0.3ml per week.
His take on all this is that it's good--that the triple therapy is working. Last Friday he told me my treatment stop date would be October 19 (30 weeks) which is definitely good news; I'm just about half way through. Needless to say, I'm suffering ALL the classic side effects and I just want to get this over.
It's scarey rearranging so many meds. Of course I want to take doses that are high enough to do the job. I do trust my doctor's judgement--he's internationally renowned in this field. Still, I have to wonder, is anyone else getting their meds changed on a weekly basis?
opie said
Jul 18, 2012
Yep. I am in week 10 with triple/telaprevir this time and did 48 weeks of ribo and peg a couple years ago. Both times I've had problems with blood counts. Neupogen and procrit both prescrbed in yo-yoing amounts which corresponded to my down and up blood counts. They've also cut my ribo and peg, (just peg this time) when the counts get too low. When the counts come back up, they raise the dosage of the HCV meds.
-- Edited by opie on Thursday 19th of July 2012 12:58:06 AM
By week 6, most of my main blood counts were below normal, and by week 8, all were below. They continued to drop until my riba was reduced from 1000 to 600 at week 17 for the duration of tx. The white stuff leveled off although low and erratic. The reds leveled off at a higher level, HGB>10. Felt much better after that. I did achieve SVR!
Yes so have mine, it seems I am in week 13, and finally sort of stable, Hgb 100; Wbc2.4; Aanc 1.4 plats jumed back up to 181 and Alt dropped to 58 so all in all we are all different and this treatment needs to be fined tune to each of us, I guess. my only problem is my Creat or kiddneys it is 145 but dropped was 217 needed more water. I was will see Doctor at end of week and maybe they will send me for a Viral load finally so I can see if all the ups and downs is beating this Virus
Bill and Family
Yep, i am on triple with Vict. Low blood count reduced peg, rash reduced ribivirin to 2 in morn 1 at night, vict unchanged. Almost had to quit due to extreme rash which Merck is aware of now and updated their label.
Yes. My husband's meds have been adjusted / changed / started / stopped so often it's hard to keep up. But like you, he's been UND since week 4 and he's almost through week 15. Currently he's had the riba stopped (again), taking procrit (again) and got two units of blood yesterday (again). Who knows what tomorrow brings!
Hang in there if you can. I'm sure the end result will be worth it.
I'm in treatment week 16 with triple/Victrelis. I'm fortunate that I was UND at week 4 and have been ever since. The problem is that my blood chemicals are in the tank: I'm on Procrit for low red cells and my ribivirin has been reduced to 2x200mg tabs a day. As soon as it arrives, I'll be starting neupogen for low white cell count. I'm also taking Allopurinol to control uric acid. The doctor says if my blood levels don't improve I'll need to cut my Pegintron to 0.3ml per week.
His take on all this is that it's good--that the triple therapy is working. Last Friday he told me my treatment stop date would be October 19 (30 weeks) which is definitely good news; I'm just about half way through. Needless to say, I'm suffering ALL the classic side effects and I just want to get this over.
It's scarey rearranging so many meds. Of course I want to take doses that are high enough to do the job. I do trust my doctor's judgement--he's internationally renowned in this field. Still, I have to wonder, is anyone else getting their meds changed on a weekly basis?
Yep. I am in week 10 with triple/telaprevir this time and did 48 weeks of ribo and peg a couple years ago. Both times I've had problems with blood counts. Neupogen and procrit both prescrbed in yo-yoing amounts which corresponded to my down and up blood counts. They've also cut my ribo and peg, (just peg this time) when the counts get too low. When the counts come back up, they raise the dosage of the HCV meds.
-- Edited by opie on Thursday 19th of July 2012 12:58:06 AM