Sounds like a very normal start to me. Get a light blanket or afghan and put it on the back of the couch to have it handy. Start assembling your tools, like mild bath soap with no perfumes or deodorant, a box of Aveeno oatmeal bath, some good quality skin lotion, maybe some hydrocortisone cream, and probably some Prep H products of your choosing. If you have a support staff at home, make sure and share all the new stuff you learn. You are right on track as far as I can see.
LanaiSurferGirl said
Aug 1, 2012
Ken, I would intense chills followed by fever and night sweats. When I felt these coming on I just gave in and relaxed as much as I could and took an advil or 2. Ask your doc about the advil but mine was fine with it.
good luck,
Meghan
packerfan24 said
Aug 1, 2012
WELL THESE DRUGS EFFECT EVERYONE DIFFERENT. MY FIRST NIGHT WENT VERY WELL, BUT LAST NIGHT (DAY 2) WAS NOT AS GOOD. I HAD THE CHILLS AND HAD A SLIGHT ITCH. I GUESS THE SIDE EFFECTS ARE STARTING TO HIT ME. THIS IS A GOOD BOARD YOU ARE ON AND A GREAT BUNCH OF PEOPLE TO HELP YOU THROUGH IT. DRINK PLENTY OF WATER. MAKE SURE YOU TAKE YOUR DRUGS ON TIME. YOU WILL BE FINE. WE ARE ALL HERE TO HELP YOU.
KEN
-- Edited by packerfan24 on Wednesday 1st of August 2012 12:17:51 PM
urespa2 said
Aug 1, 2012
Hi Ken,
I'm new here and much like you I am about to begin treatment next Friday Aug 10th 2012. I'll be on the same three meds as you. It's not the meds that concerns me. It's the side affects that scare the living day lights out of me. Any input will be greatly appreciated.
About to change my mind!
packerfan24 said
Aug 1, 2012
EATING LATE AT NIGHT IS NOT ME. I GUESS YOU HAVE TO DO WHAT YOU HAVE TO DO.
Ken
news said
Aug 1, 2012
Great news, Ken. It is better when the medicine gives you few days to get accustomed. A few of the folks had pretty scary nights after the first shot. My first week was pretty easy. Sounds like yours will be, too. Just concentrate on getting in line with the new schedule and snack foods for your Incivek, and waltz right into it. You'll be fine. Alan
Cinnamon Girl said
Aug 1, 2012
Hey that`s great Ken, you`re off to a very good start! Take it easy, hope your sx continue to be mild.
~ Jill xx
packerfan24 said
Jul 31, 2012
Day 1 down and feeling pretty good. No bad side effects just a little headache. I guess I am one of the lucky ones. Had a good night sleep.
KEN
packerfan24 said
Jul 31, 2012
Thanks Jill I am getting ready to take my first dart (SHOT)
Ken
Cinnamon Girl said
Jul 30, 2012
Just wanted to say best of luck with your first shot, Ken, I`m sure you know what to expect in the way of sx by now, hope it goes smoothly for you.
Keep us posted!
~ Jill xx
packerfan24 said
Jul 30, 2012
Alan like I said I am retired so I don't really have any kind of wrok schedule. I will take a kit with me if I should go out.
Ken
packerfan24 said
Jul 30, 2012
Jo I will keep you post . So far so good.
news said
Jul 30, 2012
Sounds like the best possible schedule. I would have pushed mine back to 7, 3 and 11, but I was so committed to continuing my regular work schedule and 6 worked better. I carried my meds kit, which also contained itch cream, butt remedies, and any other side effects management, everywhere I went. That way if I got stranded anywhere it wasn't a big deal. Then after twelve weeks I slacked off a bit. Alan
JoAnneh said
Jul 30, 2012
Ken, you are on the right track w medicines. Hope u have easy night of sleep. Keep us posted! JoAnne
packerfan24 said
Jul 30, 2012
Thanks Alan for info. My pill schedule started at 7am. So my next time will be at 3pm. I think around 6 or 7p I will take the riba. I am going to take the shot just before I go to bed around 10p and the last incivik at 11p. Hope this works for me. It should.
Ken
packerfan24 said
Jul 30, 2012
Thanks Jo I have a alarm clock that will be going off every 8 hours to remind me to take drugs. I started today 7/30/12 at 7am Florida time. Thanks I will take drugs with me if I go out. Didn't think of that. I will keep you all posted on my road to recovery.
Ken
JoAnneh said
Jul 29, 2012
Ken, I took two Tylenol w my shot and small dose of Benadryl to ward off side effects. I also take seriquel to sleep I take half of a 25 mg. The RIBA makes sleeping difficult for me. My iPhone alarm is set to go off daily at med times. This has helped me so much not to miss dosage. Do NOT miss Invicek, you must take every 7-9 hours with 20 grams of fat for it to work properly. My doc preached this to me so much! She said if I cut my arm off And headed to hospital and it's between getting my arm or my med! For me to get my med that we could get another arm! If u leave the house take Invicek with you just in case!!! Hospitals do not stock triple tx drugs. Drink lots Of water and Gatorade and glad you are joining us!! Welcome JoAnne
news said
Jul 29, 2012
At my briefing with Genentech/Roche, the lady said I could take the second ribavirin with the second Incivek at 2PM, "just to get it out of the way". But that makes for a lopsided ribavirin schedule. I did it, and it obviously worked, but I bet it works better if you spread them out a little better, like with breakfast and supper, whenever those occur. The very important schedule is the Incivek, since it has such an incredibly short half life. You really need to pay attention to that one. The riba could easily be "twice a day" instead of a hard schedule. Glad you are about to get started. When I wake up tomorrow I'll remember that another slayer is starting down the trail. Best of luck to you. Alan
packerfan24 said
Jul 29, 2012
Thanks dave for the info.
Ken
davesf said
Jul 29, 2012
Same time is fine in the am. Pm will probably be seperate as Riba is 2x daily while Incivek is 3x.
packerfan24 said
Jul 29, 2012
One good thing is I am retired. So o work schedule. Should i take all the pills at the same time? I aam on incivik.
Phil G said
Jul 29, 2012
Ken, Can't add much to what Alan said. There is a magical difference between clearing all the obstacles to actually start (including my messed up thinking) and actually starting. Once you start, it really just falls into place. It does become the priority, and for me, an obsession, too. But that's OK. It got me thru it, and still managed to live a reasonable lifestyle although with significant compromises. But that's OK, too. Its not forever.
news said
Jul 29, 2012
So, Monday will be your day one. I guess you will probably start with your pills at regular times (choose them carefully, because it is hard to change them) and do the shot in the evening. I can't remember which triple you are doing, but if it is Incivek you'll probably start at about 6AM, then 2PM, then 10PM. If you are doing Victrelis, you won't have to worry about that for a few weeks. But the best idea in my opinion is to embrace this seriously, allow modest changes in your life schedule and make treatment Job 1. Before long you will be used to it and can deal with any other issues, such as side effects, work schedule, etc. Good luck and let us know how it goes during the first few days. Alan
packerfan24 said
Jul 29, 2012
Ok I said this before,but I am 99.9% sure that I will be starting the tx on Monday. Have not started but can't wait to be done.
Ken, I would intense chills followed by fever and night sweats. When I felt these coming on I just gave in and relaxed as much as I could and took an advil or 2. Ask your doc about the advil but mine was fine with it.
good luck,
Meghan
WELL THESE DRUGS EFFECT EVERYONE DIFFERENT. MY FIRST NIGHT WENT VERY WELL, BUT LAST NIGHT (DAY 2) WAS NOT AS GOOD. I HAD THE CHILLS AND HAD A SLIGHT ITCH. I GUESS THE SIDE EFFECTS ARE STARTING TO HIT ME. THIS IS A GOOD BOARD YOU ARE ON AND A GREAT BUNCH OF PEOPLE TO HELP YOU THROUGH IT. DRINK PLENTY OF WATER. MAKE SURE YOU TAKE YOUR DRUGS ON TIME. YOU WILL BE FINE. WE ARE ALL HERE TO HELP YOU.
KEN
-- Edited by packerfan24 on Wednesday 1st of August 2012 12:17:51 PM
Hi Ken,
I'm new here and much like you I am about to begin treatment next Friday Aug 10th 2012. I'll be on the same three meds as you. It's not the meds that concerns me. It's the side affects that scare the living day lights out of me. Any input will be greatly appreciated.
About to change my mind!
EATING LATE AT NIGHT IS NOT ME. I GUESS YOU HAVE TO DO WHAT YOU HAVE TO DO.
Ken
Hey that`s great Ken, you`re off to a very good start! Take it easy, hope your sx continue to be mild.
~ Jill xx
Day 1 down and feeling pretty good. No bad side effects just a little headache. I guess I am one of the lucky ones. Had a good night sleep.
KEN
Thanks Jill I am getting ready to take my first dart (SHOT)
Ken
Just wanted to say best of luck with your first shot, Ken, I`m sure you know what to expect in the way of sx by now, hope it goes smoothly for you.
Keep us posted!
~ Jill xx
Alan like I said I am retired so I don't really have any kind of wrok schedule. I will take a kit with me if I should go out.
Ken
Jo I will keep you post . So far so good.
Hope u have easy night of sleep.
Keep us posted! JoAnne
Thanks Alan for info. My pill schedule started at 7am. So my next time will be at 3pm. I think around 6 or 7p I will take the riba. I am going to take the shot just before I go to bed around 10p and the last incivik at 11p. Hope this works for me. It should.
Ken
Thanks Jo I have a alarm clock that will be going off every 8 hours to remind me to take drugs. I started today 7/30/12 at 7am Florida time. Thanks I will take drugs with me if I go out. Didn't think of that. I will keep you all posted on my road to recovery.
Ken
The RIBA makes sleeping difficult for me.
My iPhone alarm is set to go off daily at med times.
This has helped me so much not to miss dosage.
Do NOT miss Invicek, you must take every 7-9 hours with 20 grams of fat for it to work properly.
My doc preached this to me so much! She said if I cut my arm off
And headed to hospital and it's between getting my arm or my med! For me to get my med that we could get another arm! If u leave the house take Invicek with you just in case!!!
Hospitals do not stock triple tx drugs.
Drink lots Of water and Gatorade and glad you are joining us!!
Welcome
JoAnne
Thanks dave for the info.
Ken
Same time is fine in the am. Pm will probably be seperate as Riba is 2x daily while Incivek is 3x.
One good thing is I am retired. So o work schedule. Should i take all the pills at the same time? I aam on incivik.
Ken, Can't add much to what Alan said. There is a magical difference between clearing all the obstacles to actually start (including my messed up thinking) and actually starting. Once you start, it really just falls into place. It does become the priority, and for me, an obsession, too. But that's OK. It got me thru it, and still managed to live a reasonable lifestyle although with significant compromises. But that's OK, too. Its not forever.
Ok I said this before,but I am 99.9% sure that I will be starting the tx on Monday. Have not started but can't wait to be done.
Ken