It has now been almost 2 weeks for me since I have been off treatment and my energy is returning as well! :) It feels so good to not deal with the flu-like side effects. I had some a few days after treatment but had family in town, went for a hike, and was busy with them...I am an outgoing person and it is easy for me to get caught up spending time with people (which I love) then realize I have burned out my energy later. :) My hubby is good at reeling me in and making me relax while I was on the treatment.
Other than that 1 post treatment episode I have done well and am on the road to recovery! :)
aloha,
Meghan
hrsetrdr said
Aug 13, 2012
wnose wrote:
hrsetrdr wrote:
Phil, I have been wondering about the "energy, but not the stamina or drive" concept for some time. Now that I am "post treatment" I've joined the ranks of those having to deal with this. I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks. I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?
You're not the only one. I've found that you can't wait for the motivation to move...you need to get going then the motivation will slowly emerge. Break the task down into little steps and tackle each step.
So very true, I'm planning to finish the drywall in the garage nextweek, when the heat-wave is supposed to break; every time I walk through the garage I do a "first this, then this" scenario in my mind.
wnose said
Aug 13, 2012
hrsetrdr wrote:
Phil, I have been wondering about the "energy, but not the stamina or drive" concept for some time. Now that I am "post treatment" I've joined the ranks of those having to deal with this. I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks. I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?
You're not the only one. I've found that you can't wait for the motivation to move...you need to get going then the motivation will slowly emerge. Break the task down into little steps and tackle each step.
hrsetrdr said
Aug 13, 2012
Shep wrote:
I think after living under the fear, anixety and physical strain of tx, when you do step out of the fog and into the light. The light is just too bright and it takes awhile to adjust. It seems like so much has changed while we have been hyper focused on just making it through each day and counting each day until we reach the end. When it is over there isn't a single goal to focus on and not really sure what needs to be addressed first. It can be quite overwhelming and my reaction has been to go back into hibernation. And for sure that fog has not completely cleared!
But I did actually force myself out of the house last night and spent the evening we some of my farm community friends and we made sour kraut and then a meal to share. Made me feel almost "normal." I teally believe the energy and motiviation will come back--we just have to adjust to the light.
Shep,
I 'm afraid that I am a bit vulnerable right now, not surprisingly I find the highlighted statement so poignant but so very poetic at the same time. I hope you don't mind, I saved a copy in my "notable quotes" file.
-Tim
Shep said
Aug 13, 2012
I think after living under the fear, anixety and physical strain of tx, when you do step out of the fog and into the light. The light is just too bright and it takes awhile to adjust. It seems like so much has changed while we have been hyper focused on just making it through each day and counting each day until we reach the end. When it is over there isn't a single goal to focus on and not really sure what needs to be addressed first. It can be quite overwhelming and my reaction has been to go back into hibernation. And for sure that fog has not completely cleared!
But I did actually force myself out of the house last night and spent the evening we some of my farm community friends and we made sour kraut and then a meal to share. Made me feel almost "normal." I teally believe the energy and motiviation will come back--we just have to adjust to the light.
packerfan24 said
Aug 13, 2012
way to go Alan. Take it one day at a time. It will all return to you. I know what you mean about walking and losing your breath. I walk down 3 flights of stairs is ok ,but I have to take a elevator to get back up. Get VERY winded if I walk up.
Ken
hrsetrdr said
Aug 13, 2012
Phil G wrote:
Alan, Glad its improving. It will continue. At 2 months post, I feel as good as can be expected, but no where near what it was before tx. But why should it? My physical condition is not the same. Getting back into into shape is not going to be any easier than its ever been in the past, and should probably expect it to be more difficult. I have the energy, but not the stamina or drive, but that's improving, too. One of the problems is I don't really remember what normal was. The brain fog is not completely gone.
Phil, I have been wondering about the "energy, but not the stamina or drive" concept for some time. Now that I am "post treatment" I've joined the ranks of those having to deal with this. I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks. I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?
Phil G said
Aug 13, 2012
Alan, Glad its improving. It will continue. At 2 months post, I feel as good as can be expected, but no where near what it was before tx. But why should it? My physical condition is not the same. Getting back into into shape is not going to be any easier than its ever been in the past, and should probably expect it to be more difficult. I have the energy, but not the stamina or drive, but that's improving, too. One of the problems is I don't really remember what normal was. The brain fog is not completely gone.
Cinnamon Girl said
Aug 12, 2012
Good to hear this Alan, keep us updated as you go from strength to strength! Jill xx
mallani said
Aug 12, 2012
Alan, Thanks for the update , great to hear. It is hard to remember what it's like to have normal energy levels. I remain concerned the post Rx path will not as easy for me. Keep us posted.
JoAnneh said
Aug 12, 2012
Alan, why did you do 36 weeks instead of 48? Curious cause my 2 week UND, 4 DET, 8 UND So nurse prac told me yesterday 48 weeks. Thanks and looking forward to more normal life after Inv. JoAnne
news said
Aug 12, 2012
JoAnneh wrote:
Alan, u r my role model! Yesterday I finished Invicek only 29 more weeks to go! Ha I can't believe I may feel like working out again. Can't wait. Keep us posted on progress. JoAnne
JoAnne, I am so happy and pleased for you. Finishing Incivek is huge. You are going to have much more quality of life now, with three less daily doses to worry about, no 20g. fatty snacks, and the itch will begin to subside. You are going to be so happy. Way to go girlfriend. The rest of the way should be much better. Alan
Shep said
Aug 11, 2012
Hey Alan! So happy to hear your energy is returning. It is a slow climb. In 2 more weeks I bet you will be running up that hill!
hrsetrdr said
Aug 11, 2012
Nice going Alan, so glad to see that you're able to make great progress to fully doing what your pre-tx life was about.
JoAnneh said
Aug 11, 2012
Alan, u r my role model! Yesterday I finished Invicek only 29 more weeks to go! Ha I can't believe I may feel like working out again. Can't wait. Keep us posted on progress. JoAnne
LUV2RYDE said
Aug 11, 2012
Alan~ I am so happy for you that your energy is coming back and your able to do things without much effort. I hope all of your labs are perfect! I am hoping everything goes smooth for me to do this trial in Oct so I don't have to do triple tx.
news said
Aug 11, 2012
Until today I was not real impressed with the rate of recovery post treatment. I felt better, but the rate of improvement was too slow. But yesterday I walked to lunch with a friend at work. The return trip involves a long walk up a steep hill. During treatment I would be so winded it was hard to have a conversation. But yesterday I got to the top without much effort, carrying a belly full of chicken tiki masala and a coke. Today I was at the gym, and did the stationary bike for 30 minutes (8 miles), then hit my seven stations on the machines, doing the full number of reps at the full weight the trainer set up for me pre-treatment. It was difficult, but I never was able to do that during treatment. So, slow as it seems, there is hard evidence that the body is fighting its way back from this beating. This is such welcome news. In two more weeks I have labs to make sure the blood is returning to normal. I would love to dazzle the doctor by posting levels near my pre-treatment numbers, excluding AST, ALT and VL of course. Anyway, just had to throw that out there. It seems in post treatment, as is so many other areas, patience is a virtue. You can't just hit a switch and be ack to normal. Alan
It has now been almost 2 weeks for me since I have been off treatment and my energy is returning as well! :) It feels so good to not deal with the flu-like side effects. I had some a few days after treatment but had family in town, went for a hike, and was busy with them...I am an outgoing person and it is easy for me to get caught up spending time with people (which I love) then realize I have burned out my energy later. :) My hubby is good at reeling me in and making me relax while I was on the treatment.
Other than that 1 post treatment episode I have done well and am on the road to recovery! :)
aloha,
Meghan
So very true, I'm planning to finish the drywall in the garage nextweek, when the heat-wave is supposed to break; every time I walk through the garage I do a "first this, then this" scenario in my mind.
You're not the only one. I've found that you can't wait for the motivation to move...you need to get going then the motivation will slowly emerge. Break the task down into little steps and tackle each step.
Shep,
I 'm afraid that I am a bit vulnerable right now, not surprisingly I find the highlighted statement so poignant but so very poetic at the same time. I hope you don't mind, I saved a copy in my "notable quotes" file.
-Tim
But I did actually force myself out of the house last night and spent the evening we some of my farm community friends and we made sour kraut and then a meal to share. Made me feel almost "normal." I teally believe the energy and motiviation will come back--we just have to adjust to the light.
way to go Alan. Take it one day at a time. It will all return to you. I know what you mean about walking and losing your breath. I walk down 3 flights of stairs is ok ,but I have to take a elevator to get back up. Get VERY winded if I walk up.
Ken
Phil, I have been wondering about the "energy, but not the stamina or drive" concept for some time. Now that I am "post treatment" I've joined the ranks of those having to deal with this. I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks. I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?
Alan, Glad its improving. It will continue. At 2 months post, I feel as good as can be expected, but no where near what it was before tx. But why should it? My physical condition is not the same. Getting back into into shape is not going to be any easier than its ever been in the past, and should probably expect it to be more difficult. I have the energy, but not the stamina or drive, but that's improving, too. One of the problems is I don't really remember what normal was. The brain fog is not completely gone.
Good to hear this Alan, keep us updated as you go from strength to strength!
Jill xx
Alan, Thanks for the update , great to hear. It is hard to remember what it's like to have normal energy levels. I remain concerned the post Rx path will not as easy for me. Keep us posted.
Curious cause my 2 week UND, 4 DET, 8 UND
So nurse prac told me yesterday 48 weeks.
Thanks and looking forward to more normal life after Inv.
JoAnne
Nice going Alan, so glad to see that you're able to make great progress to fully doing what your pre-tx life was about.
I can't believe I may feel like working out again.
Can't wait. Keep us posted on progress. JoAnne