Hoping to join the UND group myself but am a bit disheartened that at 12 weeks I was still showing small VL of 40. I don't know what the stats are for people with low VL at 12 weeks that cleared by week 24. Like Malcolm said to me, with cirrhosis it's a different set of rules. The meds have a longer time to work through the liver/body entirely I suppose. Anyway, fingers still crossed that the dragon will be slain. If not this year then within the next 2 once the new families of drugs start to appear. Was excited to see a new approach being taken focusing on the host cell as opposed to going after the virus itself...a new and novel approach and as long as these pharmaceutical companies see a profit to be made on our misfortune then they will continue to find ways to kill the virus.
Judy S said
Oct 26, 2012
Whoo-hoooo!! For Phil AND Alan! I'm SO happy for you both! We've been getting a mixture of good and bad news lately here; I'm so sorry for all who have relapsed after such a rough time on this harsh tx. But as has been mentioned, we do need to hear ALL the results, both good and bad. Everyone's still learning with this virus; there will always be newer and better txs. We all were the test subjects with Victrelis and Incivek.
mallani said
Oct 26, 2012
Congratz Alan. Inspirational 'NEWS'. Very happy for you mate!
nohcvforme said
Oct 26, 2012
Congrats to both of you! My 12 week post blood was drawn Oct 22, so hoping for the same great news.
davesf said
Oct 26, 2012
Right on, one more to go.
news said
Oct 25, 2012
I just wish all of us could have stayed UND. It tears me up each time I hear a report of virus found. Thank goodness the trials continue, and the treatments seem to be getting better.
Phil G said
Oct 25, 2012
Well done, Alan. Now relax until the next test. I am very happy for you, yet so sad for those lately with not so good news.
Cinnamon Girl said
Oct 25, 2012
Wow Alan, how great is that?!!! I`m so happy for you, I`m sitting here with a big grin on my face, congrats to you!
Big hug, Jill xx
news said
Oct 25, 2012
Hello, Phil
Even though I am a month late, congrats on a fine set of labs. Guess what! I just joined you. The CRNP just sent me an email with one word in like a 48 pt. font saying ZERO!!!!!
Feels real good. We some bad, virus killing son-of-a-guns.
Alan
Shep said
Sep 28, 2012
Yea Phil--I am so happy for you!! You are just a bit ahead of me. Glad you are feeling so much better!! I really want to keep my skinny clothes!!
Judy S said
Sep 22, 2012
Excellent news, Phil! My dr also says it's not an exact science. For the record, my Riba was reduced at Week 4 from 1200 mg to 800 mg daily. It was always the generic Riba. I also had to take a 1-week break from PegIntron. And then had to stop in the middle of Week 23.
innerview said
Sep 20, 2012
Phantastic Phil! All the best brother!
Starting to feel somewhat "normal" myself. Actually picked up the guitar this week. Man, my fingers are sore!!! But it still feels good.
jrc said
Sep 20, 2012
Congrats You have a 99% chance of SVR
JIme said
Sep 20, 2012
Congratulations Phil. The only thing I don't like is your re-aquaintance with stress.........welcome back, I think.....lol.
davesf said
Sep 20, 2012
Yeah! One more left to make it official but very strong odds you're there.
peanutbutter said
Sep 19, 2012
Phil for the win. Congrats
LC said
Sep 19, 2012
I am so glad to hear that! That's got to be a huge load off your mind!
hrsetrdr said
Sep 19, 2012
Phil G wrote:
Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month.
All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300.
Generally feel pretty good and relatively normal. Activity and strength back up to near normal, which isn't exactly anything to brag about. So has weight. Grown out of the skinny clothes I had to buy during tx. Some pre-existing things seem to be a little more pronounced, or at least I'm noticing them more - mainly sinus problems, tinnitus, and back pain.
Got off blood pressure meds towards the end of tx, but have restarted them. Coffee consumption is back up, weight has increased, and I have rediscovered the stress of work and life in general.
If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.
Phil, glad to hear that you're still UND and that the LIFE forces are trickling back into your body. A few weeks after halting tx I noticed my BP running high-er than I liked(was great while on-treat), so went back on my Hydrochlorothiazide med.
greenqueen said
Sep 19, 2012
Wonderful news, Phil!
If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.
Thanks for mentioning the above - really helpful to anyone who's worried about Riba reduction
Steff xx
Mary Jane said
Sep 19, 2012
Awesome.. thanks for sharing.. I needed that .. I'm just trying the one day at a time.. peace and love MJ
LanaiSurferGirl said
Sep 18, 2012
yay!
ss said
Sep 18, 2012
Great News Phil!
Cinnamon Girl said
Sep 18, 2012
That is excellent news, Phil, really pleased for you! Great to hear you`re feeling so much better and stronger...just try to go a bit easy on yourself and keep those stress levels under control, it can be a shock to the system getting back into "normal" life after tx.
All the best, onwards to SVR! Jill xx
Iris Dragonfly said
Sep 18, 2012
You go Phil! Good to hear your feeling more like yourself, maybe now that you can be a little more active, some the aches will subside. Onwards>>>>>>>>>>>>> BB, Iris
Hey Malcolm, that's a fabulous feast !!
mallani said
Sep 18, 2012
Fantastic news Phil! What a relief for you. It's been a feast of undet. lately, and I'm so happy to add you to the list. Happy recovery
Phil G said
Sep 18, 2012
Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month.
All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300.
Generally feel pretty good and relatively normal. Activity and strength back up to near normal, which isn't exactly anything to brag about. So has weight. Grown out of the skinny clothes I had to buy during tx. Some pre-existing things seem to be a little more pronounced, or at least I'm noticing them more - mainly sinus problems, tinnitus, and back pain.
Got off blood pressure meds towards the end of tx, but have restarted them. Coffee consumption is back up, weight has increased, and I have rediscovered the stress of work and life in general.
If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.
Great news Phil and Alan
Keep it coming future is looking better
BS
Congratz Alan and Phil !!
Hoping to join the UND group myself but am a bit disheartened that at 12 weeks I was still showing small VL of 40. I don't know what the stats are for people with low VL at 12 weeks that cleared by week 24. Like Malcolm said to me, with cirrhosis it's a different set of rules. The meds have a longer time to work through the liver/body entirely I suppose. Anyway, fingers still crossed that the dragon will be slain. If not this year then within the next 2 once the new families of drugs start to appear. Was excited to see a new approach being taken focusing on the host cell as opposed to going after the virus itself...a new and novel approach and as long as these pharmaceutical companies see a profit to be made on our misfortune then they will continue to find ways to kill the virus.
Whoo-hoooo!! For Phil AND Alan! I'm SO happy for you both! We've been getting a mixture of good and bad news lately here; I'm so sorry for all who have relapsed after such a rough time on this harsh tx. But as has been mentioned, we do need to hear ALL the results, both good and bad. Everyone's still learning with this virus; there will always be newer and better txs. We all were the test subjects with Victrelis and Incivek.
Congratz Alan. Inspirational 'NEWS'. Very happy for you mate!
I just wish all of us could have stayed UND. It tears me up each time I hear a report of virus found. Thank goodness the trials continue, and the treatments seem to be getting better.
Well done, Alan. Now relax until the next test. I am very happy for you, yet so sad for those lately with not so good news.
Wow Alan, how great is that?!!! I`m so happy for you, I`m sitting here with a big grin on my face, congrats to you!
Big hug, Jill xx
Hello, Phil
Even though I am a month late, congrats on a fine set of labs. Guess what! I just joined you. The CRNP just sent me an email with one word in like a 48 pt. font saying ZERO!!!!!
Feels real good. We some bad, virus killing son-of-a-guns.
Alan
Excellent news, Phil! My dr also says it's not an exact science. For the record, my Riba was reduced at Week 4 from 1200 mg to 800 mg daily. It was always the generic Riba. I also had to take a 1-week break from PegIntron. And then had to stop in the middle of Week 23.
Starting to feel somewhat "normal" myself. Actually picked up the guitar this week. Man, my fingers are sore!!! But it still feels good.
Congrats You have a 99% chance of SVR
Congratulations Phil. The only thing I don't like is your re-aquaintance with stress.........welcome back, I think.....lol.
Phil, glad to hear that you're still UND and that the LIFE forces are trickling back into your body.
A few weeks after halting tx I noticed my BP running high-er than I liked(was great while on-treat), so went back on my Hydrochlorothiazide med.
Wonderful news, Phil!
Thanks for mentioning the above - really helpful to anyone who's worried about Riba reduction
Steff xx
Awesome.. thanks for sharing.. I needed that .. I'm just trying the one day at a time.. peace and love MJ
yay!
Great News Phil!
That is excellent news, Phil, really pleased for you!
Great to hear you`re feeling so much better and stronger...just try to go a bit easy on yourself and keep those stress levels under control, it can be a shock to the system getting back into "normal" life after tx. 
All the best, onwards to SVR!
Jill xx
You go Phil! Good to hear your feeling more like yourself, maybe now that you can be a little more active, some the aches will subside. Onwards>>>>>>>>>>>>> BB, Iris
Hey Malcolm, that's a fabulous feast !!
Fantastic news Phil! What a relief for you. It's been a feast of undet. lately, and I'm so happy to add you to the list. Happy recovery
Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month.
All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300.
Generally feel pretty good and relatively normal. Activity and strength back up to near normal, which isn't exactly anything to brag about. So has weight. Grown out of the skinny clothes I had to buy during tx. Some pre-existing things seem to be a little more pronounced, or at least I'm noticing them more - mainly sinus problems, tinnitus, and back pain.
Got off blood pressure meds towards the end of tx, but have restarted them. Coffee consumption is back up, weight has increased, and I have rediscovered the stress of work and life in general.
If it helps anyone's concerns during tx: My riba was reduced from 1000 to 600 at week 17 for the remainder of tx, and it was mostly generic stuff. I also did a 5 week lead in instead of 4, so only did 23 weeks of Victrelis instead of 24. To quote my doctor, its not an exact science.