I have cryoglobulinaemia too. Big time those symptoms are why I looked into whats wrong with me I had so much Cryo ? in my blood the asked if I would donate my white cells Got paid 175$ They filter all the blood in your body like dialysis and take the white cells
I'm still under triple Tx . I tried and tried to get someone who could treat the symptoms A rheumatoid doctor said there was treatment for cryoglobulinaemia and he does it . But I couldn't get it cause of my liver More than one doctor said The Cryo " Should " down when you clear the HEP C It may even go away I can't take strong rheumatoid / arthritis meds or even pain meds So far the fluid in my lower legs has gone down a lot and the joint pain is quite a bid better I'm hoping they are right we'll see
BillS
mallani said
Sep 24, 2012
The Rheumatoid Factor test is for one of the autoantibodies. This is often found as part of the cryoglobulinaemia that may we may get in HCV. I checked all my Autoantibodies prior to Rx and my RF was 12 (lab range 0-15). The joint manifestations of HCV are similar to RA, but Xrays do not show the typical rheumatoid findings. If you have HCV and a high RF, it is worth obtaining Xrays of the involved joints.
Judy, a reduction in RF factor is great news. Another +ve sign.
hrsetrdr said
Sep 24, 2012
I looked through all the lab results(that I have access to) back to sometime in 2007, but did not find any RF testing.
I think that most of my achiness has a 'history' and can be attributed to some sort of injury; another theory has to do with being over sixty and over weight.
Scout said
Sep 24, 2012
Hey Judy. I was diagnoised with RA during my first round of treatment 6 1/2 years ago. That coupled with tx is WAY daunting. However this time during tx I was able to treat the RA after 12 weeks and things have leveled off...somewhat. I still have aches and joint pain but I'm able to treat the RA more effectively. Thank Buddha. I wish you the very best as I know RA is a bitch!! I'm always pulling for you, your strength to endure and you're good attitude.
Judy S said
Sep 24, 2012
Hehehe, me, too, Alan! I feel quite a bit older at times! Before tx, I'd always felt like in my 20s, though I'm 44. But heck, if that's the price to pay for SVR I'll take it!
Tim, I didn't get this test from my tx dr. I went to my primary dr last week because of the bad muscle spasm that's got my neck stuck ever since I stopped tx nearly 6 weeks ago. He said he can give me an RF test if I like, and I said yes. You can ask for one from your dr. In fact, I think my 2nd RF test was the only one from tx dr. One week into tx and only because the sx put me in the hospital right away; I was very sick.
hrsetrdr said
Sep 24, 2012
Sounds great Judy, I'm remaining positive and hopeful as well! I don't think that I've had an RF test... <?>
news said
Sep 24, 2012
You go, Judy! You and Bri are still my heroes. I just know you can pull this off. I am noticing achy joints, paticularly when I have been still for a while. It works its way out when I start moving around. But standing up from my desk chair or the couch at home still brings out a groan sometimes.
Alan
Judy S said
Sep 23, 2012
I wanted to mention this because many of us are complaining of new pains post-tx. I'm nearly 6 wks post-tx and have some issues with my neck, arm, and back. Went to dr last week and he gave me another Rheumatoid Factor test.
RF tests for rheumatoid arthritis. However, it can show positive if a patient has hepatitis or some other conditions.
Kaiser's labs state that standard range is <14.
I've had 3 RF tests:
Sept 2011 (before tx) - 41
March 2012 (7 days after starting tx) - 44
Sept 2012 ( 5 weeks post-tx) - 17
I'm going to take this as a good sign that the virus is gone for good. I tested UND at 4 weeks post-tx. Remaining positive and hopeful!
I have cryoglobulinaemia too. Big time those symptoms are why I looked into whats wrong with me I had so much Cryo ? in my blood the asked if I would donate my white cells Got paid 175$ They filter all the blood in your body like dialysis and take the white cells
I'm still under triple Tx . I tried and tried to get someone who could treat the symptoms A rheumatoid doctor said there was treatment for cryoglobulinaemia and he does it . But I couldn't get it cause of my liver More than one doctor said The Cryo " Should " down when you clear the HEP C It may even go away I can't take strong rheumatoid / arthritis meds or even pain meds So far the fluid in my lower legs has gone down a lot and the joint pain is quite a bid better I'm hoping they are right we'll see
BillS
The Rheumatoid Factor test is for one of the autoantibodies. This is often found as part of the cryoglobulinaemia that may we may get in HCV. I checked all my Autoantibodies prior to Rx and my RF was 12 (lab range 0-15). The joint manifestations of HCV are similar to RA, but Xrays do not show the typical rheumatoid findings. If you have HCV and a high RF, it is worth obtaining Xrays of the involved joints.
Judy, a reduction in RF factor is great news. Another +ve sign.
I looked through all the lab results(that I have access to) back to sometime in 2007, but did not find any RF testing.
I think that most of my achiness has a 'history' and can be attributed to some sort of injury; another theory has to do with being over sixty and over weight.
Hey Judy. I was diagnoised with RA during my first round of treatment 6 1/2 years ago. That coupled with tx is WAY daunting. However this time during tx I was able to treat the RA after 12 weeks and things have leveled off...somewhat. I still have aches and joint pain but I'm able to treat the RA more effectively. Thank Buddha. I wish you the very best as I know RA is a bitch!! I'm always pulling for you, your strength to endure and you're good attitude.
Hehehe, me, too, Alan! I feel quite a bit older at times! Before tx, I'd always felt like in my 20s, though I'm 44. But heck, if that's the price to pay for SVR I'll take it!
Tim, I didn't get this test from my tx dr. I went to my primary dr last week because of the bad muscle spasm that's got my neck stuck ever since I stopped tx nearly 6 weeks ago. He said he can give me an RF test if I like, and I said yes. You can ask for one from your dr. In fact, I think my 2nd RF test was the only one from tx dr. One week into tx and only because the sx put me in the hospital right away; I was very sick.
Sounds great Judy, I'm remaining positive and hopeful as well! I don't think that I've had an RF test... <?>
You go, Judy! You and Bri are still my heroes. I just know you can pull this off. I am noticing achy joints, paticularly when I have been still for a while. It works its way out when I start moving around. But standing up from my desk chair or the couch at home still brings out a groan sometimes.
Alan
I wanted to mention this because many of us are complaining of new pains post-tx. I'm nearly 6 wks post-tx and have some issues with my neck, arm, and back. Went to dr last week and he gave me another Rheumatoid Factor test.
RF tests for rheumatoid arthritis. However, it can show positive if a patient has hepatitis or some other conditions.
Kaiser's labs state that standard range is <14.
I've had 3 RF tests:
Sept 2011 (before tx) - 41
March 2012 (7 days after starting tx) - 44
Sept 2012 ( 5 weeks post-tx) - 17
I'm going to take this as a good sign that the virus is gone for good. I tested UND at 4 weeks post-tx. Remaining positive and hopeful!