Maybe some oral meds in your future Bev. Give yourself a chance to rest up and get back to living.
Maybe a trial? Good luck.
alohaKim said
Oct 25, 2012
I just got the same damn call, Bev. 3 weeks post tx, I have a VL of 217,000. UGGGGHHH!!!!!!
Bills said
Oct 19, 2012
52baddog wrote:
Bill: How did your liver got to stage 3 in 6 years, I thought it takes longer. Did you have a biopsy in 2002?
Sorry I must have missed this some how didn't mean to eave you hanging
I only found out I had HEP c in 2002 I think I contracted in 1980's HEP C and Drinking was causing damage like 30 years now that's why I have stage 3
alohaKim said
Oct 19, 2012
Oh, this is heartbreaking. I'm so sorry to read this, Bev. Hang in there, girl!
gatekeep said
Oct 19, 2012
Nightmare! But hope is on the horizon. I was ready to throw in the towel yesterday because of pain. I called incivek hot line they told me nothing. They just wanted my info so they could pass it along to the FDA.
I hope all is well in your future.
kiwi said
Oct 19, 2012
wow, i do post treatment VL bloods next week. find out by nov 6 results. i am an optimist. but like alan says, its scary to read stuff like this.
stay strong mate. lots of people sending you good vibes.
Uval951 said
Oct 19, 2012
Bev, very sorry to hear you relapsed. In your age you can hope for new meds and next Tx. Please remind, 1. What is your biopsy (which stage)? 2. Why did you stop Tx at 38th week? 3. Did you reduced meds doses during Tx? All the best to you.
-- Edited by Uval951 on Friday 19th of October 2012 06:08:47 PM
-- Edited by Uval951 on Friday 19th of October 2012 08:43:05 PM
Mary Jane said
Oct 10, 2012
Bummer Bev, damn dragon.. My wish for you is to enjoy your life , one day at a time, and as the others said newer better and not so yucky drugs are in the works. peace and love MJ
K2 said
Oct 10, 2012
Sorry to hear it. Major disappointment All you can do is keep looking forward and not give up. It's one battle, not the whole war. Chin up mate.
mallani said
Oct 6, 2012
Hi Bev, Devastating news but not the end of the world. At your age you can afford to wait for whatever new drugs they decide on. Stay positive and get healthy. We're all with you.
davesf said
Oct 6, 2012
Crap. I wish things could be different. I'm anxiously awaiting and simultaneously dreading my 3 month labs in a couple of weeks. I keep telling myself that if I don't pass not to worry. There are plenty of better drugs coming down the pipeline in the near future for us, Bev.
Best, Dave
52baddog said
Oct 6, 2012
Bill: How did your liver got to stage 3 in 6 years, I thought it takes longer. Did you have a biopsy in 2002?
Biggyb said
Oct 6, 2012
So sorry for your results, i know how it feels, came back on me twice already in 12 years. This is my last time ever doing the peg crap..Just gotta take it one day at a time, and yes liver got a good break.
hrsetrdr said
Oct 6, 2012
So sorry to hear, it's the nightmare that we all cringe to think about. I had to quit at 16 of 28 weeks...was UND @week 5 post tx. I won't get another VL lab done until March, so I hold my breath until then.
Some new tx comin' down the pike in [probably] mid 2014 so there's hope in the no-so distant future.
news said
Oct 6, 2012
This is maybe the scariest thing I have ever read. I really hope something comes along for you soon. You fought hard, and by golly you deserve better. My 12-week post tests are late November, and 24-week (SVR) in January 2013. I can't imagine my reaction if the news is bad. Best wishes to you no matter what. Get well. Alan
sungoddess said
Oct 6, 2012
Thanks everyone. Its a bummer for sure but as Bills says my liver got a break. For now the sun is shining, the shock is wearing off and I'm going to go wash my dusty truck.
Bev
Iris Dragonfly said
Oct 5, 2012
Hi Bev, so sorry for the bad news. Maybe the new treatment will be approved there in a couple years, and perhaps we'll be on that ride together. Looks like the 7977 won't be available 'till 2014.
Hang in there babe, were here for ya. Be good to yourself, the woulda shoulda coulda's, will make you scream. Blessings, Iris
Bills said
Oct 5, 2012
So sorry to hear this Some of us do know this feeling Someone said to me at least your liver got a break We are all hopeful that something new is close and without Intf / Ribv It should be a breeze compared to the Tx we do now
Good luck Keep an eye out for the new TX and best of luck with all this 'Bill S
kandacetb said
Oct 5, 2012
I am terribly sorry to hear that. I hope you can get on the new treatment sooner than 2 yrs and get rid of this once and for all.
Big, huge, encouraging hugs to you! Kick this virus' @$$!
12Step Guy said
Oct 5, 2012
SunGod. I feel for you and wish you success in the future. Youre going to think maybe I'm crazed but it being back, being gone, not knowing either on some level may be somewhat equal. What I mean by this is that; is we all just live a day at a time. Sometimes good days, some days not so good; with or without the virus we all mostly have the same choices. Be a caring person, be grumpy, be confused, be controlling, be a victim. Bringing happiness, security and safety to others might be whats most important.
I'm only 16 weeks into this time. If it's back next Fall, I'll deal with it, just as you are. Don't know how many times you have relapsed before, but I've not made it twice in 1990 and 2006. My brother in law just celebrated this two liver transplant. I wouldn't wish this on anyone, nor would I like to end up like him and be that close to checking out. Yet now we are back fishing together and giving each other support.
Hang in there; we all have got your back
Vern
sungoddess said
Oct 5, 2012
Went to see my doc yesterday for the results of 3 month post tx blood test. The virus is back and viral count is over 1 million this time. Doc says viral load will likely come back down as time goes on. It felt like a kick in the teeth. We talked about the new tx that is coming, he thinks it will be 2 years before anything will be available in Canada. Right now I'm in a daze. I only did 38 weeks instead of 48 and I cant help thinking that if I did the last 10 maybe the results would have been different. Doc says no way to tell if that would have made any difference. Never thought I'd say this but I cant wait to get some tx.
Bev
Judy S said
Oct 5, 2012
Oh gosh, I'm so sorry, Bev. 38 weeks is a long time to go through hell to learn that it's back. I was able to do 23 weeks (supposed to do 48) but had to stop due to severe sx. So I could very well be in your same boat. I'm currently 7.5 weeks post tx. I tested UND at week 4, but won't have my 3-month post tx test until Nov 6. I'm nervous, believe me. Well, the good news is that the future tx will be interferon-free and I've read they're aiming at only 12 weeks, instead of the 48 weeks! I hope that will be possible! You're in my prayers and let's stay positive. Take good care of yourself and enjoy being sx-free for 2 years, then the new tx should be much easier and hopefully more effective. Don't get too down; we'll beat this at some point!
-- Edited by Judy S on Friday 5th of October 2012 04:58:07 PM
Maybe some oral meds in your future Bev. Give yourself a chance to rest up and get back to living.
Maybe a trial? Good luck.
Sorry I must have missed this some how didn't mean to eave you hanging
I only found out I had HEP c in 2002 I think I contracted in 1980's HEP C and Drinking was causing damage like 30 years now that's why I have stage 3
Oh, this is heartbreaking. I'm so sorry to read this, Bev. Hang in there, girl!
wow, i do post treatment VL bloods next week. find out by nov 6 results. i am an optimist. but like alan says, its scary to read stuff like this.
stay strong mate. lots of people sending you good vibes.
Bev, very sorry to hear you relapsed. In your age you can hope for new meds and next Tx.
Please remind,
1. What is your biopsy (which stage)?
2. Why did you stop Tx at 38th week?
3. Did you reduced meds doses during Tx?
All the best to you.
-- Edited by Uval951 on Friday 19th of October 2012 06:08:47 PM
-- Edited by Uval951 on Friday 19th of October 2012 08:43:05 PM
Bummer Bev, damn dragon.. My wish for you is to enjoy your life , one day at a time, and as the others said newer better and not so yucky drugs are in the works. peace and love MJ
Sorry to hear it. Major disappointment
All you can do is keep looking forward and not give up. It's one battle, not the whole war. Chin up mate.
Hi Bev, Devastating news but not the end of the world. At your age you can afford to wait for whatever new drugs they decide on. Stay positive and get healthy. We're all with you.
Bill: How did your liver got to stage 3 in 6 years, I thought it takes longer. Did you have a biopsy in 2002?
So sorry for your results, i know how it feels, came back on me twice already in 12 years. This is my last time ever doing the peg crap..Just gotta take it one day at a time, and yes liver got a good break.
So sorry to hear, it's the nightmare that we all cringe to think about. I had to quit at 16 of 28 weeks...was UND @week 5 post tx. I won't get another VL lab done until March, so I hold my breath until then.
Some new tx comin' down the pike in [probably] mid 2014 so there's hope in the no-so distant future.
Thanks everyone. Its a bummer for sure but as Bills says my liver got a break. For now the sun is shining, the shock is wearing off and I'm going to go wash my dusty truck.
Bev
Hi Bev, so sorry for the bad news. Maybe the new treatment will be approved there in a couple years, and perhaps we'll be on that ride together. Looks like the 7977 won't be available 'till 2014.
Hang in there babe, were here for ya. Be good to yourself, the woulda shoulda coulda's, will make you scream. Blessings, Iris
So sorry to hear this Some of us do know this feeling Someone said to me at least your liver got a break We are all hopeful that something new is close and without Intf / Ribv It should be a breeze compared to the Tx we do now
Good luck Keep an eye out for the new TX and best of luck with all this 'Bill S
I am terribly sorry to hear that. I hope you can get on the new treatment sooner than 2 yrs and get rid of this once and for all.
Big, huge, encouraging hugs to you! Kick this virus' @$$!
SunGod. I feel for you and wish you success in the future. Youre going to think maybe I'm crazed but it being back, being gone, not knowing either on some level may be somewhat equal. What I mean by this is that; is we all just live a day at a time. Sometimes good days, some days not so good; with or without the virus we all mostly have the same choices. Be a caring person, be grumpy, be confused, be controlling, be a victim. Bringing happiness, security and safety to others might be whats most important.
I'm only 16 weeks into this time. If it's back next Fall, I'll deal with it, just as you are. Don't know how many times you have relapsed before, but I've not made it twice in 1990 and 2006. My brother in law just celebrated this two liver transplant. I wouldn't wish this on anyone, nor would I like to end up like him and be that close to checking out. Yet now we are back fishing together and giving each other support.
Hang in there; we all have got your back
Vern
Went to see my doc yesterday for the results of 3 month post tx blood test. The virus is back and viral count is over 1 million this time. Doc says viral load will likely come back down as time goes on. It felt like a kick in the teeth. We talked about the new tx that is coming, he thinks it will be 2 years before anything will be available in Canada. Right now I'm in a daze. I only did 38 weeks instead of 48 and I cant help thinking that if I did the last 10 maybe the results would have been different. Doc says no way to tell if that would have made any difference. Never thought I'd say this but I cant wait to get some tx.
Bev
Oh gosh, I'm so sorry, Bev. 38 weeks is a long time to go through hell to learn that it's back. I was able to do 23 weeks (supposed to do 48) but had to stop due to severe sx. So I could very well be in your same boat. I'm currently 7.5 weeks post tx. I tested UND at week 4, but won't have my 3-month post tx test until Nov 6. I'm nervous, believe me. Well, the good news is that the future tx will be interferon-free and I've read they're aiming at only 12 weeks, instead of the 48 weeks! I hope that will be possible! You're in my prayers and let's stay positive. Take good care of yourself and enjoy being sx-free for 2 years, then the new tx should be much easier and hopefully more effective. Don't get too down; we'll beat this at some point!
-- Edited by Judy S on Friday 5th of October 2012 04:58:07 PM