52baddog wrote:

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When you say <5 , are referring to the log or the viral load count?

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 PA said viral load..

Bills wrote:

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greenqueen wrote:

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Hi there Mary Jane and congratulations on these results!

In some ways doing tx on your own has advantages, but one of the biggest problems that I found was that it's very hard not to end up in a "black hole", with no one around to give you any perspective. I did the same thing and tried to rationalise the sx by keep telling myself it was the drugs..... almost like a mantra. I wonder if you've got anyone you can just call up to have a good vent when it gets too much?

The emotional stuff is "normal", kind of reminds me of the hormonal moods I get now lol.

I love your pic You're a very strong lady and the one thing I found to be the biggest help on tx was a good forum where I could have the odd rant and not get treated like I was a "nut job"!

Love Steff xx

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 M J  Hope you realize that I second everything Greenqueen ( Steff ) Says here  Thank You Steff    for putting into words what I was thinking 

Bill 

PS We are all backing you up  I'll always get back to you soon as I can

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 Thanks my friends 

Judy S wrote:

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Mary Jane, my heart breaks when I read this because I know exactly what you are going through--we all do--and it is SO damned hard!  You feel like it will never end; many times you catch yourself saying f*&% this, and then a couple of hours later realize you must continue.  It will end, though, you can count on that.  And then feeling good again is Such a blessing; all of the little things that we may sometimes take for granted all become big things that we are very grateful for.  This is sometimes a blessing in disguise.  Hang in there; we're all with you.  Hugs.  

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 Thanks Judy, you nailed it, it is hard, some of us just have it harder than others.. Yeah I have said a couple of times this %#@+ suxs I'm done... I was so sick before I started so it has just made it harder, my health took a nose dive in April and I was spiraling downward so I keep telling myself  the only way is up.. I do enjoy the little things fresh sheets, a full nite sleep, and when food tastes good.. (( hugs)) to you peace and love MJ

2willy wrote:

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starting wk 6 and I do not have wk 4 lab results yet but my heart and prayers go out to you.  I have not started the third part as Hemo is only at 82 but I am not having as bad side effects as you.  You are right about this forum it is a life saver.  I got removed from a support group but I feel much better.  Dogs are wonderful, I have a Chelty and Border Collie and they climb up on the bed and want me to take them for a walk but can not.  Got a tennis ball thrower and sit on deck watching autum leaves and throw the ball for them to chase, that even tires me out.  I guess alot of us are running the ten step long distance race.  I use to walk 2 miles 3 times a day on the farm and fish and hunt, know I just keep in mind that this too will pass.  I do not have grand children so so far I see you are double blessed, 4 dogs and grandchildren.  Good thoughts and prayers with you , Bill and 12 step family in Canada

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 Hey Willy we are about the same time on trx.. I am in week 6 now.. Thank God for dogs, yes sir ree.. and computers, I skype with my grandaughter, hopefully you will get your  Hemo starightend out.. my activity level get out of bed fed myself and the dogs, sit in the chair outside.. Prayers to you as well, happy thoughts for all... peace and love MJ

greenqueen wrote:

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Hi there Mary Jane and congratulations on these results!

In some ways doing tx on your own has advantages, but one of the biggest problems that I found was that it's very hard not to end up in a "black hole", with no one around to give you any perspective. I did the same thing and tried to rationalise the sx by keep telling myself it was the drugs..... almost like a mantra. I wonder if you've got anyone you can just call up to have a good vent when it gets too much?

The emotional stuff is "normal", kind of reminds me of the hormonal moods I get now lol.

I love your pic You're a very strong lady and the one thing I found to be the biggest help on tx was a good forum where I could have the odd rant and not get treated like I was a "nut job"!

Love Steff xx

 

 

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 Thanks Steff.. yeah no one wants to hear me " bitch" so the dogs are happy to take the fall, and I have you all .. gives me piece of mind.. thanks for all the support... peace and love MJ aka Steph

greenqueen wrote:

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Hi there Mary Jane and congratulations on these results!

In some ways doing tx on your own has advantages, but one of the biggest problems that I found was that it's very hard not to end up in a "black hole", with no one around to give you any perspective. I did the same thing and tried to rationalise the sx by keep telling myself it was the drugs..... almost like a mantra. I wonder if you've got anyone you can just call up to have a good vent when it gets too much?

The emotional stuff is "normal", kind of reminds me of the hormonal moods I get now lol.

I love your pic You're a very strong lady and the one thing I found to be the biggest help on tx was a good forum where I could have the odd rant and not get treated like I was a "nut job"!

Love Steff xx

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 M J  Hope you realize that I second everything Greenqueen ( Steff ) Says here  Thank You Steff    for putting into words what I was thinking 

Bill 

PS We are all backing you up  I'll always get back to you soon as I can

Mary Jane wrote:

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Phone call from Doc office late yesterday afternoon... 4 week labs  < 5 !  so I assume and that's makes it under

a 1000 , thus this would be considered UND?  My brain is not firing all on all cylinders.. God I hope so because this has been a rocky road..  peace and love MJ  May we all slay this beast once and for all...attached is my sweet grand daughter and the reason I kept telling myself I have to do this...

-- Edited by Mary Jane on Friday 19th of October 2012 06:03:58 AM

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 MJ when  i saw this Pic It touches me  i said a pic like this you willl have forever and always show it off  She is so cute

I still use this one as my screen saver many times for many years and smile every time I see it  My son  Billy Jr was nuts about that car

I hope you and your grandaugter has as much fun and more fun with her's how could you not?

BiLLS

Hi there Mary Jane and congratulations on these results!

In some ways doing tx on your own has advantages, but one of the biggest problems that I found was that it's very hard not to end up in a "black hole", with no one around to give you any perspective. I did the same thing and tried to rationalise the sx by keep telling myself it was the drugs..... almost like a mantra. I wonder if you've got anyone you can just call up to have a good vent when it gets too much?

The emotional stuff is "normal", kind of reminds me of the hormonal moods I get now lol.

I love your pic You're a very strong lady and the one thing I found to be the biggest help on tx was a good forum where I could have the odd rant and not get treated like I was a "nut job"!

Love Steff xx

Sorry to hear the side effects are getting you down. I've been there wanting to quit many times. Fantastic news on the UND at 4 weeks though! 

When you say <5 , are referring to the log or the viral load count?

starting wk 6 and I do not have wk 4 lab results yet but my heart and prayers go out to you.  I have not started the third part as Hemo is only at 82 but I am not having as bad side effects as you.  You are right about this forum it is a life saver.  I got removed from a support group but I feel much better.  Dogs are wonderful, I have a Chelty and Border Collie and they climb up on the bed and want me to take them for a walk but can not.  Got a tennis ball thrower and sit on deck watching autum leaves and throw the ball for them to chase, that even tires me out.  I guess alot of us are running the ten step long distance race.  I use to walk 2 miles 3 times a day on the farm and fish and hunt, know I just keep in mind that this too will pass.  I do not have grand children so so far I see you are double blessed, 4 dogs and grandchildren.  Good thoughts and prayers with you , Bill and 12 step family in Canada

Mary Jane, my heart breaks when I read this because I know exactly what you are going through--we all do--and it is SO damned hard!  You feel like it will never end; many times you catch yourself saying f*&% this, and then a couple of hours later realize you must continue.  It will end, though, you can count on that.  And then feeling good again is Such a blessing; all of the little things that we may sometimes take for granted all become big things that we are very grateful for.  This is sometimes a blessing in disguise.  Hang in there; we're all with you.  Hugs.  

I am blaming everything on the drugs, I cry at commercials like when I was pregnant, my hair is falling out by the handfuls, my eyes are dry & sometimes I have pain , have to use lubricating drops and my vision has changed since the spring, wake up some mornings when my feet hit the floor and throw up, then have to go thru a ritual to get the 20 grams of fat down.. tired  all the time, walk to the mailbox and feel like a ran a marathon, sleep, terrible neck pain and headaches, back hurts, leg pain like charlie horse.. taste buds out of whack, yell at the dogs and there are 4 of them..Thank God they just wag their tails and look at me.. Live in my pj's , Probiotics help the backside but every once in awhile if I forget whoop there it is.. so I lay around and piss and moan but no one really here to listen to maybe that is a good thing.. and ramble like a idiot, yep it's the drugs... Stay calm and carry on with the meds... peace and love MJ

no , no, not messing with your brain.. I wrote it down when she called she said less than 5... I made her repeat it twice... I just posted  it wrong on here?  and after 24 hours you can't change your post... Not even sure how the test can detect that low a number... sorry I am operating on one bain cell . ... please forgive any confusion.... MJ

mallani wrote:

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MJ, are you messing with my brain? Is it >5 (greater than 5 ) or <5 (less than 5)?

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  We're all being messed with whilst on these drugs.

Fantastic stuff MJ..... Lets keep the good news rolling in.

MJ, are you messing with my brain? Is it >5 (greater than 5 ) or <5 (less than 5)?

Mary Jane wrote:

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Phone call from Doc office late yesterday afternoon... 4 week labs  < 5 !  so I assume and that's makes it under

a 1000 , thus this would be considered UND?  My brain is not firing all on all cylinders.. God I hope so because this has been a rocky road..  peace and love MJ  May we all slay this beast once and for all...

 

attached is my sweet grand daughter and the reason I kept telling myself I have to do this...

-- Edited by Mary Jane on Friday 19th of October 2012 06:03:58 AM

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 just to prove my brain is not workin it should be > less than 5... can't seem to get the cobwebs out..lol

I am so happy for you!    Way to kick that dragon in the tail!  Your grand daughter is a little sweetie.  Good costume too!

news wrote:

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Yes, MJ, it sounds like a good report to me. I am very happy for you. This is a great start, and your chances are good. My first VL came back "less than 25", which translated to "detectable but too low to count". So my doctor gave me twelve extra weeks for bad behavior I was pretty pissed off, but it's OK now that it is over. And it is extra ammo for my SVR in January. Good luck with the remaining treatment. Alan

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 Aprreciate News...Good God if had to do more time, not sure, what I would do, may have to be sedated..lol MJ

Cinnamon Girl wrote:

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Hey that`s great news, MJ, the drugs are doing their job!  Congrats to you!     Really good result even though it is hard going.  I feel for you with the nausea, that`s such a horrible sx to get, especially when you`re throwing up too.  Keep on going, you`re half way through the incivek part of tx and you are sure to start finding it easier once that`s over.

What a beautiful little granddaughter you have, she is lovely! 

Take care and keep us posted, Jill xx

-- Edited by Cinnamon Girl on Saturday 20th of October 2012 10:06:28 PM

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 Thanks Jill.. it's been a just as hard as I imagined it... but the pay off will be worth it... Dart# 6 in just a few... ugggg... peace and love MJ

JIme wrote:

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Congrats MJ. We all should have bought stock in those little cars. I think every kid I know has had one of those....lol,  Beautiful picture. Keep moving forward.

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 LOL, ya know... thanks she is a sweetie pie.. MJ

 Thanks my wonderful forum friends... group hug (( ))  .. I have been so sick there is no way I could get in my car and drive to a support group and besides you all are open 24/7 with friends from all over the world... can't get any better than that... you're the best... I take one day at time looking forward to getting the Inciveck part done with for sure, nasty bugger ... I told one of the members I felt like Alice in Wonderland Johnny Depp version slaying the Jabbawalkie... I'm so ready to cut the *&%# head off...and be done with it... 

Thanks again for all your support I really needed it.. peace and love MJ

Congrats MJ. We all should have bought stock in those little cars. I think every kid I know has had one of those....lol,  Beautiful picture. Keep moving forward.

Hey that`s great news, MJ, the drugs are doing their job!  Congrats to you!     Really good result even though it is hard going.  I feel for you with the nausea, that`s such a horrible sx to get, especially when you`re throwing up too.  Keep on going, you`re half way through the incivek part of tx and you are sure to start finding it easier once that`s over.

What a beautiful little granddaughter you have, she is lovely! 

Take care and keep us posted, Jill xx

Yea Alan  I'm afraid  that for me it's the  full 48 weeks  My doctors always hinted at 48 weeks  They will not say definitely how long  but I knew that when I started the Incivek treatment Because I was in relapse when they switched me over to incivek  I'm preparing for the worst so any reduction in my sentence will be good  I must be really bad behavior  to have an  indefinite sentence  I don't think whats happing to me happens alot most people here got a vacation before round 2  I always get the wgong end of the stick anyway

BS

Way to go MJ

Im so happy for you.  you really kicked it's a&& 22 Mil? To <5 

I knew it I had a good feeling about you getting UND quickly I know you had it tough You can breathe easier now.  About that < 5 I was told a similar thing mine was < 25 it meant detectable below or < less than 25     Then I got really weird readings fractional numbers  They were telling me it meant UND  So week 10 I went to Quest and it was UND  It probably was UND all along  So Now youll get that 2^nd wind and see the light at the end  God bless you MJ  Your going to be fine

I would drink to that if my liver wasnt shot!

BillS

Yep, that would be UND; yeah!!  Great news Mary Jane.  Most all of us got the eye pain and severe dryness.  Well, dryness everywhere...skin, hair, eyes, throat, mouth, nose, etc.  I had a baseline eye exam before tx, then half-way through got another, showing that my vision got slightly worse.  Had to change my glasses rx and wear them all the time.  About a week post-tx, I stopped wearing my glasses.  Haven't worn them since; I'm now 9.5 weeks post.

The nausea is difficult to deal with.  A couple of times, I have also thrown up and let me tell you...there's nothing quite like throwing up Victrelis!

Your little granddaughter is adorable!  I also love your profile pic!  Autumn is my favorite season and Halloween, my fav holiday.  Hang in there; you're doing Really well!!   

Thanks Malcom I can always count of you for the best answers...... My eyes are so dry and I have been dealing with some issues with the small print and I just had my glasses changed in April. and some eye pain..geez every week it's guess what side effect cometh my way.. Saturday will be 6 weeks for the Incevick, I call it hell in pill form.. this has been so hard for me as I am so nauseted and several occasions have thrown up..  I really admire all that have gone ahead of me and are doing 2nd and 3rd rounds of treatment... My wish for all is to slay this monster...once and for all... peace and love MJ

Hi MJ, if your VL is reported as <5, your lab must be using a TMA test eg Heptimax, and that certainly is equivalent to Undet. Congrats, soldier on!

Phone call from Doc office late yesterday afternoon... 4 week labs  < 5 !  so I assume and that's makes it under

a 1000 , thus this would be considered UND?  My brain is not firing all on all cylinders.. God I hope so because this has been a rocky road..  peace and love MJ  May we all slay this beast once and for all...

attached is my sweet grand daughter and the reason I kept telling myself I have to do this...