Hi DJ, '..once I start treatment, my iron levels will drop a lot..'. Interesting comment, not sure where that comes from. Fe levels are often elevated in chronic HCV and have been blamed for poor Inter. sensitivity. Attempts are made to reduce Fe levels! As your levels are now normal, there should not be any problem starting Rx. Sounds like you are being stuffed around.
I can't say I understand it. I mean, the clinic I go to has several doctors who deal with Hep C and they have worked with many people. It isn't a primary care doctor. So I am finding this all very confusing. I am going to go back next month and if she says wait again, I don't know what my next step will be. I am ready to just quit and try to forget I have this problem. I was SO ready to take on the fight and start treatment, but with each month's delay I am feeling like less motivated.
mallani said
Oct 31, 2012
Hi DJ, '..once I start treatment, my iron levels will drop a lot..'. Interesting comment, not sure where that comes from. Fe levels are often elevated in chronic HCV and have been blamed for poor Inter. sensitivity. Attempts are made to reduce Fe levels! As your levels are now normal, there should not be any problem starting Rx. Sounds like you are being stuffed around.
LUV2RYDE said
Oct 31, 2012
Have you had a liver bx? Maybe if your liver is in good enough shape you can wait for the stuff that is in trials now that should be out in 2014....Just a thought. I dont blame you...I have been waiting on a trial that was supposed to start in June then Aug now I am told 1st or sec week in Nov....very frustrating.
DJ said
Oct 30, 2012
Thanks. Doesn't look like there is one that would work for me.
ArtiesGarden said
Oct 30, 2012
Go to "clinicaltrials.gov"
DJ said
Oct 30, 2012
I am honestly almost to the point of wanting to just give up. I found out I had this in July, and mentally ready to get started. Month after month my doctor finds a reason for me to have to wait another month. Right now it is my iron levels. I have been taking iron for a month and they are higher, but not good enough for her, so once again I have to wait another month to see if my iron levels are high enough for her.
I know I have low iron, always have. She put me through several tests to find out why...and basically, it is just me (as I told her, I have always had low iron). So $500 later (that is just my part, insurance had to pay more of course) I now no that I just have low iron and it is a problem for starting treatment.
So how do you find out about trials? Maybe there is one that isn't impacted by low iron. Well now I have normal iron, but she said once I start treatment my iron will drop a lot.
I was SO mentally ready to take this thing on, now I am just so discouraged. I don't want to live with this thing inside of me. I want it gone, but I feel like it isn't going to happen.
Next month if she once again says I have to wait, I am quitting. But if there was some other option that would give me hope, I would look into that. I could look for another doctor but they would be at least an hour away. But it is an option.
But if there was something that didn't involve low iron, I would really love to give it a try.
Anyway, sorry to go on and on. I am just so upset right now and just had a good cry, and feel another coming on. But it will pass. I usually only cry for a day then I regroup and move on.
So any info would be appreciated. I have only read about trials, but know nothing about them.
Thanks!
(P.S. I am Geno type 3 and live in the US)
-- Edited by DJ on Tuesday 30th of October 2012 03:44:22 PM
-- Edited by DJ on Tuesday 30th of October 2012 04:00:12 PM
I can't say I understand it. I mean, the clinic I go to has several doctors who deal with Hep C and they have worked with many people. It isn't a primary care doctor. So I am finding this all very confusing. I am going to go back next month and if she says wait again, I don't know what my next step will be. I am ready to just quit and try to forget I have this problem. I was SO ready to take on the fight and start treatment, but with each month's delay I am feeling like less motivated.
Hi DJ, '..once I start treatment, my iron levels will drop a lot..'. Interesting comment, not sure where that comes from. Fe levels are often elevated in chronic HCV and have been blamed for poor Inter. sensitivity. Attempts are made to reduce Fe levels! As your levels are now normal, there should not be any problem starting Rx. Sounds like you are being stuffed around.
Have you had a liver bx? Maybe if your liver is in good enough shape you can wait for the stuff that is in trials now that should be out in 2014....Just a thought. I dont blame you...I have been waiting on a trial that was supposed to start in June then Aug now I am told 1st or sec week in Nov....very frustrating.
Thanks. Doesn't look like there is one that would work for me.
I am honestly almost to the point of wanting to just give up. I found out I had this in July, and mentally ready to get started. Month after month my doctor finds a reason for me to have to wait another month. Right now it is my iron levels. I have been taking iron for a month and they are higher, but not good enough for her, so once again I have to wait another month to see if my iron levels are high enough for her.
I know I have low iron, always have. She put me through several tests to find out why...and basically, it is just me (as I told her, I have always had low iron). So $500 later (that is just my part, insurance had to pay more of course) I now no that I just have low iron and it is a problem for starting treatment.
So how do you find out about trials? Maybe there is one that isn't impacted by low iron. Well now I have normal iron, but she said once I start treatment my iron will drop a lot.
I was SO mentally ready to take this thing on, now I am just so discouraged. I don't want to live with this thing inside of me. I want it gone, but I feel like it isn't going to happen.
Next month if she once again says I have to wait, I am quitting. But if there was some other option that would give me hope, I would look into that. I could look for another doctor but they would be at least an hour away. But it is an option.
But if there was something that didn't involve low iron, I would really love to give it a try.
Anyway, sorry to go on and on. I am just so upset right now and just had a good cry, and feel another coming on. But it will pass. I usually only cry for a day then I regroup and move on.
So any info would be appreciated. I have only read about trials, but know nothing about them.
Thanks!
(P.S. I am Geno type 3 and live in the US)
-- Edited by DJ on Tuesday 30th of October 2012 03:44:22 PM
-- Edited by DJ on Tuesday 30th of October 2012 04:00:12 PM