This sounds like a good bet. I know several who have been non responders who are kicking it w the same tx. It's short and sweet w low sides. Isn't it great to have energy again? I'm so glad you're getting in shape. Will you go 12 weeks?
Cinnamon Girl said
Apr 2, 2013
Hi Jim, any more news about this trial yet? Sounds like it would be a good one for you to get on.
Great to hear how well you`ve been doing over the last few months, it must feel so good getting back into shape.
Keep in touch, I`m keeping my fingers crossed for you. ~ Jill
Rockyfeller said
Mar 6, 2013
Well, it looks like I'm back. I've been going back to the clinic for follow-ups ever since I was detectable again, and yesterday they asked if I was interested in another trial, this one with GS-7977 and Ribavirin ony, for 24 weeks. I figured, what the heck, I have to pass the time somehow.
Since I finished the last treatment I have been very successful at getting back into a good workout and swimming routine, so I think I will be starting off in better shape than last time.
I actually find it hard to believe I still have it, as good as I have been feeling lately. Went windsurfing last weekend and had a blast. Anyways, I'm planning to retire next January, and only waiting til then because my wife will retire then also, so I figure if I have any problems this time I'll just retire a little early.
They said this trial would start in April or May, and they are offering it to the non-responders, so there must have be some others in the same boat. Hope this one works.
LanaiSurferGirl said
Dec 3, 2012
Jim, I have heard that too...that smokers usually die before those with hep c that keep an active lifestyle. Also, I work in the biotech industry and hear about companies every week that make advances in new hep c treatments so something is bound to come along soon that will beat it! :)
Cinnamon Girl said
Dec 2, 2012
Really sorry it didn`t work out, Jim, it was worth a try and you gave it your best shot. Take it easy now and relax for a while. And maybe make some time to work on your bowling skills!
Wishing you all the best for the future, stay in touch. Jill xx
greenqueen said
Dec 2, 2012
So sorry to hear this, Jim You have a great attitude and wishing you a smooth recovery
We wouldn't get very far without brave people like yourself participating in these trials and you should be very proud of yourself!
Love Steff xx
Bills said
Nov 30, 2012
Very sorry to hear that Rocky
Your not alone with that I had 2 failed attempts over 5 years This is my 3rd It hurts alot Take a rest and try again is easier said that done But as everone says next gen of drugs are going to be easier and better sucess Were all hoping for that day hope you stick around in TX passed TX in limbo your still one of us
Bill S
Bills said
Nov 30, 2012
Great news I feel your joy I like your Yoga buddy too we could learn alot from those guys
Keep feeling better and better
Scout said
Nov 30, 2012
Yes that's a tough one. This was my second attempt so we'll see. All the best to you Rocky. Just a brief observation though. For the 10-15 years prior to my diagnosis I was aware something was going on with my health. I didn't recover from intense exercise as I should and thought I was simply a genetic whimp. Only 3 months after clearing the virus I feel stronger and more alert than I did all those years. I hope my optimism isn't just post tx rose colored glasses but I truly feel better than I have in 20 plus years. I'm 58 now and dealing with some "aging" issues but overall I feel better than I did in my 40's. Again time will tell.
Rockyfeller said
Nov 29, 2012
I'm not planning to do anything right away. (My buddy just walked into my office and told me I needed to improve my bowling before I did anything else). I'm in no distress so I'll wait and see what develops over the next few years. I'm certainly no worse off than before.
mallani said
Nov 29, 2012
Hi Jim, bummer! Didn't expect that. Very sorry the sofosbuvir didn't work for you. Is that it, or will you front up again? Good luck with whatever you decide. Cheers.
greenqueen said
Nov 29, 2012
That's great news, Kenny!
All the best with your recovery and good luck
Steff xx
Phil G said
Nov 29, 2012
I'm like you on the 6 months. I will do that draw tomorrow morning. Being UND since 8 weeks tx thru 12 weeks post, shouldn't be any anxiety, right? Well, not as bad anyway. When I went to the dr for my 3 month, they said we will do it again at 9 months. Hell no, I won't be cheated on this, so had to insist they write an order for the 6 month vl. They really don't understand.
Scout said
Nov 29, 2012
I've been UND since week 4 of tx, however I'm not throwing the party until 6 months post. For now I'm grateful for where I am today. It has been a long road but miles are left to travel. I'm focused on my physical and mental well being and that is good enough for today.
Rockyfeller said
Nov 29, 2012
I have to agree, don't celebrate until after 6 months. Two weeks I finished up my 12 week clinical trial I had the VA test my VL and got back a "target not detected" result. This morning I got the call from my NP that their latest test, done 2 weeks after the VA test, showd that it was back. bummer. Guess I'll just live with it now. As one of the docs I talked to earlier said, "most folks with hep c will die with the disease, not because of it". I've had it for over 40 years now, with no noticeable symptoms, I can probably make it another 25. By then all my retirement savings will probably be gone anyways, so it will be time go.
Good luck to the rest of you.
Bouba said
Nov 29, 2012
Just visited my hepaotologist and raised the same question. The answer was that relapse, if any at all, may occur 1 month post tx, seldom in 3 months. 6 months vl is just a protocol, never heard of 9 months post Basically my doc said the same thing as Jeremy's one - UND 3 months post tx is SVR.
-- Edited by Bouba on Thursday 29th of November 2012 06:53:24 PM
jrc said
Nov 29, 2012
great news! Per my dr 3 months post tx und =SVR
js2012 said
Nov 28, 2012
All the Best! Stay Strong
Bills said
Nov 28, 2012
keep on the road your on fantastic news good luck
Phil G said
Nov 28, 2012
Excellent, Ken.
krowdog said
Nov 28, 2012
Good news indeed!
Like you, I became "mindful" of my physical health. I think with the TX making us feel so bad for so long, getting healthy and feeling good takes on a new importance.
Maybe we "overcompensate"
And maybe that's really good thing.
Enjoy your new health Ken!
Brad
hrsetrdr said
Nov 28, 2012
Great news Keny!
> > >
Cinnamon Girl said
Nov 28, 2012
Fastastic news, Keny, really pleased for you! What a wonderfully positive approach to recovery too...onwards and upwards to SVR!!
All the best to you, Jill xx
-- Edited by Cinnamon Girl on Wednesday 28th of November 2012 10:32:15 AM
JoAnneh said
Nov 28, 2012
Dave, Kiwi and now Kenny! Letting us Know to keep on fighting for the goal! Yay
JoAnneh said
Nov 28, 2012
Oh my goodness! The best of best news ever! I can't wait to follow your foot steps. U give me hope/ U give all of us behind you hope! Thank you for posting! Hugs, JoAnne
davesf said
Nov 28, 2012
U! N! D! U! N! D! Woo Hoo! Great to hear you're doing well Keny. I'm a few weeks ahead of you and have also been feeling good while slowly whipping myself into shape. Thanks for sharing the good news.
Shep said
Nov 28, 2012
You just brought the biggest smile to my face! Such wonderful news!! Thank-you!!
mallani said
Nov 28, 2012
Hi Keny, Great to hear! Very happy for you- go out and LIVE! Cheers
Scout said
Nov 28, 2012
I never liked bucking hay anyway. I've taken a mindful approach to my physical recovery. I'm riding my road bike, taking yoga classes, seeing a PT for the loss of muscle tone during treatment. I eat a healthy diet, I meditate, and I laugh a lot these days. Every breath I take after treatment has been taken with an eye on getting better, stronger, happier. Little by slowly I'm getting there.
onabugeisha said
Nov 28, 2012
Fabulous news!!! Can you go into detail on how you feel. Do you feel good enough to jump rope and carry hay bales. Don't mean to be silly. Just excited for you.
Scout said
Nov 28, 2012
And I'm UND!! All bloodwork is in normal range and I feel better than I have in years. Thank you guys for hanging with me during this stressful ordeal. 3 more months and I'm homefree.
Mary Jane said
Nov 27, 2012
Awesome.. clapping hands Kenny... I do understand your new philosophy.. enjoy life ..Carpe diem.. MJ
-- Edited by Mary Jane on Wednesday 28th of November 2012 01:12:14 AM
JIme said
Nov 27, 2012
Man Keny, I like the sound of that. Sign me up!
That's great news. Congratulations!
-- Edited by JIme on Wednesday 28th of November 2012 12:48:08 AM
This sounds like a good bet. I know several who have been non responders who are kicking it w the same tx. It's short and sweet w low sides. Isn't it great to have energy again? I'm so glad you're getting in shape. Will you go 12 weeks?
Hi Jim, any more news about this trial yet? Sounds like it would be a good one for you to get on.
Great to hear how well you`ve been doing over the last few months, it must feel so good getting back into shape.
Keep in touch, I`m keeping my fingers crossed for you.
~ Jill
Well, it looks like I'm back. I've been going back to the clinic for follow-ups ever since I was detectable again, and yesterday they asked if I was interested in another trial, this one with GS-7977 and Ribavirin ony, for 24 weeks. I figured, what the heck, I have to pass the time somehow.
Since I finished the last treatment I have been very successful at getting back into a good workout and swimming routine, so I think I will be starting off in better shape than last time.
I actually find it hard to believe I still have it, as good as I have been feeling lately. Went windsurfing last weekend and had a blast. Anyways, I'm planning to retire next January, and only waiting til then because my wife will retire then also, so I figure if I have any problems this time I'll just retire a little early.
They said this trial would start in April or May, and they are offering it to the non-responders, so there must have be some others in the same boat. Hope this one works.
Jim, I have heard that too...that smokers usually die before those with hep c that keep an active lifestyle. Also, I work in the biotech industry and hear about companies every week that make advances in new hep c treatments so something is bound to come along soon that will beat it! :)
Really sorry it didn`t work out, Jim, it was worth a try and you gave it your best shot. Take it easy now and relax for a while. And maybe make some time to work on your bowling skills!
Wishing you all the best for the future, stay in touch.
Jill xx
So sorry to hear this, Jim
You have a great attitude and wishing you a smooth recovery 
We wouldn't get very far without brave people like yourself participating in these trials and you should be very proud of yourself!
Love Steff xx
Very sorry to hear that Rocky
Your not alone with that I had 2 failed attempts over 5 years This is my 3rd It hurts alot Take a rest and try again is easier said that done But as everone says next gen of drugs are going to be easier and better sucess Were all hoping for that day hope you stick around in TX passed TX in limbo your still one of us
Bill S
Great news I feel your joy I like your Yoga buddy too we could learn alot from those guys
Keep feeling better and better
Yes that's a tough one. This was my second attempt so we'll see. All the best to you Rocky. Just a brief observation though. For the 10-15 years prior to my diagnosis I was aware something was going on with my health. I didn't recover from intense exercise as I should and thought I was simply a genetic whimp. Only 3 months after clearing the virus I feel stronger and more alert than I did all those years. I hope my optimism isn't just post tx rose colored glasses but I truly feel better than I have in 20 plus years. I'm 58 now and dealing with some "aging" issues but overall I feel better than I did in my 40's. Again time will tell.
I'm not planning to do anything right away. (My buddy just walked into my office and told me I needed to improve my bowling before I did anything else). I'm in no distress so I'll wait and see what develops over the next few years. I'm certainly no worse off than before.
Hi Jim, bummer! Didn't expect that. Very sorry the sofosbuvir didn't work for you. Is that it, or will you front up again? Good luck with whatever you decide. Cheers.
That's great news, Kenny!
All the best with your recovery and good luck
Steff xx
I'm like you on the 6 months. I will do that draw tomorrow morning. Being UND since 8 weeks tx thru 12 weeks post, shouldn't be any anxiety, right? Well, not as bad anyway. When I went to the dr for my 3 month, they said we will do it again at 9 months. Hell no, I won't be cheated on this, so had to insist they write an order for the 6 month vl. They really don't understand.
I've been UND since week 4 of tx, however I'm not throwing the party until 6 months post. For now I'm grateful for where I am today. It has been a long road but miles are left to travel. I'm focused on my physical and mental well being and that is good enough for today.
I have to agree, don't celebrate until after 6 months. Two weeks I finished up my 12 week clinical trial I had the VA test my VL and got back a "target not detected" result. This morning I got the call from my NP that their latest test, done 2 weeks after the VA test, showd that it was back. bummer. Guess I'll just live with it now. As one of the docs I talked to earlier said, "most folks with hep c will die with the disease, not because of it". I've had it for over 40 years now, with no noticeable symptoms, I can probably make it another 25. By then all my retirement savings will probably be gone anyways, so it will be time go.
Good luck to the rest of you.
Just visited my hepaotologist and raised the same question. The answer was that relapse, if any at all, may occur 1 month post tx, seldom in 3 months. 6 months vl is just a protocol, never heard of 9 months post
Basically my doc said the same thing as Jeremy's one - UND 3 months post tx is SVR.
-- Edited by Bouba on Thursday 29th of November 2012 06:53:24 PM
great news! Per my dr 3 months post tx und =SVR
All the Best! Stay Strong
keep on the road your on fantastic news good luck
Excellent, Ken.
Good news indeed!
Like you, I became "mindful" of my physical health. I think with the TX making us feel so bad for so long, getting healthy and feeling good takes on a new importance.
Maybe we "overcompensate"
And maybe that's really good thing.
Enjoy your new health Ken!
Brad
Great news Keny!
Fastastic news, Keny, really pleased for you! What a wonderfully positive approach to recovery too...onwards and upwards to SVR!!

All the best to you, Jill xx
-- Edited by Cinnamon Girl on Wednesday 28th of November 2012 10:32:15 AM
Know to keep on fighting for the goal!
Yay
I can't wait to follow your foot steps.
U give me hope/ U give all of us behind you hope!
Thank you for posting!
Hugs, JoAnne
Hi Keny, Great to hear! Very happy for you- go out and LIVE! Cheers
I never liked bucking hay anyway.
I've taken a mindful approach to my physical recovery. I'm riding my road bike, taking yoga classes, seeing a PT for the loss of muscle tone during treatment. I eat a healthy diet, I meditate, and I laugh a lot these days. Every breath I take after treatment has been taken with an eye on getting better, stronger, happier. Little by slowly I'm getting there.
Fabulous news!!! Can you go into detail on how you feel. Do you feel good enough to jump rope and carry hay bales. Don't mean to be silly. Just excited for you.
And I'm UND!! All bloodwork is in normal range and I feel better than I have in years. Thank you guys for hanging with me during this stressful ordeal. 3 more months and I'm homefree.
Awesome.. clapping hands Kenny... I do understand your new philosophy.. enjoy life ..Carpe diem.. MJ
-- Edited by Mary Jane on Wednesday 28th of November 2012 01:12:14 AM
Man Keny, I like the sound of that. Sign me up!
That's great news. Congratulations!
-- Edited by JIme on Wednesday 28th of November 2012 12:48:08 AM