Hi Marilyn thanks, that petition has gone around on here before but it's always good to bring it up again for the new people.
Marilyn said
Jan 15, 2013
Hi,
I am new here and I found this site to help all hep c patients. I belong to an organization that is trying to get the new human treatment to treat Hep c released now. Here is the site to sign the petition www.hepc-cured.com The story is this Bristol-Myers Squibbs has a drug called datclatasvir and Gilead Science has it's GS-7977 now called sofosbuvir. When only these 2 drugs are used they get 100% cure in 12 weeks. No Interferon and no Ribavirin!!!!!! It works on all genotypes. Gilead is refusing to work with BMS because it wants to corner the market for themself and want to try and make a generic and use it with Ribavirin the results are poor and harmful to the patients. BMS is willing to work with Gilead. I have hep c and found this information out this Dec. because my blood work is bad. I started looking around at treatments again and ran across this treatment information and the head organizer for the release of this new treatment for all hep c patients now before more of us die. There is no place for corporate greed when it comes to such a deadly disease. Please help. Sign the petition, spread the word, tell everyone, we have flyers, poster, wristbands that we can get to you and you can duplicate and display where ever you can. I put a 8" by 11" poster in dry cleaners, Chinese restaurants, pet stores, pizza shops, laudramates, bowling lanes, supermarket bill boards, etc. Please email me back and I will get the poster to you. maleisz@aol.com
Best
DJ said
Jan 10, 2013
And couldn't you go with the usual treatment for the genotype 3 and if it didn't work, then see when this becomes available if it would be an option? I do hope something new that works well for genotype 3 comes out, but the odds are good for our genotype and it is worth a try to get rid of the virus.
mallani said
Jan 10, 2013
Hi Jeri,
You're probably referring to the first Phase 3 trial released by Gilead. It refers to a trial of Geno 2's and 3's treated with sofosbuvir and ribavirin.
The results for Geno 2 were quite good, but the SVR rates for Geno 3's was disappointing at 61%. There will be other Phase 3 trials coming. The treatment duration was 12 weeks, compared to the usual 24 weeks of SOC. However, the dose of Ribavirin was higher and weight-related.
Would you rather have a 12 week regime of sofosbuvir with a high dose of Riba, for an SVR chance of 61%, or would you rather have 24 weeks of Rx using Peg. and a lower dose of Riba, with an SVR rate of >80%. Maybe a better drug combo. will become available. Cheers.
DJ said
Jan 10, 2013
Is it for Genotype 3? That is also my genotype, and it seems like everything coming out is for genotype 1 only. So that is something to consider.
I do hope they come out with something that will work with genotype 3 if regular treatments do not work. I am starting treatment on Friday, and of course hoping it works and I am done, but I would sure feel better if I knew something new and better was coming out soon for genotype 3 to try just in case this treatment doesn't work.
GodsGrl said
Jan 10, 2013
I was looking online last night and say that in 2014 a new non interferon treatment will be available here in the USA, been in trials with good results. Way less or no side effects. I'm stage one chirrosis I'm considering waiting, was scheduled to start treatment this next week. Thoughts????
Hi Marilyn thanks, that petition has gone around on here before but it's always good to bring it up again for the new people.
Hi,
I am new here and I found this site to help all hep c patients. I belong to an organization that is trying to get the new human treatment to treat Hep c released now. Here is the site to sign the petition www.hepc-cured.com The story is this Bristol-Myers Squibbs has a drug called datclatasvir and Gilead Science has it's GS-7977 now called sofosbuvir. When only these 2 drugs are used they get 100% cure in 12 weeks. No Interferon and no Ribavirin!!!!!! It works on all genotypes. Gilead is refusing to work with BMS because it wants to corner the market for themself and want to try and make a generic and use it with Ribavirin the results are poor and harmful to the patients. BMS is willing to work with Gilead. I have hep c and found this information out this Dec. because my blood work is bad. I started looking around at treatments again and ran across this treatment information and the head organizer for the release of this new treatment for all hep c patients now before more of us die. There is no place for corporate greed when it comes to such a deadly disease. Please help. Sign the petition, spread the word, tell everyone, we have flyers, poster, wristbands that we can get to you and you can duplicate and display where ever you can. I put a 8" by 11" poster in dry cleaners, Chinese restaurants, pet stores, pizza shops, laudramates, bowling lanes, supermarket bill boards, etc. Please email me back and I will get the poster to you. maleisz@aol.com
Best
Hi Jeri,
You're probably referring to the first Phase 3 trial released by Gilead. It refers to a trial of Geno 2's and 3's treated with sofosbuvir and ribavirin.
The results for Geno 2 were quite good, but the SVR rates for Geno 3's was disappointing at 61%. There will be other Phase 3 trials coming. The treatment duration was 12 weeks, compared to the usual 24 weeks of SOC. However, the dose of Ribavirin was higher and weight-related.
Would you rather have a 12 week regime of sofosbuvir with a high dose of Riba, for an SVR chance of 61%, or would you rather have 24 weeks of Rx using Peg. and a lower dose of Riba, with an SVR rate of >80%. Maybe a better drug combo. will become available. Cheers.
Is it for Genotype 3? That is also my genotype, and it seems like everything coming out is for genotype 1 only. So that is something to consider.
I do hope they come out with something that will work with genotype 3 if regular treatments do not work. I am starting treatment on Friday, and of course hoping it works and I am done, but I would sure feel better if I knew something new and better was coming out soon for genotype 3 to try just in case this treatment doesn't work.
I was looking online last night and say that in 2014 a new non interferon treatment will be available here in the USA, been in trials with good results. Way less or no side effects. I'm stage one chirrosis I'm considering waiting, was scheduled to start treatment this next week. Thoughts????