Glad to hear life is improving. I'm getting my Rheumatoid Factor done tomorrow as I've got a lot of joint pain and stiffness ( at EOT + 11.5w). Good luck for the future.
LanaiSurferGirl said
May 5, 2013
I am getting better...not nearly as much dermatitis and joint stiffness is subdued but still there. I tested negative for RA so hoping it goes away...its been 9 months since treatment now. :)
Loopy Lisa said
Apr 19, 2013
I read somewhere that Interferon can activate auto immune disorders, I have Fibromyalgia that is also one of the things the virus is known to activate and interferon can make worse. It might help to read some of the people treated for cancer with interferon on the internet, as I read some of them were having simialr experiences. Past that I can't suggest anything else as I have never had interferon. Good luck with recovery. Hugs x
Zlikster said
Apr 19, 2013
keep us posted how it goes! i got joint aches, since quite possibly, hcv infection...now during tx it's getting worse, anxious what will be post tx...
best
chatterbox said
Apr 19, 2013
Almost 6 months post treatment. Cleared virus but yes, Being tested for RA. Stiff, stiff, still. Joint aches which I never had before. Funky things. Youre not alone. Keep me posted on what you find out. My hep PA said it had nothing to do with treatment. Went to my primary care guy. He says OF COURSE it does. We'll hang in there!
Shep said
Mar 13, 2013
Hey Meghan 6 months post and I am doing pretty good. I have noticed some achiness in my joints mostly the knees. My thyroid is now back to the normal range--it was given me fits for awhile. But I had hypothyroidism before tx. Hope it gets settled for you--pesky thyroid can cause some issues. I have actually started sleeping better than I have in years. Hope you are doing well otherwise.
hrsetrdr said
Mar 12, 2013
Hi Meghan,
Sorry for the late reply, I usually look at the "Chatbox" on the left of the screen for new postings; sometimes they get "buried" by newer ones. I still have occasional joint pain and muscle soreness on and off; also still have what I call "lesions" on various spots of my skin, which erupt from time-to-time and are itchy & scaley. My NP charecterizes these skin lesions as looking alot like Psoriasis, suggesting ongoing side effects of interferon, which has caused other issues (my right optic nerve) with my body.
Other post tx issues that I experience are: a weird crawly feeling on my skin, mostly up around my head and neck, but also occurs on torso and legs as well. In addition, a bit of anxiety and difficulty staying asleep have been my main tribulation; I'll be ever-so-thankful to get back to 'normal' on these last 2 issues.
Take care,
Tim
LanaiSurferGirl said
Mar 10, 2013
Hey, I am 7 months post treatment now and still am having dermatitis on neck, ears, eyelid, and scalp. I have RA like symptoms in my hands....they are stiff when I wake up. Also, My TSH is very high but T3 and T4 normal. All of these together make me think its autoimmune or still side effects of the interferon....although it has been 7 months since tx. Anyone else experiencing these symptoms? They may be totally unrelated but I am just curious. :)
Hi Meghan,
Glad to hear life is improving. I'm getting my Rheumatoid Factor done tomorrow as I've got a lot of joint pain and stiffness ( at EOT + 11.5w). Good luck for the future.
I am getting better...not nearly as much dermatitis and joint stiffness is subdued but still there. I tested negative for RA so hoping it goes away...its been 9 months since treatment now. :)
I read somewhere that Interferon can activate auto immune disorders, I have Fibromyalgia that is also one of the things the virus is known to activate and interferon can make worse. It might help to read some of the people treated for cancer with interferon on the internet, as I read some of them were having simialr experiences. Past that I can't suggest anything else as I have never had interferon. Good luck with recovery. Hugs x
keep us posted how it goes! i got joint aches, since quite possibly, hcv infection...now during tx it's getting worse, anxious what will be post tx...
best
Almost 6 months post treatment. Cleared virus but yes, Being tested for RA. Stiff, stiff, still. Joint aches which I never had before. Funky things. Youre not alone. Keep me posted on what you find out. My hep PA said it had nothing to do with treatment. Went to my primary care guy. He says OF COURSE it does. We'll hang in there!
6 months post and I am doing pretty good. I have noticed some achiness in my joints mostly the knees. My thyroid is now back to the normal range--it was given me fits for awhile. But I had hypothyroidism before tx. Hope it gets settled for you--pesky thyroid can cause some issues. I have actually started sleeping better than I have in years. Hope you are doing well otherwise.
Hi Meghan,
Sorry for the late reply, I usually look at the "Chatbox" on the left of the screen for new postings; sometimes they get "buried" by newer ones. I still have occasional joint pain and muscle soreness on and off; also still have what I call "lesions" on various spots of my skin, which erupt from time-to-time and are itchy & scaley. My NP charecterizes these skin lesions as looking alot like Psoriasis, suggesting ongoing side effects of interferon, which has caused other issues (my right optic nerve) with my body.
Other post tx issues that I experience are: a weird crawly feeling on my skin, mostly up around my head and neck, but also occurs on torso and legs as well. In addition, a bit of anxiety and difficulty staying asleep have been my main tribulation; I'll be ever-so-thankful to get back to 'normal' on these last 2 issues.
Take care,
Tim
Hey, I am 7 months post treatment now and still am having dermatitis on neck, ears, eyelid, and scalp. I have RA like symptoms in my hands....they are stiff when I wake up. Also, My TSH is very high but T3 and T4 normal. All of these together make me think its autoimmune or still side effects of the interferon....although it has been 7 months since tx. Anyone else experiencing these symptoms? They may be totally unrelated but I am just curious. :)
Thanks,
Meghan