I had a 4 week and 12 week UND and I was told my next virus load test would be 6 months after treatment ends. So I have to wait until January for my next one. I was guessing it was expensive or else they would do it more often.
Bloomster said
May 5, 2013
Hi there, sorry to hear of your frustration - treatment is hard enough. We didn't get my husband's very first viral load test (at 8 weeks) as the sample was 'damaged' - very annoying.
BiggyB, hubby is the same as you, had a VL at 24 weeks and none further until he gets to 48 weeks. They also said they will not be doing any VL tests until 6 months after treatment - absolutely nothing in between.
Anyway, GodsGrl - thinking of you and hope things travel along a bit smoother for you. Caroline
-- Edited by Bloomster on Monday 6th of May 2013 04:57:37 AM
Dillo said
May 5, 2013
Biggyb wrote:
Dillo wrote:
I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter.
Oh, he said he will have one done at 48, sorry forgot to mention that..duh
Your getting short bro. Not many weeks left. Love the AV
Take care
Biggyb said
May 5, 2013
Dillo wrote:
I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter.
Oh, he said he will have one done at 48, sorry forgot to mention that..duh
Dillo said
May 5, 2013
Biggyb wrote:
Dillo wrote:
The nurse told me the VL test were expensive and that Insurance was pretty picky about paying for them except at 4, 12, 24 so maybe that's the reasoning. You could always see if you can get one done at Quest or somewhere but Ins may not pay for it.
I was wondering about that, i haven't had a vl test since week 24 and i am on wk 42..Dr said if your und at 12 and 24 very rarely comes back by wk48..I think it's a money thing..I could have the virus raging through me again..hope not.
I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter.
Biggyb said
May 5, 2013
Dillo wrote:
The nurse told me the VL test were expensive and that Insurance was pretty picky about paying for them except at 4, 12, 24 so maybe that's the reasoning. You could always see if you can get one done at Quest or somewhere but Ins may not pay for it.
I was wondering about that, i haven't had a vl test since week 24 and i am on wk 42..Dr said if your und at 12 and 24 very rarely comes back by wk48..I think it's a money thing..I could have the virus raging through me again..hope not.
Dillo said
May 5, 2013
The nurse told me the VL test were expensive and that Insurance was pretty picky about paying for them except at 4, 12, 24 so maybe that's the reasoning. You could always see if you can get one done at Quest or somewhere but Ins may not pay for it.
Jennifer20 said
May 5, 2013
I'm sorry that you're having such a rough part in your journey right now. Sending you cool A/C thoughts and well-wishes from SoCal!
GodsGrl said
May 5, 2013
I agree Malcom, been trying to get Dr. To do vl for months. She said no at 12 weeks is fine. Very frustrated, but shes the Dr. Right. Thanks for the support!! I'll keep trudging forward, there is light at the end of tunnel, right. :)
mallani said
May 5, 2013
Hi Jeri,
I can understand your frustration. Maybe the Lab. tech misread the form. I once had a Tech. take blood for a Qualitative RNA test instead of a Quantitative one. Is this your first VL since 2.5 weeks- seems a long time. Good luck when you finally get it done. Stay out of the sun. Cheers.
GodsGrl said
May 5, 2013
Got a text from HCV compliance nurse on Friday. She said my Dr. ordered wrong 12 week VL labs, so I've been waiting for 2 weeks to get results and they only go down to 650 VL. So I still dont know if I'm undetected or not. Not sure when they will retest. Tired of shots and pills. My skin looks like crap, my eye lashes are falling out, I cant be in the heat or sun for any length of time. Thats hard living in central Ca. it was 97 today. I am frustrated and need prayer to continue on this journey. Thanks for your support!!
Hi there, sorry to hear of your frustration - treatment is hard enough. We didn't get my husband's very first viral load test (at 8 weeks) as the sample was 'damaged' - very annoying.
BiggyB, hubby is the same as you, had a VL at 24 weeks and none further until he gets to 48 weeks. They also said they will not be doing any VL tests until 6 months after treatment - absolutely nothing in between.
Anyway, GodsGrl - thinking of you and hope things travel along a bit smoother for you. Caroline
-- Edited by Bloomster on Monday 6th of May 2013 04:57:37 AM
Your getting short bro. Not many weeks left. Love the AV
Take care
Oh, he said he will have one done at 48, sorry forgot to mention that..duh
I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter.
I was wondering about that, i haven't had a vl test since week 24 and i am on wk 42..Dr said if your und at 12 and 24 very rarely comes back by wk48..I think it's a money thing..I could have the virus raging through me again..hope not.
Hi Jeri,
I can understand your frustration. Maybe the Lab. tech misread the form. I once had a Tech. take blood for a Qualitative RNA test instead of a Quantitative one. Is this your first VL since 2.5 weeks- seems a long time. Good luck when you finally get it done. Stay out of the sun. Cheers.
Got a text from HCV compliance nurse on Friday. She said my Dr. ordered wrong 12 week VL labs, so I've been waiting for 2 weeks to get results and they only go down to 650 VL. So I still dont know if I'm undetected or not. Not sure when they will retest. Tired of shots and pills. My skin looks like crap, my eye lashes are falling out, I cant be in the heat or sun for any length of time. Thats hard living in central Ca. it was 97 today. I am frustrated and need prayer to continue on this journey. Thanks for your support!!