Hey Dave great to hear from you. Sorry about the lingering sx. I don't feel 100% all the time myself ad I was only on the triple tx for 2 months. Something definitely changed in my body and it hasn't gone back to how it was before but it's hard to put my finger on it. I hope time will improve things for you. Take care!
JoAnneh said
Sep 12, 2013
Dave,
Great to hear from you! We shared many
Months together on treatment. Glad to know
It has taken time for you as I keep thinking
I should feel stronger. The joint pain is my
Biggest side effect. I go for 6 month VL on Oct 15th.
You are so thoughtful to help us feel encouraged.
Once again, great to hear from you.
Cinnamon Girl said
Sep 11, 2013
Hi Dave, congrats on your continuing SVR, thanks for sharing your good news! I`m glad your post tx issues are gradually easing up for you, and your positive outlook is great to hear! A good reminder also that it can take time to fully recover from the effects of interferon treatment and sometimes we need to be patient.
Do drop by again and keep us updated on your progress.
Wishing you all the best in your virus-free life!
Kellie said
Sep 11, 2013
Thank you for the check in & shot of optimism - it gives me hope and reassurance that all will be well after treatment is over. 3 weeks to go of triple. My main issue now is insomnia. Fortunately most likely I only have to do 24 weeks. Congrats on your SVR and happy life
mallani said
Sep 11, 2013
Hi Dave,
Thanks for dropping by, and great to hear you're still Undet. and enjoying life! The post interferon problems still haven't been resolved. Glad to hear yours are slowly resolving. Cheers.
davesf said
Sep 11, 2013
Hi all, hit my 12 month blood work clean and feel fantastic. Thought I'd drop in and talk about the peripheral neuropathy for those who have any lingering symptoms. The Interferon can cause a little bit of nerve damage. For most of those people it affects, it manifests as sensory, typically as tingling or numbness at the tips of your fingers and toes. Mine was motor, meaning I would twitch involuntary. It reached the point where I got a mild anti-convulsant drug prescribed so I could fall asleep. If anyone noticed in public, I would just pass it off as hiccups. My online research told me that nerves heal slowly and could take up to two years. At the one year mark this has proved to be accurate. It's been a slooow but steady reduction in symptoms that have yet to go away. But I have great faith that it will be fully healed in another year. Just wanted to post a little optimism to help those in treatment who might be experiencing one more symptom that's stressing them out.
One day at a time. You will make it. And it will get better.
Carolinca said
Sep 11, 2013
Hi Dave,
Thank you for your post. Oh my gosh, my husband has the same thing. He will involuntarily twitch at night, and it drives me crazy and keeps me up at times. It seems to be getting better, but if it doesn't, that anticonvulsant seems like a good idea! (I think he twitched before treatment, but the treatment made it worse and more frequent)
Carol
-- Edited by Carolinca on Wednesday 11th of September 2013 06:56:18 AM
-- Edited by Carolinca on Wednesday 11th of September 2013 06:56:38 AM
hrsetrdr said
Sep 11, 2013
Hi Dave, good to see you on the forum, happy to hear that post-tx life is treating you well. Like you, I'm thinking that it might take a couple years to get past the treatment effects; definitely looking forward to that.
Thanks for sharing your upbeat thoughts, that's something we all can't get too much of. Best of luck, Tim
P.S. Malcolm, nice catch displayed in your avatar! I'm going out of Point Loma Sunday night on a 3 day charter, probably be fishing for some species of tuna(bluefin, yellowfin, ahi).
-- Edited by hrsetrdr on Wednesday 11th of September 2013 06:02:53 AM
Hey Dave great to hear from you. Sorry about the lingering sx. I don't feel 100% all the time myself ad I was only on the triple tx for 2 months. Something definitely changed in my body and it hasn't gone back to how it was before but it's hard to put my finger on it. I hope time will improve things for you. Take care!
Great to hear from you! We shared many
Months together on treatment. Glad to know
It has taken time for you as I keep thinking
I should feel stronger. The joint pain is my
Biggest side effect. I go for 6 month VL on Oct 15th.
You are so thoughtful to help us feel encouraged.
Once again, great to hear from you.
Hi Dave, congrats on your continuing SVR, thanks for sharing your good news! I`m glad your post tx issues are gradually easing up for you, and your positive outlook is great to hear! A good reminder also that it can take time to fully recover from the effects of interferon treatment and sometimes we need to be patient.
Do drop by again and keep us updated on your progress.
Wishing you all the best in your virus-free life!
Thank you for the check in & shot of optimism - it gives me hope and reassurance that all will be well after treatment is over. 3 weeks to go of triple. My main issue now is insomnia. Fortunately most likely I only have to do 24 weeks. Congrats on your SVR and happy life
Hi Dave,
Thanks for dropping by, and great to hear you're still Undet. and enjoying life! The post interferon problems still haven't been resolved. Glad to hear yours are slowly resolving. Cheers.
Hi all, hit my 12 month blood work clean and feel fantastic. Thought I'd drop in and talk about the peripheral neuropathy for those who have any lingering symptoms. The Interferon can cause a little bit of nerve damage. For most of those people it affects, it manifests as sensory, typically as tingling or numbness at the tips of your fingers and toes. Mine was motor, meaning I would twitch involuntary. It reached the point where I got a mild anti-convulsant drug prescribed so I could fall asleep. If anyone noticed in public, I would just pass it off as hiccups. My online research told me that nerves heal slowly and could take up to two years. At the one year mark this has proved to be accurate. It's been a slooow but steady reduction in symptoms that have yet to go away. But I have great faith that it will be fully healed in another year. Just wanted to post a little optimism to help those in treatment who might be experiencing one more symptom that's stressing them out.
One day at a time. You will make it. And it will get better.
Hi Dave,
Thank you for your post. Oh my gosh, my husband has the same thing. He will involuntarily twitch at night, and it drives me crazy and keeps me up at times. It seems to be getting better, but if it doesn't, that anticonvulsant seems like a good idea! (I think he twitched before treatment, but the treatment made it worse and more frequent)
Carol
-- Edited by Carolinca on Wednesday 11th of September 2013 06:56:18 AM
-- Edited by Carolinca on Wednesday 11th of September 2013 06:56:38 AM
Hi Dave, good to see you on the forum, happy to hear that post-tx life is treating you well. Like you, I'm thinking that it might take a couple years to get past the treatment effects; definitely looking forward to that.
Thanks for sharing your upbeat thoughts, that's something we all can't get too much of. Best of luck, Tim
P.S. Malcolm, nice catch displayed in your avatar! I'm going out of Point Loma Sunday night on a 3 day charter, probably be fishing for some species of tuna(bluefin, yellowfin, ahi).
-- Edited by hrsetrdr on Wednesday 11th of September 2013 06:02:53 AM