My heart goes out to you. May you soldier on and win this once and for all.
newmex said
Dec 18, 2013
Dang it, so sorry Neal. But just a temporary setback, they have new stuff coming down the pike daily it seems. Hang in there, from what I hear the newer drugs are better any way with less side effects and higher SVR. If there is any thing I can do let me know
DeRanger said
Dec 18, 2013
One step back, but you will make two steps forward. My specialist told me about the new treatments and said these will be easier to take and they have a better response rate. Hang in there, you will achieve SVR.
Biggyb said
Dec 18, 2013
Very, very sorry Neil,
Loopy Lisa said
Dec 18, 2013
Hi Neil,
I can only imagine your disappointment after such a long fight. There isn't much solace we can offer when life throws such an unexpected punch. Keep faith you will recover. Some people on here have failed up to three times before becoming cured, but they did finally! That will be you in the future, and we will be congratulating. Stay strong...Hugs!
Neil_Canuck said
Dec 17, 2013
Thanx to all for the good wishes. It is a tough one but I'm in better shape than some of our
forum friends and I don't believe my life is in any immediate threat. My specialist is sending
me reqs for blood work to do in 6 months time so I'm pretty sure he must feel the same way.
I always knew this could be the outcome of the Tx but you have to hope for the best especially when
end of Tx shows UND. Que sera sera or in todays lingo...It is what it is.
We have no choice but to soldier on. I've always been a realist so you learn to roll with the punches.
Semper fi
Bloomster said
Dec 17, 2013
So sorry to hear this news Neil. My heart sank on reading it as treatment is so hard. Be encouraged that there are new treatments on the horizon and that your time to shine will indeed come. Caroline
ucbgal said
Dec 17, 2013
neil,
it saddens me to learn you didn't achieve svr. we all know the risks,sx and no 100% guarantee for svr and accept our fate none the less.
in life i've found 1 true guarantee & it's my belief in myself to accept challenges w/ determination and head held high. your journey was done with integrity,determination and courage. you are an inspiration for all of us.
rest,cherish life and your loved ones.
sandy,ucbgal
Cinnamon Girl said
Dec 17, 2013
Neil, I`m so very sorry to hear this, what a disappointment after waiting all this time. And I agree, hearing the news over a voicemail is so horrible, I wish doctors and specialists wouldn`t do that. As Jim said, at least you`ve given your liver a good long holiday from the virus all the while you were UND so it wasn`t for nothing.
Take good care of yourself until the time is right for your next round with one of the new drug combos. You`ll get there next time, I`m quite sure.
Keep in touch, we`ll still be here for you anytime.
mallani said
Dec 17, 2013
Hi Neil,
Really sorry to hear that mate. At least your next Rx will be a piece of cake compared with what you've gone through, and your liver has had a rest. It was always a worry being Detected at 12 weeks- I didn't mention it then, but my doc stops Rx for Vict. patients if still Det. at 12 weeks.
See if there are any Merck Trials available. MK-5172 is effective against all the Victrelis RAVs, and combining it with MK-8742 would eliminate the need for Interferon.
Your time will come so just recover and get ready for the next round. Cheers.
Matt Chris said
Dec 17, 2013
Hey Neil
This is a tough day for you, but all is not lost. There are many more treatments coming down the road for us cirrhotics, with a whole lot higher percentage of cure rates with shorter and hardly any FX's.
Sometimes it's hard to figure but we go on and continue to fight and the timing is good because the next two years will bring nearly 10 better combo choices to achieve SVR .
I know that first month is hard but think about the future knowing the prospects are better than before this last treatment especially without Interferon.
Keeping the faith
matt
Tig said
Dec 17, 2013
Sorry you got this kind of news I think at the very least, the person delivering this kind of news should do it personally. There is something real impersonal when doing it via voicemail! The new treatments will hopefully be your permanent ticket to SVR! Best of luck Neil!
JIme said
Dec 17, 2013
Sorry to hear this Neil but at least you gave your body a break from the virus for a while. Stay as healthy as you can and be ready for the next round. It will come quicker than you think. Us dragon slayers are tough old birds. Your time will come.
tonib said
Dec 17, 2013
Oh Man that sux!!! So sorry Neil! I only had the 12 weeks to be unresponsive, but to go the 48...wow what a blow! Sorry Neil, hang in there the new treatments are coming and they seem to be easier, and more successful!
My thoughts are with you at this time! xoxo
Kellie said
Dec 17, 2013
damn, i'm sorry Neil. the next treatment will be easier and shorter. you'll be there for it too.
Zlikster said
Dec 17, 2013
damn man :( Sorry to hear. Seems we have a new round of battle ahead...
i hope they get you on the Sovaldi journey asap :)
hrsetrdr said
Dec 17, 2013
Neil, this must have been a blow, very sorry to hear. Hopefully you may be able to take advantage of one of the new treatments available. Best of luck to you.
Neil_Canuck said
Dec 17, 2013
Returned home from shopping today to get voice message from specialist that 6 month psst treatment blood tests showed virus still active. Guess my battle not over yet.
My heart goes out to you. May you soldier on and win this once and for all.
Dang it, so sorry Neal. But just a temporary setback, they have new stuff coming down the pike daily it seems. Hang in there, from what I hear the newer drugs are better any way with less side effects and higher SVR. If there is any thing I can do let me know
One step back, but you will make two steps forward. My specialist told me about the new treatments and said these will be easier to take and they have a better response rate. Hang in there, you will achieve SVR.
Very, very sorry Neil,
Hi Neil,
I can only imagine your disappointment after such a long fight. There isn't much solace we can offer when life throws such an unexpected punch. Keep faith you will recover. Some people on here have failed up to three times before becoming cured, but they did finally! That will be you in the future, and we will be congratulating. Stay strong...Hugs!
Thanx to all for the good wishes. It is a tough one but I'm in better shape than some of our
forum friends and I don't believe my life is in any immediate threat. My specialist is sending
me reqs for blood work to do in 6 months time so I'm pretty sure he must feel the same way.
I always knew this could be the outcome of the Tx but you have to hope for the best especially when
end of Tx shows UND. Que sera sera or in todays lingo...It is what it is.
We have no choice but to soldier on. I've always been a realist so you learn to roll with the punches.
Semper fi
So sorry to hear this news Neil. My heart sank on reading it as treatment is so hard. Be encouraged that there are new treatments on the horizon and that your time to shine will indeed come. Caroline
neil,
it saddens me to learn you didn't achieve svr. we all know the risks,sx and no 100% guarantee for svr and accept our fate none the less.
in life i've found 1 true guarantee & it's my belief in myself to accept challenges w/ determination and head held high. your journey was done with integrity,determination and courage. you are an inspiration for all of us.
rest,cherish life and your loved ones.
sandy,ucbgal
Neil, I`m so very sorry to hear this, what a disappointment after waiting all this time. And I agree, hearing the news over a voicemail is so horrible, I wish doctors and specialists wouldn`t do that. As Jim said, at least you`ve given your liver a good long holiday from the virus all the while you were UND so it wasn`t for nothing.
Take good care of yourself until the time is right for your next round with one of the new drug combos. You`ll get there next time, I`m quite sure.
Keep in touch, we`ll still be here for you anytime.
Hi Neil,
Really sorry to hear that mate. At least your next Rx will be a piece of cake compared with what you've gone through, and your liver has had a rest. It was always a worry being Detected at 12 weeks- I didn't mention it then, but my doc stops Rx for Vict. patients if still Det. at 12 weeks.
See if there are any Merck Trials available. MK-5172 is effective against all the Victrelis RAVs, and combining it with MK-8742 would eliminate the need for Interferon.
Your time will come so just recover and get ready for the next round. Cheers.
Hey Neil
This is a tough day for you, but all is not lost. There are many more treatments coming down the road for us cirrhotics, with a whole lot higher percentage of cure rates with shorter and hardly any FX's.
Sometimes it's hard to figure but we go on and continue to fight and the timing is good because the next two years will bring nearly 10 better combo choices to achieve SVR .
I know that first month is hard but think about the future knowing the prospects are better than before this last treatment especially without Interferon.
Keeping the faith
matt
Sorry you got this kind of news
I think at the very least, the person delivering this kind of news should do it personally. There is something real impersonal when doing it via voicemail! The new treatments will hopefully be your permanent ticket to SVR! Best of luck Neil!
My thoughts are with you at this time! xoxo
damn, i'm sorry Neil. the next treatment will be easier and shorter. you'll be there for it too.
i hope they get you on the Sovaldi journey asap :)
Returned home from shopping today to get voice message from specialist that 6 month psst treatment blood tests showed virus still active. Guess my battle not over yet.