I remember the first time I saw my first real van Gogh at the MMA. I was absolutely spellbound. I wanted to study every brush stroke. I'm sure my mouth was open the entire time.
You are so very fortunate to be that close to the city. Most people will never enjoy the experience, or the culture. What a fascinating place it is.
Congratulations on your continued SVR, and I hope you can get the aches and pains ironed out.
jimbob
Cinnamon Girl said
Mar 24, 2014
Hi Sandy, I am so happy to hear how well you`re doing, what an inspiring post! Your trip to the Museum of Modern Art in Manhattan must have amazing and how wonderful to see all those great masters close up, and being treated with such kindness and thoughtful consideration while you were there. After persevering through a hard and difficult treatment it must have made you realise for sure that you`ve got your life back!!
Best of luck with the challenges that lie ahead, you`ve come this far by sheer strength and determination and your positive attitude will help you through.
Onwards and upwards, and thanks for sharing your journey with us. Sending all very best wishes, and do keep in touch, we`re always here for you!
Tig said
Mar 24, 2014
Hi Sandy,
HOORAY!!! I told you that my " Eight Ball" said this would be the report It has accurately predicted the last 4 SVR's here, including my own! I think I'm going to take it in and have it bronzed and put on a shelf, lol!
I'm sorry that your levels are still fluctuating, but overall I see a great improvement in so many other aspects of your life. Namely, I see a smile on your face and hope in your heart. You suffered and went through some rough patches during treatment but I see that it wasn't in vain. We experienced some of the harshest side effects that these treatments had to offer, yet we prevailed! Our willingness to go through it paid off in gold and it allowed the researchers the knowledge and building blocks to develop the new treatments currently available. We are the pioneers of HCV Tx and like Lewis and Clark, nobody said it would be easy. I'm proud of you for your willingness and bravery to accept whatever it took to win this battle. Your EOT +12 (SVR12)undetectable, provides you the high likelihood of continued success and a sustained undetectable viral load for life (SVR24+)! That deserves one great big WOOT!!!!!
I wish you continued success and want you to know that with your attitude and positive outlook on life, you have nothing but happiness and success in your future! I'm so happy for you and this great news! Thanks for sharing it with us!!
XO, Tig
Loopy Lisa said
Mar 24, 2014
Hey Sandy,
Its good to hear your still about. I look forward to your next update. A big hug!
Matt Chris said
Mar 24, 2014
Hey Sandy
Thanks for such a positive report, you just made my day /Night.
Wow its great to see your ferretin levels reduce so much and your platelets are higher I look forward to that some day.
With all that you have accomplished in beating HCV I an confident that your next challenge will be met with the same determination.
matt
ucbgal said
Mar 23, 2014
superb news is that i'm still UND at 3 months!!!!!!! my wbc & platelets are even better than pre-tx,5.9 & 211!!!!
i was exposed to strep throat on vaca & didn't catch it!!!!!
my ast is w/in normal range although my alt climbed to 49. life could be worse!!!!!
my ferretin dropped from 2000, to 890, to a 720!!!!!!
my red blood cells are now 4.77 & started w/ 4.8. so i gather i'm still anemic but can't take iron.
this time on vaca i was able to do things every day.....w/in a 3 to 4 hour time span!!!!!!
the MOMA in manhattan actually gave me 2 free private/ docent tours due to my condition. the docent was a widower.
she recently lost her husband to cancer. we bonded immediately to say the least. it took 11 emails to arrange this & of course i took car service. they even had a portable stool for me so that i didn't hold onto the walls during my dizzy spells. at one point we joined a group of Alzheimer patients & the docents kept asking me to pipe in....how comical was that? there were tears of happiness when i viewed the new Gauguin exhibit and parts of their permanent collection. i even had the energy to go to Motown the Musical and dine in 3 fine restaurants w/ my boyfriend. once i went to dinner alone & the host actually walked me back to the condo i was staying in!!!!!! all in all next time i go alone, i know i CAN DO IT!!!!!
now the not so nice news........my arthritis started back up, my bun went from 12 to 22, am off allopurinal, crenatine is still up , as well as uric acid. started tx w/ a 3.5 uric, now am at 4.6. started tx w/ a 5.7 creantine, now am at 7.5, on tx i got up to a 10!!!!!! i imagine there's a pill for this, evidently all the water, cranberry juice, tea and exercise won't resolve the damage from 2 rounds of tx. LIFE COULD BE WORSE!!!!!
am still staying positive for my journey isn't over. this week i see my heptologist to discuss blood letting & am requesting procrit & allopurinal to stabilize levels. people on the forum who know me , are aware that i have thalamessemia minor. the 30 years of iron supplements have elevated my liver enzymes. i will stay positive & attack this problem to avoid cirrhosis.
i'd like to send a huge thank you to jill & all the moderators. you people have become such an important part of my life.... i will continue to support this forum even when my journey has finished.
I remember the first time I saw my first real van Gogh at the MMA. I was absolutely spellbound. I wanted to study every brush stroke. I'm sure my mouth was open the entire time.
You are so very fortunate to be that close to the city. Most people will never enjoy the experience, or the culture. What a fascinating place it is.
Congratulations on your continued SVR, and I hope you can get the aches and pains ironed out.
jimbob
Hi Sandy, I am so happy to hear how well you`re doing, what an inspiring post! Your trip to the Museum of Modern Art in Manhattan must have amazing and how wonderful to see all those great masters close up, and being treated with such kindness and thoughtful consideration while you were there. After persevering through a hard and difficult treatment it must have made you realise for sure that you`ve got your life back!!
Best of luck with the challenges that lie ahead, you`ve come this far by sheer strength and determination and your positive attitude will help you through.
Onwards and upwards, and thanks for sharing your journey with us. Sending all very best wishes, and do keep in touch, we`re always here for you!
Hi Sandy,
HOORAY!!! I told you that my " Eight Ball" said this would be the report
It has accurately predicted the last 4 SVR's here, including my own! I think I'm going to take it in and have it bronzed and put on a shelf, lol!
I'm sorry that your levels are still fluctuating, but overall I see a great improvement in so many other aspects of your life. Namely, I see a smile on your face and hope in your heart. You suffered and went through some rough patches during treatment but I see that it wasn't in vain. We experienced some of the harshest side effects that these treatments had to offer, yet we prevailed! Our willingness to go through it paid off in gold and it allowed the researchers the knowledge and building blocks to develop the new treatments currently available. We are the pioneers of HCV Tx and like Lewis and Clark, nobody said it would be easy. I'm proud of you for your willingness and bravery to accept whatever it took to win this battle. Your EOT +12 (SVR12)undetectable, provides you the high likelihood of continued success and a sustained undetectable viral load for life (SVR24+)! That deserves one great big WOOT!!!!!
I wish you continued success and want you to know that with your attitude and positive outlook on life, you have nothing but happiness and success in your future! I'm so happy for you and this great news! Thanks for sharing it with us!!
XO, Tig
Hey Sandy,
Its good to hear your still about. I look forward to your next update. A big hug!
Hey Sandy
Thanks for such a positive report, you just made my day /Night.
Wow its great to see your ferretin levels reduce so much and your platelets are higher I look forward to that some day.
With all that you have accomplished in beating HCV I an confident that your next challenge will be met with the same determination.
matt
superb news is that i'm still UND at 3 months!!!!!!! my wbc & platelets are even better than pre-tx,5.9 & 211!!!!
i was exposed to strep throat on vaca & didn't catch it!!!!!
my ast is w/in normal range although my alt climbed to 49. life could be worse!!!!!
my ferretin dropped from 2000, to 890, to a 720!!!!!!
my red blood cells are now 4.77 & started w/ 4.8. so i gather i'm still anemic but can't take iron
.
this time on vaca i was able to do things every day.....w/in a 3 to 4 hour time span!!!!!!
the MOMA in manhattan actually gave me 2 free private/ docent tours due to my condition. the docent was a widower.
she recently lost her husband to cancer. we bonded immediately to say the least. it took 11 emails to arrange this & of course i took car service. they even had a portable stool for me so that i didn't hold onto the walls during my dizzy spells. at one point we joined a group of Alzheimer patients & the docents kept asking me to pipe in....how comical was that? there were tears of happiness when i viewed the new Gauguin exhibit and parts of their permanent collection. i even had the energy to go to Motown the Musical and dine in 3 fine restaurants w/ my boyfriend. once i went to dinner alone & the host actually walked me back to the condo i was staying in!!!!!! all in all next time i go alone, i know i CAN DO IT!!!!!
now the not so nice news........my arthritis started back up, my bun went from 12 to 22
, am off allopurinal, crenatine is still up , as well as uric acid
. started tx w/ a 3.5 uric, now am at 4.6. started tx w/ a 5.7 creantine, now am at 7.5, on tx i got up to a 10!!!!!! i imagine there's a pill for this, evidently all the water, cranberry juice, tea and exercise won't resolve the damage from 2 rounds of tx. LIFE COULD BE WORSE!!!!!
am still staying positive for my journey isn't over. this week i see my heptologist to discuss blood letting & am requesting procrit & allopurinal to stabilize levels. people on the forum who know me , are aware that i have thalamessemia minor. the 30 years of iron supplements have elevated my liver enzymes. i will stay positive & attack this problem to avoid cirrhosis.
i'd like to send a huge thank you to jill & all the moderators. you people have become such an important part of my life.... i will continue to support this forum even when my journey has finished.
sandy,ucbgal