Do people feel much different without the virus in them??
patiently_waiting said
Apr 28, 2014
As someone who is hopefully going to start treatment soon, this thread is very encouraging. I've had this since I was 16 so I've been wondering how much better I'll feel after this bug is gone. Thanks for starting this thread and for all the posts. :)
DeRanger said
Apr 28, 2014
So far after treatment I feel much better. Was virus-free after 12 weeks post-tx. Next is 24 week test in May. I had liver cancer surgery (July 2012), the cancer a side effect from the HCV most probably.
Now I am just recovering from incisional hernia surgery (April 2nd) due to (Dr says) complications with the cancer surgery incision not healing from being on interferon for 48 weeks. However I feel great and everything is healing well now.
Liver cancer was not present 18 months after surgery. Am becoming more active and hiking and regaining strength daily. I can tell I have more energy than at any time since EOT. I don't know why I am feeling better exactly, but I'm sure getting rid of the virus has a lot to do with it.
I did go to an acupuncturist to help with clearing drugs and opening pathways to promote healing.
You ain't gonna miss those little HCV suckers when they're gone!
suziq said
Apr 28, 2014
HI,
Well, I had the virus for 48 years or more. I was UND at week 4 of Merck trial and am now past SVR12. I will be 80 in August, so I have had it for many years. I also was curious to see how I felt without Hep C. I feel MUCH better. The difference is more subtle than obvious. I am not tired like I was. I can do more things. Downside, I am old and live alone in a rural area--Now, I get bored so easily. I remember long ago when I was curious about just nearly everything. That is coming back. Each day I seem to be more in touch with my feelings and that seems odd. Feelings of resignation are going away and I want to do things. I have stamina. I did not think Hep C had affected me much, but it obviously had. Strange things, my thumbs had become very painful to use for several years. Now, they are strong and I have no pain in them. What I considered "old age" was, in large part, Hep C. Unfortunately. the wrinkles and white hair seem to be remaining.
My experience probably is much different from those who are younger, but I am sure that many things you dreamed about will become realities without the draining of energy that Hep C causes. I am so pleased that many can now easily treat and have a healthy energetic lifestyle. My hope is that one day Hep C will be a disease of the past--just as polio, measles, chicken pox, whooping cough and others have become.
The changes began a few weeks after treatment and each day I feel a little better. It is a pretty day and I need to go out and mow the rest of the lawn before it gets hot.
SuziQ
-- Edited by suziq on Monday 28th of April 2014 08:32:34 PM
AngieV123 said
Apr 28, 2014
I was briefly undetected while on tx in my early 20s but not long enough to feel a difference, I imagine. I had a transfusion at 3 days old that gave me this passenger. I am currently undetected now while on tx but with the side effects I can't tell how I feel lol. I really started to feel the effects of the virus the past few years so I am hoping that I feel good again one day. I am extremely excited about the prospect of finding out what it's like to be svr. My liver needs the healing. Best of luck to you all..I hope we all find out what it feels like to be healthy again :)
Enavigo3891 said
Apr 28, 2014
Hi J,
This is something that has actually come up for me quite often and with my doctor. I was born with it so in essence it has been part of who I am my entire life. I often wonder if I'll "feel different" once these meds are clear of my system and I begin a "normal" HepC free life. It's weird because I don't think I've ever "felt sick" but then again I wouldn't know if I was sick as anytime I haven't felt well I just assumed everyone has times like that. The virus has been in me for 30 years (I'm 31 but my blood work the day after my 31st bday is what came back UND!) While this dragon has been hitching a ride in me my entire life, I've never had abnormal liver function tests but i guess the headaches, muscle aches and fatigue could be related. I've always written them off as side effects of childhood sports injuries and stress.
I'm down to 8 days of treatment left and then hopefully this meds will clear my system in another 8-12 weeks following and perhaps by August I'll know what "normal" feels like! My doctor is actually very intrigued as i'm the only patient at the transplant clinic where I treat that was born with it; he's equally anxious to know if there's a difference. And maybe this will make sense to you as I'm not sure others have understood the thought process behind it: I was obviously eager to treat and I'd love to reach SVR. However in the beginning there was this very odd sense of uneasiness as it literally is PART OF WHO I AM. It's been there forever, it's controlled my career path choice, who/how I went about dating, etc. It's also been something I've been discriminated against in for example the dentists office. Those are obviously not "good" parts of it but it's almost part of my identity and it's weird to think of a life without it.
Well, we shall see! Best of luck to you!
Omnamahshivaya said
Apr 27, 2014
Tig:
Happy you're chiming in; you've been an invaluable, supportive resource for me and it's only been a few days! Can't wait to say a few months!
I seriously don't know who I will be without this. I've been worried about this for so long. I'm so happy for you as well!!!
Thank you!
Tig said
Apr 27, 2014
Hi J,
Of course you knew I'd chime in here! I agree with Kellie, I haven't felt this good in years. I really began to notice the difference after my SVR 12 date. It takes awhile to get your strength back after treatment, but how that applies to the new treatment protocols remains to be seen. Interferon and Ribavirin take months to clear your system and once that happens the differences are amazing. I noticed my motivation and willingness to get reinvolved in life increase weekly after a certain point. Regardless of the increase in motivation, I have to remind myself that my body isn't as ready as my mind is. Treatment took it's toll on my muscle mass and the HCV over 35 years took it's toll on everything else. Be ready for a big improvement but allow your body the time it needs to handle the action you're going to expect it to provide!
Tig
Omnamahshivaya said
Apr 27, 2014
Thank you!!! I'm so happy for you. And that's great news to hear. I thought I'd have to live with this forever and I've been worried about it since the day I found out. I can't wait to see who I am when this is finally over. :) Thank you and enjoy your newfound, much deserved freedom! Meet ya there soon!
Kellie said
Apr 27, 2014
omg! I feel so different now. my thinking and energy are more than ever before. I dare say that i felt this good before i was infected. I was 16 when it happened and 50 now. I'm learning to live in my new virus free body. I understand what you say when you don't know who you are.
i'm so happy now. partly because i don't have to worry about my liver, like i used to anymore.
i'm free and you will be too, very soon. hang in there!
Omnamahshivaya said
Apr 27, 2014
I've had this virus since I was a child - blood transfusion. So it's been inside me so long that I really have no clue who I am without it. I've had it since I was 13.
I'm wondering if those who have been SVR12 or more genuinely feel different or just relieved?
Anyone?
Oh and CONGRATULATIONS!!!!
I CAN'T WAIT to be free from this. I'm on day 3 of Olysio and Solvaldi. Nothing else. First time treated.
HUGE VL: over 14 million of those suckers in there (though some are dead.) :p
-- Edited by Omnamahshivaya on Monday 28th of April 2014 03:52:46 AM
So far after treatment I feel much better. Was virus-free after 12 weeks post-tx. Next is 24 week test in May. I had liver cancer surgery (July 2012), the cancer a side effect from the HCV most probably.
Now I am just recovering from incisional hernia surgery (April 2nd) due to (Dr says) complications with the cancer surgery incision not healing from being on interferon for 48 weeks. However I feel great and everything is healing well now.
Liver cancer was not present 18 months after surgery. Am becoming more active and hiking and regaining strength daily. I can tell I have more energy than at any time since EOT. I don't know why I am feeling better exactly, but I'm sure getting rid of the virus has a lot to do with it.
I did go to an acupuncturist to help with clearing drugs and opening pathways to promote healing.
You ain't gonna miss those little HCV suckers when they're gone!
HI,
Well, I had the virus for 48 years or more. I was UND at week 4 of Merck trial and am now past SVR12. I will be 80 in August, so I have had it for many years. I also was curious to see how I felt without Hep C. I feel MUCH better. The difference is more subtle than obvious. I am not tired like I was. I can do more things. Downside, I am old and live alone in a rural area--Now, I get bored so easily. I remember long ago when I was curious about just nearly everything. That is coming back. Each day I seem to be more in touch with my feelings and that seems odd. Feelings of resignation are going away and I want to do things. I have stamina. I did not think Hep C had affected me much, but it obviously had. Strange things, my thumbs had become very painful to use for several years. Now, they are strong and I have no pain in them. What I considered "old age" was, in large part, Hep C. Unfortunately. the wrinkles and white hair seem to be remaining.
My experience probably is much different from those who are younger, but I am sure that many things you dreamed about will become realities without the draining of energy that Hep C causes. I am so pleased that many can now easily treat and have a healthy energetic lifestyle. My hope is that one day Hep C will be a disease of the past--just as polio, measles, chicken pox, whooping cough and others have become.
The changes began a few weeks after treatment and each day I feel a little better. It is a pretty day and I need to go out and mow the rest of the lawn before it gets hot.
SuziQ
-- Edited by suziq on Monday 28th of April 2014 08:32:34 PM
Hi J,
This is something that has actually come up for me quite often and with my doctor. I was born with it so in essence it has been part of who I am my entire life. I often wonder if I'll "feel different" once these meds are clear of my system and I begin a "normal" HepC free life. It's weird because I don't think I've ever "felt sick" but then again I wouldn't know if I was sick as anytime I haven't felt well I just assumed everyone has times like that. The virus has been in me for 30 years (I'm 31 but my blood work the day after my 31st bday is what came back UND!) While this dragon has been hitching a ride in me my entire life, I've never had abnormal liver function tests but i guess the headaches, muscle aches and fatigue could be related. I've always written them off as side effects of childhood sports injuries and stress.
I'm down to 8 days of treatment left and then hopefully this meds will clear my system in another 8-12 weeks following and perhaps by August I'll know what "normal" feels like! My doctor is actually very intrigued as i'm the only patient at the transplant clinic where I treat that was born with it; he's equally anxious to know if there's a difference. And maybe this will make sense to you as I'm not sure others have understood the thought process behind it: I was obviously eager to treat and I'd love to reach SVR. However in the beginning there was this very odd sense of uneasiness as it literally is PART OF WHO I AM. It's been there forever, it's controlled my career path choice, who/how I went about dating, etc. It's also been something I've been discriminated against in for example the dentists office. Those are obviously not "good" parts of it but it's almost part of my identity and it's weird to think of a life without it.
Well, we shall see! Best of luck to you!
Tig:
Happy you're chiming in; you've been an invaluable, supportive resource for me and it's only been a few days! Can't wait to say a few months!
I seriously don't know who I will be without this. I've been worried about this for so long. I'm so happy for you as well!!!
Thank you!
Hi J,
Of course you knew I'd chime in here! I agree with Kellie, I haven't felt this good in years. I really began to notice the difference after my SVR 12 date. It takes awhile to get your strength back after treatment, but how that applies to the new treatment protocols remains to be seen. Interferon and Ribavirin take months to clear your system and once that happens the differences are amazing. I noticed my motivation and willingness to get reinvolved in life increase weekly after a certain point. Regardless of the increase in motivation, I have to remind myself that my body isn't as ready as my mind is. Treatment took it's toll on my muscle mass and the HCV over 35 years took it's toll on everything else. Be ready for a big improvement but allow your body the time it needs to handle the action you're going to expect it to provide!
Tig
Thank you!!! I'm so happy for you. And that's great news to hear. I thought I'd have to live with this forever and I've been worried about it since the day I found out. I can't wait to see who I am when this is finally over. :) Thank you and enjoy your newfound, much deserved freedom! Meet ya there soon!
omg! I feel so different now. my thinking and energy are more than ever before. I dare say that i felt this good before i was infected. I was 16 when it happened and 50 now. I'm learning to live in my new virus free body. I understand what you say when you don't know who you are.
i'm so happy now. partly because i don't have to worry about my liver, like i used to anymore.
i'm free and you will be too, very soon. hang in there!
I've had this virus since I was a child - blood transfusion. So it's been inside me so long that I really have no clue who I am without it. I've had it since I was 13.
I'm wondering if those who have been SVR12 or more genuinely feel different or just relieved?
Anyone?
Oh and CONGRATULATIONS!!!!
I CAN'T WAIT to be free from this. I'm on day 3 of Olysio and Solvaldi. Nothing else. First time treated.
HUGE VL: over 14 million of those suckers in there (though some are dead.) :p
-- Edited by Omnamahshivaya on Monday 28th of April 2014 03:52:46 AM