Oops typo, i meant xanax is hard on our livers but yes its hard on our lives in some ways too...aloha
Turnsit said
Jun 21, 2014
I would try just the xanax but its your call not mine ok. Its nice here but very hot a few hours beginning around 2:00, flattens me so i have learned to lie down. Riba and interferon are so difficult of a ride so i see why you take the xanax. After treatment try to come off those, they are very hard on our lives, they also can produce a lot of fatigue and xanax did cause me to be a bit off base in my interactions with others, now i am more sober than a judge! Ha ha but i love it! I know your heat, grew up in alabama! HawIi will be great when i can go back out into the sun to swim and such, Olysio makes us light sensitive so I must stay inside but its over with soon, hopefully my virus will die this time...aloha dear
TazKat said
Jun 21, 2014
good news to u turnsit. boy wish I was in Hawaii.. aloha!! lol & it is VERY hot in Mississippi.. I stay inside. outside stuff can wait.. I nap a lot. I get tired of taking the xanex or ambien to sedate me some. it sucks.
Turnsit said
Jun 21, 2014
Good goong woman, I can hear it in your posts! Plus sounds like times are both good plus hard, still you are holding steady in the storms! I tii finish in August. Had new developmeny muyself, for first time ever edema in my feet and ankles, could not cycle for two nights and it made my head spin some but my doctor put me on a wee bit of fluid med and I am ok now plus I am napping in the hottest part of the day. I was able to have 400 milligrams of sodium a day and I dropped that down to 200 or 300. So I am trying! Its nice to wake up and read good news here! Aloha, keep up the good work with yourself...
TazKat said
Jun 21, 2014
turnsit, I am hanging tough as I can.. lol thank u!!
TazKat said
Jun 21, 2014
my cousin will be helping me later in the day to vacuum some more out. it all sunk with some chemicals.. good news. jut have to keep working little bit by little bit. it will get there. my labs were down & now she wants me to come back in two weeks instead of 4 & then 2 weeks after that.& that will be the last labs. yay.. just wish I knew something. but oh well. can not wait for august to get here. all meds over & maybe energy & back will be better. back was bad this morn. interferon is what is helping it hurt plus I have a lower back prob anyway. it is heck getting older. & 59 is not old but I feel 75. lol that will get better in time too. no more treatments. but I know this one has worked because I have suffered thru this one for sure.
Huey said
Jun 20, 2014
TazKat wrote:
back is better.. probs with son are mucho better.everything seems aok now except to get thru this. shot 9 today. I will make it.. I promise.. thanks to all of u!! love u guys!
What about the Green pool?
Turnsit said
Jun 20, 2014
Nice to hear, good luck with the shots, remember this is a roller coaster, the ride will end but it flies up, levels off then desents. Hang on sloopy!
lots of love and aloha...
you are a champion!
TazKat said
Jun 20, 2014
back is better.. probs with son are mucho better.everything seems aok now except to get thru this. shot 9 today. I will make it.. I promise.. thanks to all of u!! love u guys!
Turnsit said
Jun 18, 2014
Happy to hear it! Sending good vibrations to you! Aloha
Groupergetter said
Jun 17, 2014
Turnsit wrote:
Yep lots of damage from those drugs but i kept taking them, ended up on a cane to walk for 3 years and my mind was a wreck, today cycling 35 mile treks on hwy. swimming in ocean, takes time and will power to recover. Hang on, you will be good to go again, never let anything hold you down, attitude is everything, i have enough cirrhosis for two hep c patients and so i cycle to force blood and oxygen thru my dying liver and give it life, fight to live, death is forever, life is short and sweet even if one lives to be 99, never enough. In april i bled out, two blood transfusions, i am up and cycling again, on solvaldi and olysio, piece of cake, live woman! Go for it, eat well, rest well, stay away from folks, we all have Problems, they cost energy, save your energy for YOU. People here you can talk to, we all fighting together. Look in your mirror and smile...
Gotta luv it "Look in your mirror and smile"
I don't have to look in my mirror, I'm smiling reading this.
Turnsit said
Jun 17, 2014
Yep lots of damage from those drugs but i kept taking them, ended up on a cane to walk for 3 years and my mind was a wreck, today cycling 35 mile treks on hwy. swimming in ocean, takes time and will power to recover. Hang on, you will be good to go again, never let anything hold you down, attitude is everything, i have enough cirrhosis for two hep c patients and so i cycle to force blood and oxygen thru my dying liver and give it life, fight to live, death is forever, life is short and sweet even if one lives to be 99, never enough. In april i bled out, two blood transfusions, i am up and cycling again, on solvaldi and olysio, piece of cake, live woman! Go for it, eat well, rest well, stay away from folks, we all have Problems, they cost energy, save your energy for YOU. People here you can talk to, we all fighting together. Look in your mirror and smile...
Groupergetter said
Jun 16, 2014
TazKat wrote:
gosh no constipation.. sovaldi looks after that.. lol I think interferon messing with muscles in back. I hate riba period. no telling what it is doing. well for that matter what do these drus do to other orgams. I hve a very small cyst on my pancreas frion the incivek. oh well. I am too far in it now.. lol
You're right, "too far in it now." Hang tough, we're all waiting at the finish line.
TazKat said
Jun 16, 2014
tension turnsit. YES my son & his crazy wife & my besutiful twin sons who are only a 1 I/2 having to listen to her bitching day in & day out downing my son. she has no job. never had a job. better be glad she got a rooif. me & family have helped her &she gonna tell me today I am on my death bed.. screw her. she need mental help.. so yes lots lots of tension. I have to turn my phone completely of at night..
TazKat said
Jun 16, 2014
gosh no constipation.. sovaldi looks after that.. lol I think interferon messing with muscles in back. I hate riba period. no telling what it is doing. well for that matter what do these drus do to other orgams. I hve a very small cyst on my pancreas frion the incivek. oh well. I am too far in it now.. lol
Turnsit said
Jun 15, 2014
Everything I have read says only tylenol. this sounds just awful. Do you have an emergency number for your doctor. I did riba and interferon shots for a year and it was the worst experience of my life but I do not recall your kind of back pain. Could you be seriously constpated? That can make me horribly ill and cause back pain. Are you urinating as much as you usually do, if not that causes horrible back pain. Can you soak in a hot tub of water? Do you have a heating pad? Those still are all my issues, urine flow, constipation and relief from tylenol, soaking and a heating pad. I really am so sorry you are suffering but believe it will pass, you may be holding a trmendous amount of tension, I still do it at times and its later I realize how much tension I had. I am in Hawaii or I would have replied sooner. Poor darling, I hope you feel better soon. I know you are in too much pain right now but exercise really helps, everyday and lots of it. I am now on olysio and solvali, I have very serious cirrhosis but I exercise heaps and I suffer very little because of that. Ib for 42 years.
Cinnamon Girl said
Jun 15, 2014
Hi Taz, sorry about your back, it sounds really painful.
I know some people do find they get back pain while on interferon based treatment and somehow the aches and pains we usually feel can become a lot more pronounced while on tx, especially after the weekly shot. Do tell your doctor about it though especially if it continues.
This isn`t easy for you, but do whatever you can to hold on and I hope your back eases up soon.
Let us know how it goes, we`re here with you!
Scruffy said
Jun 15, 2014
Hiya Taz
Sorry you feel like crap. Have you ever had kidney stones?? Talk to your Doctor. I know the riba can be hard on kidneys and 8 weeks is about when the riba sx shows its ugly self. Drink LOTS of water. I had to get a transfusion at 7 weeks. I stayed anemic the rest of my tx so I know it was the riba.
TazKat said
Jun 14, 2014
Tig56, I think you may be right. I have some minor back probs anyway but not like this.it feels like the flu. sucks. I took a 500 Tylenol & ambien & 1/2 to try & let me rest. I am getting so sick of this. I only took 1 1/2 riba tonight.cuz the riba wreacks havoc on me too. took my reg dose this morn. I feel right now I just don't have the strength to do anything.i don't do labs til next friday. I know my anemia is bottomed. please pray I keep the strength, I am too close. I can't wait to get done & hopefully svr & loose 15 to 20 lbs to get back into some nice dresses & pants I had bought that will be like a new wardrobe.. & to get my pool straightened out.i got some stuff & it looks like pure crap still.. oh well take care of me.. that is the main thing.. Peace out I will hae to say this is so much worse than the inceivek & the 26 weeks of the the interferon & riba.
Thank u jimbob!!
jimbob said
Jun 14, 2014
This is a weekend (I tend to forget now that I'm retired), so you might call your special pharmacy nurse or pharmacist and see if they've heard of this.
jimbob
jimbob said
Jun 14, 2014
Hi Taz.
Around week 8/9 I had some lower back pain as well. At first, I thought it might be a pulled muscle, but then it started to feel like the kidneys. It became really pronounced when I hit golf balls. So, I did stretching excercises and quit swinging and it went away. However, I'd check with the doctor if I were you. Better to be safe. If mine had persisted or worsened, that's what I was going to do.
Only 4 more weeks Taz. It is so close.
Good luck.
Tig said
Jun 14, 2014
Hi Taz,
Sorry you're feeling so badly. I honestly don't think that it's a side effect of your treatment. You could be suffering from some severe fatigue and muscle ache from treatment, but not a problem with treatment. I hope that makes a bit of sense! If you have had any problems with your skin or the sun, you might want to avoid a hot shower or bath, but it may be helpful to loosen up that muscle. Do you have a heating pad? I might start with some ibuprofen and have someone do some deep massage over the area. Applying a little heat to that one area with a heating pad for a period of 15 minutes on and 15 off for an hour or two at most should give you an idea whether or not it will give you some relief. I would definitely try some ibuprofen, most docs don't have a problem with it. When you can call the office, I would do that. Did you do anything that may have over exerted that area? It doesn't take much. Get off your feet and if you lie in bed, put a pillow under your knees. It will help relieve the tension on your back muscles. If you lay on your side, keep your knees folded up like you're in a fetal position, that will help too. So.... Apply some heat, ibuprofen, massage and keep your knees bent when lying down And call your doctor in the morning!
Tig
Loopy Lisa said
Jun 14, 2014
I would call one of your nurses, it might be related to Interferon, or you might have a different problem. When in doubt, shout. I hope you find some relief soon! Hugs
Huey said
Jun 14, 2014
This is a new one and I have NO experience with interferon. The only thing I can do is hope you feel better buddy.
TazKat said
Jun 14, 2014
interferon shot? it feels as tho someone has their hand in there & pulling really hard. hurts like heck.. when I get up I can barely straighten up. & I feel like I have the flu 5 times over. I have been on this stuff for 8 weeks now.. why now? so uncomfortable!!!!!!
-- Edited by TazKat on Saturday 14th of June 2014 11:52:00 PM
I barely do the Xanax, just during this.
Oops typo, i meant xanax is hard on our livers but yes its hard on our lives in some ways too...aloha
I would try just the xanax but its your call not mine ok. Its nice here but very hot a few hours beginning around 2:00, flattens me so i have learned to lie down. Riba and interferon are so difficult of a ride so i see why you take the xanax. After treatment try to come off those, they are very hard on our lives, they also can produce a lot of fatigue and xanax did cause me to be a bit off base in my interactions with others, now i am more sober than a judge! Ha ha but i love it! I know your heat, grew up in alabama! HawIi will be great when i can go back out into the sun to swim and such, Olysio makes us light sensitive so I must stay inside but its over with soon, hopefully my virus will die this time...aloha dear
good news to u turnsit. boy wish I was in Hawaii.. aloha!! lol
& it is VERY hot in Mississippi.. I stay inside. outside stuff can wait.. I nap a lot. I get tired of taking the xanex or ambien to sedate me some. it sucks.
Good goong woman, I can hear it in your posts! Plus sounds like times are both good plus hard, still you are holding steady in the storms! I tii finish in August. Had new developmeny muyself, for first time ever edema in my feet and ankles, could not cycle for two nights and it made my head spin some but my doctor put me on a wee bit of fluid med and I am ok now plus I am napping in the hottest part of the day. I was able to have 400 milligrams of sodium a day and I dropped that down to 200 or 300. So I am trying! Its nice to wake up and read good news here! Aloha, keep up the good work with yourself...
turnsit, I am hanging tough as I can.. lol thank u!!
my cousin will be helping me later in the day to vacuum some more out. it all sunk with some chemicals.. good news. jut have to keep working little bit by little bit. it will get there. my labs were down & now she wants me to come back in two weeks instead of 4 & then 2 weeks after that.& that will be the last labs. yay.. just wish I knew something. but oh well. can not wait for august to get here. all meds over & maybe energy & back will be better. back was bad this morn. interferon is what is helping it hurt plus I have a lower back prob anyway. it is heck getting older. & 59 is not old but I feel 75. lol that will get better in time too. no more treatments. but I know this one has worked because I have suffered thru this one for sure.
What about the Green pool?
Nice to hear, good luck with the shots, remember this is a roller coaster, the ride will end but it flies up, levels off then desents. Hang on sloopy!
lots of love and aloha...
you are a champion!
back is better.. probs with son are mucho better.everything seems aok now except to get thru this. shot 9 today. I will make it.. I promise.. thanks to all of u!! love u guys!
Happy to hear it! Sending good vibrations to you! Aloha
Gotta luv it "Look in your mirror and smile"
I don't have to look in my mirror, I'm smiling reading this.
Yep lots of damage from those drugs but i kept taking them, ended up on a cane to walk for 3 years and my mind was a wreck, today cycling 35 mile treks on hwy. swimming in ocean, takes time and will power to recover. Hang on, you will be good to go again, never let anything hold you down, attitude is everything, i have enough cirrhosis for two hep c patients and so i cycle to force blood and oxygen thru my dying liver and give it life, fight to live, death is forever, life is short and sweet even if one lives to be 99, never enough. In april i bled out, two blood transfusions, i am up and cycling again, on solvaldi and olysio, piece of cake, live woman! Go for it, eat well, rest well, stay away from folks, we all have Problems, they cost energy, save your energy for YOU. People here you can talk to, we all fighting together. Look in your mirror and smile...
You're right, "too far in it now." Hang tough, we're all waiting at the finish line.
tension turnsit. YES my son & his crazy wife & my besutiful twin sons who are only a 1 I/2 having to listen to her bitching day in & day out downing my son. she has no job. never had a job. better be glad she got a rooif. me & family have helped her &she gonna tell me today I am on my death bed.. screw her. she need mental help.. so yes lots lots of tension. I have to turn my phone completely of at night..
gosh no constipation.. sovaldi looks after that.. lol I think interferon messing with muscles in back. I hate riba period. no telling what it is doing. well for that matter what do these drus do to other orgams. I hve a very small cyst on my pancreas frion the incivek. oh well. I am too far in it now.. lol
Everything I have read says only tylenol. this sounds just awful. Do you have an emergency number for your doctor. I did riba and interferon shots for a year and it was the worst experience of my life but I do not recall your kind of back pain. Could you be seriously constpated? That can make me horribly ill and cause back pain. Are you urinating as much as you usually do, if not that causes horrible back pain. Can you soak in a hot tub of water? Do you have a heating pad? Those still are all my issues, urine flow, constipation and relief from tylenol, soaking and a heating pad. I really am so sorry you are suffering but believe it will pass, you may be holding a trmendous amount of tension, I still do it at times and its later I realize how much tension I had. I am in Hawaii or I would have replied sooner. Poor darling, I hope you feel better soon. I know you are in too much pain right now but exercise really helps, everyday and lots of it. I am now on olysio and solvali, I have very serious cirrhosis but I exercise heaps and I suffer very little because of that. Ib for 42 years.
Hi Taz, sorry about your back, it sounds really painful.
I know some people do find they get back pain while on interferon based treatment and somehow the aches and pains we usually feel can become a lot more pronounced while on tx, especially after the weekly shot. Do tell your doctor about it though especially if it continues.
This isn`t easy for you, but do whatever you can to hold on and I hope your back eases up soon.
Let us know how it goes, we`re here with you!
Hiya Taz
Sorry you feel like crap. Have you ever had kidney stones?? Talk to your Doctor. I know the riba can be hard on kidneys and 8 weeks is about when the riba sx shows its ugly self. Drink LOTS of water. I had to get a transfusion at 7 weeks. I stayed anemic the rest of my tx so I know it was the riba.
Tig56, I think you may be right. I have some minor back probs anyway but not like this.it feels like the flu. sucks. I took a 500 Tylenol & ambien & 1/2 to try & let me rest. I am getting so sick of this. I only took 1 1/2 riba tonight.cuz the riba wreacks havoc on me too. took my reg dose this morn. I feel right now I just don't have the strength to do anything.i don't do labs til next friday. I know my anemia is bottomed. please pray I keep the strength, I am too close.
I can't wait to get done & hopefully svr & loose 15 to 20 lbs to get back into some nice dresses & pants I had bought that will be like a new wardrobe.. & to get my pool straightened out.i got some stuff & it looks like pure crap still.. oh well take care of me.. that is the main thing.. Peace out I will hae to say this is so much worse than the inceivek & the 26 weeks of the the interferon & riba.
Thank u jimbob!!
jimbob
Around week 8/9 I had some lower back pain as well. At first, I thought it might be a pulled muscle, but then it started to feel like the kidneys. It became really pronounced when I hit golf balls. So, I did stretching excercises and quit swinging and it went away. However, I'd check with the doctor if I were you. Better to be safe. If mine had persisted or worsened, that's what I was going to do.
Only 4 more weeks Taz. It is so close.
Good luck.
Hi Taz,
Sorry you're feeling so badly. I honestly don't think that it's a side effect of your treatment. You could be suffering from some severe fatigue and muscle ache from treatment, but not a problem with treatment. I hope that makes a bit of sense! If you have had any problems with your skin or the sun, you might want to avoid a hot shower or bath, but it may be helpful to loosen up that muscle. Do you have a heating pad? I might start with some ibuprofen and have someone do some deep massage over the area. Applying a little heat to that one area with a heating pad for a period of 15 minutes on and 15 off for an hour or two at most should give you an idea whether or not it will give you some relief. I would definitely try some ibuprofen, most docs don't have a problem with it. When you can call the office, I would do that. Did you do anything that may have over exerted that area? It doesn't take much. Get off your feet and if you lie in bed, put a pillow under your knees. It will help relieve the tension on your back muscles. If you lay on your side, keep your knees folded up like you're in a fetal position, that will help too. So.... Apply some heat, ibuprofen, massage and keep your knees bent when lying down And call your doctor in the morning!
Tig
I would call one of your nurses, it might be related to Interferon, or you might have a different problem. When in doubt, shout. I hope you find some relief soon! Hugs
This is a new one and I have NO experience with interferon. The only thing I can do is hope you feel better buddy.
interferon shot? it feels as tho someone has their hand in there & pulling really hard. hurts like heck.. when I get up I can barely straighten up. & I feel like I have the flu 5 times over. I have been on this stuff for 8 weeks now.. why now? so uncomfortable!!!!!!
-- Edited by TazKat on Saturday 14th of June 2014 11:52:00 PM