The world against Mike , The world don't have a chance wile your on that Riba!
keep up the good work, Glad to see the move went well.
wmlj1960 said
Oct 10, 2014
Isiscat2011 wrote: Time to stop worrying.
I'm not worried any longer. I have my intestinal components working correctly, my nagging pain issue gone and I'm back to getting a little daily exercise, my exhausting task of moving by myself completed and a good start of a daily routine going, Zoloft to help a little toward keeping a positive attitude, and I've met some cool friends at AA meetings that help with that lonely 'The World Against Mike' feeling.
Stop worrying? Heck, this second half of Tx ought to be a breeze compared to the first half. Seeing as how I made it through the last 12 weeks with the help from all you guys, I'd say there is not much to worry about any more (barring a total meltdown of the WWW).
Isiscat2011 said
Oct 10, 2014
Your labs look fine, Mike. Your Hgb hasn't changed since last time which means you are tolerating the Riba well. You are UND!
Btw, if you have a few platelets to spare send them over. Yours look better than most cirrhotics who are not on tx including mine. Time to stop worrying. :)
Tig said
Oct 10, 2014
I agree completely that regardless of the LLOQ of either lab, undetected is undetected! My first VL in 2013 the LLOQ was <43 and then within the year they dropped the LLOQ to <15, and now I believe it's down to <7. So I'm thinking the only thing you need to be doing right now is a little happy dance!! Of course with your Hgb, you might want to make it a short one, lol! It's looking good bro!!
Tig
Dzdayscomin said
Oct 10, 2014
Not sure why you are so concerned, the labs are very good Mike, the "Undetected" is great those are the words you want to hear, if there was anything present it would state that.
Take it as good news and do a couple happy dances for each time it says that word!
Happy to see such a good report for you !
Duane
wmlj1960 said
Oct 10, 2014
As you can see, these 10-7-14 labs were done @ American Esoteric Labs in Memphis and I dug out 3 more VL test. 1 done @ American Esoteric Labs, and 2 done @ LeBonheur Childrens Medical Center Labs in Memphis. None of these give LLOQ. Also they are all reported differently in each report. I guess it just depends who is on duty. Kind of throws a small wrench in the gears that are the reason they say to have labs (especially imaging) done at the same location each time...
Tig said
Oct 10, 2014
I agree, the labs look pretty acceptable. However, you're right, there is information like the LLOQ missing from the report. Is this from the same lab you were tested at before? Might have it on another report.
Tig
wmlj1960 said
Oct 10, 2014
Next Tuesday 10-14-14 I'll be 12 weeks post SOT, half way through with my 24wk Tx. Hear are my latest lab results done Wed 10-7-14. I like the way the viral load test shows negative but it looks like it lacks information to me - like #1, what is the LLOQ on this particular test?
The labs look good to me but then I don.t know much about labs?
-- Edited by wmlj1960 on Saturday 11th of October 2014 01:35:31 AM
Thanks for the positive reassurance everybody. I certainly am feeling good. I've been getting plenty of light exercise increasing some each morning, now that I have my former digestive issues solved, I'm eating healthy foods with an appetite that exceeds the ole pot 'munchies' , and my mental state is really positive which has even shown to passing strangers at times lately.
I have decided to move from this rural town 53 miles away from the liver transplant center to a location in midtown Memphis TN, 1.2 miles from the transplant center. I was in Memphis today for 2 group meetings with my Tx nurse and HCV nurse and several other of the patients currently on Tx or post Tx, Those were at 8am & 3pm, so I viewed some rental properties in the interim time that I had researched the ads online and found one that I could not live without. So I paid 1st months rent and deposit on a very nice little apartment that looks to be taylor made for my needs. I have accumulated a lot of material things that will need to be moved and I have nobody to help me. But I feel so good that I'm confident I can't get everything moved by myself, with my van and small trailer provided I work at a slow pace and don't overdo it.
LOL... previously I had mentioned to my Dr that I thought Sov/Riba and also my new HIV meds agreed well with me and even may be helping me to feel 'better than normal'. His reply was that I likely was feeling so good because I'm no longer putting all that alcohol, drugs, nicotine, and other poisons into my body. Of course, as usual, I know he is right.
Isiscat2011 said
Sep 6, 2014
Glad to read this, Mike. You are responding very well to these meds and that makes me very happy.
Tig said
Sep 5, 2014
Those are good numbers Mike! Congrats on the continued UND! Good luck...
Tig
Dzdayscomin said
Sep 5, 2014
Good results Mike.
wmlj1960 said
Sep 5, 2014
Got my UND, so I can finally not worry about VL until after 1-7-2015.
-- Edited by wmlj1960 on Saturday 6th of September 2014 03:36:16 AM
My Dr did SOT +6 wk labs last week after my appointment with him. I assume he was looking for an elusive UND VL which didn't happen @ SOT +4 wk?
My Tx nurse called today and told me those 6 wk results show UND VL and blood work all looks fine. So I'm comfortable with this progress and looking forward to continuing with Tx as is. I'll get a copy of labs tomorrow when I travel to the transplant center for our monthly 3pm HCV Tx support group.
So that brings me to a side note: This 3pm support group tomorrow is for patients that are currently on Tx. But at 8am they also have a 1 time information meeting (that I attended in June) for patients immediately prior to their starting Tx. So today my Tx nurse asked me if I would also come to that information meeting in order to share my experience with Tx so far with the new patients. She led me to believe that it's seldom they have a cirrhotic patient that is co-infected / also on HIV HAART therapy that has experienced such limited Sx's up to this point in HCV Tx.
I told her that I'd be happy to do this in order to help ease some of the anxiety and fear of Sx's by the new patients. I did mention that l would do it as long as there is no pharma rep attending in an effort to promote their Rx's. I told her that I'd be glad to do that as soon as those Rx's become available to ALL who need them. Right Isis?
She laughed and assured me that this is not the purpose.
wmlj1960 said
Aug 28, 2014
mallani wrote:
Don't worry about it.
I agree. I don't need the confusion and we also, thankfully, have you to explain results in simple terms. So I'll have the changes made in order to have all future labs done at the liver transplant center, and I'll post results here when they are available.
As always, thanks for your help Malcolm!!!
mallani said
Aug 28, 2014
Hi Mike,
I know it's confusing. Your VL from 2nd May was reported at a Lab that gives the Reference Range.
Your recent report (19 August) does not. Usually, the number in brackets is taken as the LLOQ/LLOD. So, you are positive and that means your VL is >15.
Don't worry about it.
wmlj1960 said
Aug 28, 2014
The blood for this latest result 8-19 and on 8-6, was tested @ LeBonheur Childrens Medical Center Laboratory using Roche TaqMan HCV v2.0 Real Time RT-PCR in vitro diagnostics reagents for quantitative detection of HCV RNA copies in IU/mL of plasma.
So I know that's not what we want.
___________________________
The blood drawn 5-2-14 (results attached) and yesterday was at the transplant center where my Dr's office is. And tested @ Clinical Pathology Laboratory in Austin TX USA using Real-time PCR, Roche COBAS Ampliprep/Taqman v2.0.
This result printout reads: Range of Quantitation 15-100,000,000 IU/ML. If this is what we want, then yes, I can arrange to have all my labs done at this lab location.
______________________________
mallani wrote:
1.5E +01 is the same number as 15. Any VL >15 will be reported as Positive and any VL <15 will be reported as Negative.
The result attached from 5-2-14 says "Positive" "722916". I understand that result - no problem.
But I'm still confused: The results on this last test says "Positive HCV by PNR < 1.50 E+1 (<1.18) IU/mL (or as you stated <15 iu/ml)
So if it's < 15 iu/ml then why does it say "Positive"?
Yeah, try to get your VL done at the same Lab.(preferably one that doesn't use Scientific Notation!).
1.5E +01 is the same number as 15. Any VL >15 will be reported as Positive and any VL <15 will be reported as Negative. Cheers.
wmlj1960 said
Aug 27, 2014
Thanks Malcolm. I'm truckin' on.
This lab does something different every time. Last time the lower limit of quantification was not even given, although you assured me at that time that it was likely < 1.5 iu/ml.
And they took more blood today, which will be tested at a different lab (the one used for my 5-2-14 lab work, which I use as pre-SOT reference). I'm glad we have you because all this inconsistency makes my head spin.
mallani said
Aug 26, 2014
Hi Mike,
That's a Qualitative VL result. Unfortunately it's positive. The (<1.5E + 01 iu/ml) is the LLOD expressed in Scientific Notation.
Better luck next time. I wish these Labs would stop using Scientific Notation. It went out with the ark!
Keep trucking and hopefully your will be Undetected at 8 weeks. Cheers.
wmlj1960 said
Aug 26, 2014
I hope it will accept JPEG attached:
-- Edited by wmlj1960 on Wednesday 27th of August 2014 01:16:59 AM
My Dr's HCV nurse (not the Tx nurse) the other day told me she didn't know how to read the VL results. But she did tell me what I needed to know as far as "not UND". The only other pertinant info I see here is the LLOQ of < 1.5E+ 01 IU/mL. So to me it says I'm positive for detection of HCV antibodies but the amount per mL is too low to measure within the limits of this particular type of test, which is > 1.5 IU/mL, Is that right? (results attached). Dr. ordered more labs today so we'll hope for UND next time. And he plans to stay with the original plan for now. We spent little time on labs and Tx plans and talked more about other issues such as heptocellular carcinoma, hepatic encephalopathy, and of course (my main gripe) constipation/diarrhea issues. And he agreed with my diagnosis of the cause of this. Also he commented that I have been right for being so concerned with this issue since for decompensated cirrhotics, it's a major deal! I'll hold off on posting about my solution until it's proven itself for a few days...
Edit: I'll post the attachment after I get it formatted right. This board won't accept bitmap, TIFF, text or PDF. Must be something I'm doing wrong...
-- Edited by wmlj1960 on Wednesday 27th of August 2014 01:13:25 AM
wmlj1960 said
Aug 22, 2014
Isiscat2011 wrote:
This is very common for HCV tx. I was completely shocked by it then but now I realize that it is what it is.
I'm increasingly learning that this is true by the day. It's a good thing I have you and all the others on this forum to learn from so I can watch out for mistakes in my Tx. Also, for me it's even more of a challenge since my long time girlfriend died from HIV related complications, my recent lady friend across the street has now moved away and my only family is in FL. So that leaves just me to negotiate all this by myself with nobody who can go to appointments with me and be educated about it in order to fend for me if the time comes when I can't.
With the no-help deal it's always some detail that needs to be addressed such as when I went for an endoscopy, and they would not do it unless I had someone to drive me home. So I hired a young man who lived down the street to go with me that day. Now that young man has moved away so, in case of a colonoscopy, I was planning to rent a motel room close to the hospital, leave my car there, take a cab to the hospital, then take a cab back to motel after the procedure. Then the problem starts to be where am I going to get the $ for hiring a driver or motel, cabs etc on a small disability check? I am on a waiting list in a medicaid waiver program to receive help for this transportation thing but that won't be finalized for several months.
But all-in-all, obstacles included, this whole deal will be so worth it if I kick the dragons butt!!!
wmlj1960 said
Aug 22, 2014
Gee girl, it's a miracle you made it through your Tx, with the lacking of knowledge and experience of your Tx team. It's a d*mn good thing you had someone knowledgeable on the team = you.
My Tx facility does have a patient portal system although it is relatively new and obviously still has growing pain issues when it comes to me downloading my complete lab results. I get most of the results ~36 hours after they take my blood. But other results i have to wait until my Tx nurse mails me a copy. I just don't understand why they don't post it all on the patient portal and I've called until I'm blue in the face trying to get an answer to this. eg. I get the following results:
Protein, Total
CREATININE
WBC
Sodium
RBC
Potassium
Platelet Count
Hemoglobin
Hematocrit
Glucose, Serum
Chloride
________________________________
The results I have to wait to have mailed to me are already posted above. And not even VL test results this time.
It's been over a month since I recieved a call telling me that this issue would be looked into and I would be notified when a solution is found. Evidentally a solution has not been found yet so I'll call again Monday morning to try to get this broken process stirred up again.
Meanwhile I won't worry about labs although I have to admit I'd really like to know if that 4 wk VL is better than 23.3 IU/mL, from my 2 wk results.
I'm limited on kickboxing these days due to physical disabilities with the lower extremity's , and I don't have a big enough pillow but look out couch cushion...
Isiscat2011 said
Aug 22, 2014
Mike: I have to share one of my unpleasant tx stories with you.
My platelets really took a hit. Pre-tx they were 200 but within a short time they began to plummet. My doc had ordered weekly blood tests. Here was my routine: On Friday eve at about 7pm I went to the hospital lab (open 24/7) and then waited for the results. I took my Interferon shot as soon as I got home.
So, my platelets had dropped to around 70 the previous week. It was a Friday evening so I got my lab results and saw that my platelets were now at about 60. I didn't want to skip my Interferon shot but was afraid to take it because my platelets seemed to be in freefall. I didn't know much but I knew there was some connection between platelets and Interferon.
I get home from the lab and page my doc. His partner, who was on call for him, took the call. When I asked him what to do about my dilemma he responded that he "did not know how to advise me because he does not treat HepC." I told him that he needed to find out because he and his partner were responsible for my medical care. He replied that I could stop taking the Interferon. I told him that I was concerned about doing this because it might impact my SVR odds. He then responded "Take it, don't take it, I don't know. I can't advise you." Long story short, I took it and my platelets fell about another 10,000. I was barely hanging on when my doc finally got back in town.
This is very common for HCV tx. I was completely shocked by it then but now I realize that it is what it is.
Isiscat2011 said
Aug 22, 2014
It is terribly frustrating. I was one of the "early birds" for Incivek/Interferon/Riba tx and the medical professionals I was seeing knew next to nothing about this tx. To top it off I was being treated in a small GI/Hepatology practice (as opposed to a university/teaching/research facility) so treating HCV was not their priority.
The day-to-day HCV tx was actually being run by a NP and she was working out of 3 different offices! It was not only frustrating but it was also somewhat scary because some of the adverse events were serious and they came one after the other from beginning to end of tx.
This is the state of affairs for HCV tx so we just have to make the best of it by staying on top of things ourselves. Your tx facility is large and presumably well wired. They must have a web portal where patients can log on and view their test results. Ask them to post your results asap after they receive them (assuming you don't have direct access to the lab's portal). Make use of emails. If you don't receive a response in a reasonable period of time (say 24 hours) then send another one. Obviously, if you have an emergency, you should call and be seen right away.
Don't worry too much about lab results for now, though. As long as things are stable and the VL is showing some improvement. Hang in there, Mike. Find a big stuffed pillow to beat up on. If you are up to it try a few kickboxing moves. :)
My patience is wearing real thin with this nurse. Not my normal Tx nurse. 1st she says lower GI, then colonoscopy, this morning she said the colonoscopy would be delayed until after Tx. She said yesterday that she would send me a copy of my labs but no VL test was done...
I got the results yesterday in the mail (attached) and you guessed it - no HCV RNA by PCR result.
I know a VL test was ordered because I made a copy of the lab order before going to the lab (attached).
So this morning I talked to her and she said that there were VL results but the lab did it differently and she was unsure how to read it. She did manage to tell me it was not UND.
So I'll just have to wait until Tuesday when I see my Dr to get answers. Wow, if I can't get any straight answers then, I'm in big trouble............
-- Edited by wmlj1960 on Friday 22nd of August 2014 08:01:41 PM
Gator Man said
Aug 22, 2014
Just prior to starting Tx, I got the two for one special, a colonoscopy and endoscopic exam at the same time. Even though there seem to be little concern with having esophageal varices, my doctor thought it would be a good idea to rule it out. Went back to the same gastro who did a colonoscopy in 2005. He reviewed his notes from the 2005 exam when we met in January. He told me I got a "C" for prep, so he gave me the "grenade", a bottle of magnesium sulfate to take the day before the regular prep kit. Good advice (actually mandatory for obvious reasons) to stay close to the loo, but otherwise it wasn't that bad. I was on the exam table laughing with the nurses and the next thing I was waking up in recovery 2 hours later. Results were fine and I got a B+ for prep this go around! Hooray!
longld said
Aug 22, 2014
advice......stay close to the loo when in the prep mode - it comes quicker than anything you have ever seen. Suggest putting an iPad and reading matl in loo.
They give you great drugs so no pain - I noticed that the hose has little distance marks in it so they can keep track of how far it is inside you - good thing to know......
wmlj1960 said
Aug 22, 2014
Well, I certainly have no anesthesia problem after all the surgeries I've been through and even if something about it is painful, I'll bet it's not as painful as me rolling on the bathroom floor with abdominal pain @ 3am this morning.
So I hope they get this scheduled and done, ASAP.
mallani said
Aug 22, 2014
I've just had a routine colonoscopy and the preparation is not that bad. Diagnostically, a CT colonoscopy is almost as good but again, it requires a bowel prep. It should be reserved for those who have problems with anaesthesia, or those with long, redundant loops of colon. Also, if a polyp needs to be removed or a biopsy is required, this is not possible with CT. Optical colonoscopy remains the 'gold standard'.
Isiscat2011 said
Aug 22, 2014
wmlj1960 wrote:
The nurse called this morning (imagine that) to check if any change with my constipation/diarrhea deal. There is no change for the better so she said they may do a colonoscopy next Tuesday. So that gives me something to research.
My PCP has tried to get me to have a routine colonoscopy a couple of times but so far I have been able to negotiate him down to stool samples instead. I'm sure it is annoying to have me for a patient.
The procedure itself shouldn't be too bad but the preparation can be a bit rough. I wonder if they couldn't accomplish the same thing through imaging. Not that it is something to fear; I just prefer the least invasive methods whenever possible.
I expect a few people here have had colonoscopies and can give you the low down.
wmlj1960 said
Aug 22, 2014
wmlj1960 wrote:
The nurse said that the Dr may do a lower GI if it continues until I see him on 8-26.
The nurse called this morning (imagine that) to check if any change with my constipation/diarrhea deal. There is no change for the better so she said they may do a colonoscopy next Tuesday. So that gives me something to research.
wmlj1960 said
Aug 21, 2014
Thanks Isis.
I wouldn't say amazing but rather 'no alternative choice, coupled with the will to live'. What's amazing is how stupid I was to abuse my body for so many years, and put myself in situations that I knew were risky, and always going to do better 'tomorrow' and tomorrow never came. Well, today is that tomorrow and I have nobody to blame but myself, and that gets tough some days, but I've never quit anything, even when it would have been wise to do so. And I won't quit this battle either regardless of HCV, HIV, HSV-2, emphysema, peripheral neuropathy, arthritis, spondylosis, or aches and pains from car/motorcycle wrecks, lost fights, gunshot wounds, etc. The good news = all this makes me think that I've finally found a constructive use for my extreme 'hard headedness'. LOL
Isiscat2011 said
Aug 21, 2014
wmlj1960 wrote:
Thanks Isis. That's good news. I just feel a little weak but not too bad. As you know, with my HIV, I'm accustom too this feeling so no-problem. My main problem likely has very little to do with HCV Tx - constipation, then, diarrhea. Back and forth, that I think is caused by my new HIV Rx's. The nurse said that the Dr may do a lower GI if it continues until I see him on 8-26. I suppose I'll be able to make it until then without creating too many more new 4 letter words. LOL
I don't know how you do it, Mike. As if one virus wasn't enough to deal with! You are pretty amazing. :)
wmlj1960 said
Aug 21, 2014
Huey wrote:
Pot is not good for everyone,In your case Mike you have too much scaring.
Not to mention I smoked it like a freight train in the 70's and got to the point of only getting a case of paranoia from it. I have not wanted any for many years. I think I'll stick with the pharmaceutical, healthy foods approach on this one. Thanks anyway Huey.
Huey said
Aug 21, 2014
Your Glucose is down, That indicates to me that you don't have any insulin resistance going on, So your ATL's are going to be low as-well,. Your virus is dormant and not replicating at the moment, I suggest you limit your Anti-Oxidant intake and NO tobacco, Those are not the kind of Free Radicals you need Grass however may actually be of some benefit, Those free radicals make the virus go dormant but also promote scar tissue. Your body has it's own "Beta" Cannabis and this makes the virus go dormant , one or more of the other meds you are on must be triggering this and that is ok. Pot is not good for everyone,In your case Mike you have too much scaring.
Thanks Isis. That's good news. I just feel a little weak but not too bad. As you know, with my HIV, I'm accustom too this feeling so no-problem. My main problem likely has very little to do with HCV Tx - constipation, then, diarrhea. Back and forth, that I think is caused by my new HIV Rx's. The nurse said that the Dr may do a lower GI if it continues until I see him on 8-26. I suppose I'll be able to make it until then without creating too many more new 4 letter words. LOL
Isiscat2011 said
Aug 21, 2014
Hi Mike:
WBC is still good. RBC/Hgb/Hematocrit is stable; Hgb was at 10 two weeks ago so no change there. I don't think most docs would transfuse until you hit <7.5 Hgb. They might start talking about a riba reduction (or procrit if your doc is so inclined) at some point but no reason yet. Procrit (Epoetin) is used for low rbc but not for low platelets, btw.
Platelets are a bit low at 130 but fine. You aren't on Interferon so platelets shouldn't drop too low. Btw, your platelets are still 40,000 higher than mine and I'm not on tx! Not a concern until they hit < 75 and they can go substantially lower than that before they become a serious concern.
How do you feel?
wmlj1960 said
Aug 21, 2014
Here are some of the results from my 4 wk post SOT labs done yesterday. I suppose I'll have to wait until 8-26-14, when I see my Hepatologist, to get the VL, AST, ALT etc.
WBC's sure dropped, and RBC's/platelets too, as expected. But Hb is still 10.0 so how low is my Dr going to let platelets drop before putting me on Procrit or reducing Riba ?
-- Edited by wmlj1960 on Thursday 21st of August 2014 06:36:25 AM
-- Edited by wmlj1960 on Thursday 21st of August 2014 06:40:14 AM
wmlj1960 said
Aug 14, 2014
Thank you sir! I'm certainly hoping.
I went to an appt. with my HIV Dr. today. I asked him about the results and he said he was not surprised that some VL is still showing after only 2 weeks post SOT, especially with my advanced stage of cirrhosis. So I'll just keep feeding my body healthy food, exercising etc. and we'll see about 4 wk lab results next week.
Thanks Malcolm!
mallani said
Aug 14, 2014
Hi Mike,
Here's my take on your labs:
You are still Detected for the HCV, with a reading of 23.3 iu/ml. This is very low, and although the report doesn't mention the LLOQ, it is probably 15 iu/ml.
You have the Ribavirin anaemia, with decreased RBC, Hb and increased MCV. With a Hb of 10, you should be OK for a while. The platelets are just a bit low, but this is probably cirrhosis-related. The white cells are good, with plenty of neutrophils.
Your liver results show a typical cirrhosis pattern, with decreased albumin and increased bilirubin. Your AST and ALT are quite low, which suggests you don't have much liver inflammation at the moment.
Looks good buddy. Lets hope for Undetected at the next one. Cheers.
wmlj1960 said
Aug 14, 2014
mallani wrote:
Hi Mike,
Let us know your ALT when you find it. All the best.
Here's the official copy from my Tx nurse. ALT 14.
Does this mean my 2 week VL is 23.3 IU/mL. And that is higher than expected, which was "negative" or <23 IU /uL?, or <23 IU/uL?
Improvement is good, My thoughts on your situation is I wonder if the HIV somehow competes with the HCV and if you attack one without getting just as much of the other, the imbalance will tip the scale in favour of the one not getting attacked? Or Not, If I were you I would try to somehow keep the treatment balanced and kill a little of both so you lower the VL without raising the competition level. It will take a vary strict protocol to do this.
Thanks Huey,
That has crossed my mind. The Rx's for fighting both infections even sound similar - ribavarin, sofosbuvir, darunavir, etravirine and tenofovir (Viread), one of my HIV Rx's, is also used in treating Hepatitis B. I know each Rx has it's specific job for fighting specific infections, but it seems like there should be some advantage to having all these virus killing Rx's working all at once. I have no idea of a way to "balance" the mix though.
I'm certainly more interested in curing the HCV virus than the HIV since, with proper antiretroviral therapy these days, an HIV+ individual can live a full, healthy, Sx free life. Without a SVR the HCV will always continue to attack the liver. HCV drugs are getting much better, but in some cases, such as decompensated cirrhosis and HCV/HIV co-infected individuals, the HCV cure rates are still not very impressive.
So eating liver friendly foods and not eating liver unfriendly foods, taking 'ALL' of my Rx's on time, exercise within reason, and becoming educated with the facts of my illnesses is about as "strict" of a protocol as I know how to get.
Huey said
Aug 14, 2014
Improvement is good, My thoughts on your situation is I wonder if the HIV somehow competes with the HCV and if you attack one without getting just as much of the other, the imbalance will tip the scale in favour of the one not getting attacked? Or Not, If I were you I would try to somehow keep the treatment balanced and kill a little of both so you lower the VL without raising the competition level. It will take a vary strict protocol to do this.
wmlj1960 said
Aug 14, 2014
These labs were done 7-17-14 ordered by my HIV Dr. CD-4 338, HIV VL <20 copies/mL. That's the best results I've seen in several years. But I suspect the HCV Tx will trash my HIV #'s once again, but hopefully not too bad.
Looking good, apart from the Hb and RBC level. As Isiscat said, the haematocrit is just a volume % of red cells in blood, so it will be low when the red cells are low. That's all due to Ribavirin. Your doctor will decide whether to drop the Riba dose or add procrit.
Your platelets and WCC are OK, and shouldn't be affected by Sovaldi/Riba. Let us know your ALT when you find it. All the best.
wmlj1960 said
Aug 8, 2014
That's great. I feel better now. I remember Malcolm mentioning platelets being important when I was considering dental work a couple of weeks ago.
Yes I've had anemia issues due to HIV in the past so no surprise there.
I've read about Procrit around here but haven't researched it yet. So that gives me something to do...
I didn't see Prothrombin Time nor INR value on this patient portal version. It may be included in the printed results version, or maybe those test were not needed at this point. I don't know.
The world against Mike , The world don't have a chance wile your on that Riba!
keep up the good work, Glad to see the move went well.
I'm not worried any longer. I have my intestinal components working correctly, my nagging pain issue gone and I'm back to getting a little daily exercise, my exhausting task of moving by myself completed and a good start of a daily routine going, Zoloft to help a little toward keeping a positive attitude, and I've met some cool friends at AA meetings that help with that lonely 'The World Against Mike' feeling.
Stop worrying? Heck, this second half of Tx ought to be a breeze compared to the first half. Seeing as how I made it through the last 12 weeks with the help from all you guys, I'd say there is not much to worry about any more (barring a total meltdown of the WWW).
Your labs look fine, Mike. Your Hgb hasn't changed since last time which means you are tolerating the Riba well. You are UND!
Btw, if you have a few platelets to spare send them over. Yours look better than most cirrhotics who are not on tx including mine. Time to stop worrying. :)
I agree completely that regardless of the LLOQ of either lab, undetected is undetected! My first VL in 2013 the LLOQ was <43 and then within the year they dropped the LLOQ to <15, and now I believe it's down to <7. So I'm thinking the only thing you need to be doing right now is a little happy dance!! Of course with your Hgb, you might want to make it a short one, lol! It's looking good bro!!
Tig
Not sure why you are so concerned, the labs are very good Mike, the "Undetected" is great those are the words you want to hear, if there was anything present it would state that.
Take it as good news and do a couple happy dances for each time it says that word!
Happy to see such a good report for you !
Duane
As you can see, these 10-7-14 labs were done @ American Esoteric Labs in Memphis and I dug out 3 more VL test. 1 done @ American Esoteric Labs, and 2 done @ LeBonheur Childrens Medical Center Labs in Memphis. None of these give LLOQ. Also they are all reported differently in each report. I guess it just depends who is on duty. Kind of throws a small wrench in the gears that are the reason they say to have labs (especially imaging) done at the same location each time...
I agree, the labs look pretty acceptable. However, you're right, there is information like the LLOQ missing from the report. Is this from the same lab you were tested at before? Might have it on another report.
Tig
Next Tuesday 10-14-14 I'll be 12 weeks post SOT, half way through with my 24wk Tx. Hear are my latest lab results done Wed 10-7-14. I like the way the viral load test shows negative but it looks like it lacks information to me - like #1, what is the LLOQ on this particular test?
The labs look good to me but then I don.t know much about labs?
-- Edited by wmlj1960 on Saturday 11th of October 2014 01:35:31 AM
Thanks for the positive reassurance everybody. I certainly am feeling good. I've been getting plenty of light exercise increasing some each morning, now that I have my former digestive issues solved, I'm eating healthy foods with an appetite that exceeds the ole pot 'munchies'
, and my mental state is really positive which has even shown to passing strangers at times lately.
I have decided to move from this rural town 53 miles away from the liver transplant center to a location in midtown Memphis TN, 1.2 miles from the transplant center. I was in Memphis today for 2 group meetings with my Tx nurse and HCV nurse and several other of the patients currently on Tx or post Tx, Those were at 8am & 3pm, so I viewed some rental properties in the interim time that I had researched the ads online and found one that I could not live without. So I paid 1st months rent and deposit on a very nice little apartment that looks to be taylor made for my needs. I have accumulated a lot of material things that will need to be moved and I have nobody to help me. But I feel so good that I'm confident I can't get everything moved by myself, with my van and small trailer provided I work at a slow pace and don't overdo it.
LOL... previously I had mentioned to my Dr that I thought Sov/Riba and also my new HIV meds agreed well with me and even may be helping me to feel 'better than normal'. His reply was that I likely was feeling so good because I'm no longer putting all that alcohol, drugs, nicotine, and other poisons into my body. Of course, as usual, I know he is right.
Glad to read this, Mike. You are responding very well to these meds and that makes me very happy.

Those are good numbers Mike! Congrats on the continued UND! Good luck...
Tig
Good results Mike.
Got my UND, so I can finally not worry about VL until after 1-7-2015.
-- Edited by wmlj1960 on Saturday 6th of September 2014 03:36:16 AM
My Dr did SOT +6 wk labs last week after my appointment with him. I assume he was looking for an elusive UND VL which didn't happen @ SOT +4 wk?
My Tx nurse called today and told me those 6 wk results show UND VL and blood work all looks fine. So I'm comfortable with this progress and looking forward to continuing with Tx as is. I'll get a copy of labs tomorrow when I travel to the transplant center for our monthly 3pm HCV Tx support group.
So that brings me to a side note: This 3pm support group tomorrow is for patients that are currently on Tx. But at 8am they also have a 1 time information meeting (that I attended in June) for patients immediately prior to their starting Tx. So today my Tx nurse asked me if I would also come to that information meeting in order to share my experience with Tx so far with the new patients. She led me to believe that it's seldom they have a cirrhotic patient that is co-infected / also on HIV HAART therapy that has experienced such limited Sx's up to this point in HCV Tx.
I told her that I'd be happy to do this in order to help ease some of the anxiety and fear of Sx's by the new patients. I did mention that l would do it as long as there is no pharma rep attending in an effort to promote their Rx's. I told her that I'd be glad to do that as soon as those Rx's become available to ALL who need them.
Right Isis? 
She laughed and assured me that this is not the purpose.
I agree. I don't need the confusion and we also, thankfully, have you to explain results in simple terms. So I'll have the changes made in order to have all future labs done at the liver transplant center, and I'll post results here when they are available.
As always, thanks for your help Malcolm!!!
Hi Mike,
I know it's confusing. Your VL from 2nd May was reported at a Lab that gives the Reference Range.
Your recent report (19 August) does not. Usually, the number in brackets is taken as the LLOQ/LLOD. So, you are positive and that means your VL is >15.
Don't worry about it.
The blood for this latest result 8-19 and on 8-6, was tested @ LeBonheur Childrens Medical Center Laboratory using Roche TaqMan HCV v2.0 Real Time RT-PCR in vitro diagnostics reagents for quantitative detection of HCV RNA copies in IU/mL of plasma.
So I know that's not what we want.
___________________________
The blood drawn 5-2-14 (results attached) and yesterday was at the transplant center where my Dr's office is. And tested @ Clinical Pathology Laboratory in Austin TX USA using Real-time PCR, Roche COBAS Ampliprep/Taqman v2.0.
This result printout reads: Range of Quantitation 15-100,000,000 IU/ML. If this is what we want, then yes, I can arrange to have all my labs done at this lab location.
______________________________
mallani wrote:
The result attached from 5-2-14 says "Positive" "722916". I understand that result - no problem.
But I'm still confused: The results on this last test says "Positive HCV by PNR < 1.50 E+1 (<1.18) IU/mL (or as you stated <15 iu/ml)
So if it's < 15 iu/ml then why does it say "Positive"?
Hi again Mike,
Yeah, try to get your VL done at the same Lab.(preferably one that doesn't use Scientific Notation!).
1.5E +01 is the same number as 15. Any VL >15 will be reported as Positive and any VL <15 will be reported as Negative. Cheers.
Thanks Malcolm. I'm truckin' on.
This lab does something different every time. Last time the lower limit of quantification was not even given, although you assured me at that time that it was likely < 1.5 iu/ml.
And they took more blood today, which will be tested at a different lab (the one used for my 5-2-14 lab work, which I use as pre-SOT reference). I'm glad we have you because all this inconsistency makes my head spin.
Hi Mike,
That's a Qualitative VL result. Unfortunately it's positive. The (<1.5E + 01 iu/ml) is the LLOD expressed in Scientific Notation.
Better luck next time. I wish these Labs would stop using Scientific Notation. It went out with the ark!
Keep trucking and hopefully your will be Undetected at 8 weeks. Cheers.
-- Edited by wmlj1960 on Wednesday 27th of August 2014 01:16:59 AM
My Dr's HCV nurse (not the Tx nurse) the other day told me she didn't know how to read the VL results. But she did tell me what I needed to know as far as "not UND". The only other pertinant info I see here is the LLOQ of < 1.5E+ 01 IU/mL. So to me it says I'm positive for detection of HCV antibodies but the amount per mL is too low to measure within the limits of this particular type of test, which is > 1.5 IU/mL, Is that right? (results attached).
Dr. ordered more labs today so we'll hope for UND next time. And he plans to stay with the original plan for now.
We spent little time on labs and Tx plans and talked more about other issues such as heptocellular carcinoma, hepatic encephalopathy, and of course (my main gripe) constipation/diarrhea issues. And he agreed with my diagnosis of the cause of this. Also he commented that I have been right for being so concerned with this issue since for decompensated cirrhotics, it's a major deal! I'll hold off on posting about my solution until it's proven itself for a few days...
Edit: I'll post the attachment after I get it formatted right. This board won't accept bitmap, TIFF, text or PDF. Must be something I'm doing wrong...
-- Edited by wmlj1960 on Wednesday 27th of August 2014 01:13:25 AM
I'm increasingly learning that this is true by the day. It's a good thing I have you and all the others on this forum to learn from so I can watch out for mistakes in my Tx. Also, for me it's even more of a challenge since my long time girlfriend died from HIV related complications, my recent lady friend across the street has now moved away and my only family is in FL. So that leaves just me to negotiate all this by myself with nobody who can go to appointments with me and be educated about it in order to fend for me if the time comes when I can't.
With the no-help deal it's always some detail that needs to be addressed such as when I went for an endoscopy, and they would not do it unless I had someone to drive me home. So I hired a young man who lived down the street to go with me that day. Now that young man has moved away so, in case of a colonoscopy, I was planning to rent a motel room close to the hospital, leave my car there, take a cab to the hospital, then take a cab back to motel after the procedure. Then the problem starts to be where am I going to get the $ for hiring a driver or motel, cabs etc on a small disability check? I am on a waiting list in a medicaid waiver program to receive help for this transportation thing but that won't be finalized for several months.
But all-in-all, obstacles included, this whole deal will be so worth it if I kick the dragons butt!!!
Gee girl, it's a miracle you made it through your Tx, with the lacking of knowledge and experience of your Tx team. It's a d*mn good thing you had someone knowledgeable on the team = you.
My Tx facility does have a patient portal system although it is relatively new and obviously still has growing pain issues when it comes to me downloading my complete lab results. I get most of the results ~36 hours after they take my blood. But other results i have to wait until my Tx nurse mails me a copy. I just don't understand why they don't post it all on the patient portal and I've called until I'm blue in the face trying to get an answer to this.
eg. I get the following results:
Protein, Total
CREATININE
WBC
Sodium
RBC
Potassium
Platelet Count
Hemoglobin
Hematocrit
Glucose, Serum
Chloride
________________________________
The results I have to wait to have mailed to me are already posted above. And not even VL test results this time.
It's been over a month since I recieved a call telling me that this issue would be looked into and I would be notified when a solution is found. Evidentally a solution has not been found yet so I'll call again Monday morning to try to get this broken process stirred up again.
Meanwhile I won't worry about labs although I have to admit I'd really like to know if that 4 wk VL is better than 23.3 IU/mL, from my 2 wk results.
I'm limited on kickboxing these days due to physical disabilities with the lower extremity's , and I don't have a big enough pillow but look out couch cushion...
Mike: I have to share one of my unpleasant tx stories with you.
My platelets really took a hit. Pre-tx they were 200 but within a short time they began to plummet. My doc had ordered weekly blood tests. Here was my routine: On Friday eve at about 7pm I went to the hospital lab (open 24/7) and then waited for the results. I took my Interferon shot as soon as I got home.
So, my platelets had dropped to around 70 the previous week. It was a Friday evening so I got my lab results and saw that my platelets were now at about 60. I didn't want to skip my Interferon shot but was afraid to take it because my platelets seemed to be in freefall. I didn't know much but I knew there was some connection between platelets and Interferon.
I get home from the lab and page my doc. His partner, who was on call for him, took the call. When I asked him what to do about my dilemma he responded that he "did not know how to advise me because he does not treat HepC." I told him that he needed to find out because he and his partner were responsible for my medical care. He replied that I could stop taking the Interferon. I told him that I was concerned about doing this because it might impact my SVR odds. He then responded "Take it, don't take it, I don't know. I can't advise you." Long story short, I took it and my platelets fell about another 10,000. I was barely hanging on when my doc finally got back in town.
This is very common for HCV tx. I was completely shocked by it then but now I realize that it is what it is.
It is terribly frustrating. I was one of the "early birds" for Incivek/Interferon/Riba tx and the medical professionals I was seeing knew next to nothing about this tx. To top it off I was being treated in a small GI/Hepatology practice (as opposed to a university/teaching/research facility) so treating HCV was not their priority.
The day-to-day HCV tx was actually being run by a NP and she was working out of 3 different offices! It was not only frustrating but it was also somewhat scary because some of the adverse events were serious and they came one after the other from beginning to end of tx.
This is the state of affairs for HCV tx so we just have to make the best of it by staying on top of things ourselves. Your tx facility is large and presumably well wired. They must have a web portal where patients can log on and view their test results. Ask them to post your results asap after they receive them (assuming you don't have direct access to the lab's portal). Make use of emails. If you don't receive a response in a reasonable period of time (say 24 hours) then send another one. Obviously, if you have an emergency, you should call and be seen right away.
Don't worry too much about lab results for now, though. As long as things are stable and the VL is showing some improvement. Hang in there, Mike. Find a big stuffed pillow to beat up on. If you are up to it try a few kickboxing moves. :)
results
My patience is wearing real thin with this nurse. Not my normal Tx nurse. 1st she says lower GI, then colonoscopy, this morning she said the colonoscopy would be delayed until after Tx. She said yesterday that she would send me a copy of my labs but no VL test was done...
I got the results yesterday in the mail (attached) and you guessed it - no HCV RNA by PCR result.
I know a VL test was ordered because I made a copy of the lab order before going to the lab (attached).
So this morning I talked to her and she said that there were VL results but the lab did it differently and she was unsure how to read it. She did manage to tell me it was not UND.
So I'll just have to wait until Tuesday when I see my Dr to get answers. Wow, if I can't get any straight answers then, I'm in big trouble............
-- Edited by wmlj1960 on Friday 22nd of August 2014 08:01:41 PM
Just prior to starting Tx, I got the two for one special, a colonoscopy and endoscopic exam at the same time. Even though there seem to be little concern with having esophageal varices, my doctor thought it would be a good idea to rule it out. Went back to the same gastro who did a colonoscopy in 2005. He reviewed his notes from the 2005 exam when we met in January. He told me I got a "C" for prep, so he gave me the "grenade", a bottle of magnesium sulfate to take the day before the regular prep kit. Good advice (actually mandatory for obvious reasons) to stay close to the loo, but otherwise it wasn't that bad. I was on the exam table laughing with the nurses and the next thing I was waking up in recovery 2 hours later. Results were fine and I got a B+ for prep this go around! Hooray!
advice......stay close to the loo when in the prep mode - it comes quicker than anything you have ever seen. Suggest putting an iPad and reading matl in loo.
They give you great drugs so no pain - I noticed that the hose has little distance marks in it so they can keep track of how far it is inside you - good thing to know......
Well, I certainly have no anesthesia problem after all the surgeries I've been through and even if something about it is painful, I'll bet it's not as painful as me rolling on the bathroom floor with abdominal pain @ 3am this morning.
So I hope they get this scheduled and done, ASAP.
I've just had a routine colonoscopy and the preparation is not that bad. Diagnostically, a CT colonoscopy is almost as good but again, it requires a bowel prep. It should be reserved for those who have problems with anaesthesia, or those with long, redundant loops of colon. Also, if a polyp needs to be removed or a biopsy is required, this is not possible with CT. Optical colonoscopy remains the 'gold standard'.
My PCP has tried to get me to have a routine colonoscopy a couple of times but so far I have been able to negotiate him down to stool samples instead.
I'm sure it is annoying to have me for a patient.
The procedure itself shouldn't be too bad but the preparation can be a bit rough. I wonder if they couldn't accomplish the same thing through imaging. Not that it is something to fear; I just prefer the least invasive methods whenever possible.
I expect a few people here have had colonoscopies and can give you the low down.
The nurse called this morning (imagine that) to check if any change with my constipation/diarrhea deal. There is no change for the better so she said they may do a colonoscopy next Tuesday. So that gives me something to research.
Thanks Isis.
I wouldn't say amazing but rather 'no alternative choice, coupled with the will to live'. What's amazing is how stupid I was to abuse my body for so many years, and put myself in situations that I knew were risky, and always going to do better 'tomorrow' and tomorrow never came. Well, today is that tomorrow and I have nobody to blame but myself, and that gets tough some days, but I've never quit anything, even when it would have been wise to do so. And I won't quit this battle either regardless of HCV, HIV, HSV-2, emphysema, peripheral neuropathy, arthritis, spondylosis, or aches and pains from car/motorcycle wrecks, lost fights, gunshot wounds, etc. The good news = all this makes me think that I've finally found a constructive use for my extreme 'hard headedness'. LOL
I don't know how you do it, Mike. As if one virus wasn't enough to deal with! You are pretty amazing. :)
Not to mention I smoked it like a freight train in the 70's and got to the point of only getting a case of paranoia from it. I have not wanted any for many years. I think I'll stick with the pharmaceutical, healthy foods approach on this one. Thanks anyway Huey.
Your Glucose is down, That indicates to me that you don't have any insulin resistance going on, So your ATL's are going to be low as-well,. Your virus is dormant and not replicating at the moment, I suggest you limit your Anti-Oxidant intake and NO tobacco, Those are not the kind of Free Radicals you need Grass however may actually be of some benefit, Those free radicals make the virus go dormant but also promote scar tissue. Your body has it's own "Beta" Cannabis and this makes the virus go dormant , one or more of the other meds you are on must be triggering this and that is ok. Pot is not good for everyone,In your case Mike you have too much scaring.
http://medicalmarijuana.procon.org/view.answers.php?questionID=000217
Thanks Isis. That's good news. I just feel a little weak but not too bad. As you know, with my HIV, I'm accustom too this feeling so no-problem. My main problem likely has very little to do with HCV Tx - constipation, then, diarrhea. Back and forth, that I think is caused by my new HIV Rx's. The nurse said that the Dr may do a lower GI if it continues until I see him on 8-26. I suppose I'll be able to make it until then without creating too many more new 4 letter words. LOL
Hi Mike:
WBC is still good. RBC/Hgb/Hematocrit is stable; Hgb was at 10 two weeks ago so no change there. I don't think most docs would transfuse until you hit <7.5 Hgb. They might start talking about a riba reduction (or procrit if your doc is so inclined) at some point but no reason yet. Procrit (Epoetin) is used for low rbc but not for low platelets, btw.
Platelets are a bit low at 130 but fine. You aren't on Interferon so platelets shouldn't drop too low. Btw, your platelets are still 40,000 higher than mine and I'm not on tx! Not a concern until they hit < 75 and they can go substantially lower than that before they become a serious concern.
How do you feel?
Here are some of the results from my 4 wk post SOT labs done yesterday. I suppose I'll have to wait until 8-26-14, when I see my Hepatologist, to get the VL, AST, ALT etc.
WBC's sure dropped, and RBC's/platelets too, as expected. But Hb is still 10.0 so how low is my Dr going to let platelets drop before putting me on Procrit or reducing Riba ?
Protein, Total
Result
7.2 g/dL (8-6-14 6.7)
Normal: 6.4 g/dL - 8.2 g/dL
__________________________________
CREATININE
Result
1.20 mg/dL (8-6-14 1.18)
Normal: 00.60 mg/dL - 1.30 mg/dL
__________________________________
WBC
Result
5.7 thou/mcL (8-6-14 7.2)
Normal: 4.2 thou/mcL - 10.2 thou/mcL
____________________________________
Sodium
Result
135 mmol/L (8-6-14 133)
Normal: 136 mmol/L - 145 mmol/L
___________________________________
RBC
Result
2.75 x10(6)/mcL (8-6-14 2.81)
Normal: 4.20 x10(6)/mcL - 5.60 x10(6)/mcL
_________________________________________
Potassium
Result
4.3 mmol/L (8-6-14 4.8)
Normal: 3.5 mmol/L - 5.1 mmol/L
__________________________________
Platelet Count
Result
130 thou/mcL (8-6-14 143)
Normal: 150 thou/mcL - 400 thou/mcL
___________________________________
Hemoglobin
Result
10.0 g/dL (8-6-14 10.0)
Normal: 12.8 g/dL - 16.4 g/dL
____________________________________
Hematocrit
Result
30.1 % (8-6-14 28.9)
Normal: 38.8 % - 48.1 %
___________________________________
Glucose, Serum
Result
94 mg/dL (8-6-14 85)
Normal: 65 mg/dL - 99 mg/dL
_______________________________
Chloride
Result
102 mmol/L (8-6-14 98)
Normal: 98 mmol/L - 107 mmol/L
-- Edited by wmlj1960 on Thursday 21st of August 2014 06:36:25 AM
-- Edited by wmlj1960 on Thursday 21st of August 2014 06:40:14 AM
Thank you sir! I'm certainly hoping.
I went to an appt. with my HIV Dr. today. I asked him about the results and he said he was not surprised that some VL is still showing after only 2 weeks post SOT, especially with my advanced stage of cirrhosis. So I'll just keep feeding my body healthy food, exercising etc. and we'll see about 4 wk lab results next week.
Thanks Malcolm!
Hi Mike,
Here's my take on your labs:
You are still Detected for the HCV, with a reading of 23.3 iu/ml. This is very low, and although the report doesn't mention the LLOQ, it is probably 15 iu/ml.
You have the Ribavirin anaemia, with decreased RBC, Hb and increased MCV. With a Hb of 10, you should be OK for a while. The platelets are just a bit low, but this is probably cirrhosis-related. The white cells are good, with plenty of neutrophils.
Your liver results show a typical cirrhosis pattern, with decreased albumin and increased bilirubin. Your AST and ALT are quite low, which suggests you don't have much liver inflammation at the moment.
Looks good buddy. Lets hope for Undetected at the next one. Cheers.
Here's the official copy from my Tx nurse. ALT 14.
Does this mean my 2 week VL is 23.3 IU/mL. And that is higher than expected, which was "negative" or <23 IU /uL?
, or <23 IU/uL?
Thanks Huey,
That has crossed my mind. The Rx's for fighting both infections even sound similar - ribavarin, sofosbuvir, darunavir, etravirine and tenofovir (Viread), one of my HIV Rx's, is also used in treating Hepatitis B. I know each Rx has it's specific job for fighting specific infections, but it seems like there should be some advantage to having all these virus killing Rx's working all at once. I have no idea of a way to "balance" the mix though.
I'm certainly more interested in curing the HCV virus than the HIV since, with proper antiretroviral therapy these days, an HIV+ individual can live a full, healthy, Sx free life. Without a SVR the HCV will always continue to attack the liver.
HCV drugs are getting much better, but in some cases, such as decompensated cirrhosis and HCV/HIV co-infected individuals, the HCV cure rates are still not very impressive.
So eating liver friendly foods and not eating liver unfriendly foods, taking 'ALL' of my Rx's on time, exercise within reason, and becoming educated with the facts of my illnesses is about as "strict" of a protocol as I know how to get.
Improvement is good, My thoughts on your situation is I wonder if the HIV somehow competes with the HCV and if you attack one without getting just as much of the other, the imbalance will tip the scale in favour of the one not getting attacked? Or Not, If I were you I would try to somehow keep the treatment balanced and kill a little of both so you lower the VL without raising the competition level. It will take a vary strict protocol to do this.
These labs were done 7-17-14 ordered by my HIV Dr. CD-4 338, HIV VL <20 copies/mL. That's the best results I've seen in several years. But I suspect the HCV Tx will trash my HIV #'s once again, but hopefully not too bad.
Will do.
Thanks Malcolm!
Hi Mike,
Looking good, apart from the Hb and RBC level. As Isiscat said, the haematocrit is just a volume % of red cells in blood, so it will be low when the red cells are low. That's all due to Ribavirin. Your doctor will decide whether to drop the Riba dose or add procrit.
Your platelets and WCC are OK, and shouldn't be affected by Sovaldi/Riba. Let us know your ALT when you find it. All the best.
That's great. I feel better now. I remember Malcolm mentioning platelets being important when I was considering dental work a couple of weeks ago.
Yes I've had anemia issues due to HIV in the past so no surprise there.
I've read about Procrit around here but haven't researched it yet. So that gives me something to do...
I didn't see Prothrombin Time nor INR value on this patient portal version. It may be included in the printed results version, or maybe those test were not needed at this point. I don't know.
Values from May 2-2014 were:
Prothrombin Time - 13.9 INR - 1.09
As always, Thanks Isis!!!
Now, what time is it in Australia?