Looking forward to celebrating with you after your next results!!
RonH said
Nov 17, 2014
The tests came back today.. UND again!!!!!
RonH said
Nov 16, 2014
Tig56 wrote:
Congratulations Ron!! Well done Brother! Best of luck with your next UND and the SVR coming...
Tig
Thanks Tig, I am so grateful for the people here and the support we get, My hat is off to you!
RonH said
Nov 16, 2014
Sierrajen wrote:
I am sending all kinds of happy thought to you Ron
Hugs Jen
Jen, Thank you and the best of luck with your treatment. I believe these new drugs are a blessing for us all!
Tig said
Nov 12, 2014
Congratulations Ron!! Well done Brother! Best of luck with your next UND and the SVR coming...
Tig
Sierrajen said
Nov 12, 2014
I am sending all kinds of happy thought to you Ron
Hugs Jen
RonH said
Nov 12, 2014
Yesterday was the last day of treatment, went this morning to get blood work done. I will know by next week how it comes back, more likely UND!
Cinnamon Girl said
Nov 8, 2014
Good going, Ron, great to hear you`re almost home and dry now!
Sounds like you`ve coped pretty well with the sx and the riba rage issues, and it`s looking very promising for you. Take it easy for a while once you`ve finished to let yourself recover and regain your energy...and give yourself a big pat on the back for getting through it!
Let us know when you hear your EOT results, and best of luck!
Matt Chris said
Nov 7, 2014
Hey Ron
Your coming down the back stretch with full power and a head of steam. The rider Ron of the horse call Sovaldi is UND heading for SVR with no obstacles in view.
Your in with flying colors
matt
RonH said
Nov 7, 2014
4 days left on this treatment! Just looking back and realized that this post was started on day 4. # months is not very long compared to the people who have had to deal with a whole year and much worse meds than I had to deal with. The 12th is my next blood test and I have hope it will come back UND also. will let everyone know.
RonH said
Oct 30, 2014
Tig56 wrote:
Hi Ron,
Joy doesn't describe the feeling you (we) all experience with each report of those three letters, UND! I guarantee you that the feeling you will have when you get the next three letter report confirming SVR, is second to none! You've done very well and your journey through treatment has been both successful for you and happy for all of us to follow! 2 more weeks, may seem like 2 months right now, but it will pass quickly and in no time you will be taking your EOT +12 viral load test to confirm SVR. Take the time between tests to plan your celebration!! Your Hep C free future is just around the bend.... WOOT!!!! Good luck!
Tig
Tig,
Thank you for the words of encouragement they mean so much to me. The bonds we form when we go through these things with another person can't be put into words. The support and true concern is overwhelming. I also wanted to thank you also!
RonH said
Oct 30, 2014
Jill,
I have been feeling pretty good all in all. The occasional struggle with insomnia but I can deal with that, just a nap in the afternoon is all. The Riba rage is well under control. One thing the 12 step program i am in has given me the tools to deal with that problem it just took a while to see the triggers that bring it on. It is the stupid little things that bother me not the big ones. Some muscle pain and I am use to that so it is not unusual for me. I have noticed some better feeling on some days, almost like the virus is gone is the only way I can describe it. I want to thank every one of you for being here on this journey for me. My gratitude is endless for what has been given me!
-- Edited by RonH on Thursday 30th of October 2014 09:34:27 AM
Tig said
Oct 28, 2014
Hi Ron,
Joy doesn't describe the feeling you (we) all experience with each report of those three letters, UND! I guarantee you that the feeling you will have when you get the next three letter report confirming SVR, is second to none! You've done very well and your journey through treatment has been both successful for you and happy for all of us to follow! 2 more weeks, may seem like 2 months right now, but it will pass quickly and in no time you will be taking your EOT +12 viral load test to confirm SVR. Take the time between tests to plan your celebration!! Your Hep C free future is just around the bend.... WOOT!!!! Good luck!
Tig
Cinnamon Girl said
Oct 28, 2014
Well done, Ron, you`re on the home stretch now!! It`s looking very promising for you so far...just keep going, and best of luck!!
How are you feeling now?
RonH said
Oct 28, 2014
The days to the end of my treatment are winding down now 14 days left! Then another blood test and we will see what goes on from there!
RonH said
Oct 19, 2014
I have thought about this disease many times after I found out I had it. I was nervous and bummed that I had this but my years in a 12 step program helped me to deal with it. There is many days when I stop and think about what this stuff can do to us all it really scares the h**l out of me, and after seeing and hearing the words UND the gratitude that I have cant even be explained! The emotions are like a roller coaster at times, I hope and pray that this crap doesn't come back. Then there are other times that the emotions of those three little letters UND brings tears of gratitude flowing! I am so happy that so many of you can relate to this and I am so grateful that I found this forum!! Thank all of you for being here for me and all of us!
RonH said
Oct 15, 2014
Talked to the Dr today, he said all my enzymes and blood work looked great. He is very happy that all is going so well! Next blood work is to be done in 27 days. Then he will see me the next week.
Tig said
Oct 8, 2014
Great news Ron!! You're over the hump and I feel good sailing and undetectable days ahead! Congratulations!!!!
Tig
Dzdayscomin said
Oct 8, 2014
Excellent news Ron, those words "Undected " are the sweetest words a hepper can hear.
I am so happy for you! Now you can focus on the future and life free of Hep C.
God Bless and prayers that the next words or letters you hear are "SVR"
Duane
skewedButNotBroken said
Oct 8, 2014
Great news! Congratulations!
RonH said
Oct 8, 2014
Update....The Dr's office called today and told me my results from my lab's, It came back UNDETECTED!!!!!! That was after 6 weeks into treatment! Such great news to hear, I am so happy!
RonH said
Oct 7, 2014
Called the Dr's office to see if they would tell me the VL numbers, well the nurse said the Dr. wont give me the #'s over the phone I would have to wait to see him first, Grrrrrr. Oh well guess I have to wait!
Tig said
Oct 4, 2014
Hey Ron,
Will keep my fingers crossed for the results you want to see on your VL. 6 weeks is often the point we see many of the undetectable results shine through and in all likelihood, so will you! I'm proud of you for learning to control the Riba Rage! That's not easy and we know it! Let us know as soon as you hear your results!! Good luck...
Tig
RonH said
Oct 4, 2014
Well I had my blood tests done on Tuesday this past week. No word from the Dr as of yet on the VL I see him on the 15th. I am hoping for und on the results. It will be 6 weeks on treatment. The pain in the joints are almost gone! Just my normal aches and pains from my work! I am learning not to flip out at stupid **** so I guess the watching my mouth is working!
RonH said
Sep 19, 2014
Thanks Huey, I try to do that it just gets very cold at times!!
Huey said
Sep 17, 2014
Good Luck,, Keep your stick on the ice.
RonH said
Sep 17, 2014
It is a new day! Met with my Dr.today just for the check up, all is well. I go in 2 weeks for my new VL blood tests. I will post the news here first! I am feeling pretty good just joint pain and the normal aches and pains, so all is well!! Keep your heads up New days are a coming!
RonH said
Sep 12, 2014
It has been awhile since i posted here, most of these days have been good a couple not great. I am learning that as long as I stay busy it helps to keep my mind at peace. My shoulder and hips have been sore quite a bit, at least the riba rage has not been that bad. I am finding that as long as I keep talking to other people and try to avoid negative situations it has been much better. Not saying that is all there is to it just what I am tying to do to help keep a check on things. I am grateful that this forum is here and I can look at what people are saying about their treatments and how that helps me. Thank you all for being here!
RonH said
Sep 3, 2014
As these days are going on I am seeing more pain in my hips if I sit to long. I took a nice walk to the beach with the wife and the dog today, it was nice, no pressure and no time limit. I also have found out that my filter for saying what I am thinking is not as good as it normally is. The last couple days have been ok, well at least no headache. My wife worry's that the meds will affect me negatively and I can understand her feelings. Some of the things we read are horror stories and freak people out, they did me at least. I found a support group near me that I am going to go to and see if it is still there, any extra help will be nice, never hurts! Everyone have a great day unless you made other plans!
Dzdayscomin said
Aug 31, 2014
Thanks Tig, (In about two-thirds of the affected individuals morning stiffness may be severe, resolving after more than an hour. ) this is me in one sentence, less the resovles in an hour, and I also have it in small joints as well as large (hips, back, shoulders, etc...) I had stiffness and joint and muscle pain for years before even knowing I was infected, it has gotten much worse even just since completing tx ? I'm not sure what to think....I literally can't function at any physical level with out pain meds, I hope for enough liver improvement to be able to address this problem with meds that help instead of mask the problem.....however I am doubtful that any doctor would prescribe a medication that may help at the expense of my liver understandably.
So as they used to say.....I just keep on truckin ! Hopin for good roads ahead.
Thanks all.......Livin on a prayer!
Duane
Tig said
Aug 31, 2014
Hi Duane,
I have been having quite a problem with arthritis and have, along with Malcolm, talked about it a lot lately. HCV often manifests itself through athritis. I had some mild problems during the chronic phase of my infection but now that I've achieved SVR, the condition has gotten much worse. The specialists I've seen have concluded that the Interferon I took over two courses of Tx is likely responsible. The two articles I've included describe the incidence of both RA (Rheumatoid Arthritis) and non RA arthritic conditions resulting both from Tx and HCV itself. I'm happy that Tx protocols have advanced and the use of Interferon for HCV will diminish itself.
Ready to start day 12! Each day is getting better as I find not to just sit around, that is when I stiffen up. Did a lot of work here yesterday, ran a new sprinkler line for our garden so we wont have to water daily now! No real headaches anymore, not even a dull one, so that is a blessing. I think the more water and ice tea i drink to stay hydrated is good, I just dont over do it. I think this am requires a ride to a meeting I used to go to all the time, just for some extra fellowship and to see some old friends. As many of us know it is not good to drink with any liver disease, I wont preach on this matter, we all know what is good for us! Well every one keep your heads up and keep positive thoughts, and remember "not one of us has it all together, but together we have it all"!! Thank you for being here for me!
Dzdayscomin said
Aug 30, 2014
RonH wrote:
Well I am happy to report that I some fog lifted and I am posting again. The squirrels in my head kept me very busy the last 2 days! Still no real bad side effects as of yet. As I keep saying just some joint pain but I am not sure if it meds or just me. I have stayed very active around the house this week and even got a couple estimates done! Work is not real pressing as of right now so I am finding out how the meds are working with my system. I have a lot of running to do today so that will keep me busy for the day! Hell I think we will go out tonight and maybe take a nice walk on the beach near sunset if it isn't raining tonight, just because they call for it doesn't mean it will come! I am getting ready to start day 9 and I do feel fine I just need to keep moving and not sit around. I get very stiff just sitting so movement is my friend! I wish everyone has a great day today unless you have made other plans!
Ahh...another case of joint pain and stiffness, I go thru that same thing, if I sit still for 15 min i'm like the tin man with no oil can ! This is where my job gets effected the most....I need to travel a lot and ya can't exactly be getting up and down on a plane, not to mention I'm 6'2" and don't have enough room to even wiggle around. So this is one of my greatest wishes is that this resolves, or at least my liver improves enough to do something if it is arthritis. Keeping moving is the only thing that helps, but man the next morning can be really tough, hot showers help but for some tx's its contrary to the skin problems. I'm not sure who here said something about the virus likes the cells in our joints, but why is it so much more prevalent after or during tx? I take 2 different diuretics once a day and I wonder if that also may play a part in this by dehydrating the joints of the fluid that lubricates them ?
Any of our member experts know what could be probable cause?
Huey said
Aug 30, 2014
Four out of Five voices in my head say "Go for it!"
RonH said
Aug 29, 2014
Well I am happy to report that I some fog lifted and I am posting again. The squirrels in my head kept me very busy the last 2 days! Still no real bad side effects as of yet. As I keep saying just some joint pain but I am not sure if it meds or just me. I have stayed very active around the house this week and even got a couple estimates done! Work is not real pressing as of right now so I am finding out how the meds are working with my system. I have a lot of running to do today so that will keep me busy for the day! Hell I think we will go out tonight and maybe take a nice walk on the beach near sunset if it isn't raining tonight, just because they call for it doesn't mean it will come! I am getting ready to start day 9 and I do feel fine I just need to keep moving and not sit around. I get very stiff just sitting so movement is my friend! I wish everyone has a great day today unless you have made other plans!
RonH said
Aug 29, 2014
Paul B wrote:
RonH wrote:
I have had a few friends that have been through hell during treatment so that is why I held off for so long. I am so glad that the new meds are out and available for all of us.
Maybe not "all of us". The new meds are not here in Australia. I am doing 48 weeks...
Paul, I am sorry to hear that the new meds are not over there yet. I hope your treatment goes well!
Paul B said
Aug 28, 2014
RonH wrote:
I have had a few friends that have been through hell during treatment so that is why I held off for so long. I am so glad that the new meds are out and available for all of us.
Maybe not "all of us". The new meds are not here in Australia. I am doing 48 weeks...
Huey said
Aug 27, 2014
I know your taking it day by day, but soon the fog will set in, don't get upset if you miss a day or two. For me the fog is lifting and I should be back to work after labour day.
RonH said
Aug 27, 2014
Today was a good day, I keep praying that these days are like this each day. sometimes I worry that I will just snap out on some poor unsuspecting fool that really doesn't deserve it. I got to sleep at 10:30 last night but woke up at 3:45 wide awake, well looks like a nap is in store for later today. I am noticing a little pain in my lower back/pelvic area, is anyone else having these pains? I credit some of my pain to the work and bike wrecks I have had over the years so I am not sure if this is normal or not. On another note, I took my bike into the dealer to get the charging system fixed today and the tech called me in at the end of the job when he was almost done and showed me that he screwed up the powder coating on my primary. He was very apologetic and said they would take care of it. (I have been dealing with this dealership for about 8 years now) I did not find it necessary to yell or rant and rave, just said cool take care of it and i will pick up the bike tomorrow! I am so grateful for this forum and a place to just say how I am feeling and hopefully help another person out. I catch myself bouncing around with my thoughts (my wife says I am like a rabid Squirrel) but that is normal for me! Have a great day today everyone and stay blessed! Thanks for being here!
RonH said
Aug 25, 2014
As another day passes the side effects are almost nil today, just a little lower back pain but I figure that is from my work. Oh and I do like my 2:30 - 3:00 nap now! I am starting to see where my my trigger points are. Considering that I have been in a 12 step program for the last 21 yrs it has given me a lot of training. Now it is a whole new world and set of rules to live by and triggers to see. I am thankful for this forum to share what i am going through with others that are going through it too. These days I stop and think that as these days go by there were a few of my friends that have had this disease and are not or haven't responded to treatment and of a couple that have past from complications for it. I just want to say that I am praying that all of you here are responding positively to the treatment and will be cured soon. Thank you for being here!
RonH said
Aug 25, 2014
Huey, a lot of good info in there and as you said I dont agree with it all either. Each person is different on what the side effects are and how the treatment is. Some people it doesn't bother at all, some it screws up. I have had a few friends that have been through hell during treatment so that is why I held off for so long. I am so glad that the new meds are out and available for all of us.
Huey said
Aug 25, 2014
This is the best explanation of this that I have seen, I don't agree with everything she says but most of it is right on, your chick should watch it too., vary helpfull
Day 5, I did catch myself snapping at my wife today over designing our bathroom and looking at tile, so I am starting to see some of the Riba rage! Also a small headache too. Well I will just have to keep myself in check better as these days go on. We talked after a while and I told her that if I do start to be a jerk just let me know and then walk away so I have to look at myself. I do pride myself for having self control but I see that I have to keep watching closely. Each day is different so time to keep my eyes open better. Still no pain other than I have had for a few years now, That is good! Have a great night everyone and a better day tomorrow!
RonH said
Aug 23, 2014
Good point, I will do that. Thank you, i never claimed to be the sharpest tack in the box!
Paul B said
Aug 23, 2014
Hi Ron
glad to hear it is going well. Rather than a new title every day, maybe consider a master thread and just update it. Will be easy for you to keep track of over the course of treatment.
RonH said
Aug 23, 2014
Well another day has gone by and not a thing but a little nap at 4 today! I nodded out for about 20 minutes and woke up refreshed! All I can say is I hope this is all there is, I will keep a positive attitude about it too!
Yes!! That`s excellent, Ron, congrats!!
Looking forward to celebrating with you after your next results!!
Thanks Tig, I am so grateful for the people here and the support we get, My hat is off to you!
Jen, Thank you and the best of luck with your treatment. I believe these new drugs are a blessing for us all!
Congratulations Ron!! Well done Brother! Best of luck with your next UND and the SVR coming...
Tig
I am sending all kinds of happy thought to you Ron
Hugs Jen
Yesterday was the last day of treatment, went this morning to get blood work done. I will know by next week how it comes back, more likely UND!
Good going, Ron, great to hear you`re almost home and dry now!
Sounds like you`ve coped pretty well with the sx and the riba rage issues, and it`s looking very promising for you. Take it easy for a while once you`ve finished to let yourself recover and regain your energy...and give yourself a big pat on the back for getting through it!
Let us know when you hear your EOT results, and best of luck!
Hey Ron
Your coming down the back stretch with full power and a head of steam. The rider Ron of the horse call Sovaldi is UND heading for SVR with no obstacles in view.
Your in with flying colors
matt
4 days left on this treatment! Just looking back and realized that this post was started on day 4. # months is not very long compared to the people who have had to deal with a whole year and much worse meds than I had to deal with. The 12th is my next blood test and I have hope it will come back UND also. will let everyone know.
Tig,
Thank you for the words of encouragement they mean so much to me. The bonds we form when we go through these things with another person can't be put into words. The support and true concern is overwhelming. I also wanted to thank you also!
Jill,
I have been feeling pretty good all in all. The occasional struggle with insomnia but I can deal with that, just a nap in the afternoon is all. The Riba rage is well under control. One thing the 12 step program i am in has given me the tools to deal with that problem it just took a while to see the triggers that bring it on. It is the stupid little things that bother me not the big ones. Some muscle pain and I am use to that so it is not unusual for me. I have noticed some better feeling on some days, almost like the virus is gone is the only way I can describe it. I want to thank every one of you for being here on this journey for me. My gratitude is endless for what has been given me!
-- Edited by RonH on Thursday 30th of October 2014 09:34:27 AM
Hi Ron,
Joy doesn't describe the feeling you (we) all experience with each report of those three letters, UND! I guarantee you that the feeling you will have when you get the next three letter report confirming SVR, is second to none! You've done very well and your journey through treatment has been both successful for you and happy for all of us to follow! 2 more weeks, may seem like 2 months right now, but it will pass quickly and in no time you will be taking your EOT +12 viral load test to confirm SVR. Take the time between tests to plan your celebration!! Your Hep C free future is just around the bend.... WOOT!!!! Good luck!
Tig
Well done, Ron, you`re on the home stretch now!! It`s looking very promising for you so far...just keep going, and best of luck!!
How are you feeling now?
The days to the end of my treatment are winding down now 14 days left! Then another blood test and we will see what goes on from there!
I have thought about this disease many times after I found out I had it. I was nervous and bummed that I had this but my years in a 12 step program helped me to deal with it. There is many days when I stop and think about what this stuff can do to us all it really scares the h**l out of me, and after seeing and hearing the words UND the gratitude that I have cant even be explained! The emotions are like a roller coaster at times, I hope and pray that this crap doesn't come back. Then there are other times that the emotions of those three little letters UND brings tears of gratitude flowing! I am so happy that so many of you can relate to this and I am so grateful that I found this forum!! Thank all of you for being here for me and all of us!
Talked to the Dr today, he said all my enzymes and blood work looked great. He is very happy that all is going so well! Next blood work is to be done in 27 days. Then he will see me the next week.
Great news Ron!! You're over the hump and I feel good sailing and undetectable days ahead! Congratulations!!!!
Tig
Excellent news Ron, those words "Undected " are the sweetest words a hepper can hear.
I am so happy for you! Now you can focus on the future and life free of Hep C.
God Bless and prayers that the next words or letters you hear are "SVR"
Duane
Great news! Congratulations!
Update....The Dr's office called today and told me my results from my lab's, It came back UNDETECTED!!!!!! That was after 6 weeks into treatment! Such great news to hear, I am so happy!
Called the Dr's office to see if they would tell me the VL numbers, well the nurse said the Dr. wont give me the #'s over the phone I would have to wait to see him first, Grrrrrr.
Oh well guess I have to wait!
Hey Ron,
Will keep my fingers crossed for the results you want to see on your VL. 6 weeks is often the point we see many of the undetectable results shine through and in all likelihood, so will you! I'm proud of you for learning to control the Riba Rage! That's not easy and we know it! Let us know as soon as you hear your results!! Good luck...
Tig
Well I had my blood tests done on Tuesday this past week. No word from the Dr as of yet on the VL
I see him on the 15th. I am hoping for und on the results. It will be 6 weeks on treatment. The pain in the joints are almost gone! Just my normal aches and pains from my work! I am learning not to flip out at stupid **** so I guess the watching my mouth is working!
Thanks Huey, I try to do that it just gets very cold at times!!
Good Luck,, Keep your stick on the ice.
It is a new day! Met with my Dr.today just for the check up, all is well. I go in 2 weeks for my new VL blood tests. I will post the news here first! I am feeling pretty good just joint pain and the normal aches and pains, so all is well!! Keep your heads up New days are a coming!
It has been awhile since i posted here, most of these days have been good a couple not great. I am learning that as long as I stay busy it helps to keep my mind at peace. My shoulder and hips have been sore quite a bit, at least the riba rage has not been that bad. I am finding that as long as I keep talking to other people and try to avoid negative situations it has been much better. Not saying that is all there is to it just what I am tying to do to help keep a check on things. I am grateful that this forum is here and I can look at what people are saying about their treatments and how that helps me. Thank you all for being here!
As these days are going on I am seeing more pain in my hips if I sit to long. I took a nice walk to the beach with the wife and the dog today, it was nice, no pressure and no time limit. I also have found out that my filter for saying what I am thinking is not as good as it normally is. The last couple days have been ok, well at least no headache. My wife worry's that the meds will affect me negatively and I can understand her feelings. Some of the things we read are horror stories and freak people out, they did me at least. I found a support group near me that I am going to go to and see if it is still there, any extra help will be nice, never hurts! Everyone have a great day unless you made other plans!
Thanks Tig, (In about two-thirds of the affected individuals morning stiffness may be severe, resolving after more than an hour. ) this is me in one sentence, less the resovles in an hour, and I also have it in small joints as well as large (hips, back, shoulders, etc...) I had stiffness and joint and muscle pain for years before even knowing I was infected, it has gotten much worse even just since completing tx ? I'm not sure what to think....I literally can't function at any physical level with out pain meds, I hope for enough liver improvement to be able to address this problem with meds that help instead of mask the problem.....however I am doubtful that any doctor would prescribe a medication that may help at the expense of my liver understandably.
So as they used to say.....I just keep on truckin ! Hopin for good roads ahead.
Thanks all.......Livin on a prayer!
Duane
Hi Duane,
I have been having quite a problem with arthritis and have, along with Malcolm, talked about it a lot lately. HCV often manifests itself through athritis. I had some mild problems during the chronic phase of my infection but now that I've achieved SVR, the condition has gotten much worse. The specialists I've seen have concluded that the Interferon I took over two courses of Tx is likely responsible. The two articles I've included describe the incidence of both RA (Rheumatoid Arthritis) and non RA arthritic conditions resulting both from Tx and HCV itself. I'm happy that Tx protocols have advanced and the use of Interferon for HCV will diminish itself.
http://www.ncbi.nlm.nih.gov/pubmed/11580301
http://www.biomedcentral.com/1756-0500/6/437
Tig
Ready to start day 12! Each day is getting better as I find not to just sit around, that is when I stiffen up. Did a lot of work here yesterday, ran a new sprinkler line for our garden so we wont have to water daily now! No real headaches anymore, not even a dull one, so that is a blessing. I think the more water and ice tea i drink to stay hydrated is good, I just dont over do it. I think this am requires a ride to a meeting I used to go to all the time, just for some extra fellowship and to see some old friends. As many of us know it is not good to drink with any liver disease, I wont preach on this matter, we all know what is good for us! Well every one keep your heads up and keep positive thoughts, and remember "not one of us has it all together, but together we have it all"!! Thank you for being here for me!
Ahh...another case of joint pain and stiffness, I go thru that same thing, if I sit still for 15 min i'm like the tin man with no oil can ! This is where my job gets effected the most....I need to travel a lot and ya can't exactly be getting up and down on a plane, not to mention I'm 6'2" and don't have enough room to even wiggle around. So this is one of my greatest wishes is that this resolves, or at least my liver improves enough to do something if it is arthritis. Keeping moving is the only thing that helps, but man the next morning can be really tough, hot showers help but for some tx's its contrary to the skin problems. I'm not sure who here said something about the virus likes the cells in our joints, but why is it so much more prevalent after or during tx? I take 2 different diuretics once a day and I wonder if that also may play a part in this by dehydrating the joints of the fluid that lubricates them ?
Any of our member experts know what could be probable cause?
Four out of Five voices in my head say "Go for it!"
Well I am happy to report that I some fog lifted and I am posting again. The squirrels in my head kept me very busy the last 2 days! Still no real bad side effects as of yet. As I keep saying just some joint pain but I am not sure if it meds or just me. I have stayed very active around the house this week and even got a couple estimates done! Work is not real pressing as of right now so I am finding out how the meds are working with my system. I have a lot of running to do today so that will keep me busy for the day! Hell I think we will go out tonight and maybe take a nice walk on the beach near sunset if it isn't raining tonight, just because they call for it doesn't mean it will come! I am getting ready to start day 9 and I do feel fine I just need to keep moving and not sit around. I get very stiff just sitting so movement is my friend! I wish everyone has a great day today unless you have made other plans!
Paul, I am sorry to hear that the new meds are not over there yet. I hope your treatment goes well!
Maybe not "all of us". The new meds are not here in Australia. I am doing 48 weeks...
I know your taking it day by day, but soon the fog will set in, don't get upset if you miss a day or two. For me the fog is lifting and I should be back to work after labour day.
Today was a good day, I keep praying that these days are like this each day. sometimes I worry that I will just snap out on some poor unsuspecting fool that really doesn't deserve it. I got to sleep at 10:30 last night but woke up at 3:45 wide awake, well looks like a nap is in store for later today. I am noticing a little pain in my lower back/pelvic area, is anyone else having these pains? I credit some of my pain to the work and bike wrecks I have had over the years so I am not sure if this is normal or not. On another note, I took my bike into the dealer to get the charging system fixed today and the tech called me in at the end of the job when he was almost done and showed me that he screwed up the powder coating on my primary. He was very apologetic and said they would take care of it. (I have been dealing with this dealership for about 8 years now) I did not find it necessary to yell or rant and rave, just said cool take care of it and i will pick up the bike tomorrow! I am so grateful for this forum and a place to just say how I am feeling and hopefully help another person out. I catch myself bouncing around with my thoughts (my wife says I am like a rabid Squirrel) but that is normal for me! Have a great day today everyone and stay blessed! Thanks for being here!
As another day passes the side effects are almost nil today, just a little lower back pain but I figure that is from my work. Oh and I do like my 2:30 - 3:00 nap now! I am starting to see where my my trigger points are. Considering that I have been in a 12 step program for the last 21 yrs it has given me a lot of training. Now it is a whole new world and set of rules to live by and triggers to see. I am thankful for this forum to share what i am going through with others that are going through it too. These days I stop and think that as these days go by there were a few of my friends that have had this disease and are not or haven't responded to treatment and of a couple that have past from complications for it. I just want to say that I am praying that all of you here are responding positively to the treatment and will be cured soon. Thank you for being here!
Huey, a lot of good info in there and as you said I dont agree with it all either. Each person is different on what the side effects are and how the treatment is. Some people it doesn't bother at all, some it screws up. I have had a few friends that have been through hell during treatment so that is why I held off for so long. I am so glad that the new meds are out and available for all of us.
This is the best explanation of this that I have seen, I don't agree with everything she says but most of it is right on, your chick should watch it too., vary helpfull
https://www.youtube.com/watch?v=5b7o2fBSI2M
Day 5, I did catch myself snapping at my wife today over designing our bathroom and looking at tile, so I am starting to see some of the Riba rage! Also a small headache too. Well I will just have to keep myself in check better as these days go on. We talked after a while and I told her that if I do start to be a jerk just let me know and then walk away so I have to look at myself. I do pride myself for having self control but I see that I have to keep watching closely. Each day is different so time to keep my eyes open better. Still no pain other than I have had for a few years now, That is good! Have a great night everyone and a better day tomorrow!
Good point, I will do that. Thank you, i never claimed to be the sharpest tack in the box!
glad to hear it is going well. Rather than a new title every day, maybe consider a master thread and just update it. Will be easy for you to keep track of over the course of treatment.
Well another day has gone by and not a thing but a little nap at 4 today! I nodded out for about 20 minutes and woke up refreshed! All I can say is I hope this is all there is, I will keep a positive attitude about it too!