UNDETECTED AFTER ONLY 6 DAYS ON SOVALDI AND OLYSIO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Jeanno said
Oct 6, 2014
OMGosh! I am so glad for you and this gives me so such hope. I am feeling mentally so much better. Can you tell me if you had increased upper right quadrant pain after you started your treatment?
I am so heartened by your progress. I am on day 7 and have my first labs on 10/15 and if they are anything like yours I will be elated.
Congrats Skewed. What a blessing. Keep being good to you.
God Bless and Namaste!!!
Dzdayscomin said
Sep 16, 2014
skewedButNotBroken wrote:
I don't know why the liver panel test took so long to post to the Epic electronic medical record system, but I just checked and my liver panel results were there. So in addition to the virus being non-detected in 6 days my ALT and AST were well within the normal range for the first time in over 20+ years. However, my bilirubin direct test was 0.1 point over the normal range, but the total bilirubin was within a normal range. It seems to me that I remember reading that with the sovaldi/olysio treatment this is normal and that one should keep an eye on the bilirubin numbers. Is this correct?
One other note, it appears that my sleeping habits are back to normal and I'm not having any side effects whatsoever--knock on wood :)
-- Edited by skewedButNotBroken on Tuesday 16th of September 2014 02:01:34 PM
-- Edited by skewedButNotBroken on Tuesday 16th of September 2014 09:11:05 PM
The sleeping thing is huge......I wish I had as good of luck with that...but I'm kind of a train wreck to hard to pin any problem on one thing.
Happy for you though!
skewedButNotBroken said
Sep 16, 2014
I don't know why the liver panel test took so long to post to the Epic electronic medical record system, but I just checked and my liver panel results were there. So in addition to the virus being non-detected in 6 days my ALT and AST were well within the normal range for the first time in over 20+ years. However, my bilirubin direct test was 0.1 point over the normal range, but the total bilirubin was within a normal range. It seems to me that I remember reading that with the sovaldi/olysio treatment this is normal and that one should keep an eye on the bilirubin numbers. Is this correct?
One other note, it appears that my sleeping habits are back to normal and I'm not having any side effects whatsoever--knock on wood :)
-- Edited by skewedButNotBroken on Tuesday 16th of September 2014 02:01:34 PM
-- Edited by skewedButNotBroken on Tuesday 16th of September 2014 09:11:05 PM
Groupergetter said
Sep 15, 2014
Hey skewed, sounds like things are looking up. Really happy for you. Being UND so early is a good sign. Glad to hear you're having some increased energy and getting back to a more normal life. I have the insomnia as well. I hate to take sleeping meds. Most leave me groggy in the morning and I have to get up and be alert for work. I will take half an Ativan occasionally. Would like to take Alleve but not so good for the liver. I'm about a month away from finding out if my insurance will cover another round. Hoping and praying it works out. Be safe riding that rocket.
Cinnamon Girl said
Sep 15, 2014
How fantastic, Skewed, congrats on such an excellent result! Sounds like you`re feeling like a new man already..what a huge boost!!
Onwards and upwards!!
skewedButNotBroken said
Sep 15, 2014
I'm feeling great! I feel like the clock has been rolled back 20 years. I slept pretty good last night with no sleeping aid.
Gator Man said
Sep 14, 2014
skewedButNotBroken wrote:
RonH wrote: Freaking awesome!!.
--It is freaking awesome! My only sx is insomnia. I don't have a problem going to sleep--I usually go to sleep between 10 and 11 pm, but since I started therapy, I wake up between 1:30am and 2:30 am and I can't go back to sleep. I've tried melatonin but that is not helping. I guess being sleepy everyday is a small price to pay considering the way I used to fe
Freaking awesome indeed! I have a similar sleep/insomnia schedule which hasn't changed in six months post tx. I take a 5 mg. timed release melatonin which helps a little. I do have a script for generic Ambien (zolpidem tartrate) and will halve a 5 mg. if I wake up before 2 am and have a tough day ahead. I never have any grogginess but still try to limit the frequency of use.
-- Edited by Gator Man on Monday 15th of September 2014 07:59:17 PM
Tig said
Sep 14, 2014
I've had tinnitus for years too. Some of it medication induced after being OD'd on Gentamycin antibiotics while in the service and I'm sure some as a result of gunfire exposure. But when I started the Victrelis while on Tx, it just exploded in volume. It seemed almost overnight I started noticing what sounded like rushing water. More than once I had to get out of bed and check the faucets to be sure nothing was overflowing or if I had left the sprinklers on. If memory serves me, it was Zlickster that told me to try Melatonin. I took 300 MCG once daily at bedtime. It took several weeks but I did notice a significant drop in the volume. I continued it through Tx but quit after SVR. But it's returning, so I'm going to go back on it and hope for the same results! I recommend it, providing it doesn't cause additional problems. I'm sure these drugs and various illnesses are responsible for many of the hearing complaints we all seem to share.
Tig
Tim: 300 mcg = .3 mg (point 3)
Fireman Rob said
Sep 14, 2014
Now that's truly impressive. I hope SVR follows! Congrats.
-Rob
hrsetrdr said
Sep 14, 2014
Melatonin may help tinnitus? I'm interested, have had tinnitus for as long as I can recall. For a while during tx I had used Melatonin but discontinued because I could not determine the correct dose. The Melatonin I bought(iherb.com) came in 3mg caps; I would dump 1/3 to 1/2 out, not wanting to take too large a dose.
I'm going to revisit the use of Melatonin and see if I can get either better sleep, or better tinnitus control.
skewedButNotBroken said
Sep 14, 2014
Hi Tig,
I've had tinnitus for many years. I've always believed it was from the hep c. It is no better or worse now. I took 15 milligrams of melatonin -- the stuff makes me feel sort of weird. I don't think I'll take it again. I had a good day today. I wrote some html and javascript code, I took a ride on my 202 rwhp beast (My Kawasaki Ninja ZX-14R). I worked in the garage, etc.
Tig said
Sep 14, 2014
Hi Testiva,
I'm glad to hear you slept through the night! It gives you something to smile about when you wake up and realize what you've accomplished! I'm curious about your use of Melatonin though. How much did you take, when did you take it and for how long? The first time I tried it it didn't do much for me either. But I tried again and after several weeks I started to notice a good improvement in both amount of sleep and the quality of it. I also noticed a huge improvement in the amount of tinnitus I was suffering with. I stopped talking it after SVR but the problems with sleep and tinnitus both are returning. So I'm probably going to start again and hope for a repeat performance! Good luck...
Tig
hrsetrdr said
Sep 14, 2014
Truly amazing Skewed, when I started tx I never thought that this would be feasible, for quite some time at least.
skewedButNotBroken said
Sep 14, 2014
I slept 7 hours last night without any sleeping aid! I truly feel like a new man now :)
TazKat said
Sep 13, 2014
How awesome... That is a stress reliever for sure!!!!
skewedButNotBroken said
Sep 13, 2014
RonH wrote: Freaking awesome!!.
--It is freaking awesome! My only sx is insomnia. I don't have a problem going to sleep--I usually go to sleep between 10 and 11 pm, but since I started therapy, I wake up between 1:30am and 2:30 am and I can't go back to sleep. I've tried melatonin but that is not helping. I guess being sleepy everyday is a small price to pay considering the way I used to feel.
-- Edited by skewedButNotBroken on Sunday 14th of September 2014 12:37:49 AM
RonH said
Sep 12, 2014
Freaking awesome!!
Dzdayscomin said
Sep 12, 2014
That really answers a lot of questions that many of us had doing this tx and why we felt that euphoric feeling after just a few days.
Nobody was doing a VL test that soon and the fact you stepped up and paid for it to see is cool for all of us that did the tx, and those that still may do that tx. Thanks SBNB
Duane
Groupergetter said
Sep 12, 2014
GREAT NEWS. I took my first dose at 3:30 pm. That night as I lay in bed I could positively feel the virus being killed. Wish it would have lasted. Hoping and praying you get SVR. Be well.
Isiscat2011 said
Sep 12, 2014
Excellent news, skewed!
skewedButNotBroken said
Sep 12, 2014
A couple of days ago I asked Dr. Paul Martin's nurse (Nabiha Sanchez) to ask the doctor if he would order a viral load test for me because I feel so much better. She said that he probably would not order it because BCBS had authorized a 4 week viral load test and they would not pay for it. I told her that since my wife works at Lee Memorial Hospital in Fort Myers, FL that I get a discount for all services and that I would pay for the test myself. He ordered the test and early yesterday morning I had the test performed. Today at 4:00 pm Nabiha called me and said that I am undetected. I asked her 4 times, "are you sure?" She kept saying yes I'm sure. This is absolutely amazing to me. I thank the good Lord for this gift. I'm still in a state of shock.
OMGosh! I am so glad for you and this gives me so such hope. I am feeling mentally so much better. Can you tell me if you had increased upper right quadrant pain after you started your treatment?
I am so heartened by your progress. I am on day 7 and have my first labs on 10/15 and if they are anything like yours I will be elated.
Congrats Skewed. What a blessing. Keep being good to you.
God Bless and Namaste!!!
The sleeping thing is huge......I wish I had as good of luck with that...but I'm kind of a train wreck to hard to pin any problem on one thing.
Happy for you though!
I don't know why the liver panel test took so long to post to the Epic electronic medical record system, but I just checked and my liver panel results were there. So in addition to the virus being non-detected in 6 days my ALT and AST were well within the normal range for the first time in over 20+ years. However, my bilirubin direct test was 0.1 point over the normal range, but the total bilirubin was within a normal range. It seems to me that I remember reading that with the sovaldi/olysio treatment this is normal and that one should keep an eye on the bilirubin numbers. Is this correct?
One other note, it appears that my sleeping habits are back to normal and I'm not having any side effects whatsoever--knock on wood :)
-- Edited by skewedButNotBroken on Tuesday 16th of September 2014 02:01:34 PM
-- Edited by skewedButNotBroken on Tuesday 16th of September 2014 09:11:05 PM
Hey skewed, sounds like things are looking up. Really happy for you. Being UND so early is a good sign. Glad to hear you're having some increased energy and getting back to a more normal life. I have the insomnia as well. I hate to take sleeping meds. Most leave me groggy in the morning and I have to get up and be alert for work. I will take half an Ativan occasionally. Would like to take Alleve but not so good for the liver. I'm about a month away from finding out if my insurance will cover another round. Hoping and praying it works out. Be safe riding that rocket.
How fantastic, Skewed, congrats on such an excellent result! Sounds like you`re feeling like a new man already..what a huge boost!!
Onwards and upwards!!
I'm feeling great! I feel like the clock has been rolled back 20 years. I slept pretty good last night with no sleeping aid.
-- Edited by Gator Man on Monday 15th of September 2014 07:59:17 PM
I've had tinnitus for years too. Some of it medication induced after being OD'd on Gentamycin antibiotics while in the service and I'm sure some as a result of gunfire exposure. But when I started the Victrelis while on Tx, it just exploded in volume. It seemed almost overnight I started noticing what sounded like rushing water. More than once I had to get out of bed and check the faucets to be sure nothing was overflowing or if I had left the sprinklers on. If memory serves me, it was Zlickster that told me to try Melatonin. I took 300 MCG once daily at bedtime. It took several weeks but I did notice a significant drop in the volume. I continued it through Tx but quit after SVR. But it's returning, so I'm going to go back on it and hope for the same results! I recommend it, providing it doesn't cause additional problems. I'm sure these drugs and various illnesses are responsible for many of the hearing complaints we all seem to share.
Tig
Tim: 300 mcg = .3 mg (point 3)
Now that's truly impressive. I hope SVR follows! Congrats.
-Rob
Melatonin may help tinnitus? I'm interested, have had tinnitus for as long as I can recall. For a while during tx I had used Melatonin but discontinued because I could not determine the correct dose. The Melatonin I bought(iherb.com) came in 3mg caps; I would dump 1/3 to 1/2 out, not wanting to take too large a dose.
I'm going to revisit the use of Melatonin and see if I can get either better sleep, or better tinnitus control.
Hi Tig,
I've had tinnitus for many years. I've always believed it was from the hep c. It is no better or worse now. I took 15 milligrams of melatonin -- the stuff makes me feel sort of weird. I don't think I'll take it again. I had a good day today. I wrote some html and javascript code, I took a ride on my 202 rwhp beast (My Kawasaki Ninja ZX-14R). I worked in the garage, etc.
Hi Testiva,
I'm glad to hear you slept through the night! It gives you something to smile about when you wake up and realize what you've accomplished! I'm curious about your use of Melatonin though. How much did you take, when did you take it and for how long? The first time I tried it it didn't do much for me either. But I tried again and after several weeks I started to notice a good improvement in both amount of sleep and the quality of it. I also noticed a huge improvement in the amount of tinnitus I was suffering with. I stopped talking it after SVR but the problems with sleep and tinnitus both are returning. So I'm probably going to start again and hope for a repeat performance! Good luck...
Tig
I slept 7 hours last night without any sleeping aid! I truly feel like a new man now :)
How awesome... That is a stress reliever for sure!!!!
Freaking awesome!!.
--It is freaking awesome! My only sx is insomnia. I don't have a problem going to sleep--I usually go to sleep between 10 and 11 pm, but since I started therapy, I wake up between 1:30am and 2:30 am and I can't go back to sleep. I've tried melatonin but that is not helping. I guess being sleepy everyday is a small price to pay considering the way I used to feel.
-- Edited by skewedButNotBroken on Sunday 14th of September 2014 12:37:49 AM
Freaking awesome!!
That really answers a lot of questions that many of us had doing this tx and why we felt that euphoric feeling after just a few days.
Nobody was doing a VL test that soon and the fact you stepped up and paid for it to see is cool for all of us that did the tx, and those that still may do that tx. Thanks SBNB
Duane
GREAT NEWS. I took my first dose at 3:30 pm. That night as I lay in bed I could positively feel the virus being killed. Wish it would have lasted. Hoping and praying you get SVR. Be well.
Excellent news, skewed!
A couple of days ago I asked Dr. Paul Martin's nurse (Nabiha Sanchez) to ask the doctor if he would order a viral load test for me because I feel so much better. She said that he probably would not order it because BCBS had authorized a 4 week viral load test and they would not pay for it. I told her that since my wife works at Lee Memorial Hospital in Fort Myers, FL that I get a discount for all services and that I would pay for the test myself. He ordered the test and early yesterday morning I had the test performed. Today at 4:00 pm Nabiha called me and said that I am undetected. I asked her 4 times, "are you sure?" She kept saying yes I'm sure. This is absolutely amazing to me. I thank the good Lord for this gift. I'm still in a state of shock.