Hi, how is it going on harvoni? I am supposed to receive my first 30 days tomorrow. I treated w/trile TX back in 2011 but had to stop becuase of SE. I'm feeling really positive about it. Very similar, about to be 60, geno 1a, diagnosed in 1998. Tell me more about how its going if you will...thanks B
Hi there B161:
I remember you from back in our Incivek days. This time around should be a whole different story. Good luck and good to see/read you!
B161 said
Dec 1, 2014
Hi, how is it going on harvoni? I am supposed to receive my first 30 days tomorrow. I treated w/trile TX back in 2011 but had to stop becuase of SE. I'm feeling really positive about it. Very similar, about to be 60, geno 1a, diagnosed in 1998. Tell me more about how its going if you will...thanks B
Tig said
Oct 21, 2014
Hi Connie,
Dont lose your desire to treat. Having made it this long with low fibrosis scores and few problems is certainly a blessing. But don't allow that to cause complacency and a belief that nothing will happen. This is a slow developing disease that takes decades to do its damage. Look among our pages, it's the individuals with long histories (some not) that suddenly find themselves dealing with advanced fibrosis and the extra hepatic problems that long term infection cause. I hope you stick to your guns and commit yourself to the fight. The time has never been better! Why not take advantage of a nearly side effect free treatment? Hold onto hope and the desire to finally be Hep C free!!
Tig
angelseven said
Oct 21, 2014
Looks like patience is the name of the game.... if I wait to long I may change my mind about treating, been waiting 18 years already..... always been on the fence with low fibrosis and not feeling to bad
darkstar said
Oct 15, 2014
Guys, thanks for all of the positive vibes. Since relapse been waiting for new options and trying to stay in the best shape I can in the meantime. My perception is that Harvoni approval is going to be a little bit slower than Sovaldi/Olysio. But I can't wait. Hopefully, the 99% success rate is a real one!
maddie said
Oct 15, 2014
Glad to see you posting again. Wondered how you were these past few months. This new drug is going to be "the one" for you, Darkstar.
Sending all good vibes and wishes to you. ~maddie
Gator Man said
Oct 14, 2014
Darkstar, good to see you posting again. I think you will feel as good with Harvoni as you did with S/O. However, this time you will get to SVR and be done with HCV forever!
Best of luck! Our fingers are crossed for all of you with prior tx experience.
darkstar said
Oct 14, 2014
Isiscat,
I guess, but the squeeky wheel...... Fine fine between gentle pushing and being obnoxious. If pushing gets it quicker I will do it.
Fireman Rob said
Oct 13, 2014
Darkstar,
Good to see you on the forum again. You guys keep us posted on obtaining Harvoni. I've been wondering how you're doing and hoping your wait is brief for tx. Good luck.
-Rob
Isiscat2011 said
Oct 13, 2014
darkstar wrote:
As you all know, this agent was FDA approved on Friday. Although I would have expected that it would be available immediately, it is not. When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have the drug in their system to get prior approval. Hopefully all of this will be straightened out by the end of the week.
This is going to require pre-authorization in most cases and there will be many patients in line. I'm expecting a minimum of a 2 week wait between the doctor's appointment and the approval. If it happens sooner great. Pre-authorization=forms and supporting records needed. At least 3 offices involved: doctor, insurance, pharmacy. I've waited this long; no reason to stress over a few more weeks or however long it takes. As long as I know they are working on it and my file didn't accidentally end up on Mars.
Groupergetter said
Oct 13, 2014
You're are soooooo right. We need to get that back. I can remember my wife commenting on all the new found energy and actually getting lots'o stuff done on the weekends. Guess until then we can dream. Even if we do feel like crap Be well sir.
darkstar said
Oct 13, 2014
Let's hope so, I still remember two weeks into my last treatment feeling 20 years younger and wondering what was up....want to be there again!!
Groupergetter said
Oct 13, 2014
Darkstar, good to see you around. We're gonna slap this dragon silly. In the words of Taz,
Peace, out
darkstar said
Oct 13, 2014
As you all know, this agent was FDA approved on Friday. Although I would have expected that it would be available immediately, it is not. When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have the drug in their system to get prior approval. Hopefully all of this will be straightened out by the end of the week.
Hi there B161:
I remember you from back in our Incivek days. This time around should be a whole different story. Good luck and good to see/read you!
Hi, how is it going on harvoni? I am supposed to receive my first 30 days tomorrow. I treated w/trile TX back in 2011 but had to stop becuase of SE. I'm feeling really positive about it. Very similar, about to be 60, geno 1a, diagnosed in 1998. Tell me more about how its going if you will...thanks B
Hi Connie,
Dont lose your desire to treat. Having made it this long with low fibrosis scores and few problems is certainly a blessing. But don't allow that to cause complacency and a belief that nothing will happen. This is a slow developing disease that takes decades to do its damage. Look among our pages, it's the individuals with long histories (some not) that suddenly find themselves dealing with advanced fibrosis and the extra hepatic problems that long term infection cause. I hope you stick to your guns and commit yourself to the fight. The time has never been better! Why not take advantage of a nearly side effect free treatment? Hold onto hope and the desire to finally be Hep C free!!
Tig
Looks like patience is the name of the game.... if I wait to long I may change my mind about treating, been waiting 18 years already..... always been on the fence with low fibrosis and not feeling to bad
Guys, thanks for all of the positive vibes. Since relapse been waiting for new options and trying to stay in the best shape I can in the meantime. My perception is that Harvoni approval is going to be a little bit slower than Sovaldi/Olysio. But I can't wait. Hopefully, the 99% success rate is a real one!
Glad to see you posting again. Wondered how you were these past few months. This new drug is going to be "the one" for you, Darkstar.
Sending all good vibes and wishes to you. ~maddie
Darkstar, good to see you posting again. I think you will feel as good with Harvoni as you did with S/O. However, this time you will get to SVR and be done with HCV forever!
Best of luck! Our fingers are crossed for all of you with prior tx experience.
Isiscat,
I guess, but the squeeky wheel...... Fine fine between gentle pushing and being obnoxious. If pushing gets it quicker I will do it.
Darkstar,
Good to see you on the forum again. You guys keep us posted on obtaining Harvoni. I've been wondering how you're doing and hoping your wait is brief for tx. Good luck.
-Rob
This is going to require pre-authorization in most cases and there will be many patients in line. I'm expecting a minimum of a 2 week wait between the doctor's appointment and the approval. If it happens sooner great. Pre-authorization=forms and supporting records needed. At least 3 offices involved: doctor, insurance, pharmacy. I've waited this long; no reason to stress over a few more weeks or however long it takes. As long as I know they are working on it and my file didn't accidentally end up on Mars.
You're are soooooo right. We need to get that back. I can remember my wife commenting on all the new found energy
and actually getting lots'o stuff done on the weekends. Guess until then we can dream. Even if we do feel like crap 
Be well sir.
Let's hope so, I still remember two weeks into my last treatment feeling 20 years younger and wondering what was up....want to be there again!!
Darkstar, good to see you around. We're gonna slap this dragon silly. In the words of Taz,
Peace, out
As you all know, this agent was FDA approved on Friday. Although I would have expected that it would be available immediately, it is not. When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have the drug in their system to get prior approval. Hopefully all of this will be straightened out by the end of the week.