Relapse following 8 weeks of Harvoni at 4 weeek post treatment labs
angelseven said
Mar 11, 2015
Thanks for you post Rob, I am certainly not rushing into another treatment next time around, I will wait til the meds are out at least a year!! I will be interested to see what my viral load is in april... 3 months post treatment ... at one month it was 6,000... I am wondering if it will slowly go up or go up fast... or does it even matter... My alt and ast were really low at 4 weeks even though the virus was back....
Still kind of upset but it will pass
Peace, connie aka angelseven
Fireman Rob wrote:
Connie,
I'm so sorry to hear you have relapsed on Harvoni. it's hard to say why this has happened but the important thing is there are options here now and a definite promise on the horizon. It sounds like you're treating your body right and I'm sure those efforts will pay off.
Take care of yourself and remember that we are here for you. Keep us posted.
-Rob
Fireman Rob said
Mar 4, 2015
Connie,
I'm so sorry to hear you have relapsed on Harvoni. it's hard to say why this has happened but the important thing is there are options here now and a definite promise on the horizon. It sounds like you're treating your body right and I'm sure those efforts will pay off.
Take care of yourself and remember that we are here for you. Keep us posted.
-Rob
Tig said
Mar 4, 2015
Hi Connie,
Thanks for the reply. I'm glad you cleared up my confusion. I've got plenty of that these days, lol!
It's hard to say why you relapsed. There are times when they have specific RAV's, Polymorphisms, different genotypes, time between diagnosis and who knows what else, that impact SVR vs Relapse. I think as you say, they will soon be able to test for and deliver the exact treatment required. As they map the virus or its genome, they're learning things quickly. Let's hope that one day there will be an available vaccine and reliable one dose treatments that will finally kill this beast for good. We are all the pioneers for the cure. Everyone before us and after us that have been cured, have someone like you to thank for trying it first. This is just a bend in the road for you and I can see your destination on the map. It's going to be the next exit on this road called Treatment!
Keep positive, care for yourself, both mind and body. You gave your liver a vacation from the virus and its thanking you for it. Hang in there, your turn is coming!
Tig
angelseven said
Mar 4, 2015
Yes that was the same person.. connie/angelseven, just copied and pasted a post... was multitasking that day... hehe, I have only heard of one other person relapsing and they are on some other group... wish I could catch up with them.. I was one of first to treat, began treatment 11-19... Of course, I don't want anyone else to relapse, I would just like to know why I did... but my doctor's office doesn't seem to care... its cool, one day they will probably test people before treatment to see if they will work for them, I see that day coming
peace, connie/angelseven
Tig56 wrote:
Hi Star,
Im a bit confused. Did you relapse or the individual named Connie? Whomever it is, this is the first relapse I've heard of on Harvoni. I'm very sorry to hear this kind of news. But the attitude is strong and you're right, the liver had a good break in between episodes.
The next Gilead drug is currently in the Phase 3 trials and is currently named GS 5816 with Sovaldi. It is supposed to be pan genotypic and very effective across the board. So we have yet another arrow in our treatment quiver on the way soon!
Please let us know more about this and never give up, never give in! We will all celebrate SVR in the near future! Good luck...
Tig
angelseven said
Mar 4, 2015
Thank you for this note... I will be waiting for havoni/gs5816 but I may wait til it is out about six months this time... now just eating right with no sugar, dairy, meat, gluten, and such.. pure diet.. that helps me a lot...
peace, connie/angelseven
Cinnamon Girl wrote:
Hi angelseven, your post is rather confusing but I take it you are Connie as you signed off one of your previous posts with this name.
Anyway Connie, I`m very sorry you`ve relapsed and also surprised as you were doing so well. I know you were worried all along about only doing 8 weeks and it`s a very disappointing result for you. You did the best you could but some things are just beyond our control.
Try and put it behind you now and move forwards towards your next treatment. As Tig said, the new drug from Gilead which we`re expecting to be approved later this year will be very powerful and I`m sure the next round of tx will be the one for you. You sound in a good and positive frame of mind so hang on to that!
Look after yourself and let us know how things progress..we`ll still be here!
Wishing you all the best of luck!
Tig said
Mar 2, 2015
Hi Buck,
Welcome to the forum! Also happy to hear you made it to the finish line. I don't want to steal this thread, so please go to the New Members section and share your story there. Use an existing thread or start a new one. Here's the link:
Was on harvoni twelve weeks. Had high load .......dr called yesterday. And said the blood test came back non detectable . I have to check in 8 weeks. I am pleased . The combo treatment didn't work 10 years ago. I am hoping for the best.
tomyboy said
Feb 28, 2015
Very disappointed to hear this...hope the next treatment works for you. Please keep your head up as there is always something new on the horizon. Best of luck to you.
Laura
Cinnamon Girl said
Feb 20, 2015
Hi angelseven, your post is rather confusing but I take it you are Connie as you signed off one of your previous posts with this name.
Anyway Connie, I`m very sorry you`ve relapsed and also surprised as you were doing so well. I know you were worried all along about only doing 8 weeks and it`s a very disappointing result for you. You did the best you could but some things are just beyond our control.
Try and put it behind you now and move forwards towards your next treatment. As Tig said, the new drug from Gilead which we`re expecting to be approved later this year will be very powerful and I`m sure the next round of tx will be the one for you. You sound in a good and positive frame of mind so hang on to that!
Look after yourself and let us know how things progress..we`ll still be here!
Wishing you all the best of luck!
rebeca said
Feb 20, 2015
Hi,
I'm sorry to hear that. You look a person with a strong determination to cure, and it's clear that there will be another train to go to HEP C FREE STATION! And you will be there.
I wish you the best
a big hug.
Tig said
Feb 20, 2015
Hi Star,
Im a bit confused. Did you relapse or the individual named Connie? Whomever it is, this is the first relapse I've heard of on Harvoni. I'm very sorry to hear this kind of news. But the attitude is strong and you're right, the liver had a good break in between episodes.
The next Gilead drug is currently in the Phase 3 trials and is currently named GS 5816 with Sovaldi. It is supposed to be pan genotypic and very effective across the board. So we have yet another arrow in our treatment quiver on the way soon!
Please let us know more about this and never give up, never give in! We will all celebrate SVR in the near future! Good luck...
Tig
angelseven said
Feb 20, 2015
Yes connie relapsed but don't get all down in the dumps...I did 8 weeks of treatment, virus undetected after 4 weeks, barely detected at 2 weeks... at 4 week post treatment viral load test... viral load 6,000 or so... whatever... my liver got a 2 month rest.... if I had done 12 weeks it would have only increased my chances by 2% .. I knew this and this is why I did not push for 12 weeks....insurance would not approve 12 and I felt like it was worth the hassle for 2 percent... There are variants you can have that prevent the treatment from working...they are Q30, Q30H, w30R, y.93H or n, L32...
OK, the doctors office did a N53Genotype test which checks for all variants....so the only one that popped up was the 80K, so they did their job
80 K is only a factor for solvaldi/olysio
... I am the only one from their office that has relapsed... ... gilead was in the doctor's office yesterday and they are coming out with another new drug to go with Solvaldi.... i will have to retreat with that... I will be waiting... feeling better now
OK, so please don't freak out if you are currently treating, I have always been a strange person which figures I would have a strange response... hehehe
Back to body purification with absolutely no gluten or sugar (I fell off the sugar wagon a few weeks ago)
Does anyone know the name of the new drug Gilead is coming out with to go along with Solvaldi???
Connie,
I'm so sorry to hear you have relapsed on Harvoni. it's hard to say why this has happened but the important thing is there are options here now and a definite promise on the horizon. It sounds like you're treating your body right and I'm sure those efforts will pay off.
Take care of yourself and remember that we are here for you. Keep us posted.
-Rob
Hi Connie,
Thanks for the reply. I'm glad you cleared up my confusion. I've got plenty of that these days, lol!
It's hard to say why you relapsed. There are times when they have specific RAV's, Polymorphisms, different genotypes, time between diagnosis and who knows what else, that impact SVR vs Relapse. I think as you say, they will soon be able to test for and deliver the exact treatment required. As they map the virus or its genome, they're learning things quickly. Let's hope that one day there will be an available vaccine and reliable one dose treatments that will finally kill this beast for good. We are all the pioneers for the cure. Everyone before us and after us that have been cured, have someone like you to thank for trying it first. This is just a bend in the road for you and I can see your destination on the map. It's going to be the next exit on this road called Treatment!
Keep positive, care for yourself, both mind and body. You gave your liver a vacation from the virus and its thanking you for it. Hang in there, your turn is coming!
Tig
Hi Buck,
Welcome to the forum! Also happy to hear you made it to the finish line. I don't want to steal this thread, so please go to the New Members section and share your story there. Use an existing thread or start a new one. Here's the link:
http://hepcfriends.activeboard.com/f389516/new-members-area/
I'm glad you're here, good luck!
Tig
Very disappointed to hear this...hope the next treatment works for you. Please keep your head up as there is always something new on the horizon. Best of luck to you.
Laura
Hi angelseven, your post is rather confusing but I take it you are Connie as you signed off one of your previous posts with this name.
Anyway Connie, I`m very sorry you`ve relapsed and also surprised as you were doing so well. I know you were worried all along about only doing 8 weeks and it`s a very disappointing result for you. You did the best you could but some things are just beyond our control.
Try and put it behind you now and move forwards towards your next treatment. As Tig said, the new drug from Gilead which we`re expecting to be approved later this year will be very powerful and I`m sure the next round of tx will be the one for you. You sound in a good and positive frame of mind so hang on to that!
Look after yourself and let us know how things progress..we`ll still be here!
Wishing you all the best of luck!
Hi,
I'm sorry to hear that. You look a person with a strong determination to cure, and it's clear that there will be another train to go to HEP C FREE STATION! And you will be there.
I wish you the best
a big hug.
Hi Star,
Im a bit confused. Did you relapse or the individual named Connie? Whomever it is, this is the first relapse I've heard of on Harvoni. I'm very sorry to hear this kind of news. But the attitude is strong and you're right, the liver had a good break in between episodes.
The next Gilead drug is currently in the Phase 3 trials and is currently named GS 5816 with Sovaldi. It is supposed to be pan genotypic and very effective across the board. So we have yet another arrow in our treatment quiver on the way soon!
Please let us know more about this and never give up, never give in! We will all celebrate SVR in the near future! Good luck...
Tig
OK, the doctors office did a N53Genotype test which checks for all variants....so the only one that popped up was the 80K, so they did their job