Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> The Sovaldi-Riba Train is now boarding
Post Info TOPIC: The Sovaldi-Riba Train is now boarding
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
RE: The Sovaldi-Riba Train is now boarding
Permalink  
 

wendyo wrote:

5 watches, one for Monday - Friday? 

 Sounds like a good story to me. Ok I will use that.

 

Thanks!



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

5 watches, one for Monday - Friday? 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Oh yes, how could I have forgotten the watches???? .....blame it on the riba!

There's nothing like a good project to get you going Mike. I wish I had some of that mechanic/electronic know how in my gene pool !!! 

Syd

confuse



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Scott that is funny! Spend money.

I was on Riba for three months in which time I bought 5 watches. What am I going to do with 5 watches?



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Scott18927


Senior Member

Status: Offline
Posts: 111
Date:
Permalink  
 

Thanks for all the kind words everyone. 

 

Tig, I will set up the follow up alarm now. 

 

Well the depression the last couple of weeks has caused me to start a million projects.  When I get depressed, I am not laid up in bed like some people, I look for a rush of some sort.  So my rush, is spending money, since I can't drink or partake in  any other unhealthy things.   I redid my garage, wired up all remote lighting and have motion sensors in bathrooms and closets.  I have them hooked to a hub where I can activate lights from my phone.  100's of dollars  that  I didn't need to spend but it has kept my mind off feeling bad.   Each of these projects take 3 to 4 times longer than they should because I lose everything. 

Today, I shall buy stuff to make my jeep Hard top dolly to store it in the garage.  Then maybe build half of it before my 2 hour nap that I must take or I feel really strange.  No nap = people turn into cardboard cut-outs.  Then they begin to move again.  LOL  It is some sort of a hallucination that I have figured out is from sleep dep. 

 

Thanks for the Hugs!!! 



__________________

40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Scott and Dave....almost there. You got this. 

Somewhere Jimmy posted a pic of the little engine that could. It is not I think I can, it is I KNOW YOU CAN!



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hi Scott,

i felt all you are going through so recently. I spent the the last two weeks basically crying in my bed. So disinclined to see any one from the outside world - just as well really as all I wanted to do was rip people's heads off. 

I did get permission to take sof/dac and riba for another 12 weeks but I think they decided I was turning into a head case. The really hard add on is that your short term memory is shot and you feel as though you can't trust yourself to think logically any more. 

It does hang around for quite a while but the mental relief was dramatic. I could feel my head being emptied of it, over about a four day period. 

So hang in there, the time will pass and the end results will make it all worthwhile. 

Big hugs from Riba heads everywhere.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Scott18927 wrote:

We are almost there.  Boy it is getting tough.  Days are going by super slow.

 Hang in there Scott. You should be starting to get a sweet taste of freedom to get you through the next few days. Only ~8 more days right? You got this! smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Canuck wrote:
Just to let you know, I forgot to take my pill today!! Ended up taking it 2 1/2 hours late! And I'm not even ON riba!!!

And, one day, I had to actually count my pills, because I could not (for sure) recall whether I had taken it, or not.

 

Scott18927 wrote:
Good thing for pill counters.

Canuck, If you don't have a pill counter then please get one. It's been 15 months since I've taken riba but I still need my pill counter. It tells me if I missed a dose of my current meds but more importantly, it keeps me from taking 2 doses. smile



Attachments
__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

LINUX!

ONE MORE SLEEP!!!

uh, maybe she should do the driving tomorrow?

Good wishes from me on your new day. Hope the trip goes smoothly. 

So happy to see you at the finish line. smile C.



Attachments
__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hey Scott,

AAh, THERE YOU ARE!

Missed you around here.

You disappeared off the face of the computer for while.

Glad you're back!

Just to let you know, I forgot to take my pill today!! Ended up taking it 2 1/2 hours late! And I'm not even ON riba!!!

And, one day, I had to actually count my pills, because I could not (for sure) recall whether I had taken it, or not.

In foggy togetherness, smile C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Scott,

Good to see ya!

The last two weeks have been more difficult than the rest for me.

And like you said, time seemed to just stop here at the end. LOL, did you see the video I posted below for the classic movie "The Day The Earth Stood Still".

In a fog that's beginning to feel like the norm.

I actually find myself wondering what feeling normal will be like ... strange, huh?

Yup, almost there Scott ... keep us posted, even though the brain's toasted, LOL

... geez, I really am unhinged ... bla, bla, bla ... drifting off into the fog ...

 

Dave

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hang in there Scott! You're knocking them down, one long day at a time, but you're still achieving the goal you set out to complete.

Pill containers and alarms are a Godsend. I relied on them throughout treatment. I understand the memory loss and brain fog well. It was debilitating on some days. Have someone with you if you have to make any important decisions. I made statements that were completely different than what I intended to say. 

I'm glad you checked in too! You might set a follow up alarm, 15 minutes after the first. I did and it reminded me more than once that I had turned off the first. 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Scott18927


Senior Member

Status: Offline
Posts: 111
Date:
Permalink  
 

We are almost there.  Boy it is getting tough.  Days are going by super slow.  Oh crap, speaking of that, I need to take my night dose.  Why didn't my alarm go off.  Or did it, and did I take it?  I can't remember the last 3 hours.  I can't  wait to get my brain back.  Good thing for pill counters.  I better go check. 

 

 

Didn't take it.  Glad I checked in.  I haven't missed a dose yet, at least, I don't think I have. 



__________________

40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

confuse ... guess I had that one coming, LOL

 

Have a good evening,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Did a little too much snacking during treatment eh?



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

And Jimmy,

I'm still a little upset that they added that 10th seat to each row, as if 9 wasn't enough already ...

... and why did they microsize the, already too small to pick up, $5 bag of peanuts

... and, oh, I guess my rage is showing ... sorry ... blankstare

 

The Sarcastic Sardine



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Sydhanrahan wrote:

Hi all, 

I'll be there, standing back from the red carpet in my white socks and black sandals with a nifty little hat complete with small, plastic floral arrangement on the side.

And Tig what makes you think I'd go anywhere with that?? Testosterone just makes you want to feel veins between your teeth. Overrated.... Mutter mutter.

Syd

xx

And Syd,

I'll be the one leaving the train with my clown shoes on and tripping as I get my shoelace caught in the door, tumbling onto the red carpet and springing up throwing daisies into the air and honking my nose ...

... just like every one else does.

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Please put your trays in the upright condition.

Also bring your seat backs to the forward condition.

Check around your seats for any items you may have forgotten.

Be advised the contents of the overhead compartments may have shifted during certain fits of rage.

Remain seated with your seat belts fastened as we approach your final destination.

Thank you for traveling with us.

Jimmy



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hi all, 

I'll be there, standing back from the red carpet in my white socks and black sandals with a nifty little hat complete with small, plastic floral arrangement on the side.

And Tig what makes you think I'd go anywhere with that?? Testosterone just makes you want to feel veins between your teeth. Overrated.... Mutter mutter.

Syd

xx



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Thanks everyone ...

... it's appreciated!

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
wizard


Member

Status: Offline
Posts: 16
Date:
Permalink  
 

Nice to read about someone nearing EOT! Best wishes to you all!

__________________

52, GT 3, relapsed after 24 weeks Sovaldi/Riba, Fibroscan F2
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Tig56 wrote:
I wouldn't put the added strain on my liver to process a supplement. Getting it from dietary sources is far better anyway. Whip out that Master Blaster Blender and get to Smoothying. That's a word, never you mind!

                                                                  yeahthat.gif

And Dave, I'll be at the train station tomorrow to chauffeur you to the ball room for your EOT party.

 

 



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Tnx  Jimmy!

 

D

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Y'all got this brother and whereas some here are AS happy, there is none MORE happy than me.

;)



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Tig,

Nice Welcome Home that you have planned Thank You smile ... I agree with your assessment regarding getting Iron from nutrition rather than supliment.

I quit making the smoothies due to low energy, no smoothies means low energy ... vicious circle ... once I regain a little of that valuable commodity (energy) then I'll get on path ot good nutrition, exercise and all.

I will wait for another PCP visit to discuss other than Hb, ALT RNA tests... Have to keep visits simple and specific ... if I throw too much on the doctors plate she will spend most of the visit explaining why she can't address it all. I don't envy the pressure she's under to get through as many patients as she does, plus a marriage, plus two kids etc.

Tomorrow will be an upbeat visit though, all is good.

 

Thanks,

Dave smile



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hey Dave,

Good news, the Drones turned back... said there was evidence made available that no further intervention was required. I tried to hook you up for another 3 months, but it appears as though you're cleared to approach EOTville on Track #1. WOOT!! Short is always a great place to be when treatment is the topic of conversation. 

I would wait to see what your Iron levels are. If you don't need it, I wouldn't put the added strain on my liver to process a supplement. Getting it from dietary sources is far better anyway. Whip out that Master Blaster Blender and get to Smoothying. That's a word, never you mind! Talk about energy levels, I was reviewing some online lab reports from my SVR 1 year paperwork. Way in the back was a Testosterone level, no wonder I'm weak, losing muscle and gaining a belly, it was only 92! I'm surprised my voice hasn't changed. Must be why I'm driving a Toyota Echo (not a KIA, Wendy) and tear up over some sappy movie. Low normal is 300 for crying out loud! Maybe you better get yours checked. It might super charge us! Might super charge something, eh? (Don't go there, Syd). Check your B12 too.

Anyway, I'll be the fuzzy faced guy waiting at the station with the hand cart, for your luggage tomorrow. I figured that's the least I could do to welcome home our newest graduate! You're down to a Wakeup now. It's gonna be a wonderful day in Dave's neighborhood! I'll bring your favorite little cardigan sweater in case it's cold, ha!

IMG_1467.2.jpg



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

... just 10 pills away from EOT,  Mike, you can help me count these ... smile

 

Worked to get my papers in order for tomorrow's visit to my PCP

On the agenda will be to find out Hemoglobin and ALT from labs last week (CBC & CMP)

Will also ask my PCP for HCV RNA on May 10 (EOT+4wks) ... and check to be sure the Specialist sent an order to my PCP for final HCV RNA on July 5 (EOT+12wks)

No idea if PCP will order the EOT+4 RNA ... she didn't seem too keen on it last time I mentioned it (fingers crossed).

I'll be asking PCP about restarting Iron supplement when finished with Sov/ Riba and best strategy to get strength/ stamina back to norm.

 

SHORT! biggrin

Dave



-- Edited by Linuxter on Monday 11th of April 2016 06:52:53 PM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hang in there Scott, Dave and SF.

Looks like you're all going to get to the finish line pretty soon. That Riba will take you down and shake you out. But it will all be worthwhile when you're cruising around virus free.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Linuxter wrote:

14 pills and counting ...

 Good, it won't be long now before I can say, "I told you so, I told you so". Lol biggrin

 

 



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

It's a really long way to here from there ... I'm counting on the batteries being worn plum out with all that activity over the last 3 months ... smile

 

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

The Drones are bringing you 3 more bottles of everything. Better load the shotgun, better get out those Dragons Breath loads... 

I have the recall codes and can be bought. Consider it pharmaceutical terrorism! If you make it to Tuesday, you're safe. The batteries were getting low, so you might get lucky. I'm happy for ya dude! You've handled it with strength and determination (most of the time)! We're proud of ya for hangin in there! 1 more and a wakeup. Awesome!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

14 pills and counting ...



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Kristen,

Somehow I overlooked saying "Congrats on SVR of nearly 2 years!"

Good Job ...

 

Take Care and Enjoy Life!!!

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Syd,

I'm intensely attracted to the new you! The cigar and laid back posture is so becoming of the lady hiding within and asking to be set free. You would be right at home in our city of New Orleans in that outfit. You would fit right in to the Mardi Gras spirit! 

You're right of course, Mike is fully capable of his own obnoxious releases. Whatever form they come in! He does appear to be kind of handy in the kitchen too. I'll be making up some Chicken Vegetable this week and Dave's cornbread sounds good too.

                                                   biggrin

SF,

The time is short, keep sippin and keep your eyes on the prize! EOTville, next stop for so many in the coming days. We're going to have a lot of celebrating going on!

                                                   smile

Scott,

You hang in there Brother! You'll get to the end and it's going to work this time. The last week is taxing on you emotionally and physically. You've made it through another one and that's a huge accomplishment alone. You're quite the experienced Warrior and have managed to get past 3 rounds of some very powerful drugs and the sfx they all present along the way. You'll recover in time from this and your spirits will be much improved. I had to take anti depressants to get beyond the worst of the depression. Anything with Riba can definitely put a dent in your mood... If you have managed without them, you'll hopefully notice  some quick improvements after tx ends. Staying rested and hydrated will help the most in the short term, so take it easy til the end. It's not far away!

                                                   



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Wendy,

smile ... I'll get there by "Hook or Crook" ... by golly!

 

Jimmy,

Makes me really want to watch the movie again ... I have to see if I can get in via Netflix ...

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Scott,

Last week, it's REALLY IMPORTANT now to stay Hydrated ... I nearly passed out in the grocery store the other day, just eat, hydrate and move slow, you'll be fine.

Take a few days off as needed. I'm still on 1200mg Riba, no idea where my hemoglobin level is but will find out on Tuesday ... I'm sure it's way down.

You're almost there Scott, good job!

Please keep us posted smile

 

Dave

---

SF,

Thanks for the kind words, much appreciated!

You're getting close too ... won't be long ... same advice, of course ... we're all in this together.

 

Thanks for posting,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Hang in Scott,

You are almost there so keep the faith. Glad you dropped in to give us an update.

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Scott18927


Senior Member

Status: Offline
Posts: 111
Date:
Permalink  
 

Haven't been here in a while.  I have 9 days of treatment left.  They have lowered my Riba because my Hemo has dropped below 11.  Just lowered it to 800 mg per day.  I am feeling so tired now and I have pain again in my right quadrant.  I feel like I am taking a million pills and they haven't tested my LFT's since before treatment.  I am depressed and in a daze half the time. 

Hey Dave, how has your last week been?  I'll read through a few, just worn down and trying to work and keep busy because of the depression.  Since I stopped coming on the site, I have been feeling great.  Just trucking along.  Not so much now.  These are going to be the longest 9 days ever. 

Hope all is well with everyone. 



__________________

40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Dave,

You have 898 posts ... You absolutely do not need to apologize because you don't feel great. Two more days, amazing. 

Sips my water.

SF

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Two more days of Tx

Energy level low, Spirits high

Dr Appointment with PCP on last day of Tx to go over CBC, CMP and plans for followup and future.

Specialist isn't in the picture any more other than to receive EOT+12 PCR (VL)

Please forgive me if I'm not answering or responding to posts ... just out of steam and coasting along till EOT

 

Still Drinking Water,

Dave

smile



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

  

after Syd's comment I had to! 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

if at first you don't succeed...

imgres-1.jpg



Attachments
__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hey Tig,

just voicing a cry of unfair here. Mike is quite capable of coming up with his own contributions and any connection to bodily functions - be they solid, gaseous or fluid - is in this case totally unrelated to what goes on in the mind of any other member. Jimmy and my good self included. 

My Chinese student asked me if I played lawn bowls today. I was horrified. I had to show him this photo to show him the old lady I am working on becoming. 

: ) Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Kristen,

Very nice to meet you, I'm glad you stopped by to say hello, Thank You.

I can really appreciate that you've been down this very road. (I imagine reading this thread was a bit strange and hopefully entertaining.

LOL, I've ... Yes ... I've ... come Unhinged, for sure, I have!

I've tried t keep the reading light and fun ... probably reflects that I got a little depressed along the way but heck with it, I'll make fun of that as well.

Feels great to be getting so close to EOT. While I'm glad to have taken Sov/ Riba to kill the Beast within,  what a long strange trip it's been.

I will be very glad to get beyond the meds and start to enjoy life with a new outlook.

Yup, almost there ... smile

May not get another Viral Load test until EOT+12 but I have no doubt that the dragon is dead and gone ... just know.

Thanks again and I look forward to reading many more of your posts, hope you stay around so I can get to know ya better.

 

Dave

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Enavigo3891


Senior Member

Status: Offline
Posts: 153
Date:
Permalink  
 

Hey Dave - we haven't had the pleasure of meeting as I've been incognito for the last year after receiving my SVR52 results last May but popped in today. As a fellow GT2 who did Sovaldi + Riba I took some time to read this thread from the beginning and thoroughly enjoyed the updates on your battles so I wanted to say hello and thank you for the laughs this evening.  I see your war will come to an end in just a few hours and your saga certainly brought me back to my experience 2 years ago!  I think the funniest part of reading your stuff from beginning of treatment to now (in one sitting) is that with all due respect, I picked up on the fact you've become a little unhinged. I know you don't know me but I 100% say that with the utmost respect and love!  It's a good thing - means the drugs are working! LOL    I remember being all put together about the whole ordeal in the beginning and by the end I used to tell people I was like a puppet in the hands of some evil puppet master ... looking in from the outside or something. I gave zero sh!t about much by the end aside from popping those last pills. You have done well and you've certainly kept Tig entertained.  I feel like Tig is like my cool uncle who would sneak me french fries before dinner and he was certainly one of my rocks through treatment.

 

So like I said - just wanted to pop in, introduce myself, say thanks for the laughs and say YOU GOT THIS!  Well done!



__________________

Born HepC + in 1983 ... diagnosed @ age 13 ... GT2 ... 12 wks of Sovaldi/Riba from 2/11/14 to 5/5/14  #ribazombie

1/30/14 - Starting VL 1,922,967 * 3/11/14 - UND @ 4 wks * 7/29/14 - SVR12 * 11/6/14 - SVR24 * May 2015 - SVR52 * MAY 2016 - STILL UND * FEB 2018 - STILL UND

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Oh man Dave, just when it was getting good it ended! I love those old movies! I think if this happened in Washington DC today, there'd be so many protestors and signs, Spaceman Klaatu would've turned around and left...



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

The Day The Earth Stood Still ... (Erie Music Here)

(Canned Laughter Here)



-- Edited by Linuxter on Sunday 10th of April 2016 12:38:24 AM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hey Mike,

If you look closely at the photo of your artillery piece, check out the smoke at the end of the barrel. Kinda looks to me like somebody sitting there with their arms crossed and ripping off one incredible fart. Is that the release of one gaseous Dragon fart or what? Who put you up to that, Syd or Jimmy? They both like the subject of gaseous emissions!

You're getting close Brother! Less than a week and a wake up! HOOAHH!!

Here's what it looks like when your Dragon exhales it last breath...

213.1.jpg



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
« First  <  Page 4  >   Last »  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> The Sovaldi-Riba Train is now boarding
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.