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Post Info TOPIC: Where are you from? What Genotype?


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RE: Where are you from? What Genotype?
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US. Diagnosed 2013, Genotype 2. Early Stage 2. Probably have had it since a stint in the army, 68-70.

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Pacific NW 

1A since 1971

Side note: I am so surprised to read there are so many infections from tattoos. 



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Age: 62, Lived with Hep C since 1971 (Sharing infected needles)

Home: USA, Pacific NW

Genotype: 1A

Fibrosure stage:  F3-F4

Begin 3-month treatment June 24: Sofosbuvir, Ribavirin, and Interferon

Born in the Year of the Dragon. 

 



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Originally from Michigan but now live in south florida. No idea where I contracted it, probably from my ex husband who also found out later in life he had it. That would mean I've had it since early to late 80s, hence the cirrhosis.  Genotype 1A.



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Audrey

 

55 y/o, GT 1A, 1.4 million UI, cirrhosis, low platelets, enlarged spleen, high LFTs. Failed tx x2. 12 weeks Sovaldi/Olysio. Undetected end of treatment and 4 weeks after EOT!



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USA  Genotype 1B  infected for 40+ years

 



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 

Tig


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 Florida -  Genotype 1A - Infected by unsterile tattoo work in 1980-83. 



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Geno 1a from the UK..30 plus years probably 



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51 year old Geno type 1A,  possibly 30 years HCV. HBV detected but currently dormant. viral load over 1,000,000. Started triple with Telaprevir Nov 2013 for 48 weeks.

VL week 4 -179,

VL week 12 -50. 

VL WEEK 24 -UND



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Geno 3a, prob received in a blood transfusion in Texas, USA in 1986 during open heart surgery.



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62 Yrs Old, CHC Geno 3, Cirrhosis, Kidney Transplant (13 yrs), On Sovaldi/Riba Treatment (24 week) since Feb 01,2014

Viral Load 7M on 1/8/2014,  UND at EOT 7/18/2014



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Am from kashmir india...undergone an open heart surgery in 2006. Now diagonsed hep c genotype 3.....i think got it by blood transfusion during my heart surgery.....Guys my morale is still up...i am 28

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usa girl here, I'm genotype 1. No one ever mentioned a letter? Does genotype 1 mean genotype 1a and the doc just failed to mention the letter after it thinking I wouldn't understand the significance anyway?? 

confuse



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Determined



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Thank you again

yes' I am Saudi and I was in USA last June and i have visited the Dr. in Cleveland clinc he told me that I can wait for the 2nd generation. once it is available any where I can go I will not wait until it is available in Saudi Arabia



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Hi Mohammed,

Are you a Saudi national? That may make a difference in treatment availability.

There are several of the second generation wave of DAA's (Direct Acting Antivirals) that should be approved in the USA in the next 12 months. Sofosbuvir has been trialled with Geno 4, but cost and availability outside the USA is still unknown. Other new drugs are Merck-5172 and the ABBvie combination DAA's.  Have a read around the Forum, using the Search button.

I deleted your posts in the other Forum sections, as you only need one. We will try to answer any questions you may have. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 74 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +4 years

Malcolm



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Thank you Mallani

the DR. told me that I can wait for the 2nd generation of medicine but I do not know what is the 2nd generation and when it will be available



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Hi Mohammed,

Welcome to the Forum. Geno 4 is still treated with Peginterferon and Ribavirin. The new drug sofosbuvir is expected to be approved nest month in the USA. Only a small trial has been done using Sofosbuvir, Peg. and Riba for 12 weeks . SVR rates were high at >90%. I'm not sure about availability in Saudi. You may need to be patient. As an F0-1, you can afford to wait. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 74 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +4 years

Malcolm



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I live in Saudi Arabia I am G4 i did fibroscan and the result was f0-f1 I dont have ant treatment . i would like to know any news about new treatment for G4 interferon free

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My doctor told me Geno 3 was the second easiest to treat and I was so happy about it, how times have changed grrrr!



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Hi lonewolf,

Sorry to be picky, but HepC is an RNA virus with no DNA.  Also, in the USA, ~75% of chronic HepC patients are Genotype 1, and ~70% of these are Geno 1a. The incidence of HepC in Veterans is higher than the general population, with some studies reporting rates of ~10%. This particularly applies to Vietnam Vets.  With SOC and the new DAA's, currently Geno 2 is easiest to treat, followed by 1b, 1a then Geno 3. Good luck.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 74 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +4 years

Malcolm

Tig


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The factor that determines your genotype most isn't where you're located, but the genotype of the source you were infected by. If you were infected by a person with 1A, you'll contract 1A. There are locations around the world that have a prevalence of a specific genotype, but you can contract any genotype anywhere, it just depends on the genotype of the source you contracted it from. Mallani left a link below that explains genotypes really well. Good luck!

http://www.hepatitis-central.com/hcv/genotype/explained.html  And another is:

http://en.wikipedia.org/wiki/Epidemiology_of_Hepatitis_C_virus



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I´m from the north of Spain. Genotype 1a. Here, in Europe is more common genotype 1b. When I found this fórum I was surprised that most of people who had genotype 1, is 1a, not 1b. Do you know why?



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52 yo. Genotype 1a. 1.500.000 VL. Fibroscan : 8 . Probably I infected in 80s. I´ve never been treated. I've started Harvoni, 9/02/2015. 12 weeks. 



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I'm from Kentwood, Michigan a suburb of Grand Rapids. I am Genotype 1a. There is actually a difference in cases of 1a regarding its specific DNA profile. My Dr. says mine is somewhere in the middle between hardest and easiest to treat. Not that 1a is easy to treat. I will be undergoing triple therapy starting in January. I guess the good news is that I'll be treated free of all charges thru the VA. I was discharged due to service-connected injuries so I have no co-payments. So I'm just waiting to see how it goes. I have a viral load of 34 million. Sounds pretty high to me. I did IV drugs for a short while in the 1980's so that's probably where I got it. Bad decision! About 90% of people in the U.S. are 1a. So I'm told.



-- Edited by lonewolf on Thursday 7th of November 2013 07:00:03 PM



-- Edited by lonewolf on Thursday 7th of November 2013 07:03:45 PM

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55 yo male-Genotype 1A  Started treatment 3-5-15 Viekira Pak+Ribavirin 12 weeks. Less than stage 1 fibrosis.  Previously treatment naïve. VL- SOT-21.8 million/ml  Log 10IU/ml-7.34, VL-4wks-UND, VL-7wks-UND

Greg



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I live in Washington, DC and I am a 1a.

Almost everyone I meet in this area is a 1a.



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KLG


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Florida, London, California - GT 3a. Probably infected in Florida.

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Geno 3a, stage 3, IL28 cc, diagnosed 94, interferon 1year, relapsed immediately, started RIBA/int on 2/1/13, 4 wk und. Female, age 55, EOT 7/18/13. 4 weeks UND, 12 weeks UND, 6 months UND!!!



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I also am Genotype 3.  forget a,b,c????lol.  I live in the United States and not sure how I contracted it or how long I have had it. 



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55 yo female.  Diagnosed 9/2011 Geno 3A.  Treatment delayed because of 9 Month antibiotic tx because of TB Positive test. Began tx 9/20/2013 Interf/Riba 24 wks.  Week 4, 8 undet. 1 year.......UNDETECTED!



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Northern Ontario, Canada. GT 1, not sure if a or b, but think its a 1a. Contracted HCV mid 70's. Tried IV drugs during that time. Ist attempt at treatment 2008, interferon and riba. Relapsed at 48 wks @ EOT. Currently on triple tx with victrelis. Currently wk 11/48. Still waiting for my 8wk vl results. Really hope and pray to be successful this time around.

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57 y.o. 48 wks tx, peg/rib 2008. Relapsed @ EOT. Started peg/rib/vict 08/07/13. Geno type 1. VL Pre-tx 1.46m.@12wks Undetected!!! 24wks Undetected! F 3-4. 2nd time around. Hope to achieve SVR!!! EOT 7/7/14 Undetected 3 mon. Looks good for SVR!!!



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I am 1a.  Live in Georgia, but was in Charleston SC in 1981 and was in a car wreck.  I received several pints of tainted  blood.



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14



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Genotype 3b, caught through an infected ex partner that withheld his status during a relationship. I probably used his razor or something equally stupid (I was with him 3 years from 19 - 22 yrs old, I am 40 next year.) Location The Netherlands....

Am I the only 3b on here?



-- Edited by Loopy Lisa on Thursday 17th of October 2013 02:38:17 PM

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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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I live in Germany, genotype 1a,

infected eventually from immunglobuline, which I got as a protection against Hepatitis for my Nepal/Tibet-Tour in 1988 - which irony.



-- Edited by garfield on Thursday 17th of October 2013 01:54:06 PM

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I live in the US (Oklahoma). Genotype 1b. Infected when I received my last tattoo in Missouri this year.

I know for certain when I got it becauase I was an active blood donor and never had issues with my blood until this year.



-- Edited by shotgungirl on Thursday 17th of October 2013 10:52:18 AM



-- Edited by shotgungirl on Thursday 17th of October 2013 10:53:55 AM

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22YearsOld/Contracted and diagnosed in 2013/Genotype 1B/VL 1,020,000/Starting triple therapy w/Incivek soon



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Living in Paris, France. Got contaminated in 1971 from blood transfusion. Geno b1.

Dominique



-- Edited by ios9 on Wednesday 14th of August 2013 06:02:41 PM

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Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 



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Contracted the virus 1a in San Francisco 1980 from IV drug use. Very grateful I didn't contract HIV also. Blessings!



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!



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Western US.  Genotype 1A.  Contracted in 1969 from intravenous drug use.



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I am currently in Maryland. Not sure my genotype just yet but the doc says it's likely 1a since I failed treatment in early 2000s. Not sure why they didn't tell me my genotype back then. Maybe I just never asked. I most likely got this via blood transfusion as a newborn in San Antonio, TX. I was born at 28 weeks and became septic so they transfused. I was a military child with a mother from Germany so I grew up between Germany and various army bases in the USA.

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Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 

Tig


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Currently living in Southwest Florida. GT 1a. Believe I was exposed through some tattooing done in an unsterile setting. It was back when that wasn't really a consideration. It wasn't long until the Aids epidemic took off like wildfire. I'm not happy that I'm HCV + but am fortunate I'm not Aids+ as well. I know that many have received that unhappy news... Good luck everyone!



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi Jodee,

This link will explain genotypes.

 

http://www.hepatitis-central.com/hcv/genotype/explained.html



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 74 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +4 years

Malcolm



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My name is jodee I'm from nipomo ca.My genotype is 1b.I dont know allot about this just found out what my genotype was.Is this a bad one to have? what are the other types and how many are there



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Geno type 3A live in CA. but infected in Washington State.



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Geno Type 3A  Double TX 1-30-13 2 1/2 week labs VL >43 Lab error on 12 week VL no result

 



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Georgia and 1b



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geno 1 b liver biospy results a-2, f-1



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Texas and Genotype 3



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My husband and I live in northern CA.  He is Genotype 2.



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Husband has HCV.  Viral load @ start of treatment was 1,600,000.  Genotype 2.

Treatment includes Ribavirin pills and Peginterferon injections for 24 weeks.

UND at 4 weeks, 12 weeks and EOT plus 1.5 weeks and 3 months. 



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Thanks Jime



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25



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Thanks Bouba... that is a cute name, I am not on treatment yet. May be next summer.



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25



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Hi Nancy,

Imho, it is better to remain active during tx, if you can. You tell yourself that your are well and you do well.  Most of us can handle that. You just need to give yourself enough rest, when needed.

And observe the basic "coping with sx rules" (nutrition, hydration. skin lotions, etc).

I keep working 5 days a week. SX are there but nothing extra ordinary that would kick me out of a daily routine.

Interferon sx may be an exception, but then again, its very individual and even shot on shot sx are different.

Thats why almost all of us "throw darts" on Friday, getting a weekend slack, if it feels bad, and back on feet by Monday.

Actually I am more concerned about lack of concentration and kinda amnesia (lol), have to count pills, remaining in the box, as sometimes I can not remember if I took or missed a dose

 

Good luck!!!  

 



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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX



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I worked 6 days a week on triple tx Incivek for 2 months. Some days I couldn't wait to get home to nap but overall it was not that bad.  I drank a lot of water and ate a banana every morning. And as soon as I started to get a rash anywhere I loaded up with moisturizers. 

I found I was better off going to work and moving around than sitting still and letting the sx work on me. Evryone is different but that's what I did. I think you'll be fine. One day at a time.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



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Hi zuzusfam:

Are you able to work while on treatment? I am terrified of interferon...



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25



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At the moment, central Canada. 1B

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Don't sweat the small stuff, it will only give you hair loss.



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Northern wrote: "1b More than likely infected infected in the Army from the air guns when I went over seas in the 70s."

Settled in Colorado since 1986. I was in the Army from 78-84. I have often wondered if I was infected in boot camp with the dreaded air guns. I remember standing in a line getting shots and watching others walking away with blood dripping down their arms from the injection site.confuse



-- Edited by zuzusfam on Wednesday 28th of November 2012 04:32:27 PM

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53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx



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Kansas City area. Gen 2. 8 weeks into Peg/Riba and UND since week 4. Undiagnosed for 30+ years. Cirrhosis. Fortunately I quit drinking in '85 or I'd be chillin in a tube of light with Elvis, Tupac and Biggie. So far treatment has not been a huge drama, after consulting the internets I was prepared for the worst. Doc says that UND @ 4 means 24 week TX. Good luck to us all.

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1b More than likely infected infected in the Army from the air guns when I went over seas in the 70s.

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1b, 3rd time around on treatment. Stage IV cirr. Undetectable at 8 weeks with Incviek. Been infected since the late 70s. 48wk treatment completed. Sustained undetectable. 



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I believe i was infected in Pasadena, Tx   1982 but not diagnosed until 2012.  Gen 2



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     Gen2-diagnosed 2012  probly infected 1982   tx started 10-19-12   peg/riba  24 wks



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59 Year old Male resides in Middletown, NY and am geno type 1....Just finished third attempt at treatment. Taken off triple therapy treatment after week 8.  Have an appt at Mt Sinai hospital in January and maybe can try again....or wait until something new comes on the market!!!!!aww



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE



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So. California.

G1a/ 9,000,000 vl/ stage 2 fib.

Started tr x with Incevik 7-14-12

und since week 4. woohu



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58yr m/G 1A/ VL 9,000,000 / F 3  / STARTED TRIPPLE TX (Incivek)7-14-12 / UND WK-4-8-12-16-20-24-36- 48- 12 weeks post tx UND. SVR 1-10-14

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