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Hep C Discussion Forum -> On Treatment -> Treatment day 1 of week 2
Post Info TOPIC: Treatment day 1 of week 2
Thom


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RE: Treatment day 1 of week 2
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Doni wrote:

Hello Thom. Just want to share how I got rid of my diarrhea recently, if you are still having one. I ate only oatmeal and boiled rice, drank pomegranate juice, ate dried bread sticks, and took over the counter prebiotics to normalise intestinal flora. After all this I had such a hard stool, o boy! It was from one extreme end to another! But now I feel I have normalized overall.

 Thanks. Mine stopped but returned yesterday. My wife has been urging me to eat rice.



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
Doni


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Hello Thom. Just want to share how I got rid of my diarrhea recently, if you are still having one. I ate only oatmeal and boiled rice, drank pomegranate juice, ate dried bread sticks, and took over the counter prebiotics to normalise intestinal flora. After all this I had such a hard stool, o boy! It was from one extreme end to another! But now I feel I have normalized overall.

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Finished Sovaldi triple therapy on November 6th 2014, age 33, Genotype 1b, UND after 3 months of end of therapy. Next PCR test May 6th 2015.

 
Thom


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Hope4 wrote:

HI, Thom,

Just checking in to see how you're doing.  I'm on same tx as you, started 7/31.  My first tx.  Probably on a similar timeline as you... going back to the 70's...   just found ' out this year tho.

I do hope this weekend is better for you.  I know what you mean about the dread and anticipation of just getting started.    I am very grateful to report that so far, my fears were bigger than the sides.  I can't complain.    I get tested next week for viral load.  Holding my breath.   We'll get this done.  I'll keep you in my thoughts.

Lynetta

 

 Hello Lynetta,

I have not so far had any abdominal pain from this 2nd shot. I have been spending more time asleep than awake so far and I feel like a dog that just wants to lay off in a hidden corner of the room to be left alone. I really don't want to have to deal with people although I have no real sickness per se. I hope that your treatment goes well for you.



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
Hope4


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HI, Thom,

Just checking in to see how you're doing.  I'm on same tx as you, started 7/31.  My first tx.  Probably on a similar timeline as you... going back to the 70's...   just found ' out this year tho.

I do hope this weekend is better for you.  I know what you mean about the dread and anticipation of just getting started.    I am very grateful to report that so far, my fears were bigger than the sides.  I can't complain.    I get tested next week for viral load.  Holding my breath.   We'll get this done.  I'll keep you in my thoughts.

Lynetta

 



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Gen 1a        60 yrs     (was tx naive )   Started tx Pegasys, Ribavirin and Sovaldi on 7/31/14  12 wks.    VL 2,186,415.      Dr. said no cirrhosis, had no biopsy. EOT 10/22/14, undetected.  TX was tolerable, overall.

Still Undetected 4/27/15   SVR 24!!!
Isiscat2011


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Thom wrote:

 The specialty pharmacy called me last week to ask me how I was doing. I told them about the 3 days of pain(that was over at that time) and that I still had diarrhea. The lady said that pain was not normal and that the diarrhea should have ended, and that she was reporting this to Gilead as an adverse reaction. 

Hope you are doing well, Thom.  When you feel up to it you may wish to report this side effect to the FDA's Medwatch program.  The reporting system is voluntary for healthcare professionals and patients.  It may help others in the long run.  Pharmaceutical companies are required to report certain adverse events but they can be very selective about what they actually report.  

There is an on line form you can fill out here: http://www.fda.gov/downloads/AboutFDA/ReportsManualsForms/Forms/UCM349464.pdf

 

Here is some information about the Medwatch program:

http://www.pharmacist.com/fdas-medwatch-program-turns-20-whats-new

http://en.wikipedia.org/wiki/MedWatch



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Thom


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Isiscat2011 wrote:

Hi Thom:

I agree with Tig that severe stomach cramps are not a common side effect of Interferon.  That doesn't mean it couldn't happen but it is uncommon.  

This may, however, be attributable to the Sovaldi.  A number of people have experienced abdominal pain on various Sovaldi combos but the pain has subsided on its own.  Hopefully, that is the end of it, and this week is a bit easier. 

 

 You may well be right about that. 



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
Thom


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Tig56 wrote:

Hi Thom,

It's uncommon to experience severe abdominal cramps as a result of the Interferon injection. There are often some complaints of occasional flu like symptoms and low grade fevers, but that doesn't mean it will happen every time. You may discover that eating beforehand reduces those cramps or the time of day you inject may reduce the felt side effects. But should you experience the same severe cramping and especially for the number of days you had before, that's a discussion you want to have with your doctor At your first opportunity. Let us know, good luck!

Tig

 The specialty pharmacy called me last week to ask me how I was doing. I told them about the 3 days of pain(that was over at that time) and that I still had diarrhea. The lady said that pain was not normal and that the diarrhea should have ended, and that she was reporting this to Gilead as an adverse reaction. When I told the Medical assistant, she said that it is a very common reaction. I did report this to the Medical assistant when this occurred. She said that it is a side effect of the Interferon.



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
wmlj1960


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Isiscat2011 wrote:

This may, however, be attributable to the Sovaldi.  A number of people have experienced abdominal pain on various Sovaldi combos but the pain has subsided on its own.

 

 I agree Thom, I've had severe abdominal pain almost daily for the first month + of Tx, of which I know a lot is caused by the large amounts of Lactulose I have to take, but I suspect some of it could likely be the Sovaldi also.

As already mentioned, if this continues let your Dr know asap. I have an appointment with my Dr Tuesday and digestive issues + abdominal pain are on top of my list for discussion! smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Isiscat2011


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Hi Thom:

I agree with Tig that severe stomach cramps are not a common side effect of Interferon.  That doesn't mean it couldn't happen but it is uncommon.  

This may, however, be attributable to the Sovaldi.  A number of people have experienced abdominal pain on various Sovaldi combos but the pain has subsided on its own.  Hopefully, that is the end of it, and this week is a bit easier. 

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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Hi Thom,

It's uncommon to experience severe abdominal cramps as a result of the Interferon injection. There are often some complaints of occasional flu like symptoms and low grade fevers, but that doesn't mean it will happen every time. You may discover that eating beforehand reduces those cramps or the time of day you inject may reduce the felt side effects. But should you experience the same severe cramping and especially for the number of days you had before, that's a discussion you want to have with your doctor At your first opportunity. Let us know, good luck!

Tig



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Thom


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I just took my 2nd interferon shot. Last week I had 3 days of severe, constant abdominal pains beginning on day 3. My Doctor's Medical Assistant said that this is fairly common side effect of Interferon. During those 3 days I had thoughts of going to the Emergency Room  and thoughts of not being able to continue treatment.

So now, I am awaiting to see if I get similar results from this shot.



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
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