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STICKY:
ALL ABOARD THE VOSEVI TRAIN
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1 2 3 4 5 … 14
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(Preview)
After two train rides , first one being sof/riba,second one being sof/riba/peg , I'm ready to get started on my third and last treatment. It's going to be 12 weeks of VOSEVI. Im riding on the Rescue-Salvage train to SVR. Why did the first two treatments fail? I beleave it's because of my old livers cirr...
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robertsamx
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663
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37766
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STICKY:
All aboard the "Harvoni" Treatment Train
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First … Last »
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(Preview)
Hello all This is an invitation for any member or spouse that will be treating or considering treating their HCV with Gilead's "Harvoni" (ledipasvir/sofosbuvir) Post your questions ,concerns and positive reports on this thread if you want to. Speak up about your experiences with your on going tr...
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Matt Chris
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2360
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STICKY:
Epcluser's Corner
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1 2 3 4 5 … 8
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(Preview)
Today is the first day of the rest of my life. I was diagnosed with hep c a month and a half ago. After many blood tests and a Fibroscan my doc was ready to put the pre approval in for Epclusa. I was approved and received my first bottle today. I will be on this for 12 weeks. I took my first dose at 7:00pm. I will re...
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Phoenix17
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386
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48329
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STICKY:
The HCC Treatment Train
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1 2 3 4 5 … 10
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(Preview)
My HCV treatment has been put on hold for now so I thought I had better jump off the SVR train and on to this HCC T/X Train. I'm going this Thursday the 19"th to have a 12mm small hcc ablated, they are also going to remove my galbladder to gain access to this lesion in section 5. It's done laparoscopically. ...
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robertsamx
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450
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46659
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STICKY:
Zepatier Warriors
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1 2 3 4
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Well, Day-4 of taking the medication, so far no side effects and I'm not looking too hard to find any or imagine things that are not there. Although, in the past I have had 2 herniated disks in my lower back and it never really laid me out on my back. Once in a while I get stiffness in my lower back and have diff...
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JohnAnton1
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193
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22573
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STICKY:
The "Viekira Pak" Treatment Train
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1 2 3 4 5 … 10
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(Preview)
At the risk of shamelessly plagiarizing from our older and wiser brother-thread "Harvoni," here is an invitation to share any questions, concerns and reports for HCV treatment with AbbVie's "Viekira Pak." As with the "Harvoni" thread, feel free to speak up about your experiences with treatment...
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zavr
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456
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76559
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STICKY:
The Sovaldi-Riba Train is now boarding
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First … Last »
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(Preview)
Just got "The Phone Call" from the pharmacy this morning ... ... I've been Approved for Sovaldi - Ribavirin and it will be here tomorrow ... *** Hark ... The swordsmith has finished my new sword and is sending it forthwith, via royal courier. ... YaHoooo!! Ladies and Gentlemen, "Let...
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Linuxter
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966
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42211
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STICKY:
Making sense of Viral Load Tests and Results
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1 2
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(Preview)
Hi all, We have recently had some confusion about Viral Load (VL) results. This is a complex subject and outside specialist HIV/Hepatology Clinics, it is not surprising that Nurses and NP's have trouble relaying correct information. Knowing your VL is essential to diagnose active HCV, and partic...
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mallani
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51
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20962
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HCV RNA
(Preview)
My HCV RNA, Quantitative Real Time PCR value before treatment = 3090000. IT ALSO STATES THAT my HCV RNA, Quantitative Real Time PCR value = 1870000. I know the values are both high. But does anyone know what this means? Why does it show on my results twice, taken the same day, and has 2 different values...
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Sis246
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4
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62
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Harvoni beans and Me
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1 2 3
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(Preview)
Who ever coined the magic bean thing, Thank You! I'm loving that imagery! Got me some magic beans gonna grow me a new liver! Past the teeth and over the tongue look out stomach here it comes! (I guess that should read liver!) Wow!... that pill was a very large bugger, for a second it didn't want to go down. S...
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Iris Dragonfly
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140
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6551
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No symptoms but starting Mavyret
(Preview)
Hi all, I started treatment about 3 weeks ago. Ive had this virus for about 50 years and have had no symptoms. I keep reading about after treatment people do not feel well and sometimes feel worse.I was questioning myself why I even started since I have no symptoms. However my doctor advised me to start t...
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Sis246
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14
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168
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MAVYRET Ziggy Starting in April 2018
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1 2 3
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(Preview)
... Good Morning, I have the next three days off from work. Getting ready to make my breakfast of the day and take my first three MAVYRET pills of this first new ride journey of my first Hep C treatment ever. Drinking my ice water already. This was not the way I wanted to do my spring fever. lol I'll keep y...
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Ziggy65
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149
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8261
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Lil started Harvoni this evening.
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1 2
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(Preview)
First of all, from those who have read my "New Member " introduction post, I have carried this virus around for a long time. I have suffered Panic Disorder for years, and the general anxiety that comes with it. It sucks, and I kind of wondered all these years, how much the HepC contributed...Oh, a...
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lilbrownie
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76
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1200
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Annie and Epclusa May 10/19 SOT
(Preview)
Pill #1 is down, along with a big glass of water. Will keep you all updated.
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Annie
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35
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348
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My toes are numb
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1 2
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(Preview)
I read somewhere folks were having issues in this department. I cannot feel my 3 middle toes on my left foot. This is bugging me a lot. Will it go away?I tried rubbing them and stamping my foot, and it may help a little but not for long. I was also getting debilitating ....not really pain per-se but elimin...
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Iris Dragonfly
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87
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2168
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Mavyret 1 yr post treatment: NOT DETECTED
(Preview)
Hello -- It's been a while since I've been here. I got my labs back this week. I completed 8 weeks of Mavyret on Feb 27, 2018. It's been 1 year.HCV Not Decteded!! WowAST 16, ALT 17. and WowMy gastro doctor didn't do the labs for me, he said I was cured and it wasn't necessary. I got my primary doctor to order th...
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mpls
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8
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230
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'Ash and the twin-headed Dragon'
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1 2
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(Preview)
Hello everyone, I am 58 and was diagnosed with bowel cancer in spring 2018. Gone through surgery in the summer, then got more bad news (multiple mets in liver, lungs and lymph nodes). Started chemo in late August, got halfway through it by late October - and finally the first bit of good news, cancer ...
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Ashenvale
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58
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1591
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Mavyret.2
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1 2
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(Preview)
I started Mavyret 3 days ago. I've had hep c for 40 years, treatment naive, Genotype 1b. So far so good, not one side effect. Is there anyone else out there who is on it and/or completed it?
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mpls
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71
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5537
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Started harvoni 5/1/18-my thread :D
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1 2 3 4 5 … 8
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(Preview)
Now on day 11.5 :D . I'm so happy to be here and have had fun posting so far. And now I have my thread on the ON Treatment subforum ....so far so good here, looking forward to enjoying every day along the way, the good and the not so good.
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5-1-18
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386
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14055
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Mavyret and Me
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1 2 3 4
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(Preview)
Hi everyone, I started my treatment 09/13/18.The first seven days weren't to bad.I had some nausea,slight headache,and fatigue.All to be expected.Yesterday day 8,I decided to big rig to my office(about 75 miles south of my house) to remove packing I had left over from a delivery I had done several w...
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Shemp
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193
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4179
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Best time to take Vosevi?
(Preview)
just wondering about opinions on the best time to take Vosevi? Day or night. thank you
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Android6
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1
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159
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Started Epclusa 1 May 2018
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1 2 3 4
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(Preview)
Hi all, thought it about time I started my own thread rather than hijacking 5's all the time, so here goes. lol I have had the virus since early 80's although I didn't know it as I was diagnosed with hep b at the time. I thought I had ridded myself of that but about 20 years later learnt that I was hep c pos and ha...
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SeeTheLight
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177
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8324
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1/15/19 Day 1 begins tomorrow EPCLUSA Journey
(Preview)
Not sure how the next week will go as I'm starting Epclusa tomorrow. Been a life long journey with Hep C received a BT at birth. I found out I had Hep C in college back in '93. Looking forward to clearing my system and move on from this virus which has wreaked havoc on my body in many different ways over the ye...
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katpanics
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44
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775
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Hoodies Epclusa journey starts 7/26/18
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1 2 3 4 5
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(Preview)
Im starting my own personal thread to keep track of my journey as was suggested by Tig and others. Thank you all so much for being here as I embark on this scary and exciting new phase in my life. Im a little depressed and anxious. Spent this weekend sleeping a lot and being alone, except for my A.A. meeti...
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Hoodietree
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244
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8007
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Started treatment
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1 2 3 4 5
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(Preview)
Hi. Just started Epclusa. Am on my 4th day today. Oh no, sorry, my 3rd day. Tomorrow morning will be my 4th. I had a thread in the introduce ourselves section but just before i started these meds I was really ill for a month so, that thread relates to that, rather than this trip with Epclusa. There is some...
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HepCGtype2
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227
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15960
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Epclusa for gt3 - Started May 27
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1 2 3
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(Preview)
Hello friends! I thought I'd also go ahead and create my own thread since I am no longer "alone and scared" (well maybe just a little scared still). I started the Epclusa on May 27 for gt3. At the time, I wasn't sure what my viral load was, but I just asked my doctor and she said it was 653,000 (seems pretty l...
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JB
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111
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6268
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SVR!
(Preview)
I have no idea at what point this happened but my bloodwork of last week came back virus undetected! My doc says finish up the pills and see you in 2 months for the last labs. I must say, that all in all, the Harvoni ride was pretty smooth. Woohoo!!!!!!!!!!!!
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Karyl
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5
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573
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Milk thistle and other supplements
(Preview)
I'm a firm believer that taking milk thistle daily for over 20yrs has helped my liver cope with the Hep c. I'm starting on Harvoni TOMORROW!! Getting on that train. Dr. Andrew Weil suggests that everyone with liver problems should take it ESPECIALLY those us on treatment. Thoughts? Should I co...
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Karyl
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25
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1097
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56 days done on Epclusa
(Preview)
Hey, done 2 bottles of pills now, 28 pills to go. a bit tired but still working at a very strenuous job, so not bad. Nurse called yesterday to see how i was doing and if i was on any new meds etc. she said i would have to wait 12 more weeks after treatment ends to get blood work done. bit of a wait but not a problem,...
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woodytwoshoes
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13
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1101
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Treatment while on methadone
(Preview)
I usually post for myself but this is for a friend who does not have a computer. I know that this group has so many answers. Q He has hep c and is on methadone. He says his program wants him to go for testing. How do I guide him? He is on medicaid. Is there a drug that works well with methadone? I am on...
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marjim48
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12
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1849
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