Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> The HCC Treatment Train
Post Info TOPIC: The HCC Treatment Train
Canuck


Guru

Status: Offline
Posts: 3249
Date:
The HCC Treatment Train
Permalink  
 

Oh RC, how nice, "out" again! I wish they would stop scaring you tho (and us)!

Nobody, especially you and Chris thought this would be easy, and it is NOT!

But, despite all (and all is a lot!!) you and your team have made it work! 

A perfect liver, it was meant to be. You will now trounce this virus lickety-split, with your new liver and the god-given stardust.

I am so relieved the enzyme scare is being attributed to HCV type inflammation, because you are going to make short work of that inflammation. 

Your liver is only going to subjected to a very (relatively) short insult of hepatitis!, and has the bristling, healthy whereforall to withstand so, so much now. New and functioning beautifully, you got the guaranteed formula to freedom.

I am glad to see your well-weathered/hard done-by tree avatar again BTW. Next time you drive by that way, you may well-be home free again!! That tree will act as a flag-bearer or grand silent sentinel marking your way for these hard-won successful journeys. We'll have to see about getting a Polaris flag up top there!

Nice you got folks coming to you. Take it easy.

Oh, I noticed your updated your sig. line! smile But remove that word "don't", you do !, every blessing! C.

 

Photo was too large, had to shrink it! Tig

 


-- Edited by Tig on Saturday 26th of August 2017 11:08:47 AM



Attachments
__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Thanks for the update, RC. That's a relief, because we know that thick skinned lizard doesn't stand a chance against that quiver full of Vosevi arrows heading it's way next week! Enjoy your family and we'll circle the wagons around the train.

This time your Dragon is going down to the best arsenal you can throw at it! Rest up and prepare for battle... 

 



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

The biopsy results are in. It dosen't apear to be any sort of rejection . It shows some slight inflammation, but no rejection.  At this point in the game they feel its the HCV attacking the new liver- causing some inflammation and shooting up my ast & alt.  Give this virus an inch and it wants to take a mile. The dragon never sleeps- and seizes any opportunity to attack your liver and kill you.  This has become quite a personal battle for me. It all started out about 3 years ago, I wanted to seek treatment and save my self and keep my god given liver. I have gone through  two treatments now and a liver transplant ( whitch by the way is my god given second liver)and I'm still trying to kill the beast. Its still trying to devour me.  Talk about a battle!!  

I'm out of the hospital now-back at the hotel.  NOW THE REALLY GOOD NEWS.  I spoke to the specialty pharmacy late this afternoon and my insurance approved the order for VOSEVI and I will get my first 28 days supply this Tuesday. The drugs literally are on the way to me right now. There is NO copay, my insurance is paying 100%. NO COST TO ME!!  12 week treatment plan. 

 On 8-29 2017 I pick up my new sword,my new shield,and I go into battle this time with hundreds of millions of soldiers at my side.With this army for me, who can stand against me? All my forum generals at my side and we will make quick work of this.  

I have family coming to Seattle this weekend so I may not be posting much, but will check in and see you all Monday.    RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Lindsmatt52


Senior Member

Status: Offline
Posts: 291
Date:
Permalink  
 

RC-Bummer that you were awake at 4AM but YAY! about the Vosevi!  That is awesome news and hopefully you can get on it ASAP.  Sending prayers and positive thoughts about the liver biopsy results!



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

It's Friday morning 4-am.  I did not sleep much- i just dont in this hospital setting. Still no word on the biopsy report- but it will show up today, hopefully this morning so we can mount a defence. GOOD NEWS- last nite at 6pm we got a call from a team member saying the request for. VOSEVI has been approved and the drugs have been ordered. Like I said before- I'm holding my own clinical trial and I'm calling it POLARIS 5  At rounds this morning i'm sure it will come up that the drugs are approved and they may lay out the treatment plan . The insurance company diden't hesitate , all they could say was yes yes yes!!  Understand I dont have the drugs yet, so anything could happen, as we all know can and will at times. But for now it's a solid yes!!   Im eating good again- pain is well under controll we should get things rolling again today.   I will keep the thread updated as the day progresses.   RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Yes RC has many folks praying for him. I believe a train load Glad to hear it wasn't a clot and they will find out soon what it is. After the first old skool asleep biopsy. I have had 2 wide awake biopsies and after the first one BB, I refer to the needle as a harpoon. They didn't get a big enough piece of liver and had to do it again. They actually showed me it! They did just as RC said, marked the site, kinda like a tic tac toe board on me. 

 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Greetings,

We all know the short lifespan of HCV. Only replication keeps the thing alive.

That said, your enzymes will in fact rise some I assume. The ALT / AST levels prior to introduction to The Dragon will of course change.

You have yet to defeat The Dragon. You have added a new weapon in the fight however.

Prayers work, He listens, and you have mine. wink

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Thanks lindsmatt52, thanks Tig.   I asked and they dont have me on any blood thinners.Most likely because of all those years around all those paint thinners And solvents-LOL (Mechanic RC) They used ultra sound to mark the spot for entry- it was so easy- the fear of biopsy kept me away from treatment early on. Still no word on my biopsy results. Waiting is ok. Yes Tig some sort of rejection is expected at this early stage of the game- they wearnt as surprised as I was. They have even mentioned that it could be the hcv virus attacking the new liver. What a hoot that is. The dragon never sleeps and its already pounced on my new liver. Good thing the Doc's  have my treatment on order  I will get the new GILEAD drug VOSEVI. Its the new Rescue drug   Its going to be my North Star.  Still no news on biopsy  I will be back when i get something on that front   RC

 

 



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hm, RC,

Trying to think positive here ... so, enzymes increasing? Rule out blood clot - check/done/good. Monitor (via all methods, including tissue samples) and keep looking for signs of rejection and then counter appropriately with tweeking the drugs - check/done/good - so what is left for an explanation? ... what ELSE is indicated by increasing enzymes? - maybe just your HCV!? - a new liver now being subjected to increasing levels of pre-existing HCV taking up habitation? I look for a simpler explanation.

We here are "willing" that all behave!, every cell and molecule!

I agree with Tig, they kick people out of hosp. waaay too soon. I was shocked they kicked yer butt out the door so soon. All of this is hard enough, but to make you drag yourself around, to and fro, immediately the first week is rather, well ... I don't agree with.

All our good thoughts are of and with you, do you feel the space around you crowded?, that's just us, taking up space and air.

Rest. C.

 

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
bbomb


Veteran Member

Status: Offline
Posts: 82
Date:
Permalink  
 

Prayers your way RC!! pray.gifpray.gifpray.gif

Yep I had a wide awake liver biopsy too years ago.....After they numbed up the injection site between the ribs they used a spring loaded needle that shot into the liver and out so fast it was over in a second. All I heard was a click and it was over. Super easy, although the whole time up to that point I had the worst migraine headache from hell from all the stress of the unknown getting ready to take place. Ended up being no big deal at all!! Glad yours went well too. bug hugs!!



__________________

55 yo GT1A F1 minimal fibrosis HCV dd 1996 

3/16/17  HCV VIRAL LOG 6.529

6/21/17 started Viekira Pak and Riba 800 mg per day for 12 weeks 

as of 7/19/17 NOT DETECTED....Slaying mode!!! YEESSS!!!!

Miss Brenda
Lindsmatt52


Senior Member

Status: Offline
Posts: 291
Date:
Permalink  
 

Take care of yourself, RC.  You are an inspiration to so many! Sending positive vibes for good news on the liver biopsy!

 



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Don't be scaring us like that, RC! You just seem like it's a simple blip on the radar and I hope that's right. I imagine your team has seen it all and I'm so thankful you're staying a couple of blocks away, but right now I think being in the hospital is the best thing for you. I didn't like the idea of you being discharged so early anyway. They can monitor you so much better right where you're parked, in bed with your team in the same building. 

Very happy to know there isn't a clot involved. I imagine they have you so anticoagulated that clotting isn't the best anyway, but that's what they want right now. Don't nick yourself shaving!

I had a wide awake biopsy years ago and it wasn't so bad. Wasn't the greatest either, but it's over in a nanosecond and mine felt like a sharp thump between the ribs. In your case they weren't concerned about anything but getting that sample and doing it fast. Good for them! I like them even better. They're taking care of our Brother the way we would like to be treated. They don't want us standing outside your room with signs, so they better treat you like a Star! I know they are and you're very fortunate to have such a good bunch of caring people by your side.

I'm guessing that some sort of rejection is part of the process anyway. Getting started and used to the oral medications has to be quite a process. Nothing about any of this is easy, but I know you're tough as nails and will handle what needs to be handled. Keep us informed when you have any news. 

Praying for all that's good....      



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Thanks Jimmy! This is life on life's terms.  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Prayers continue brother. Your Spirit is amazing.

Jimmy



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Well that great day i was going to have yesterday kinda didn't work out the way I planed it! imagine that !!   I went to the hospital for the blood draw at 8:30 am, that went well, only two sticks to hit the mother load,, stoped on the way out for Starbucks and then it hit me, yep it hit me- I took all my 9:00 am pills and i got pretty sick to my stomach. I was feeling pretty quezze before i took the pills but they polished things off, I did NOT puke them up but my appetite was gone. The last 3 days my appetite has been poor. I just sat there and watched ragdoll enjoy her coffee. We called the shuttle to take us back to hotel (only two blocks from hospital) but im not ready to run any marathon _thats for you perry_. I saw you were doing alright perry, happy for you.We got back to our room and i crashed into bed and layed low- That is intel the team called and told me to get to the hospital ASAP. They said my enzymes were going high and they had mean things they wanted to do to me LOL. LOL

As soon as i got there they ran me off to ultrasound and I had the most thorough liver scan I have ever had. It was impressive, great pictures with all the Doppler readings. They were looking for a blood clot causing the spike in enzimes. I have good blood flow to my liver and throughout my liver. That was the best news i could have gotten. If I had a close they would have had to open me up again to fix things up. Thank god its not a clot!!   So a couple hours later they preformed a liver needle biopsy. That was an experience . All the biopsys i have ever had  done were when they knocked my out. NOT THIS TIME. NOPE, WIDE AWAKE I IS FOR THIS ONE.  CONCLUSION--no big deal, really- no big deal.  Everything you ever heard about how painful and gruesome a liver biopsy is - all not true.(fake news as Donald would call it) Its over before you know it and its so quick and painless, If the fear of a liver biopsy is standing in the way of your treatment, please beleave me, its painless and easy.  Biopsy is no big deal.  The spot between two ribs is sore, but the actual pokeing of the needle into the liver  was quick and painless.

They say its some sort of liver rejection, the biopsy results will tell them what's going on. When I find out i will let you all know, should have answer late this afternoon. Later. RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Pain control is so important, not to mention it makes everything feel a bit better! Mind and body benefits from it. Do you have a catheter (shunt) for blood draws? If not, you're going to get tired of all those needle sticks. 

Enjoy your day. I always loved going down to the pier and waterfront in Seattle. I used to hop the Ferry and go over to the Bremerton side and cruise around. The San Juan Islands are pretty cool, too. A bit of a drive tho! Don't wear yourself out and make sure Chris keeps her foot off the gas in your new red rocket, lol!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Lindsmatt52


Senior Member

Status: Offline
Posts: 291
Date:
Permalink  
 

You are truly amazing, RC!  Enjoy that Starbucks and good luck finding your next temporary home!



__________________

64 y/o female, no idea how HEP C contracted

diag. 6/2017, GT 1a, VL 7.64 mil

Fibrotest-.41 (F1-F2) ; Actitest/Metavir 0.18; Apri: 0.266

Mutations detected: Q30H/Y, H58Q

Alt-33;  Ast-28

4 week:  VL<15; ALT-7 AST-11: 8 week: VL-UND, ALT-9, AST- 9

 Epclusa SOT 8-31-17; EOT 11-22-17

Lindsay
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

It's going to be a GOOD day!!  HOORAY! HOORAY!!  I slep pretty good last nite, they changed my pain control pills so I'm taking them closer together time wise and thats working!   

It's off this morning for a blood draw, then some Starbucks, then at 9:00 am sharp I take my fist full of life giving pills and Then Ragdoll and I will drive around downtown Seattle to look for long term accommodations.   Latter!!  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hey RC,

I guess our sky diving trip for Saturday is off, huh? I've got tickets for that new trampoline park, you game? Mud wrestling? Alright, so I'll save those for another time and see if my buddy still wants to take the Air Boat out gator hunting, you can drive! Now if that don't work, I guess a six pack of cold water and HBO will work, too. You let me know and in the meantime, take it easy Clark Kent, Superman is tired....

Talk to you tomorrow!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Hello Brother, it is so good to see you happily posting.

I remember when they removed two tumors from my Pancreas. They were supposed to just poke a hole in me and that would of been it.

But I wake up with a Zipper from the base of my chest to my belly button. Apparently something did not quite go as planned. Poke a hole in ya. Sure thing.

Anyway I got into a no eating mode mainly due to the pain I guess. I lost 70 lbs in 3 months. Poor Carol thought I was going to kick the bucket.

Boost.

That stuff literally saved my life. That gut ripping stuff leaves quite a tinge.



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

 Hi all.  It has taken 20 hours to catch back up on the pain managment After all that running around yesterday. My appetite is bad and thats a first for me,i wont drink my water,my whole abdomen is hurting but im getting better every hour.  Im staying in today- wife is out looking for long term apartmen. (6 weeks to 90 days). Were in a hotel downtown, small with no kitchen or anything.   Labs tomorrow morning, clinic again on Thursday .  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Good Morning, RC! I really don't understand why you're tired. Have you had anything special happening recently? Fatigue can be caused by so many things. We'll have to figure this out before the Seattle Marathon on Friday. You have the Pole position! 

Bwahahaha!! Sorry buddy, I couldn't resist.... Glad to hear you're doing well, but not surprised you're feeling an occasional bump in the road now and then. You are still up for the Swedish Transplant Poster Child of the Year award!

I'll check out the drugs you're taking, but I think I'll pass on trying them. I will defer that experience for the time being. I'm sure they will take some getting used to. We'll be grateful they are available and getting them adjusted will be your next assignment. You'll be starting a new one soon, so get ready for that! Any time table set for a start date?

Do I need to remind you to stay hydrated? You know me! Drink up wink



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

He's Back!!    WOW what a day i had yesterday.     It was the hardest day so far.   It started out really good pain wise.  I need to get 3 walks in a day, the morning walk was ok. Then my mid-day walk would be a walk to the lobby,onto the shuttle buss to take ragdoll and I 3.5 blocks to the Liver Transplant center for my first ever post transplant clinic. So mid-day walk will be the walking during clinic! Lets call it clinic day for the rest of my Recovery time here in Seattle.(6 weeks to 90 days) I MUST stay within 5 minutes of the transplant team. Did i mention that I have the best team on gods green acre's? We went over my blood draw from Sunday morning, they really need to keep an eye on the anti-rejection pills  and everything in general.My potassium is high!  Ha-Ha.  Man if thats all they can find out of wack its a good thing!!  Lets go down the list of the really important drugs im taking. Ok here goes__

Tacrolimus (street name is Prograg)

Mycophenolate (street name is Myfortic)

Prednisone (street name is some bad ass steroids)   (Nasty stuff)

Valganciclovir (valcyte)

Fluconazole  (you guys pick its street name)

So in clinic they bump up or bump down the med's  to get me into my sweet zone  Ya really- i can be a sweet guy just ask ragdoll      I will be back- its shower time   Later

 



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

So buddy?

How is the zipper holding up, now that you knocked down that forest of redwoods?

How is movement (on any level)?

Seriously, how are you feeling/doing? We can all imagine this is tough, tough, tough work, but only you know how this battle is going.

Do you have to pour yourself in and out of that fancy car to get over for lab work everyday?

Are you off, or on, the prednisone now?

I read up on the other 2 anti-rejection drugs you mentioned, aside from offering a million other sides, one likes to toss in constipation and the other one, the opposite - hope they balance/cancel each other out - reminds me of this song:

https://www.youtube.com/watch?v=WANNqr-vcx0

Hope the sleeping dept.  is OK. NIte. smile C.

 

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Glycerine suppository. :)



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Boxer. go look at your thread on dual hospital.  I posted on your thread. Go read it and comment in that thread. RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
boxers


Veteran Member

Status: Offline
Posts: 75
Date:
Permalink  
 

Hi RC, I am new to this board. I have been reading your comments since you got called for transplant because I too may be going to Swedish...Dr. Precht is my evaluation doctor. He also did an emergency umbilical hernia repair last Jan. I am so excited and impressed with your outcome, it reduces some of my anxiety. You are most certainly the champ for all of your friends and I am sure Swedish is over the top impressed with you. Anxious to hear your story when you are better.

Hope to be in your shoes soon.

Debra



__________________

65 yo female

dx. 1996

TX with interferon/riba 2001..failed

Uncompromised 2015

TX with Harvoni  2015..virus undet.

Meld 14 7/2017  TIPS 1/2017

 

TP 5/12/18 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Im the new Swedish Hospital Liver Transplant poster child now.   LOL.  RC

 



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

I can't imagine why? Already home, that's simply incredible! You need to get a tattoo of Superman choking a Dragon! Rest easy my friend, you have a reason for the brain fog right now!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

just tired and not clear headed.



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

I'll take care of that RC! I just logged in, lol! Stoned??? wink



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Hi Ya Jimmy.   Ya its time.  Im on it Thanks.  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Good morning Robert.

Don't you think it is time to update your sig line? Hmmmmm? wink

JimmyK

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

I'm ready for the day. It was a long night. I want my button back!!  HA-HA!!  No really the pills are working. CC i like the lizard of OZ. BB I love your boots crushing the RIBA- that is some nasty stuff and its looking like we wont need that any longer. After two rounds with riba I can tell you it screws you up. Nasty nasty stuff. And I'm with you Tig on how long it takes to wash that stuff out of your system- at least 6 to 8 months. My ears are still ringing(will someone please answer that phone already). I'm a little disappointed with my transplant surgeon, I asked for the Lexus incision to match my new car but came out with a Mercedes Benz incision, that may slow me down a little- I was told the LC500 will go 175 mph- so its only natural the MB will get in the way. We will see and i will let you all know- But thats not happening for a couple months or so. I will be in Seattle for 1.5 to 2 months , they want me close by the first couple of months to keep s close watch out for rejection. Im on 3 anti rejections, and 1- anti fungal, 1- anti bacterial,and one anti something viral my donear and I already had.  So far just a few days into it the S/X aren't bad. Im still waiting to lumberjack and knock down a few trees- Thats really going to help. I can feel the forest through the trees if ya know what i mean. Just ordered in breakfast, going to take it easier today- less moving around. Listen you all for the sonic boom- i will report back soon!!  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

I too loved BB's "Lizard of OZ". heehee wheeee. How bout .. Lizard Wizard? 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

There's no place like home, there's no place like home, there's no place like home............

(we really need a liver icon)

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

WHAT! Ho-ly cow. CHECKED OUT!!!!!!!!!! Un-be-liev-a-ble. Astounded. C.       0    0                 

                                                           0  

                                                           



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Good Evening all checked out of hospital got here at hotel @ 7:00 PM by the time we got settled , ate dinner, got all meds down.  I am exhausted but doing well.   Will post more tomorrow and as the days go by.   Thanks again for all your support and kind words.   NIGHT.... RC & CC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
bbomb


Veteran Member

Status: Offline
Posts: 82
Date:
Permalink  
 

Believe it and receive it!



-- Edited by bbomb on Friday 18th of August 2017 02:44:10 PM

Attachments
__________________

55 yo GT1A F1 minimal fibrosis HCV dd 1996 

3/16/17  HCV VIRAL LOG 6.529

6/21/17 started Viekira Pak and Riba 800 mg per day for 12 weeks 

as of 7/19/17 NOT DETECTED....Slaying mode!!! YEESSS!!!!

Miss Brenda
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

You will be our first retail (non trial) member that gets Vosevi. I knew you still had that in front of you and am glad to know they're going to get you started right away. How much time are they giving the new innards to get comfy before they start the HCV Tx? Hopefully soon!

From your graphic description, it sounds like you have a scorched earth plan for the unwelcome lizard! Neck stomping and all, lol! Give it hell, buddy....

 



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hm, so you are well "institutionalized". In bits and pieces, striped of control. Too many hard parts to this journey! But, aaaah, but what soft bliss is your brand new buddy laying in your belly, and that "peace" IV on demand (well, that sounded good, for at least as long as that lasted!), but bit by bit, you will now gain back some real control - won't be long. You are no stranger to having to deal with pain, all kinds, you (I am certain) are and will handle all of this too. Sooo, what's on the menu for oral pain-killers? Tig's right, let them be handy with bowel "aids" if necessary.

Man, this is so weird, another bunch of really weird backward/forward countdowns for you to deal with! You now have the ammo to deal with that virus, a liver that can perform, and the triple to do the trick with! I have a feeling RC, that perhaps all of your life, you may not have always done things in the most simple straightforward ways!

First things first tho, no choice about it, have a dump! Prioritize! Start with some simple gas. Do you have a ward room or a private room? No time to be polite about it. 

Man, what a whopping dose of prednisone!!!! No wonder you went off the wall with your kill, KILL, KIIIIIILL rant! Oh, I like that anger BTW, that's a very good sign, and that's not JUST all that prednisone talkin' either, now I KNOW you are OK! Just surprized you slept last night with that big jolt bolus of steroids! (had a friend once with a sarcoma, who they did a very fast and furious ramp up of prednisone, she went from laying in pain to sneaking out of the hospital the next night as she felt an irresistible energetic compulsion to go jogging, and she did)! Hmph, it also increased her appetite and you say "they" are in control of the foodlocker?   

Yup, you just gained yourself so much more time! It's a new life. Time now (soon) to finish the unfinished viral fight, and as sweet as that victory will be, really, it will be an unfair fight, now, with all your secret weapons. Your greatest victory(s) have already started right here and now. Lucky, lucky, lucky you are and strong too. Man you impress me! Hang in there bro, yer getting stabilized, synced, back in semblance of "new" balance. Patience (and grit) is a virtue, thank goodness you ARE made of the toughest material known to man! biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

I think you sense of humor got even better with the new liver RC! This thread is such a treat to read. Ladies and Gentleman, may I present, the Lizard King! Yeah, this new liver with the triple threat will beat up, eat up and sh*& out the HCV. Tig we need a picture of a liver with boxing gloves...........



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Observer


Guru

Status: Offline
Posts: 714
Date:
Permalink  
 

Robert, I'm pretty darn confident that You and your lovely new liver *will* slay that nasty HCV3! So youre  going to do a new triple therapy? That's so awesome! (With the AR pills and the dragon slaying pills, you will be taking a lot of pills everyday) You're going to have to be Mr organized.

I'm in the wilds of Vancouver Island this weekend, but I had to find wifi just so I could check up on you.

bless

Alison



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Don't I wish the dragon was dead and gone- but that's not the case here with my situation. I'm still in a fight with the beast.  This new liver is in perfect condition, however its blood supply (my blood) still caries the HCV3 virus.  So as we speak the virus has already invited itself into my new liver and has every intention of devouring it just like it did to my original liver.  The fight is still on, but im coming to the battle with the new GILEAD triple rescue drug. Thats the weapon thats going to strike the fatal blow and put this beast to death!

I'm ready for the fight, you all got my back, its going to happen this time real soon. I will crush its neck and head with my heal,and choke every last breath out of its worthless lungs This dragon will spill its guts onto the scorching desert floor, and in the end will choke on its own wretched worthless dust screaming for mercy, thats when the head comes lofted off and placed on a sharp pole to be seen by all for what it really Was?

I'm hoping to pick up my new suit of armor and sword within the next 30 days. I got this one in the bag folks. I just need a little more fighting time and I got the thats for sure. RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hey RC,

Were your ears burning? Canuck and I were just having an in depth conversation at your expense! I no sooner got the message sent and boom, here you are! We are indeed a family and can sense when someone is sending out the vibes! That's a good thing and something I've come to appreciate and value here. We have been waiting right here in your corner, Bob. You went 11 rounds and knocked that Dragon and it's unwelcome baggage out in the 12th! You had quite an opponent, but the lizard didn't know who it was dealing with. 

I'm surprised they cut you off of the good stuff so soon! Just as well. I know from experience, the longer you're on it, the harder it is to say goodbye. But two days seems premature! I would've kept you feeling a bit numb for a few more days anyway. I'm sure you're being managed in some fashion, just do your best to keep it under control and don't start moving your room furniture around anytime soon! 

If you can't get any cooperation for Door #2, a good shot of MoM and Cascara should loosen you right up! That stuff always reminded me of Seagull Sh*t and tasted just like it. Don't ask me what it tastes like... and don't stick your head above the windshield driving that new Coupe of yours or you may find out! I'll be sure to tell the California Timber Association to plan on a few downed Redwoods sometime this weekend.

Stay in touch and don't leave out any of the details as they come to mind! I'm glad you're back and you do sound good, thanks for the updates. If you need anything, let me know...

Best,   Tig            



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Man, Its hard to get anything done when your in the hospital, i said i would get back to the forum in the next hour and its been a day already! They sent in the mean guys this afternoon and they took my little black push button shot thingy away from me. I was just starting to like the liquid pain relief button, and then whoosh its taken away??  Said it was time for me to move on to solid Foods, and pills, o ya and they controll the input now not me!   

But really all in all I'm feeling pretty good. Had the surgery Monday, went in around 1 ish in the afternoon and out about 7ish that evening. Spent 22 hours in ICU then moved back up to the 11th floor for my recover . The breathing tube came out pretty soon after i woke up from anesthesia, didn't have to sit there in missory to long. I really feared the breathing tube. Not even one full day in ICU, im kind proud of that fact!!

Yesterday they had me up on my feet( which by the way i can bairly feel thanks to all the nectar of the poppey)that was for you CC.  LOL    I did 1 lap around the floor three time yesterday, and it really wasn't that tough, during the walk that is, but after i came back and sits it really starts to hurt . Im doing the air breathing thin every hour, to keep my lungs clear, its aplastic thing that you breath into and do your best to keep the float between the two markers. Anyway had a lot of Dr's looking in on my saying things are looking great. Had my first anti rejection pill early yesterday, they wait a day before you get your first rejection pill, then they watch your blood work and enzyme levels and start tweeking your A/R med. Im on two now, one is called Prograf, and the other is called Myfortic..  O ya- and they top that off with 500 mg Prednisone- which they quickly start to back off on the next day. The prednisone hits hard but they start backing it out fast. 250 today then something like 125 tomorrow? Something like that anyway.

Ok Tig- You had to bring that poop situation up??  The pain in my gut has moved on to the pain in my ass if you all know what i mean. Its been a few days and that tall cotton is looking mighty inviting.They say it will happen, so listen you all for the great sonic boom that originates in the great north west, it should knock down a few old redwoods in Northern California, i think your gonna be ok down in Florida Tig, My aim ant that good anymore!!

Today was a lot like yesterday, walking was easeyer, been eating well- My appetite is good!  Just one thing going on they are concerned about--My white cells are up , they did a chest X-RAY- all good. No fever.  There thinking its just the new drugs causing hi white cell count.No worries yet.     I love the lizard of OZ, and dont forget the zipper.  Your all great, thanks for all the support . Thanks Jimmy- thanks CC and all of you- Thank you!  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Nah, that's not RC! If it was RC, he'd be sitting in a snazzy red Lexus Sport Coupe. This guy looks like he's just pooping in tall cotton. Of course RC is probably enjoying some of that too!! Ha, Ha! Come to think of it, with all those opioids, he might be wishing he could poop... wink



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Tig, what's with these poppy fields in Ozland? IS that RC!

 

Attachments
 


__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
bbomb


Veteran Member

Status: Offline
Posts: 82
Date:
Permalink  
 

OMGOSH! This IS the BEST story EVER!!!  I have tears running down my face.....I am so amazed at all of this and so happy for you RC, WOW!!

Great Big Hugs To You and Yours!!!!! HIGH FIVE!!! clap.gif

"The Lizard of OZ"     slayer played by "RC"

Your Forum Friends here clickin our heels for your ride home on that hot air balloon ride/drip lol



-- Edited by bbomb on Thursday 17th of August 2017 03:03:28 PM

__________________

55 yo GT1A F1 minimal fibrosis HCV dd 1996 

3/16/17  HCV VIRAL LOG 6.529

6/21/17 started Viekira Pak and Riba 800 mg per day for 12 weeks 

as of 7/19/17 NOT DETECTED....Slaying mode!!! YEESSS!!!!

Miss Brenda
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

One more thing, Mr. Outstanding,

It's time to update your signature line!! I think it should be in a bright new color, too! Maybe the color of that new lucky Lexus?? wink



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
«First  <  1 2 3 4 … 10  >  Last»  | Page of 10  sorted by
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> The HCC Treatment Train
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.