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Post Info TOPIC: Harvoni beans and Me
Tig


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Hi Iris,

I missed this post by you, sorry. You have several threads going right now. The most recent in post treatment is the last I responded to. Yes, once treatment is completed, it’s easiest to keep a thread active in Post Tx to stay current. It’s easy to get spread out when there are multiple personal threads active.

It does take some time to get completely back on track. The medication is out of your system in a week, tops, unless you’re on Ribavirin. That takes 6 months to clear and took me a complete year to get over it’s effects. Nasty stuff. I think you will notice steady improvements, hopefully each week. If you have some existing complications from HCV, those can take longer. Things like fibrosis, cirrhosis or joint damage can take far longer. The good thing is, stopping the disease will prevent further progression and resulting complications. 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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LoL! Well I certainly didn't feel "high" but are you saying it will be about 6 weeks or more to be back in sync with my body? Because it was about that long after I started taking the pill and that was like a high..if you want to call it that, because I could feel myself coming on to the pill about 15 to 45 minutes after taking it. It was like a wash of slug energy would come over me, and then I would be a lead weight the rest of the day.
I suppose I should move this to post treatment, eh?
Thanks, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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There is a similar period of adjustment to ending treatment, as there was starting it. Like Canuck mentioned, the “Harvoni High” is real, it seems to be mentioned with most treatments. I even had it, not often, but periods of it. As your metabolism readjusts to being normal and healthy again, you’ll pick up.

In the meantime, rest, relax and recover...  



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Some say there is such a thing as a Harvoni high - but i don't know. I think it could just be like .... "whew"! Go with it. Listen to your body. Needing 40 (or 400) winks, feeling deflated, tired, different ... that does not seem so strange to me to be experiencing, being all you have been going through - I am sorta glad you decided to forgo the moon watch - conserve, recoup, treat yourself well, you have finished the pills but you are still in repair mode. Keep treating the goddess in her temple very well, feed her good and don't forget to water her either. Rest. wink C.  



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Thank you so much Tig, 5, Hoodie, See the light, Canuk. Getting off the train has really left me with mixed feelings. I had been experiencing a surge of energy in the last few weeks,  but today, my second day pill free. ..I'm exhausted, like all day. I had my EOT blood draw this morning, then had a consult with the dermatologist  (we have been burning stuff off and looks like he has to do it some more), anyway when I got back from that I have been a bump on the couch. I've nodded off about 15 times, and refrained from a moon viewing hike tonight because I'm so whipped. What the heck is happening, is there withdraw symptoms at all?

Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Wow Iris, EOT is here. It's a funny time isnt it...... The clock, pill box and little magic bean are no longer the most important things in your life.

Roll on the rest of your life.....An amazing Hep Free life lies ahead for you. xd.gif



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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whoohoo iris! enjoy your freedom from hepC and pill time



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Iris Dragonfly wrote:

So today, the first day of the rest of my life, I'm having some really mixed feelings. AND I already had a panic moment. ..omg it's after nine!!! I got to take the pill...um, no ...not today because,

clap.gif

I have arrived at EOT!!! I have arrived at EOT!!! 


 

YAY IRIS!! Congrats!! Its a brand new day and you have a new lease on life! hallelujah!

 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

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HOORAH!!! How sweet it is!

7CA3951B-8DBA-4467-9087-EC1DAFF58275.png



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Not sure I would be able to manage a needle, thanks for the reminder of those who had a furious battle.

So sorry to be derelict in my my update,  am very busy with Holiday preprations. Didn't get to post the last pill pic.
Here was yesterday's pill!!! Allllll gone!!! I took the last pill in the out of doors in the "light"..... into the light I go!

Hummm can't post pic due to low memory...lol!!! Ummmm, yea, how does it know ? ! ?

I'll be back,  lemme see if I can fix it.

Ok, I think it'll work now, if only I could just remove stuff from my brain to make more memory, lol.

The pill is there on the foot of the chalice.

20180922_093746-1.jpg

So today, the first day of the rest of my life, I'm having some really mixed feelings. AND I already had a panic moment. ..omg it's after nine!!! I got to take the pill...um, no ...not today because,

I have arrived at EOT!!! 

 

 

Hip, hip, HUZZAH ! Hip, hip HUZZAH ! Hip, hip,

HUZZAH !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!***

 

 



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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WHAT! Iris ... you said "I want this so badly to work" ?? Huh?, like ... ya hadn't noticed the early crashed VL at 4 weeks, or .... the 8 week UND, and the soon to be your 3rd UND at EOT? Ahem, my dear .... in case you're missing it, it has already worked! And what's this about not collapsing into joy until SVR52! Huh? Get with it girl, you've been missin some really good parties here, no matter how busy and tired you may be, drag yer butt in here and have some cheers with us. There has been a party going on and ya didn't even notice yet - and it's all in your honor too. You have done it and done it so well. 5 MORE SLEEPS and you are DONE!! Bliss, my dear. A new you started on July 1 - celebrate it, and keep celebrating - every inch and milestone of it. Many good things do not always come easily, often they come fraught with effort and difficulty, which makes the goodness all the more precious. Gulp those last 5 powerful potent saviours down with gusto my dear. Be proud of all you have gone through to get here. No unhappy tears allowed, only happy ones or ones of relief. We are all so very happy for you, and we are proud of you, for what you have accomplished for yourself. biggrin C.

Hey Tig and 5 - eeew, stop with the needles already. OMG! I am so lucky I didn't get diagnosed in the old days!



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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That was how I had to take my first Interferon back in the 90’s, self serve! Fill them and inject yourself three times a week. Didn’t work for nothing, but did manage to make you feel lower than whale poo.

I have a picture for you, Iris, when you’re done. I saw it and it reminded me of you. I think you’ll like it! smile Thanks for sharing your final week of Dragon decimators!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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yes iris, last days are monumental! very moving,,, it is done and donesmile

thnx for that awesome pic, perfect.

and thnx tig for your pics too

i still have some old style needles from when i had to fill and inject myselfblankstare



-- Edited by 5-1-18 on Monday 17th of September 2018 10:56:41 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Okay, it took me longer than I thought to find these hiding amongst the Clouds,  but here’s my memory! One Interferon injection per week, two Neupogen injections weekly, 6-200 mg caplets of Ribavirin daily, for 7 months and 12 Victrelis capsules daily for 6 months... Ugh! I’m so glad you don’t have to do that now and glad you were able to wait to get the good stuff. None of it is or was easy, but the results are still the same! You will prevail and it is worth it!

GLORIOUS!!!

 

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Ok 5 here it is....I really like that BBQ dragon banner Tig, that made me smile.

ONE WEEK LEFT!!!  Well, 5 days!!! I will be done by the 22nd of Sept....the Autumnal Equinox, that's very special and significant to me, I'm so blessed in the timing of this.

Iris Dragonfly

20180916_095034.jpg



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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I wonder if this in part is why I'm all emo lately. It's been such long journey and I want to collapse into joy, but think I should wait for the one year test for that. I wish I'd stop crying, I guess I want soooo badly for this to work.
Awe, I'll see if the device will wake up now.



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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pill box! pill box! pill box!... the masses are rallying wanting the pill box!!



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Iris,

Young lady, you send that photo to whatever device will get it on this forum and post it! If you want my personal email, just let me know and I’ll do it for you! That is a powerful photo that will be placed into Hep C history for all of your fellow Warriors to savor.

I want you to enjoy every single second of this victory and you MUST believe me, it will be YOUR victory! You deserve this and you have earned it. Let us dance around the victory fire and stars with you... 

I’m going to find the photo of my final “Dart”, just to show you how important it is to remember these final moments, in the life of this thing we call, The Dragon. Give me a few to find it in the Cloud. Everything is in the “Cloud”, lol!

5F60615E-A132-44A6-8ACD-126483F0D11E.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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one week left? . hang in there while the sweet daa does it's last mop up



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Thanks guys, you have no Idea how good it is to hear from you all :) All my other blood work has been normal, I'll look for the Alt and Ast but they were within the normal range.

I wanted to post a pic of my pill box and the last week, (the pic is in my device, I'm on the laptop) But now it is two days later and I dunno, I'm feeling the moment has passed.

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Congrats Iris!! 

Im so happy for you and Im truly inspired by your remarkable journey. 

Thanks and rock on with your beautiful self!



-- Edited by Hoodietree on Monday 10th of September 2018 10:25:46 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

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Congratulations, Iris! I knew in my core that you were going to be successful. I just felt it was never in doubt and your results are proof. Now, two weeks to the finish line and the only thing you’ll have to look back on, is how hard you fought to finally obtain treatment. Keep going and leave that Dragon in the rear view mirror!

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Nice!!!



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Iris sweetie,

I could weep tears of joy for your wonderful news.

You have been through soooooooo much to get that UND and you soooooo deserve it.

I also had VLs throughout my treatment and between that and the the lower/normal liver function tests... it was a good motivator to comply with all of the Dr.s orders/rules...(and to not throw my bottle of evil ribivaron in the garbage)

Did they do your ALT and AST? If so how are they looking?

Its great that you are motivated to clean, nothing as awesome as a fresh start.

xox



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2.5years...post tx... successful dragon slayer 



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WOW, good deal! Happy for ya Iris. Couldn't git much better! So glad they are not cheaping out on the VL testing for you - I always appreciated knowing what the results were as I went along. Lucky you, you got three on-treatment VL's without even having to ask for them! I only did 8 weeks of treatment, but I had lots of VL's done, only because it was a trial. Got any ALT/AST's to go with that UND?

Glad you are feeling OK/up about things, wish i could conjur up a cleaning spree round here! 

Won't be long now - you're alllll-most done Iris! Yay! biggrin C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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I will do another test at 12 weeks. I'm down to TWO WEEKS of meds left. Unbelievable.
Actually feeling pretty good, I've been on a mad cleaning spree!
Love you all!, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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YAY Iris. UND, UND - and that's just the way we do it! RIGHT ON!!! So glad you got those 2 UND's under your belt - feels good to see them doesn't it - yer doing it fer sure! Lovely. CONGRATS on UND#2. Rest a little easier tonight. biggrin

So, you got a 4 week VL and this 8 week VL, does this mean you will (or will not) get at 12 week EOT VL, in addition to these two.

How ya been feeling? smile C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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whoohoo!

biggrinbiggrinbiggrinbiggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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It's official !!!

8 Weeks UNDETECTED !!!!!!

 

          

, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Thanks you two, forgot to mention...I had my 8 weeks blood test today. so I'll have some numbers by next week to report! yea!

bb, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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iris , things seem to be flowing easier for you. yay! so glad you are enjoying the last leg of the harvi pills



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Yeah, Iris! I like the positivity in your message and know things will continue to get better as the weeks and months progress. You’ve done very well and buckled down when you needed to. You got this, I’m certain of it! The end of the line is just ahead, Harvoni Station. Prepare to disembark, SVR-Ville will be your final stop!



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Well, time is going by much quickly-er than I expected. Have been super busy in the last couple weeks after the house ursurpers finally moved and prepping for the the craft fair and cleaning my house like a crazy person for an event here on Sunday (yesterday) I also took a hike with some friends to a little hill out in the Santa Monica Mountains for a Moon viewing Saturday night.  It's only about 2.5 miles round trip but that wore me out quite a bit after sitting on my butt for 2 months! The thing that has amazed me in these last couple weeks is... I feel Better. The lead weight seems to have lifted and, I don't know if this is my huge imagination but my blood feels "cooler"?

The Coast home does thus far feel breezy!

So as Tig said I guess I'm onto the clearing house bottle! Sweeping all the remains of those nasty buggers out, least one should spring back to life, >>growls and snarls<<  Ewe, like a cockroach, bleh. Viruses are strong little dudes, they don't want to die either, it's like a parasite. Eh just like the herpes virus for any of you that are sufferers of that lovely virus may have noticed they feel a little "friskier" just before and during a breakout...this viruses way of spreading the love evileye

Was so busy I didn't get a chance to share the "blossom into health" photo of the first pill from the last bottle.!!!!!!!!!! (The tablet doesn't take very good pictures anymore for some reason) I loved the way the rose is close in color to the pill. DOWN THE HATCH!

Thank you for all your good words and support blessings, Iris

20180826_095527.jpg

 



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Iris Dragonfly wrote:


The last bottle of Harvoni just arrived! Hope package! Box of potential miracles! Soul renewal! Life line!

 

Yay Iris I am so happy for you!!! Way to go, keep up the great work! Almost at the finish line



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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"oh happy day" iris the little brown box full of a miracle.

i'm so happy for you as you get your last botte...woohoo



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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That brown box contains the recipe of your successful journey! I couldn‘t be happier for you, Iris. At least not until you get that coveted SVR12! That day is coming soon, too. Just keep your eye on that prize and continue to do things as well as you have. That Dragon has already “left the building” and these last 4 weeks are simply cleaning the house, for your healthy liver to reside happily ever after!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thank you!! thank you!  for those home stretch blessings! Much appreciated smile !

I cannot stop weeping t The last bottle of Harvoni just arrived! Hope package! Box of potential miracles! Soul renewal! Life line!,  this little brown package is about the most lovely shade of Earth I have ever had the good fortune and luck to behold!  And right on time to be charged in the full moonlight once again. Everything has come together so perfectly, the timing couldn't have been any better. That must mean success! Right!?

Here is my smiling delivery guy, I could scarcely see through the water in my eyes to sign the little board. Oh fraptous day! Caloo calay!

Blessings, Iris Dragonalmostgonefly

20180820_100211.jpg



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Keep going Iris!  You'll slide into home base in a matter of weeks.  You're really maxing out now, and the meds are clogging up, but it will get better after!  We're proud  of you.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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happy,happy downhill slide iris



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Awe shucking husks you guys, that's awfully sweet. 

Yea! Warrior on! LoL...And then she slids into a lump on the couch....

The little dollies are for a craft fair in October, I'm being pretty optimistic about having the energy for this so wish me luck, (it will require leaving the house at 5:30am, my innards aren't ready to leave that early!!) I hope I can manage. It's a long drive. I haven't commited yet, soooooooo, we'll see.

Aaaaaaannnd here is today's update:

As any halfway marker would have it,  the rest of the trip, like Tig was saying  is downhill, coasting,  free ride, clutch in neutral...I  think I will refer to it as the home stretch. That's it. I want to go home. Home to myself, before I was all tor up. 

So this is the first pill on the OTHER side!:

20180812_093448.jpg



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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First and foremost HURRAY HURRAY HURRAY

UND....   you are kicking virus a55. 

And second...those corn dollies are absolutely wonderful! I love seeing them all dancing and exclaiming their joy about your results. Super creative.

Sorry to see that rash, but glad to see youve figured out how to overcome that with your lap protector towel (because you simply MUST keep making those lovelies)

 

 

 



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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The little corn dollies are super cute!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Congratulations Iris, the time has flown.

Sorry to hear about your rash, I guess sweat mixed with perhaps your husks is the culprit but keep an eye on the rest of your body to see if it spreads. Rashes were one thing I was told to watch out for whilst on treatment, but in the heat you are experiencing I expect rashes are common. I know that even though I am an allergic type person I do get more of these things when I am sweating a lot.

I do love your little dollies. Never seen them before, they are just gorgeous. What do you do with them?



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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20180811_092832.jpg

!!

 

yea, that also might be a reaction to the sun the other day? some calamine and yes a towel while corn husking the dolls.. they are so cute



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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WOOHOO! That’s a real milestone in treatment. From now on you’ll coast downhill into the Harvoni Station, EOT-Ville!

I wonder if there’s something on those corn husks that you’re sensitive to. That’s definitely a form of contact dermatitis. Do they have a prickly surface that may have caused an abrasion? If that’s what it is, hopefully it’ll clear up quick.

 

Congrats on reaching the halfway mark, Iris! It’s going by fast



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thank you again biggrin 

So here's the up date...TODAYS BEAN WAS THE HALFWAY MARKER, WOoooooooHOooooooooooo!!!

20180811_092832.jpg

And I have a weird rash. Which I wonder if it was in relation to the corn husks from my corn dollies I mentioned about over in "slug in peanut butter" (I have been making them in my lap) I have never had such a reaction and I have been making them for a week now. Last night I opened a new package, maybe...huh, I just don't know. I was going to say sprayed, but they're supposed to be food grade for tamales. It doesn't itch, more like raised welts with some acne overtones. Corn reaction? Or stuff on them? Oh well. I'll put a towell on my lap. I'm on a roll!

So here's a pic of the rash:

20180811_085351.jpg

 

Aaaaaaand here is some of the corn dollies:

20180810_102923.jpg

Bb, Iriss



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Fantastic new Iris biggrin.gif You must feel just great, particularly since things haven't been good for you on the home front.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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WAY TO GO IRIS You beautiful warrior queen!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Nice!!!!Iris

Seeing undetected never gets old here.

Way to go!!!



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Wonderful news, Iris!!! I had forgotten the feeling of waiting for labs. It's nerve racking!  But, you got them and they're great! May I have this happy dance?

As my specialist explained it, the treatment continues after good initial successful testing because some sneaky viral varmint could be hiding in the deep, or be in the process of replication.

I know you have been having a hard time lately, but it looks like you are about to unload some big problems.  Those numbers foretell a rise in health and wellness.  For now, just slog through the treatment, and try to see the side effects as a temporary condition.

When it's all done, you can use your survival super powers



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

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