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Post Info TOPIC: Harvoni beans and Me


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Harvoni beans and Me
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Hi Iris!

Just stopped by and wanted to say congratulations to you!!  biggrin

I hope you start feeling better and less tired soon, and get some answers about your nerve problems. I remember it took quite a few months after SVR until I started getting any energy back, it`s not always the instant fix we think it`s going to be. But clearing the Hep C virus is wonderful and will have many long benefits for your health.

Wishing you all the very best, Iris...  you`re a survivor and a winner!!  winner.gif



-- Edited by Cinnamon Girl on Friday 19th of April 2019 01:48:04 PM

__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

Tig


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Hey Iris,

Big WOOT  It never gets old hearing those great test results! 6 years ago and I still enjoy reading it, each and every time. Congratulations, you really worked hard to get rid of your Dragon and your persistence paid off in Zeros!

I do hope you get the help needed and some answers. I know you’ll get to the bottom of it. You’re a strong person and proven Warrior. Thats a winning combination! Keep us informed of your progress. In the meantime, celebrate your SVR24+, that’s game over, Dragon!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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iris, congrats on UND

it could be damage from the virus that just happened to show up now, or our age. i have a few things that i wish would go away too.

plus dealing with other life stuff can affect our health too.

best wishes and i sure do understand that emotionally numb feeling sometimes; here's hoping that our future is bright and better. 

5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Thank you all, Tig, Cheddy, See the Light, Hoodie, 5, Shemp, Observer, Canuck, Lamassu, Jill, Mallani, Scruffy, Tanner for the kindest wishes, I am really overwhelmed. It really been worth it to have folks that understand what's going down. 

Well, I thought I would report my 6 months labs. Just saw the Hepatologist 2 days ago. She reports all labs are normal. Still UND. !!!!!!!! wheeeeeeeeeeee what a relief. 

I asked her about the nerve trouble, she said I've cleared the medicine long ago. Well I just want to know if there is any correlation to my sudden onset of numb toes to the meds, because it did come on in the last two weeks of treatment. She didn't think so.

And I'm tired. Thought all that would turn around... she says maybe something else is going on like my thyroid. Also maybe in the same vein as nerves but I feel flat. Don't know how else to describe it. Not much emotion, not happy, not sad, not anything, nor do I really want to do anything and this is really bothering me. Anyone else feel just, eh?

Blessings to you all!

Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Iris, your relief is palpable. Reading this brought tears to my eyes. To see all that has happened to you, and to know you have lived for so long in a place that was full of anxiety and uncertainty, I am rejoicing with you.  



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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!

Tig


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Hope things are going well for you, Iris. smile



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Congratz Iris

No more dark cloud hanging over you. Hard won well deserved.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Hi Iris

Congrats from me as well. Wonderful to see. XX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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Oh Iris, I`m so happy for you!!  Huge congratulations, you did it!!   biggrinbiggrinbiggrin

What a warrior you`ve been, waiting for treatment for so many years and never giving up hope.  You should be very proud of how far you`ve come! 

Now at last you can move on and start living your life, free from Hep C!!  heart.gif

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Congrats on SVR12 Iris very happy for you!



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Male, 66, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.



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They are good karma dragon flies! :)

Related image

Such a wait you had, but how well it turned out. 

I am so glad you are finally free now.

This is a very, very fine day! C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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yay! hurray!

Iris,  I am sooooooo happy for you and sooooo proud of the warrior you found in yourself!

congratulations and enjoy your health.



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Congratulations Iris,you've won.That antibodies thing makes me a little crazy too.But hey,no virus...I'll take it.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 V/L NOT DETECTED

12 Wk post EOT ALT 11 AST 16 V/L NOT DETECTED  Thank you GOD

Take that stupid dragon



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party time ! congratulations iris... what a road you traveled to get here

Related image



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Iris, my sister, Im so happy to hear the wonderful news of your victory!! Way to go brave warrior!!  You have been through soooooo much, physically and emotionally. I feel connected to you spiritually because your strength and courage draw me toward your light

Congrats proud warrior queen!! Im happy for you and proud of you. Way to go



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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WHOOEEE Congratulations Iris. party.gifparty.gifparty.gif

Your Magic Beans Have done an amazing Job worship.gif

Enjoy your Hep Free Life. smilesmile.gifsmile.gif

This antibody thing I find to be a bit frustrating, to know that with any basic testing done (lets say with a needle stick etc in surgery) someone else could go through the anguish of thinking they have contracted it from us, until we can prove we don't have it. Could still be a bit harrowing for both us and them. Guess we can't have it all but it does seem a little odd that although we are cured we still carry these darn antibodies.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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Yippee! Hooray! WooHoo! Sooo happy for you, Ms. DragonFLY! 

Wow, 40 years!  That's hard to imagine as I din't have to worry so long. Those tears are surely about a big release.  Iris, you're cured! 

Yes, you actually can move on.  40 years have probably produced a lot of habits.  You may take some time to shift outlook, or you might just feel like you shed a lot of dark weight.  I'm eager to hear how it goes moving forward.

The folks here helped me sooo much in getting through, as well.  Much love, indeed.

Iris, how are you going to CELEBRATE? You certainly do deserve it, and it marks that change you are looking for.  It's time for some fun! I'm dancing now.  

Oh yeah, the foot, that makes sense that it could be related to your back and will tell you more about your back pain. 

biggrinconfusebiggrin

Your friend,

Ched

 



-- Edited by Cheddy on Sunday 27th of January 2019 03:58:03 PM

__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Hi Iris,

WOOHOO!! Congratulations in your Victory! You really took the scenic train to SVRville, but you got there, lol. You fought hard to get to this moment and I’m glad we get to share your joy. I considered this moment a big check off my bucket list, it’s a big one!

You did it!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hey there you all!!!

Well I got the final results and they were as we suspected...UNDETECTED !!! WoooooHooooo!!!!!!

So hard to take in, not sure why. I did sit in my car and cry awhile after I left....Is it real? Is it really real? Is it really, really, really real??? 40 whatever years is a long time, I think now about the kids I didn't have for fear of passing this along ?.been a lifetime of worry, now I can just move on? Certainly hope so. The dr. said I will always test positive for antibodies. She also agreed to test me at 6 months and at 1 year. I feel a huge relief with that.      All my other blood work was great, everything was in the normal range!!!!

I do have to follow up with foot dr. who is going to send me for a MRI, he seems to think my numb toes is a pinched nerve in my back. 

I added these other links so if anyone is ever interested in my journey (self included LoL) they can be easily found.

LASTLY...a HUGE thank you to all the folks who were so supportive along the way, I could not have done this without the great words, encouragement and information provided by the fine people of this forum. GRAMERCY!!!!!!!!!

MUCH LOVE, Iris  

 

https://hepcfriends.activeboard.com/t64983526/harvoni-sides-and-beyond/

https://hepcfriends.activeboard.com/t65125439/pain-under-ribs-on-the-right/

https://hepcfriends.activeboard.com/t64938992/my-toes-are-numb/

https://hepcfriends.activeboard.com/t64972238/re-infection/

https://hepcfriends.activeboard.com/t64841401/knife-twisting-pain/

https://hepcfriends.activeboard.com/t64933278/health-dept-registration/

https://hepcfriends.activeboard.com/t64950397/depression-again/



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Iris,

So glad you have had your labs drawn.

After your mid-Jan appointment you will have that wonderful positive reinforcement of seeing that UND again and knowing you own your SVR12.

Are you continuing to improve from the ribline/back thing? I hope so. C. 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Well done Iris.Waiting is very hard indeed.I have to wait until mid March for my EOT+12 bloodwork.I'm confident we have won.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 V/L NOT DETECTED

12 Wk post EOT ALT 11 AST 16 V/L NOT DETECTED  Thank you GOD

Take that stupid dragon

Tig


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Iris,

Confidence is the word of the day!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Argh!  The waiting part is so hard!  



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Yea! Thank you sooooooo much! Now to wait.  My appt is mid January. Yea ...a long haul indeed

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Iris,

I am excited to hear that you got your 3 mo after EOT blood work done today!  We'll be waiting to hear (what I am sure we all know will be good news ) ASAP. 

What a long haul this has been...since 1978.  The current year has been challenging in itself .  I have no doubt you will be feeling better in 2019. 

Gotta go polish those dancing shoes. 

All the best!

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Hi Iris,

I missed this post by you, sorry. You have several threads going right now. The most recent in post treatment is the last I responded to. Yes, once treatment is completed, it’s easiest to keep a thread active in Post Tx to stay current. It’s easy to get spread out when there are multiple personal threads active.

It does take some time to get completely back on track. The medication is out of your system in a week, tops, unless you’re on Ribavirin. That takes 6 months to clear and took me a complete year to get over it’s effects. Nasty stuff. I think you will notice steady improvements, hopefully each week. If you have some existing complications from HCV, those can take longer. Things like fibrosis, cirrhosis or joint damage can take far longer. The good thing is, stopping the disease will prevent further progression and resulting complications. 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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LoL! Well I certainly didn't feel "high" but are you saying it will be about 6 weeks or more to be back in sync with my body? Because it was about that long after I started taking the pill and that was like a high..if you want to call it that, because I could feel myself coming on to the pill about 15 to 45 minutes after taking it. It was like a wash of slug energy would come over me, and then I would be a lead weight the rest of the day.
I suppose I should move this to post treatment, eh?
Thanks, Iris

__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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There is a similar period of adjustment to ending treatment, as there was starting it. Like Canuck mentioned, the “Harvoni High” is real, it seems to be mentioned with most treatments. I even had it, not often, but periods of it. As your metabolism readjusts to being normal and healthy again, you’ll pick up.

In the meantime, rest, relax and recover...  



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Some say there is such a thing as a Harvoni high - but i don't know. I think it could just be like .... "whew"! Go with it. Listen to your body. Needing 40 (or 400) winks, feeling deflated, tired, different ... that does not seem so strange to me to be experiencing, being all you have been going through - I am sorta glad you decided to forgo the moon watch - conserve, recoup, treat yourself well, you have finished the pills but you are still in repair mode. Keep treating the goddess in her temple very well, feed her good and don't forget to water her either. Rest. wink C.  



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thank you so much Tig, 5, Hoodie, See the light, Canuk. Getting off the train has really left me with mixed feelings. I had been experiencing a surge of energy in the last few weeks,  but today, my second day pill free. ..I'm exhausted, like all day. I had my EOT blood draw this morning, then had a consult with the dermatologist  (we have been burning stuff off and looks like he has to do it some more), anyway when I got back from that I have been a bump on the couch. I've nodded off about 15 times, and refrained from a moon viewing hike tonight because I'm so whipped. What the heck is happening, is there withdraw symptoms at all?

Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Wow Iris, EOT is here. It's a funny time isnt it...... The clock, pill box and little magic bean are no longer the most important things in your life.

Roll on the rest of your life.....An amazing Hep Free life lies ahead for you. xd.gif



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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whoohoo iris! enjoy your freedom from hepC and pill time



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Iris Dragonfly wrote:

So today, the first day of the rest of my life, I'm having some really mixed feelings. AND I already had a panic moment. ..omg it's after nine!!! I got to take the pill...um, no ...not today because,

clap.gif

I have arrived at EOT!!! I have arrived at EOT!!! 


 

YAY IRIS!! Congrats!! Its a brand new day and you have a new lease on life! hallelujah!

 



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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HOORAH!!! How sweet it is!

7CA3951B-8DBA-4467-9087-EC1DAFF58275.png



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Not sure I would be able to manage a needle, thanks for the reminder of those who had a furious battle.

So sorry to be derelict in my my update,  am very busy with Holiday preprations. Didn't get to post the last pill pic.
Here was yesterday's pill!!! Allllll gone!!! I took the last pill in the out of doors in the "light"..... into the light I go!

Hummm can't post pic due to low memory...lol!!! Ummmm, yea, how does it know ? ! ?

I'll be back,  lemme see if I can fix it.

Ok, I think it'll work now, if only I could just remove stuff from my brain to make more memory, lol.

The pill is there on the foot of the chalice.

20180922_093746-1.jpg

So today, the first day of the rest of my life, I'm having some really mixed feelings. AND I already had a panic moment. ..omg it's after nine!!! I got to take the pill...um, no ...not today because,

I have arrived at EOT!!! 

 

 

Hip, hip, HUZZAH ! Hip, hip HUZZAH ! Hip, hip,

HUZZAH !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!***

 

 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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WHAT! Iris ... you said "I want this so badly to work" ?? Huh?, like ... ya hadn't noticed the early crashed VL at 4 weeks, or .... the 8 week UND, and the soon to be your 3rd UND at EOT? Ahem, my dear .... in case you're missing it, it has already worked! And what's this about not collapsing into joy until SVR52! Huh? Get with it girl, you've been missin some really good parties here, no matter how busy and tired you may be, drag yer butt in here and have some cheers with us. There has been a party going on and ya didn't even notice yet - and it's all in your honor too. You have done it and done it so well. 5 MORE SLEEPS and you are DONE!! Bliss, my dear. A new you started on July 1 - celebrate it, and keep celebrating - every inch and milestone of it. Many good things do not always come easily, often they come fraught with effort and difficulty, which makes the goodness all the more precious. Gulp those last 5 powerful potent saviours down with gusto my dear. Be proud of all you have gone through to get here. No unhappy tears allowed, only happy ones or ones of relief. We are all so very happy for you, and we are proud of you, for what you have accomplished for yourself. biggrin C.

Hey Tig and 5 - eeew, stop with the needles already. OMG! I am so lucky I didn't get diagnosed in the old days!



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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That was how I had to take my first Interferon back in the 90’s, self serve! Fill them and inject yourself three times a week. Didn’t work for nothing, but did manage to make you feel lower than whale poo.

I have a picture for you, Iris, when you’re done. I saw it and it reminded me of you. I think you’ll like it! smile Thanks for sharing your final week of Dragon decimators!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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yes iris, last days are monumental! very moving,,, it is done and donesmile

thnx for that awesome pic, perfect.

and thnx tig for your pics too

i still have some old style needles from when i had to fill and inject myselfblankstare



-- Edited by 5-1-18 on Monday 17th of September 2018 10:56:41 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

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Okay, it took me longer than I thought to find these hiding amongst the Clouds,  but here’s my memory! One Interferon injection per week, two Neupogen injections weekly, 6-200 mg caplets of Ribavirin daily, for 7 months and 12 Victrelis capsules daily for 6 months... Ugh! I’m so glad you don’t have to do that now and glad you were able to wait to get the good stuff. None of it is or was easy, but the results are still the same! You will prevail and it is worth it!

GLORIOUS!!!

 

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Ok 5 here it is....I really like that BBQ dragon banner Tig, that made me smile.

ONE WEEK LEFT!!!  Well, 5 days!!! I will be done by the 22nd of Sept....the Autumnal Equinox, that's very special and significant to me, I'm so blessed in the timing of this.

Iris Dragonfly

20180916_095034.jpg



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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I wonder if this in part is why I'm all emo lately. It's been such long journey and I want to collapse into joy, but think I should wait for the one year test for that. I wish I'd stop crying, I guess I want soooo badly for this to work.
Awe, I'll see if the device will wake up now.



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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pill box! pill box! pill box!... the masses are rallying wanting the pill box!!



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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Iris,

Young lady, you send that photo to whatever device will get it on this forum and post it! If you want my personal email, just let me know and I’ll do it for you! That is a powerful photo that will be placed into Hep C history for all of your fellow Warriors to savor.

I want you to enjoy every single second of this victory and you MUST believe me, it will be YOUR victory! You deserve this and you have earned it. Let us dance around the victory fire and stars with you... 

I’m going to find the photo of my final “Dart”, just to show you how important it is to remember these final moments, in the life of this thing we call, The Dragon. Give me a few to find it in the Cloud. Everything is in the “Cloud”, lol!

5F60615E-A132-44A6-8ACD-126483F0D11E.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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one week left? . hang in there while the sweet daa does it's last mop up



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Thanks guys, you have no Idea how good it is to hear from you all :) All my other blood work has been normal, I'll look for the Alt and Ast but they were within the normal range.

I wanted to post a pic of my pill box and the last week, (the pic is in my device, I'm on the laptop) But now it is two days later and I dunno, I'm feeling the moment has passed.

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Congrats Iris!! 

Im so happy for you and Im truly inspired by your remarkable journey. 

Thanks and rock on with your beautiful self!



-- Edited by Hoodietree on Monday 10th of September 2018 10:25:46 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

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Congratulations, Iris! I knew in my core that you were going to be successful. I just felt it was never in doubt and your results are proof. Now, two weeks to the finish line and the only thing you’ll have to look back on, is how hard you fought to finally obtain treatment. Keep going and leave that Dragon in the rear view mirror!

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Nice!!!



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Iris sweetie,

I could weep tears of joy for your wonderful news.

You have been through soooooooo much to get that UND and you soooooo deserve it.

I also had VLs throughout my treatment and between that and the the lower/normal liver function tests... it was a good motivator to comply with all of the Dr.s orders/rules...(and to not throw my bottle of evil ribivaron in the garbage)

Did they do your ALT and AST? If so how are they looking?

Its great that you are motivated to clean, nothing as awesome as a fresh start.

xox



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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WOW, good deal! Happy for ya Iris. Couldn't git much better! So glad they are not cheaping out on the VL testing for you - I always appreciated knowing what the results were as I went along. Lucky you, you got three on-treatment VL's without even having to ask for them! I only did 8 weeks of treatment, but I had lots of VL's done, only because it was a trial. Got any ALT/AST's to go with that UND?

Glad you are feeling OK/up about things, wish i could conjur up a cleaning spree round here! 

Won't be long now - you're alllll-most done Iris! Yay! biggrin C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

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