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Post Info TOPIC: My toes are numb


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@everyone, hi!

@Iris, have you gotten any definitive word on the cause of your neuropathy? My neuropathy symptoms became noticeable suddenly, about a year before my HCV was discovered.

My doctor ran all sorts of tests, then declared my neuropathy as being "idiopathic".

I tried a vitamin B-12 regimen as suggested here. It did bring my B-12 lab values up significantly, but did nothing to resolve the numbness. Fortunately, I don't get most of the bizarre pains and sensations some people do.

I've had the neuropathy for 8 years, thankfully hasn't gotten appreciably worse.



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Numb toes to anal floss gotta love it. Blame it on the meds.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Awe  .>>group hug <<

who would've known a wedgie would bring folks together.



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60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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tig! hahahahahahaha



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Tig wrote:

Iris, all of this started with some numb toes and it has morphed into soggy undies and my desire for smaller sizes in mens thongs. Its a personal image thing, dont ya know! LOL! I hope your doc gives you some good advice and a reason for the feeling in your toes being on vacation.


            

I love you people!! That is all. 

            

 



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Tig


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Good Morning Friends,

Okay, I’m dying now! I decided to take a look around and see what’s out there in men’s thongs. I was going to post a few examples to show you that men could be similarly attired and uncomfortable. Then I saw them and immediately felt inadequate. I decided against the photo spread... no Google “men’s thongs” and click on “images” at the top. See what I mean? Not only would I dislike the thingy up the back (keeping it clean), but I’m almost certain there isn’t enough to fill one up, at least not like THAT! Who thinks of designing things like that? 

Iris, all of this started with some numb toes and it has morphed into soggy undies and my desire for smaller sizes in mens thongs. It’s a personal image thing, don’t ya know! LOL! I hope your doc gives you some good advice and a reason for the feeling in your toes being on vacation. Keep us informed and thanks for letting us enjoy these moments together!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Great story cheddy  

really love getting  know all you wonderful people here



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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hahahahahahahahahahahahaa! cheddy that story is priceless. thankyou

 

and yes iris, i too am glad your docs are on it with your medicals



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Iris, glad youre getting some help from your doctor.

Cheddy...that was a funny story. I like the burying your peed-on thong. aww



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Iris,

I'm glad you are getting the help you need.  Keep it up and keep us posted, please.

Your thong comments had me laughing. Now that this thread has migrated to the thong topic, I have a funny story (I think).  

I ride horses.  I used to ride English style which included those skin tight breeches, boots and half chaps to the knee.  Obvious Panty Line (OPL) was not a good look, so my fellow equestrians gifted me with a thong.  They said the wedgie feel goes away.  Against my better judgment, I gave the little unit a try and headed out for romp in the forest.  Then...I had to pee...  I dismounted and went into the bushes.  Sure enough, the "wedgie feel" had subsided so when I dropped my breeches and assumed the squatting position, I overlooked the little undergarment.  So yes...I peed my thong.   There I was sitting on the forest floor, pulling off my chaps, my boots, and my goofy pants to remove the soggy little undergarment in order to keep my pants dry.  Geez!  Then there was getting dressed again. I didn't know what to do with my laundry, so I buried it.  Then I headed home.

These days, I ride Western, love my denims, and my cotton Jockeys for her.  TMI, I know, but it follows the migration.

One day I tried the breeches again but felt like I was wearing panty hose without a dress.  Another story.

Think about it Tig, those things are hazardous.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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yes iris, someone got tired of yanking the xtra fabric out or seeing it bunched up there anyway. ahhahahahahaha



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Iris Dragonfly wrote:

for the record ...thongs are torture. And I bet they all came about when someone was tired of pulling their panties out of their butt and decided they just ought to say there. I'll take big girl the industrial strength bikini style please.


 

too funny iris! I also prefer a nice cotton brief, thankyouverymuch!

so endeth your daily TMI 

glad you are getting the medical care you need, dear.

 

 



-- Edited by Hoodietree on Friday 28th of September 2018 11:58:17 PM

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Iris -- LOL, LOL on your thong comment...hahaha...that laughed and said..keep us posted on your lungs and toe. Have you had a bunionectomy?



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The numbness moved to include the inside of my big toe, so I called the dr. and asked if I could get an earlier appointment. Yep...I went in today. She is sending me to the podiatrist. and though my chest x ray looked good, she said it sounded like I couldn't get enough air, so a referral to the pulmonary folks as well. So I'll let you know, could take awhile though.
BB, Iris
ps. for the record ...thongs are torture. And I bet they all came about when someone was tired of pulling their panties out of their butt and decided they just ought to say there. I'll take big girl the industrial strength bikini style please.



-- Edited by Iris Dragonfly on Friday 28th of September 2018 10:03:51 PM

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Wait a minute.  Thongs are not supposed to appear, are they.

Fine, Tig. Go on out and buy yourself a wedgie! 

Sorry to contribute to the hijack.

How are your toes, Iris?



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Well, I’d be lying if I didn’t admit to liking thongs, both styles... wink   (no)



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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LoL!!!!! wrong thong...

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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 zorries, called also flip flops and thongs.

Zorries=

flip-flop

 (flpflp)

n.
1. The movement or sound of repeated flapping.
2. A reversal, as of a stand or position: a foreign policy flip-flop.
3. A backless, often foam rubber sandal held to the foot at the big toe by means of a thong.
4. A backward somersault or handspring.
5. An electronic circuit or mechanical device capable of assuming either of two stable states,  especially a computer circuit used to store a single bit of information.


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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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hahahahahaha, i love it when the thong makes an appearance hahahahahaaha



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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What! 

5 said ... "yes, those zorries or thongs can hurt yer feet" ...

Now what the heck are zorries?!

We already know from past experience on this site how thongs can cause discomfort ! Remember 5? - be careful everyone, in your choices.

I say no to thongs.

Gunna haveta look up zorries now. heehee wink C.Image result for wearing a thong bikini and australian boots

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

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SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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sweety used to be a trigger for meblankstare



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Why thank you again, brother Tig.  You're the best.

Iris, nobody can know where the land mines are in another persons history so I just want to make clear my intent, taken from my own history.

When I was worried, or afraid, my beloved mother would hold my hands between hers and pat them, or she would rest her palm to my cheek and say, "It's okay, deary." I have come to use the word as a form of consolation and support.  No fight intended.   Please accept it in friendship.

Are you feeling any better today? I hope your docs can shed some light.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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i drink smart water sometimes and that helps

plus yes, those zorries or thongs can hurt yer feet blankstare



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Cheddy wrote:

This may be too simple, but when I get muscle cramps, I add electrolytes to my drinking water.  When you're flushing gallons of water through you you may need more, especially in heat.   


 Thank you for this reminder Cheddy I got this stuff of amazon:  https://www.amazon.com/Elete-Refill-Electrolyte-Bottle-18-3-Ounce/dp/B004N99XZ2/ref=asc_df_B004N99XZ2/?tag=hyprod-20&linkCode=df0&hvadid=167135285485&hvpos=1o1&hvnetw=g&hvrand=11834429236166191451&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9032054&hvtargid=pla-305568884600&psc=1

 

Its expensive but theres no added sugar and its a huge bottle that will probably last 1 year or so.

I also have to be extremely careful to wear supportive shoes. No more heels even low heels for me. They can have a platform (preferably with memory foam) and even a wedge is ok but no traditional heels even my 1-inch heels cause foot cramps that very night  

 

 



-- Edited by Hoodietree on Saturday 15th of September 2018 03:58:50 PM

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LoL! You mean a deary friend!   I'm sorry, friggin lovely ptsd does bite me in the butt when I least expect.



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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Hi Iris,

I’m going to agree that a previously broken part will give you a lifetime of reminders. Especially when we start naturally developing conditions like arthritis and issues like osteoporosis. Joint surfaces start to wear and inflammation ensues. I would live in a lot more pain without Ibuprofen, Excedrin and Advil. All in moderation, because they can be hard on the liver with prolonged administration. 

I think you’re right about the XRay. No news is generally good/normal news. That’s how my offices usually operate. They also offer an online report portal. Maybe yours offers that.

Cheddy‘s my bud and hasn’t got a harsh word for anyone! She’s one of those forever friends that will always be a forum friend. A dear friend indeed... wink



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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I see Dr. Hep in two weeks, I have to go in for a follow up with my primary Dr. In a few weeks anyway, I had a chest x ray before treatment. Didn't hear from anyone so I'll presume the better rather than the worse.
The foot is sporadic now, I've broke that foot and I occasionally get problems with the toe associated with the break, but that is with certain shoes. I haven't worn shoes since vacation, were very Hawaiian here, zories all summer....which probably creates other problems...ahhhh my... have been working A LOT around the house, there is 42 years of "I can't do that now" sitting around waiting to be delt with. I'm beginning to wonder if it's overuse, I scare myself when I read what others experienced.
Cheddy...did you call me deary? Those was fightin words from a particular person, I'm sure you ment well. But ouch.
Blessings, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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I agree with the others Iris, get in to your family Dr.  He may want you to see a neurologist if he thinks its nerve related or a physiotherapist if he thinks its a mechanical problem. Or he may just recommend heat, ice and massage.... but dont wait until you see Dr.Hep.

 



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This may be too simple, but when I get muscle cramps, I add electrolytes to my drinking water.  When you're flushing gallons of water through you you may need more, especially in heat.  A simple blood test can tell a lot.  In the meantime, I think massaging the blank spots will help ensure blood flow. 

Also, lower back pain a leg pain/numbness go together.  Easy walking can help for starts.

Whatever is causing this, I think you should see a doc sooner rather than later.  I shed lots of aches and pains after treatment, but, not everything is generated by HepC and it's treatment, even though it seems that way on Tx.  

Do something, deary.  You'll never regret taking care of yourself.

Hug, rubs, and sympathy from Cheddy.

 

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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ice on my neck,  and heat from lower back to neck, as well as feet is what keeps my body running heat twice daily, ice a few times a week.

no doubt that our body had some stress on it during tx, so every inch must be tensed up after that.

but i agree that seeing any doctor might get you thru this easier.

let us know



-- Edited by 5-1-18 on Friday 14th of September 2018 07:32:20 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Iris, 

I recall you spoke of lower back, leg weakness prior (on your other thread) - your Mom had been worried about it too, so ... further to what I was thinking below (maybe mechanical pressure issue versus strictly HCV neuropathy), I do think with this toe numbness you should sooner rather than later discuss your foot/toe/back/leg thing with any doc, even your GP versus waiting until Oct to discuss it all with your hep doc. Of course it should be brought up with your hep doc as well, but, given all the circumstances, hx, signs and symptoms we should not just ignore it or delay getting it thought on by a medical noggin. Just my 2 cents. Maybe the effort to see a GP about it will end up being a waste of time, but ya never know, unless you try sumpin. I hope the toes numbness is gone, or is only fluctuating?? How is it now since you last mentioned it?? How are the other older symptoms, lower back and leg weakness things? C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Knumb, Gnumb, Numb, we knew what you meant, lol!

Signed, The Spelling Fairy wink



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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iris i'm so sorry to hear this.

i want to say that every weird thing i went thru on tx and the month after went away

i still have my tired times but overall i'm better. if i lay wrong the nerves in my fooot twitch, 

hang in there and talk to your dr. if it keeps up



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Iris, 

Just off the top of my head "guessing" I would say do not be overly worried about all these things (toes, back, carpal tunnel, nerves, etc., etc) in relation to your EOT soon arriving - whatever the cause(s) of all these "nervey" things, they have no direct bearing on your treatment success nor in the treatment causing these things in you. (That is what I think anyway). IF, and it is a big if, your foot nerve thingy IS caused because you have (had) HCV (and it is a HCV  related extra-hepatic manifestation) then your treatment is a good thing for this, and your HCV cure will be a good thing for this.

Moreso than HCV related neuropathy, I am leaning more toward ruling out simple, ordinary, unlucky things causing your foot/toe thing - I would go perhaps to any doc (GP or whoever) to speak about ALL the back/leg/feet, toe symptoms you have had over the last while and see it he comes up with a fitting guess, such as to some kind of nerve compression/irritation or ... whatever! - something like a sciatica-type deal or some kind of mechanical foot-nerve-compression type thing. Take into account ALL activities, shoes, injuries, stresses (low back or foot) movements that may be causing this numbness and other symptoms. C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Iris, I dont have any experience with those exact symptoms, Ive been getting terrible leg and foot cramps which I always thought were from dehydration, but  now that Im drinking a gallon of water a day it kind of puts the lie to that. 

Im hopeful that some of these little extra hepatic manifestations will magically disappear soon for all of us. 

Please keep us posted ok? Sending healing thoughts your way Iris. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Oh crap, I spelled it wrong! LoL I was wondering about the whole knife, knead, knucklehead, knee, knot, not, rut-row...wha ha ha ha.

Many thanks to the spelling fairys

I will definitely tell dr. When I see him next, which is the beginning of October. I do hope it subsides after I'm cured.

Is there other folks here who have delt with this and it got better?

Bb, Iris



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60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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It’s difficult to say, but HCV does cause neuropathy, with and without pain. There’s a possibility of symptom resolution after SVR. Again, it’s hard to say if those nerves will recover. Very often neuropathy is age related and can be caused by a number of things. Be sure your doctor is aware of this and can rule out other causes. Just know, I have spoken with a lot of people that experienced real positive improvements following some recovery time after SVR. HCV is the cause of many extra hepatic problems and nerve dysfunction in the limbs is a biggy!



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I read somewhere folks were having issues in this department. 

I cannot feel my 3 middle toes on my left foot. This is bugging me a lot. Will it go away?I tried rubbing them and stamping my foot, and it may help a little but not for long. I was also getting debilitating ....not really pain per-se but elimination of strength in my back between my hips and down my legs. Sometime associated with tingling. 

The foot thing had been happening of and on for about 4 days now but this a.m. I woke up to it. The back kinda subsided when I started to feel better about two or 3 weeks ago now. I have carpal tunnel, and PTSD which link directly to nerves, so I'm getting a little worried now, so close to the finish line too.

Bb, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

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