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Post Info TOPIC: Hoodies Epclusa journey starts 7/26/18
Tig


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RE: Hoodies Epclusa journey starts 7/26/18
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Hoodster!

I had to laugh over your bed head and makeup comment during your Zoom meeting! It's hilarious to see what some people wear and look like in these Zoom meetings. I about fell out of my chair on one of them, when a meeting member forgot he was only in his boxers and they were cute, lol! When he realized it, after standing up, I swear he must've just fallen down in embarrassment. He just disappeared straight down and his feed went blank, lol. Too funny! By now everyone is getting better accustomed to it and seem to be fairing pretty well with it. That doesn't do much for all those high rise buildings without tenants though. Strange times indeed...

My grand babies aren't babies anymore. My grand daughter is 6 and in virtual first grade, which breaks my heart. First grade should be spent with other first graders. I watch her and she doesn't have much interest in it. They are in the Seattle area and nobody in her district is in school. Her school mates are either sleeping, playing or screwing around with their keyboards and it disrupts the entire class. This is an educational mess and I hope they figure it out soon. They are still teaching Common Core math in Washington, too. They want the parents to help with their education, but who from the last couple of generations can make heads or tails out of that? But I digress. My grand son is almost 4 and is hell on wheels, literally. He enjoys running into things with his face! Typical 4 year old boy stuff, lol. They're all healthy and happy though and that's what matters.

I know your CEO position is just waiting for you to show them who's Boss! I know you'll achieve it, when and if you want it. wink Take care and please stay in touch! xo



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Hola tiggerino! 

Ive been defying the advice to stay indoors. Ive skipped a few days but I have a new fitness program that combines low carb eating with high intensity training. I have 3 different weight vests of varying weight: 4lbs, 8lbs, and 16lbs. I wear a weighted vest and hike up some nice big hills to get my muscles activated. I only do about 20-30 mins per session, but yesterday I met up with a friend and did a 75 minute weighted walk around Lake Merritt in Oakland. I feel like frickin Wonder Woman today! But I will admittedly need a nap around noon. Had an 8am zoom meeting this morning no makeup and bed head keeps the ego in check. Even with the touch up my appearance feature in zoom I am beginning to look every bit of my 53 years old. But I have wonderful coworkers my age, older, and much younger too. We cut each other a lot of slack. They dont know of my CEO aspirations yet Tig and Im not sure how to break it to them (kidding, kidding). 

Whats new with all of you? how are the grandkids? Hows life? 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Hey Hoodster!

I’m so happy to hear from you! I knew you were out there somewhere wink  The entire West Coast is so dangerous right now. From San Diego to British Columbia, nothing but smoke. Stay inside, or take a vacation to somewhere with fresh air! It’s so unhealthy and wearing masks doesn’t provide much relief, if any. Just be safe! 

So, whatcha been doing since we last chatted? Are you the CEO yet? smile



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Wow, so great to see my old pals!! Hope you are all doing well? Life sure is weird right now. Sheltering in place does have some advantages though: no commute, working from home makes it easy to take naps, more time for meditation. More time to clean the house too but its always messy because Im home all day messing it up! 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hoodie, so good to hear from you and I too hope you are well these days.

Yea, that smoke..ugh, ick :(



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hey hoodie

good to see you... hope youre noticing an improvement in your health now youre HCV-free

stay safe



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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Thanks Cheddy! Life is good (cough cough), smoky but good. Hope everyone here is doing great. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hoodie Hood Hoodsterator!!!! We've been wondering about your sudden departure. Yep, things get weird, alright. How is your health post treatment, and aside from being enclosed in smoke? I sure hope all is well. 

Not much HepC around here (thankfully) but we're still hanging around.

You were missed, my dear. Thanks for touching down.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hello my loves! Im so sorry Ive been MIA. Life sure got weird, didnt it? Hope everyone is doing fine. Love to all!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Weird. She was so here.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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No kidding, Iris! I have tried a dozen times to reach Hoodie. She just vanished into Silicone Valley :(



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Hoooooooodieeeee, I miss yooouuuuu 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Oh my gosh I almost missed the party

       

hip hip Huzzah!

Hip Hip HUZZAH!!!!!

HIP HIP HUZZAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Best to you henceforth woman of the Appaloosa!

Many blessings, Iris  

 

 

 

 

 

 

 

 

 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Hoodie! Just saw the results! Whoo-hoo! I'm so happy for you.  Hoodie (doing her best Gollum/Smeagol imitation): 

 

"Leave now and never come back! 

Leave now and never come back!

We told him to go away...and away he goes!

Gone, gone, gone!

Smeagol is free!"

go away leave GIF

 

 



-- Edited by tanner on Wednesday 23rd of January 2019 09:53:46 AM

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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

8/19 (EOT): NO HCV DETECTED!!



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Yes, Hoodie.  You sure are!



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hoodie, I just read through your entire journey starting frim day one, and wow...what a ride you've had! You are such an inspiration , I unlike you are retired and don't have to deal with near as much from the outside world , you are truly a warrior! I an SO happy for you!!

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Age 62
Diag 2007

Started Harvoni January 8, 2019 , EOT test results 3/5:

HCV PCR Quantitative Detected <12 IU/mL  

AST 27 U/L
ALT 29 U/L

SO FAR , SO GOOD!

Hepatitis C Genotype Type 1

HCV PCR Quantitative 3,763,192 IU/mL

FIBROSIS SCORE 0.64

FIBROSIS STAGE 0.01

FIBRO ALT 102 U/L

FIBRO AST 68 U/L



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Congratulations Hoodie,Stupid dragon.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 V/L NOT DETECTED

12 Wk post EOT ALT 11 AST 16 V/L NOT DETECTED  Thank you GOD

Take that stupid dragon

1/2/2020 SVR 12



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Darlings, I couldnt have done it without you. 

THANK YOU!! 

You guys have been here for me every step of the way. You listened to me when all I had to say was crazy talk, filled with fear and anxiety. You heard me talk about my fears and my aches and tiredness.  You gave me hope! You lifted me up and told me I could do it, when I was so unsure, so fearful, so filled with doubt and worry. You did that for me for MONTHS until I could have the strength and courage to do what Ive been blessed to do:

SLAY THAT DRAGON BEAST!!!!

You all gave me that strength and courage. I sincerely could not have done it without you. And as I stand here before you with my customary melodrama, one foot propped atop a dead dragon and my sword hand raised to the heavens, I make this solemn vow:

I promise you I will make this life worth living I will help others I will be true to myself I will know Gods will and I will have the power to carry it out

LOVE AND GRATITUDE,

hoodie

 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Hey Hoodie,

Congratulations, Sister! I’m thrilled to hear your wonderful news. I remember a friend that came here with questions and concerns about what to do and what to expect. It’s amazing how fast your treatment progressed and how well you did throughout. Of course it probably went by quicker for us, lol!

You have proven yourself a Warrior! Well done, you did it...

10BF0141-E9AF-4837-AF8D-921B9395CDDF.jpeg



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Yay yay yay.  

You are freeeeeeeeeeeeeeeeeeeeeeee 

Im so happy for you Hoodie,  



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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Oh Hoodie,

I couldn't be happier for you.  Even though we were sure you would get here, it feels like a million bucks when it actually happens.  What a great relief you must be feeling. I found it kind of surreal that it was such a big, big deal and then suddenly, whoosh, over.  It's going to get better from here.  You did very well, slayer.

I have to go now, my feet are starting up a happy dance.

All the best, you HepC Free girl, you.

 

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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You guys are so sweet to me! I love you all and I thank you from the bottom of my heart right to the top!    



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hi Hoodie,

Congratulations!!!!! Welcome to the Club clap.gifcake.gif

Oh What A Feeling number1.gifparty.gif



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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Hoodietree wrote:

Hi friends, 

Results from 12 week EOT labs: UNDETECTED 

 

 


 , oh what a feeling!! congratulations hoodie, and welcome to club zero

Related image



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Congrats Hoodie!



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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.



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Hey Hoodie,

YAY!!!!!!!!!!!

A lovely UND for our lovely Hoodie! Congrats on your SVR12.

That was a pretty quick return of your lab results eh? You only had that draw done about a week ago? So, how does that UND feel? Did you get any other labs with that? When was the last time and next time you see the doc?

So nice you have this SVR12 under your belt now, we are waiting for some other folks results pretty soon as well - the good news we all appreciate sharing. 

Thanks for your prior update as well, good to figure out you had not had to move far away for the new work, but commuting certainly can add an element your workload. I am hoping you will find a new sleep hour quota settling in over the next months since your cure - my sleep requirements changed (amount of sleep required lessened) slowly after I completed treatment and was cured. Maybe this will happen with you too (some less sleep required). Glad to here you are still doing yoga - me too - movement is our friend!

So glad for your SVR12, you so deserve to be "officially" free of this virus. Congrats, bigtime. The light in me salutes the light in you my dear! biggrin C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Hi friends, 

Results from 12 week EOT labs: UNDETECTED 

 

 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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about the 'mom' , i just glazed over and wondered what it really meant. hahahaha

 

harry, yes one of spring tx ppl had that

i have gained 4 pounds since eot cryhmmevileyeblehdohconfuse; i hope it is just from less energy and movement... eating is the same. will have thyroids in the spring, had my 6 months quant,af & liver panel lab today. i hope the turn around was as fast as the 12week



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hi Hoodie really hope your results are ok ,how are you feeling now ? Istill have a mth to wait before i get final results fingers crossed ..have you heard of people poste tx getting numb tingly feet toes at times ? Im wondering if its from tx or hot weather fluid retention or maybe that i had the virus for so long ,i wud be interested to know if anybody else has heard of this,probley just me maybe.anyway good luck with everything .so hot over here atm and wow these last few weeks waiting for results are going so slow..take care..

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I was going to say...Mom? I missed that part, lol. Did I miss it? Hoodie do you have kids?

So good to hear from you, say safe in all your extra commuting, keeping fingers crossed for SVR for all of us.

Bb, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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That's funny.  Still reads: IM not Mom -ha.  

We get your drift though and I'm really eager to hear from you all just as soon as you can.

It's going to be a good news week.

yawn WOW!

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Thanks Cheddy and 5!

Please excuse typo in previou post. Should be IM still not Mom still. Argh. 

5 Best wishes on your labs today!

looking fwd to celebrating with you, Iris, and STL very soon



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Welcome back Hoodie! You will feel top of the world when that 12 week viral load comes back undetected.



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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.



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hoodie, so glad to hear from you

i still have some bad days, but hubs is having more good days so he is hope walking

i'll go mon. for labs, soon you me and iris will have our labs... i wonder whats up with STL

i'm glad to hear your drive isn't awful and that you are getting good sleep



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hiya Hoodster,

Good to hear from you.  I'm glad you're starting better.  All meds and all people are different but it usually takes a few months for system to readjust. That should fit well with spring on the way.

I'm so excited to hear about your bloodwork!  The closure is thrilling.

Sleep tight,

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hi Friends!!

Sorry Ive been so busy lately and not checking in regularly.

Canuck, no I didnt have to relocate for this job but my commute is about 30 minutes more total, not too bad but enough to feel the difference.

Mom still sleeping 10 hours a night when I can get it. Often around 8-9 hours will do. 

I think Im starting to feel better finally, but its up and down. I think my stress tolerance is improving. 

I got my 12 week post treatment blood draw done yesterday, so Ill report back with my UND as soon as possible! 

Thanks and love

hoodie



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Yeah, Hoodie.  Get your butt back here.  We didn't quit caring about you, you know.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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i was thinking about hoodie too... jobs have a way of really taking it out of a person. Especially the full time jobs that are intense.

i hope all is well her way



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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So, what the heck happened to our buddy, Hoodie? I’m feeling a little sad about her disappearance! Now, I’ll feel much better if you check in, Hoodster! You should be the CEO by now, tell them you need to check in with the Board, the Hep C Board of Directors! We miss you... wink  



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Hi Hoodie, hope you are well for the New Year! Canuck was right the first two months I was on Epclusa I was never so tired in my life.

I was one of the patients who had to feel much worse before I could feel better ... it even concerned my doc as he said my reaction to Epclusa was definitely an edge case but he said just tough it out as my viral load crashed dramatically and labs were normal. Now I have plenty of energy, and feel better than I have in ten years, well except for the arthritis and the bum knee but one grows old.



-- Edited by lamassu on Saturday 29th of December 2018 07:12:40 PM

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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.

Tig


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Hoodster,

I missed your P update, lol! That could’ve been a soggy situation. I would’ve been looking for a bush or an alley, just in case. I hope everything is going well smile



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Hoodie,

How's the new job going?? Did you have to do a major "re-location" (to another city) for this job? Just wondering. That was my impression but i could be wrong, it seemed like you did not have a lot of time for a big pick up and move. confuse

My other curiosity is how much fatigue you still have. I know you were like me (and lammasu) in experiencing some profound fatigue, and big needs for many hours of sleep per day. But I have been gleaning this fatigue has lessened for you now after EOT? and that you are requiring less hours of sleep? - maybe you already said this elsewhere on another thread but i cannot recall exactly what you have said on this subject. I recall the intensity of lamassu's fatigue was more related to being severe "while ON-treatment", whereas mine was profound for quite a while before treatment and of course continued just as profound or thicker while on-treatment, and then was slow to improve for me post-treatment - I am just wondering how the fatigue and sleeping has morphed/evolved for you. C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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OMG Iris, I went to yoga yesterday and the instructor was late so we couldnt get into the building, I had to pee so bad! It was such a terrible emergency! Then the instructor arrived and announced that she didnt have the key to the church where we do yoga So I had to drive about 5 miles to the nearest bathroom. It was quite an adventure! I was so nervous I might pee my pants! That put the P in PTSD, lemme tell ya! 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hoodie, I slacked off the water too. I was way down the last month of treatment, and now I'm back to my normal, several cups of coffee, and maybe two glasses in the day, a beverage with dinner, and that's about it. I try no to drink before bed but that's when I like some herbal tea. And a short glass of water to take vitamins with. I do sometimes go on a juice binge, but that's a lot of sugar. Seems processing sugar and fats had become an issue, but maybe that will be in the past now?

I really hate having to find a restroom all the time blankstare what can I say, sometimes a bush just isn't near hmm

 

You're doing great, If you used to jog then ease yourself back into it, (after the smoke clears) ...hey, we should be getting our "good news" right about the same time in January...hang in there biggrin

bb, Iris



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60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Lamassu thats great! I might try getting back to 20-30 minute morning jogs during my break between jobs. I used to love jogging! maybe thats what my body needs - vigorous exercise. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hi Hoodie,

For me the heavy fatigue ended like magic after week 10 on Epclusa. Seems like it was overnight. Now my stamina was lousy because I had gotten little exercise for over 2 months but 6 months after end of treatment now I am feeling pretty good, and walk every day as much as my bad right knee can handle. Probably will get the knee replaced next year as I have had enough medical treatment for one year:) I still drink at least a half gallon of water a day. May not be medically necessary any longer but I feel better when I stay well hydrated. Just waiting on the 24 week viral load results from the test done last week. Everyone's journey is different I have no doubt any lingering fatigue you have will pass. Take good care of yourself!



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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.



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5-1-18 wrote:

my first 2 months eot i drank more, now it's about 1.5 liter plus watery coffee. 

i drink more on my days off i think.


Thanks 5!

Hows your energy? Is it better on the days when you drink more water? Refresh my memory, did you have horrible fatigue like me? Hope youre feeling much better now in EOT UND-land



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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my first 2 months eot i drank more, now it's about 1.5 liter plus watery coffee. 

i drink more on my days off i think.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Polo - Many thanks birthday girl

Shemp - Thanks Champ!

Cheddy - Fatigue is still an issue, along with anxiety/PTSD. My stress tolerance has been notoriously low for the past few decades. It is my fervent hope that my stress tolerance will improve. I think I see signs of that but of course my head messes with me and tells me Im crazy. Im just going to continue getting the right amount of sleep, proper nutrition, and especially yoga/meditation.

Everyone - I have totally slacked off on the gallon a day thing! So today I have renewed my practice of keeping track of my water intake to try to reach at least half a gallon if not more every day. What do you guys do? Do you still drink a gallon of water a day after treatment ends? Do you still track your water intake? Im going to try to get in a full gallon a day again until my January blood work for SVR12.  

As usual, thank you so much for your care and concern



-- Edited by Hoodietree on Sunday 18th of November 2018 10:27:06 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Congratulations Hoodie!! Welcome to Club Zero with that UND status, WOW!! Another wow that you start a new job with a good company..WTG and good for you girl for taking care of you! Your quality of life is already improving with UND. A Happy Thanksgiving and Happy Birthday for sure!! Hooray, Hoorah!! Yippers!biggrinbiggrinbiggrinbiggrin

A 10 day vacation between jobs is the only way to fly...biggrinbiggrin

ps



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New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

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