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Post Info TOPIC: Hoodies Epclusa journey starts 7/26/18


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Hoodies Epclusa journey starts 7/26/18
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Thank you so much for all the well wishes and congrats everyone. You guys truly are the greatest support EVER!

Just to give you a little background on the "Appaloosa"my iPhone AutoCorrect's Epclusa to Appaloosa so that's how it got its name. It's a little "in joke" with me and my sister

Lamasu - I read a post by you in a different thread where you said that you had a hard time for the first 10 weeks. Well that was my experience as well the first 10 weeks were filled with fatigue and weirdness especially brain fog. When that lifted I was in a state of transition and probably should've scaled back on my coffee because I no longer needed it as much. But I was still drinking the same amount of coffee and had a ton of anxiety! Live and learn Now that I'm done with the Appaloosa I'll just have to wait and see when my energy levels out to a more steady state. Definitely can't drink as much coffee without experiencing a ton of anxiety now that the fatigue is lifting.  Curious to see when other good things start being possible, like clearer thinking for one. Maybe that will come when I start hiking again looking forward to that!



-- Edited by Hoodietree on Friday 19th of October 2018 07:35:55 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Congratulations Hoodie!!!!!!!!!!!! WOW, a major milestone has been reached, you did it. I love those little ponies, they look so happy! The way we are all supposed to be, kick up your hooves and smile!

 

ps



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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 EOT ......Wow Hoodie. On ya. Bet you thought this day would never come. I know it was exciting, to know I had made the finish line, yet daunting to no longer have to focus on taking my magic bean every morning. Soon got over it though.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Hoodie,

Congrats on EOT! Have your side effects gone away? I would insist on a viral load right now, you deserve it.



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Male, 65, Dx 1990, GT 2a/2c. Pre-treatment VL 11,500,000, ALT 10, AST 18, Fibroscan F3, 12.4 kPa. Rx 12 weeks Epclusa, SOT Mar 8, 2018, EOT May 30, 2018. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19.



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     yay

cute babies smile



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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  you made it to the eot finish line....woohoohoo, ya hoodie!!  congrats to you, and yes....sleeping a little longer in the morning is always fun biggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Congratulations, Hoodie! So happy for you smile  Just look back and realize how far away this day seemed in the beginning and how fast that time went by. You did it!!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thank you darlings, yes, I just took my last Epclusa Appaloosa. I really wonder what kind of twists and turns the rest of this journey will take. 

Canuck, I honestly don't remember if they want me to do another blood draw now or if they want me to wait 12 weeks. I'll let you know as soon as I find out. I'm curious so I will probably give them a jingle to find out. You had asked some specifics about my last bloods. I haven't had a chance to update my bio with this yet but on 9/15/18 my ALT was 17 and my AST was 20. 

It will definitely be weird to not hear and anticipate that 7:30 alarm every evening!!

My sister, such a sweetie, texted me these pics to celebrate my EOT. They're BABY APPALOOSAS!! We cuted out on them together

Cheddy, no worries, I'll stick around. Gotta see that cute lil orange kitty butt in your avatar



-- Edited by Hoodietree on Wednesday 17th of October 2018 10:43:31 PM

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__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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So! Was it the last lonely miracle pill down the gullet today??

Is it tomorrow that you wake up, with no more mental notes ... "don't forget to take my epclusa pill"?

It is a nice but funny feeling to be finished taking the pills isn't it - knowing you are cured, but used to the comfort of taking the pills because you know they are helping you.

You have maxed out - you have taken in every grain and mg of goodness epclusa has kindly given you - from now on you get to reap rewards for your long efforts and 12 weeks of dutifully taking the plls and taking such good care of yourself!

EOT! Happy day. Tell me again - do you get EOT bloods? Just a short gallop now to SVR12. ;) C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Oh, Hoodie,

I'm so glad you are at the end.  Just you wait, with your good attitude, you'll be better and better in no time!

Don't leave us though.  I always like hearing your reports, honesty, and good cheer.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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I hear you are about to pop the final pill! down the hatch and Boom! all gone. all good, all better.   

exit station comin up!!! biggrin

blessings to you!, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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I would not tell an employer about treatment for Hep C. There is too much of an association of Hep C with IV drug use regardless of how you contracted the virus.



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Male, 65, Dx 1990, GT 2a/2c. Pre-treatment VL 11,500,000, ALT 10, AST 18, Fibroscan F3, 12.4 kPa. Rx 12 weeks Epclusa, SOT Mar 8, 2018, EOT May 30, 2018. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19.



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Hoodie,

I didn't tell very many people when I was on treatment.  I didn't want to deal with being misunderstood.  Too fragile.  I did say, when I felt I had to,  that I was dealing with a serious health issue and that I didn't want to talk about it just then.

Now I'm all out and try to be an inspiration to others who are facing any big health issues.  It adds comfort and promise.

I agree with Tig, no shame!! That stuff's toxic. Just don't let other people's opinions hijack caring for yourself. You're very good at it.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Now I thought (being an old military guy) that HE was the temperament of your HR department HE = High Explosive! You don't have to tell them what is going on, but you know, in a smallish work environment, the rumor mill starts in. Of course, don't let that stop you from doing what is best for Hoodie. There is no shame in going through what we have all dealt with for decades. If informing them of your treatment works best for you, then do it. It's a personal decision and each of us is presented with a different set of circumstances, especially at work. 

It won't take long and this will all be behind you. As PS mentioned, you're doing great and the care you're taking of yourself is admirable. Keep it up and you'll be celebrating the end of all of this and the demise of one pesky Dragon...



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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polosilver wrote:

my only concern in sharing could be that if you use them for a reference in obtaining new job. 


Excellent point polo, and one that I had not thought of. I am very glad now that I'm like you stoic, sucking it up, doing the best I can, making Lemonade out of lemons

 On edit: I post exclusively from my phone and sometimes find weird formatting errors so I edited my previous post where "HE" should be HR, you might've figured that out already but just FYI



-- Edited by Hoodietree on Thursday 11th of October 2018 11:38:48 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hoodie -- Hang in something will turn up that will be right and good for you. I did not tell my employer when I was going through treatment. I do tend to be a bit stoic, so just sucked it up. That said, I work remote with occasional travel.  Since I am not in an office everyday it made it easier. In my opinion weigh the pros and cons and do what is right for you. Easier said than done..my only concern in sharing could be that if you use them for a reference in obtaining new job. If you have great references, then no worries on that end. You will know what is right for you as you continue to listen to your inner self. It seems that you are doing wonderfully at taking care of yourself and overall health. Keep it up!

 

ps



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Wow polo its great to know we have so much in common! I'm hopeful but trying not to get my hopes up too high. Hey, did you tell your employers you were undergoing treatment for Hep C. I have not revealed that info but sometimes when the anxiety kicks in at work I think I should tell HR that I'm going through a health crisis (but not reveal that it's Hep) as a means of protecting myself. 



-- Edited by Hoodietree on Thursday 11th of October 2018 11:33:46 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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WTG Hoodie!!! I had a job for years that was a tech sweat shop and thought I couldn't work anywhere else...and then I finally took action and life is wonderful on the other side. There is more than work, work, work..got to have the balance in there. With your attitude you will find the right op for you! You go girl!!

I can get a sense of that high you are on...awesome!! Glad you are taking the rest you need though. Keep giving yourself that time to DREAM. Its working!!

 oh...adding that I still work in tech, but it isn't a sweat shop and I have fun and get paid.

ps



-- Edited by polosilver on Wednesday 10th of October 2018 10:58:20 PM

__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Shemp wrote:

That's GREAT Hoodie.

I'm going back to the grind today,I only hope I can stay as positive as you.


Hang in there Shemp, it gets better. I promise

Thanks for all your kind words and encouragemen everyone. You guys are the best



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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That's GREAT Hoodie.

I'm going back to the grind today,I only hope I can stay as positive as you.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

Tig


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Thanks for the update, Hoodie! You go girl and good luck on the interview!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Yay yay yay and YAY Hoodie.

so glad youre feeling energized and brave and less nappy.

Its just so great to hear that smile 

everyday is thanksgiving when youre getting free from the dreadful dragon 

 



__________________

60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Hoodie,

What a great change.  You see, you are getting your energy and confidence back already.  I'm proud of you.  No soul deadening for you.  You know how to go forward in the face of fear.  Very, very cool.

I'm eager to hear your updates. Be sure to check in, please.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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I like the sounds of that! Go Hoodie. biggrin C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hoodie... woohoo



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Full report: the Appaloosa/Epclusa high kicked in about 10 days ago. I FEEL SO MUCH BETTER. Still sleeping 10ish hours a night but now I have a feeling of confidence with a side order of energy. Sadly theres a fair amount of anxiety as well but thats pretty typical.

My job is a soul crushing, overworked, over stressed, under-paid, white collar sweatshop. So I updated my LinkedIn and set my profile to //interested in opportunities//.

Friends, in the past 10 days Ive had FOUR phone interviews with top-notch technology companies in the bay area. Tomorrow Im going on site for an in-person interview at a tech company that was voted one of the //best places to work//.

Ill let you know how it goes. 

Im a little scared but I dont care. Im going for it! What have I got to lose?

Thanks again for all your support: I couldnt have gotten through this without you guys. 

Much love and gratitude,

your Hoodie



-- Edited by Hoodietree on Tuesday 9th of October 2018 10:38:05 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hi dear friends  

Thank you so much for asking about me, I am doing GREAT and I will give you a full report later when I have more time. Im rushing to get to work on time right now.  But Ill read all of your recent posts and reply thoroughly later on. 

Peace and love!



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Hope to hear from you soon, Hoodster! Keep your chin up and confidence blazing. wink



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi Hoodie --- 

I imagine you are feeling better now that you are UND...I am hoping you will be joining us at Club Zero before too long...that would be sweet. Keep drinking the water and hang, just a little longer..you are doing it!!

 

ps



__________________

 

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks!

Club Zero Member.

PoloSilver



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Hey, Hoodie.  Where did you go?  How are you feeling?  Wow, you're almost done and soon to start the recovery phase of treatment.  I have every confidence in a good and improving outcome.  I really do.

We're missing you over here.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hey Hoodie,

How's it goin?  

Any changes, for the better or worse lately?? Are things still about the same - how is the work, energy and sleep departments? 

I see your EOT is coming up, right shortly .... yay! Won't be long now and you'll be all done with this pill popping. Only about 10 more sleeps

Your 4 week bloods (LFT's and VL) which were actually taken closer to the 8 week mark, we all HAPPILY know you had a great big beautiful UND then!, but, we never did find out what your 8 week ALT/AST was ... I realize your ALT/AST were not very high pre-treatment, but it would still be interesting to know what your ALT/AST was at the 8 week mark - maybe you said, but i can't see it.

Remind me again, what bloods they planned on doing for you at EOT - will you get the "works" at EOT?, or what.

Our other lovely "apaloosa" lady, STL, will also be having her long awaited (EOT+12 week) bloods done soon, next week I think. 

Thank goodness Gilead invented Club 0 for us. biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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THANKS YOU SWEETIES



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hey sweetie!  Sorry to be late to the party, I was trying to find you a happy dance.

Congratulations on your excellent news!!! So happy to hear it YEAAAAAAAAAHHHHHH !!!

[video=https://m.youtube.com/watch?v=IeTllComh0A]



__________________

in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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That was to say, fricking. Dang spell check.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hoodie,

I'm so fracking glad to here this!!!!!!!!!!!!!!!!!!!!

Your are on your way out!  I'm really anxious to here the improvements I know are coming your way.

Hey, Tig.  Looks like it's time to polish up those dancin' shoes.  We can boot scoot around the internet, just for Hoodie. Probably more like a two step, my toes, your toes...

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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No worries Tig,saw this pic the other day and it just seemed appropo



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018



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Thanks everyone!

scruffy no worries! 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Hey Shemp,

Sorry, had to reduce that pic back to the attachment. HD photos of that size take over the entire page, especially on mobile devices. Great picture, though! Must be the way Hoodie felt after her lab report!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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That's GREAT news.SO happy for you.



-- Edited by Tig on Wednesday 19th of September 2018 09:06:53 AM

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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018



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Way to go Hoodie. I never get tired of seeing that word UNDETECTED. Sorry for being harsh 



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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yay

 



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Hooooo-ray Hoodie - it's a done deal! Lovely to have that UND isn't it? - the rewards will keep on coming now, you'll see! Rest easier tonight. So happy you got your UND!  biggrin C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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I knew it was so! I saw that Dragon hauling butt, weeks ago. It was no match for the Hoodie and Epclusa, one-two punch! BOOM!

Congratulations  

BEA06A54-A93E-4AFF-80C9-06E58D2D8878.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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, yay hoodie! it sure makes the rest of tx easier to take.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Hey guess what! I got a call from Kaiser today letting me know that Im 

UNDETECTED!!!

   

 

Edited to add:

Iris yes 2/3 done.  SO VERY GRATEFUL for all the support guidanc and friendship here. Thanks you all so much  

 



-- Edited by Hoodietree on Tuesday 18th of September 2018 11:36:36 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hi Hoodie! you are 2/3 thru? Are you still very tired? I just wanted to say it was right around that time period for me when I started to feel a bit better, course we are different meds but maybe you will be feeling better soon?
Thinking of you.
Iris

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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I posted this in August of 2016. It is a letter from my liver specialist who has been working on HEPC and others for many years. She used the word "cured" and she was so happy to be saying it these day. What a happy day it was for me.
 
Regarding: Lab tests
6 months post treatment
This letter is document that you have been successfully treated for hepatitis C and have been cured. Congratulations!
   
You no longer have active infection and have no virus in your bloodstream and you cannot transmit infection to others. Of note, anti hepatitis C antibodies will always be positive in your blood stream if they are tested and it may be necessary to document a negative viral load. If any questions or concerns arise with the status of your prior hepatitis C infection, please contact us.
   
Looking forward to seeing you next week
 


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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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There has been a clear hesitation to use the word “cure” when referring to the successful treatment of HCV, for years. That isn’t something we dreamed up, but the medical community. As we all know, when we remain undetected after 12 weeks post treatment, we are considered SVR or as having a sustained viral response. That simply means our own immune system is now capable of sustaining an undetected viral response on its own, without the need for additional treatment.

The rate of relapse can persist, although the rate is less than 1/2 of 1% and some now consider that to be higher than it actually is. That chance kept the medical community from using the word “cure”. They just didn’t know how long we might be able to actually sustain the undetected viral response. The medical community responsible for all of this approximation, has now decided the term “cure”  is more closely accurate than previously believed. Why? Because people achieving SVR aren’t relapsing, even at rates of less than .5%. Even the old SOC’s, that had 20-50% rates of success, have provided sustained, long term undetected viral responses. It often took us two or three times to do it, but once achieved, we are still undetected. 

You will continue to hear people question the use of the word “cured”, but in my humble opinion, it is more accurate than the term “remission” some used to describe SVR. Either way, I believe it’s time to throw out the idea that we are anything but cured. We will always test positive for the Hep C antibody, that’s just the way it is.

SVR is viable and once achieved, consider yourself cured. That’s also the way it is! smile



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I havent had a drink in 18 years and I dont plan to destroy my sobriety today. I dont think its uncommon to wonder if its possible after Im cured. I didnt know we dont use the word cured. Thanks for the info.

---------------------------------------

cool that you've made it 18yrs, sounds like you made the decision

i learned a lot in AA, like how to live sober.

yep, even i wondered about the drink .hahaha, but knew my liver would be so sad if nothing elsel.

i say cured, for me it means the virus is und and not causing me further damage ...

we got this biggrinbiggrinbiggrin

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Scruffy wrote:

Others are there because for one reason or another can't drink but wish they could. You can tell right away who's who by there fondness of "war stories".

If Hoddie said that four years ago here (hugs Hoodie) she would have been pounced on. We care. While i'm on my rant we never used to use the word CURED here. I'll leave it to Tig to shine some light on that. After Tig chimes in you'll see why drinking post treat is still a no no.


 1. We try to avoid judgement in my AA community. Yes its hard and people will judge but if you have a desire to be sober and youre struggling weve found that love and service is a good approach. Judgement doesnt really help because it ignores many realities of the disease of alcoholism. One being that its common to have thoughts about drinking and keeping them inside is harmful. Being honest about it helps me and it helps others. 

2. Im glad there is no pouncing on people here. But you can feel free to respecfully explain why we dont use the word cure and why even after treatment drinking is a no no. It would help me and anyone else who is not aware of those nuances. 

3. Thanks and love

4. I appreciate the feedback. I havent had a drink in 18 years and I dont plan to destroy my sobriety today. I dont think its uncommon to wonder if its possible after Im cured. I didnt know that we dont use the word cured. Thanks for the info.

5. Dont worry, 5-1 got it right: being open and honest about my thoughts helps me stay on the right track. Keeping secrets is poison. Im going to be fine and Im going to be sober. Because I WANT to stay sober and I have the tools to accomplish that by the grace of God



-- Edited by Hoodietree on Tuesday 18th of September 2018 10:47:02 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

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