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Post Info TOPIC: Hoodies Epclusa journey starts 7/26/18


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Hoodies Epclusa journey starts 7/26/18
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Oh my goodness, I WAS WRONG - MEA CULPA!! 

Friends, Im an idiot. I posted in another thread around here some advice to a new member. I said and I quote a gallon of water is 64 ounces and Im drinking 75 ounces a day so Im good.

But actually a gallon of water is 128 ounces!

Will report back if fatigue improves upon DOUBLING my water intake as of today. 

I really want to blame brain fog for this one, I feel like an ever-lovin idiot!  LOL!

 bleh evileye doh no disbelief yawn hmm aww blankstare wink confuse furious biggrin cry smile 

 



-- Edited by Hoodietree on Sunday 5th of August 2018 03:40:42 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Hey Chuck,

Here‘s a link I sent to Hoodie. It helps to describe Parvo a bit clearer. 



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Ya, sorry, not familiar with the parvo test results in your bio.

I tried looking normal ref ranges up for these, but can't find a current reliable guide pertaining to B10, but the B19 igm would appear negative though, at less than 1.1 iu/mL? - jes guessin though - you really should let the doc decipher all these things for you. Were there no "normal" ref ranges (written right on your lab report) to go along with you results? C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Hey Hoodie,

Elsewhere today you wrote of GI troubles and fatigue, and, about fatigue below.

When in doubt about taking anything with your DAA, always default to finding out from your doc (like you tried to do), and/or a pharmacist and/or refer to the monograph (http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/epclusa/epclusa_pi.pdf), and/or use a drug checker perhaps one like this one (https://www.drugs.com/drug-interactions/sofosbuvir-velpatasvir,epclusa.html).

Like i was writing to Woodie the other day (he had the opposite gastric problem as you) but regardless of which ways each of your gastric pendulums have swung, whether these gastric changes are a result of the DAA's, in all likelihood they can be combated/counteracted in short order.

Like you say, it is a little odd, what with the good amount of water you are easily able to tolerate and take in, and in an ongoing increased intake fashion, I did not expect to see you become constipated. But it would happen to me as well while on treatment. As you will see in Woodies thread where we were discussing diarrhea and constipation, I already had a pre-existing tendency to constipation so i cannot necessarily blame the epclusa/vox for continuing bung-ups, BUT I do very much believe that the need for water in the body is deceivingly strong when were are taking these DAA's - if you ever had a tendency to become quickly dehydrated or constipated in the past, this tendency could be contributing to what has occurred now.

Rule out some other seemingly minor contributory factors as well that may have helped to push you over the edge into the bunged up zone - decreased physical activity, extreme heat, diaphorisis, eating something that is know to constipate people. If any of these factors might have added something to the dilemma, try to correct them.

I had to be vigilent with the water, fruit and fiber (every day, without fail) - I wasn't eating large hoards of meat, but I found a really heavy bolus of protein meat meal like that could help bung me up for sure. For others they say cheese can bung them up. I took additional metamucil-like powder in my cereal (often shredded wheat) every day to try to prevent bad bung-ups. My ongoing "on-treatment" diet had to be LOTS of (really high) high-fibre diet and water, or else! If I screwed up on just one element, say ... traveling in the car all day to get to an appointment, then staying over out of town, I could easily become dehydrated, before I knew it  ... and would pay for it for getting on the too-dry side. 

Once you are at that bunged up stage (you will figure it out, what is needed in the immediate, and then in an ongoing fashion, through trial and error) but also give some consideration to the humble glycerine suppository - on occasion this lowly little thing helped me from time to time and facilitated getting me going when I was stuck!  

You and others had lots of good ideas of how to unbung yourself, try the least offensive, effective method that you think will work for you.

Like Tig said the stronger fatigue feelings you have right now may pass, IF the increased fatigue feelings is a result of the new-to-you DAA's working within you, it may be a stage, you may (later) easily get to feeling quite OK while you are on Epclusa, everyone is dif. - wait and see. The constipation issue is also a wait and see, if you fix EVERYthing else and have NEVER EVER had a prior tendency to constipation then I would say perhaps you will have to remain vigilent with your diet and intake right through treatment to prevent further bung-ups. I had profound pre-existing pre-treatment fatigue, unfortunately I did not realize any improvement in fatigue while on the epclusa/vox, but that was just me - everyone IS dif. 

Hope things start improving quick for ya. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Thanks Hoodie! I’m putting you in my address book, under HELP! biggrin  I do appreciate all the help and friendship everyone is always willing to give. We have the best people here! You‘re all considered family.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Thanks Tig. If I can help Ill be more than happy to!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Done deal! I can move entire threads, just not individual posts. They have a weird merge function that doesn't like moving single comments. Of course it could be my limited knowledge of most things IT, lol! Maybe I can put you on the payroll? wink Glad I could help...



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hey Tig, Would it be possible to move this thread to the On Treatment area?  Just curious, if its easy to do, Id like to do it but if its a pain in the butt then never mind Thanks in advance either way



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Canuck said: I know you said you were having troubles with energy (prior to starting the epclusa?), but I take it the fatigue is worse now?

Yes fatigue has always been my main symptom of Hep C. But even as a youngster I have always loved my sleep and rebelled against my moms you can sleep when youre dead mantra. 

I do feel like the fatigue has been worse this week but it could also be a combination of that plus now I have permission to really take care of myself thanks to all of you



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hey hoodie,

Good for you. You are doing such a good job with everything. Water dept - check. Making sure you get all the labs/tests and immunization you need - check. Listening to your body re: fatigue and modifying sleep and exercise accordingly - check. I am glad you rolled up your yoga mat just for the moment. Guard your energy, dole it out with care, especially that you are working. 

One week done already! I know you said you were having troubles with energy (prior to starting the epclusa?), but I take it the fatigue is worse now?

I too had fatigue prior to treatment. While I was on treatment my fatigue certainly did not decrease one iota. Lucky are those who do start to have some degree of feeling better or more energy before treatment is over (it can happen)!, just didn't for me. It took me quite some time to see the fatigue improve, but it did and does. Everyone is different. Early days for you, pace yourself and see, you may yet gain some energy as you go along.

Don't fret and worry and push yourself to get things posted just for us, good that you got all these labs and tests done/accomplished, results will be forthcoming, post when you have spare time, extra time and extra energy - we are not here to make extra work for you! Altho you know we are most interested in you, your well being and all your labs, etc., we are happy to be patient and await the results when they are conveniently available.

Between deciphering what the U/S technician was trying to say, and what the radiologist might glean from reading your U/S, it should prove interesting what everyone sees. A giant kidney!, well, maybe it was just a few ounces too many in the water dept? heehee

For now, just do what you are already doing (so well), conserve your energy - portioning it out for work, getting as much rest as your body is demanding, and good on the water. You are taking good care of number one.

Yes, you could start an "On Treatment" thread, but you would have to ask Tig how to move all this thread over there (if that's what you meant) - I don;t think moving large threads over can be done or done easily. 

Later, C.

uh, did somebody say "beans", like ... kidney beans or sumpin?  Image result for waterlogged kidney

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hooodie, i'm so glad you like it biggrin!

and good to hear you are honoring your body by sleeping and resting



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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::DYING LAUGHING 5!!!::



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Related image ....hahahaha, kidney photobomb biggrinbiggrinbiggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Question: should I move/copy this thread from the New Members area into the On Treatment Area? Probably doesnt matter but I did have a hard time finding it to post tonights update. Oh well. ::



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Tomorrow will be 1 week on Epclusa!

no side effects so far, except fatigue. Monday night I wend to bed at 6pm and slept through till 6am. I was so exhausted after work that I gave myself permission to take my pill 1.5 hours early and then I crashed out hard. It felt gooood to sleep so long! I have been averaging 9-10 hours a night of sleep, other than the epic 12 sleepfest, LOL

I am drinking about 1-1.25 gallons of water a day. Ive never found it difficult to drink lots of water. The only difference now is that I am tracking it.

I went to a new yoga class on Tuesday after work and could only complete 1/2 the class. I was simply too tired. So as I rolled up my mat the instructor asked if I was ok. I told her I have a tremendous amount of fatigue but I will definitely come back to her class and try again when I have more energy. She was very sweet and understanding. 

Still need to get the HBV vaccine. 

Got a ton of lab results will post them soon. Noticed that they either didnt give me an AFP test or they are keeping the results to themselves. Will ask about that in my 4-week follow up.

Oh I got the ultrasound but havent heard any results/analysis. I got a picture though so Ill try to remember to post that. My kidney is shown prominently in the foreground its hilariously large looking, like its photobombing my liver - HA!! I asked a ton of questions of the technician durin the u/s and he said there was a lot of bloodflow and big giant blood vessels so I guess thats good.

thats all for now, nighty nite

 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Thanks for all your wonderful replies and the beautiful support you all give me. Nothing new to report except that I drank about 100 oz of water today and have been peeing like crazy.

5/1 - Glad you like the screenshot idea. Silly me,  I was so proud of myself for thinking of it LOL. 

Nighty nite,

hoodie



-- Edited by Hoodietree on Friday 27th of July 2018 11:28:24 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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It's all go Hoodie (especially to the loo....LOL) Sounds like you have started out well. You will have week one under your belt in no time. biggrin.gif



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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hoodie, the screen shot is such a great idea , happy epclusa day to you



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Good morning, Hoodie! How did the first day go? I haven’t heard of a medicinal urine smell related to Epclusa, but that‘s one avenue it leaves the body, so that’s entirely possible. Everything gets exposed to the medication, don’t be surprised if you have a few Dragon floaters crossing the screen at work and when you close your eyes at night! It’s all good. The first couple of weeks are generally a period of adjustment to treatment in general, but should be completely manageable.

As Canuck said, taking your pill with a higher fat snack has been proven to allow better absorption of the medication. The most important thing you can do besides taking the pill is drinking a gallon of water everyday! I’ll include our favorite guide below  

4DE9B31E-16C6-4795-B520-574437669F9D.jpeg



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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I have already had 25 oz of water and 2 giant cups of coffee and it is not even 8am!! 

I have 25-oz glass drinking bottles and my plan is to chug 1 every morning, noon, and evening/afternoon (at least 2 hours before bed). 

I double filter my water using a double-decker britta pitcher that I customized. Then I pour it into my glass drinking bottles using a funnel. The bottles are from Gerolsteiner fizzy water from Trader Joes (a popular store in the USA). 

So my water is pure clean and awesome. I really love it

Oops gotta pee - TTYL! Have a great day everyone!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Hi Canuck! What a kickass post you wrote for me - again!! You have such a fun and lively way with words. I hope you can feel my gratitude through the phone, computer, or what-have-you! 

Okay, so yeah, I forgot to update you on the Hep A. Since I have no immunity they have ordered that shot for me. Ill have to see if the injection clinic also works on Saturday and if so Ill get the ultrasound and Hep A vaccine this weekend in one fell swoop (whatever the heck a fell swoop is heh). 

They didnt really have a good answer about how I obtained immunity against Hep B. But they say that I have it, so I wont need that immunization until what I have - whether natural or man made - wears off. 

Ill try to remember to ask about the CAP score for fatty liver.  Not sure if my fibroscan equipment tested for that. Doubtful. Which makes the U/S even more relevant. 

I am loving all of your suggestions Canuck and everyone!! 

Heres a tip of my own: when someone mentions something to ask the doc, I just take a screenshot of the post on my phone. iPhone lets you mark up screenshots so I circle the relevant section of the post in red. I was able to pull up those screenshots/photos on my phone yesterday at my appointment. So there ya go! Hope it helps someone/anyone. 

Love and gratitude to all



-- Edited by Hoodietree on Friday 27th of July 2018 10:46:44 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Ah, lovely! Sweet dreams Hoodie! You got the best back-up-buddy-in-a bottle EV-ER on your side now. First pill past the lips. This is a wonderful "day 1". Sleep well, with a feeling of relief (I hope), knowing that this is the end of that old part of your life and on with the new you, free of this virus. 12 mere weeks. You are going to do well, I can just tell, you are a clear-headed logical, methodical thinker (despite feeling tired/fog/and those sad feelings you have been bothered with) despite all you have organized yourself extremely well and efficiently. Be proud of the good job you have done getting yourself here to this day. It will be all right now, you'll see! 

Good on you, to pursue the U/S, and good on them to give you one - in my book it is just good practise. My partner and I got sidelined fighting with a hwt tank, so I could not post as much as I wanted to, but I was going to give you some ammo to argue with to justify the U/S, but not necessary now - you did well and got it all sorted.

Your fibroscan - did it happen to have a CAP score capability? (It is kind of a measurement level of fat in your liver). Let us know if you had a CAP with your fibroscan. Not everyone gets a CAP, I never had one (just at the mercy of my doc old fibroscan equipment), but the U/S can also indicate fatty livers a bit too (among mnay other useful views of things!). U/S and fibroscan are great non-invasive things to have done IMO.

Us GT3's have a tendency to have fatty livers (sometimes) perhaps moreso than other GTs, so, good on the U/S. Post some of your old labs if and when you find any of them out - like bili's, AFP, chols, and whatever else you may be able to get records of.

So, when you went to see them, did they immunize you, and with what? - we had been discussing it in your old thread, but thought I would just wait and find out which immunization shoe dropped where, after your Thurs. appointment.

Are you able to have late night snacks with no problems, if you are taking your epclusa at bedtime, it might be an idea to have a late night snack with it (a med content fat snack) - even though epclusa can be taken with no food, taking food with it food is sometimes a good idea just on principal, and a moderate content fat meal will help it's absorbtion. 

Of, course the most important thing is water, water, water and consistency in taking your daily dose on time, same time everyday, that, and striving for that gal of water per day. Dilution is the solution to pollution (kinda). 

Just concentrate on you and the basics, you have to expend energy at work, so leave the pressures of all the other things we query you with last - you got everything very well covered - just try to relax into the routine of your treatment, treat yourself really good, adhere to the neccesary. We are all here for you if we can help, questions that come up or whatever. 

So glad you got your start! biggrin C.

Wow, you ever dredged up our dear ole buddy Pablito for a hiya, he was my running mate in our trial, we both did 8 weeks of Vosevi (epclusa+voxilaprevir). So good to see a post from that man. 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Yes indeed, and thanks for asking 5! I took my first Epclusa at 7:30pm because I plan to take it before bed and I am sometimes so wiped out after work that I hit the sack by 8 or 8:30.

Am I crazy or did I notice a slightly mediciney smell to my urine?! Hope thats the only weird thing I encounter

My u/s is scheduled for Saturday. Kaiser is back on my good list for that Wont need to take time off work, yay.

Okay, bedtime for hoodie. Night all!



-- Edited by Hoodietree on Friday 27th of July 2018 09:05:27 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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is this happy first day?



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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JB wrote: From what I've learned through all this is to think only good thoughts, take one day at a time and, of course, drink lots of water. My journey has been pretty smooth, so I am thankful for that. You are in a good place here on this forum. You are surrounded by good people.

Thanks JB I will try hard to remember this excellent advice



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

JB


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Good luck, Hoodie! It will go fast. Trust me. I can't believe I just had my 8 week blood work done the other day. I think I'm down to 24 beans left.

From what I've learned through all this is to think only good thoughts, take one day at a time and, of course, drink lots of water. My journey has been pretty smooth, so I am thankful for that. You are in a good place here on this forum. You are surrounded by good people.

JB

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39/M, Dx Apr 2018. GT3. Possible HCV since birth. Pre-treatment VL 653,000; ALT 201, AST 116, Fibroscan w/ Fscore of 3 w/ some fatty liver, Tx 12 weeks Epclusa ended Aug 18. MRI June showed no cirrhosis, but something on liver - possibly artifact 1.4x0.6cm. EOT VL undetected w/ ALT/AST normal. 



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Yeppers Iris! I cannot wait. Really wish I could fast forward 12 weeks. Im sure it will go fast though. So grateful for all the support here



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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tic tic tic...tomorrow is almost here!

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4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Congrats and thanks Pablito! 

I read your sig and am really happy for you biggrin

(kind of a silly emoji but I wanted a green one for you to match your profile pic.)



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Go Eclupsa.  I did it 2 years ago in the UK and it worked a treat.  Easiest (albeit stressful fretting about the result) 8 weeks of my life.



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.



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Yeppers, Thursday is the day! Dumb old beast is indeed packing its dumb old tired bag and gett ready for eviction. Sayonara stupid beast! Onward! All good things for all of us from here on out!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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WOOHOO!!  

Good for you for asking about the ultrasound. Everyone imo needs to get that done when they are diagnosed with any form of liver disease. A baseline exam is just good to have on record. They aren’t expensive and they only take minutes to accomplish. 

So Thursday’s the day you plant the first magic bean huh? Yeah! You might have a few days of some weirdness, but it will be totally manageable. You‘re taking a powerful drug and your body will naturally respond to it. If you have any side effects at all, they are generally mild. It’s not like the old days when we administered chemo drugs to accomplish this goal. You’re blessed to be treated with the very best. Don’t worry, you’ll have this lizard on the run in less than 48 hours. It’s already packing it’s bag...



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Thank you friends! to clarify they have NOT approved me for an ultrasound but Im still pushing for it. I dont want to hold up my SOT date, so I will start Epclusa as planned on Thursday and hope to follow up in aug with the u/s. 

As ever, thank you thank you, Love & gratitude,

hoodie



-- Edited by Hoodietree on Wednesday 25th of July 2018 09:49:00 AM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Great news Hoodie...... Hopefully the journey will be a nice smooth one.

 

Your turn for a stint at Dragon Slaying! clap.gif

Magic Bean number 1 will soon be in the bank! nod.gif



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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yay hoodie , got your thurs. appt and talked them into an ultra sound.....woohoo.

so yea, bedtime. i started in the day time but back tracked to an hour or so before bedtime. 

i work swing shift so i took it after work.

rock on hoodie



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Got this text from Kaiser this morning: Your prescription is ready for pickup at the Kaiser Oakland Main 1st Fl Pharmacy. 

This is for Epclusa!! Wow, I really cannot believe I might someday slay this beast! Thank you God. 

Ill go in on Thursday at 1:30 for my appointment and start taking it right before bedtime to sleep thru any possible side effects.   

Ultrasound update: they said for people with an F0-1 fibrosis score they wont do an ultrasound. I said I want one anyway. NP said she will talk to the doc. Appointments for u/s are into aug - sept she said. Thats cool I said. Ill take the next available appt. Im pushing for it but if I cant get it I wont fight. Too tired to fight.

 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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That is so beautiful Tig. I just sent it to both of my sisters, one of whom is recovering from chemo for ovarian cancer. We are all fighting. My sisters, me, and all of us here are engaged in a tremendous struggle. We are stronger together, armed with information, and fortified with courage and love  

glad to see you here iris!

:boom: 

love to all. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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I was looking for something today and look what popped onto my page! I believe its a sign for all of us, but especially for you, Hoodie and all of our Warrior Women!

Fight and ye shall conquer all fear and defeat those big lizards that have invaded our bodies and minds...

 



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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I'm here too! gonna be following your progress and rooting you on. biggrin

I can completely relate to the depression and anxiety, the hep alone besides the stigma is very depressing and omg I was quite freaked out when the approval came through, Now what? Geeze, went through a thousand changes...

I guess we saddle up that dragon and ride him one last time...right into the ground. Boom

Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Thank you STL, Thank you 5



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Glad to see you now have your own dedicated thread Hoodie nod.gif Will certainly be following your journey.
And Tig.....I agree with hoodie......This is such a lovely post
Tig wrote:

Fear not, Warrior! I want you to gain strength and confidence from your decisions. Look at what you have accomplished! I want to assure you, there is nothing about this that you should fear. Take this important decision and fly high with it. You are doing a great thing right now. You are obviously a bright, intelligent woman, that is excelling in a highly competitive IT world and this decision, along with your sobriety and willingness to participate in the health of others (AA and here) shows me your Warrior spirit is strong! Let it loose and revel in its strength. I know the difficulty in doing that.

Depression can be so mentally confining. The Who song Behind Blue Eyes brings me a lot of memories of my days when dealing with those pains and doubts. Its like nobody understands, but I do and its no fun feeling like youre always talking to people through a sheer curtain. They hear you, but cant really see where youre coming from. I know that each step forward, lessens the sheerness of that curtain. Youre doing that, have confidence that your proactive approach is working. We all need a shoulder to lean on occasionally and I want you to consider us your collective shoulder. You can do this!

Now prepare for greatness! Don your armor and get ready to slay your Dragon...

 


 



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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hi hoodie, so glad you got your page going; it just helps to have a go-to thread for your journey.

yep, to look at most of us no once could see any illness, and for me, talking about it helped me shed some feelings of shame etc.

no matter how we got the hepC it can't live in our body anymore thanks to the DAA's.

happy trails hoodie, i like your new avatar  5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Oh my goodness, TIG THANK YOU!! Your post made me smile so much while I was reading it and Im still smiling 5 minutes later!! Thanks a million. Im going to re-read that post anytime I start feeling down.



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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Fear not, Warrior! I want you to gain strength and confidence from your decisions. Look at what you have accomplished! I want to assure you, there is nothing about this that you should fear. Take this important decision and fly high with it. You are doing a great thing right now. You are obviously a bright, intelligent woman, that is excelling in a highly competitive IT world and this decision, along with your sobriety and willingness to participate in the health of others (AA and here) shows me your Warrior spirit is strong! Let it loose and revel in it‘s strength. I know the difficulty in doing that.

Depression can be so mentally confining. The Who song “Behind Blue Eyes” brings me a lot of memories of my days when dealing with those pains and doubts. It’s like nobody understands, but I do and it’s no fun feeling like you’re always talking to people through a sheer curtain. They hear you, but can’t really see where you’re coming from. I know that each step forward, lessens the sheerness of that curtain. You’re doing that, have confidence that your proactive approach is working. We all need a shoulder to lean on occasionally and I want you to consider us your collective shoulder. You can do this!

Now prepare for greatness! Don your armor and get ready to slay your Dragon...

 



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__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Im starting my own personal thread to keep track of my journey as was suggested by Tig and others. 

Thank you all so much for being here as I embark on this scary and exciting new phase in my life. 

Im a little depressed and anxious. Spent this weekend sleeping a lot and being alone, except for my A.A. meetings Fri Sat and Sun. My friends and family all know whats going on with me and theyre being super supportive. I will probably share at group level in A.A. about it too. Youve heard of My Year of Living Dangerously? well Im calling this My Year of Living Honestly. Im just telling the truth to everyone. Ill keep it a little vague with my employer but everyone else gets to hear my whole truth. In a really positive restorative way. 



-- Edited by Hoodietree on Sunday 22nd of July 2018 02:45:17 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

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