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Post Info TOPIC: Harvoni beans and Me


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Harvoni beans and Me
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I will do another test at 12 weeks. I'm down to TWO WEEKS of meds left. Unbelievable.
Actually feeling pretty good, I've been on a mad cleaning spree!
Love you all!, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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YAY Iris. UND, UND - and that's just the way we do it! RIGHT ON!!! So glad you got those 2 UND's under your belt - feels good to see them doesn't it - yer doing it fer sure! Lovely. CONGRATS on UND#2. Rest a little easier tonight. biggrin

So, you got a 4 week VL and this 8 week VL, does this mean you will (or will not) get at 12 week EOT VL, in addition to these two.

How ya been feeling? smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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whoohoo!

biggrinbiggrinbiggrinbiggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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It's official !!!

8 Weeks UNDETECTED !!!!!!

 

          

, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Thanks you two, forgot to mention...I had my 8 weeks blood test today. so I'll have some numbers by next week to report! yea!

bb, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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iris , things seem to be flowing easier for you. yay! so glad you are enjoying the last leg of the harvi pills



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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Yeah, Iris! I like the positivity in your message and know things will continue to get better as the weeks and months progress. You’ve done very well and buckled down when you needed to. You got this, I’m certain of it! The end of the line is just ahead, Harvoni Station. Prepare to disembark, SVR-Ville will be your final stop!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Well, time is going by much quickly-er than I expected. Have been super busy in the last couple weeks after the house ursurpers finally moved and prepping for the the craft fair and cleaning my house like a crazy person for an event here on Sunday (yesterday) I also took a hike with some friends to a little hill out in the Santa Monica Mountains for a Moon viewing Saturday night.  It's only about 2.5 miles round trip but that wore me out quite a bit after sitting on my butt for 2 months! The thing that has amazed me in these last couple weeks is... I feel Better. The lead weight seems to have lifted and, I don't know if this is my huge imagination but my blood feels "cooler"?

The Coast home does thus far feel breezy!

So as Tig said I guess I'm onto the clearing house bottle! Sweeping all the remains of those nasty buggers out, least one should spring back to life, >>growls and snarls<<  Ewe, like a cockroach, bleh. Viruses are strong little dudes, they don't want to die either, it's like a parasite. Eh just like the herpes virus for any of you that are sufferers of that lovely virus may have noticed they feel a little "friskier" just before and during a breakout...this viruses way of spreading the love evileye

Was so busy I didn't get a chance to share the "blossom into health" photo of the first pill from the last bottle.!!!!!!!!!! (The tablet doesn't take very good pictures anymore for some reason) I loved the way the rose is close in color to the pill. DOWN THE HATCH!

Thank you for all your good words and support blessings, Iris

20180826_095527.jpg

 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Iris Dragonfly wrote:


The last bottle of Harvoni just arrived! Hope package! Box of potential miracles! Soul renewal! Life line!

 

Yay Iris I am so happy for you!!! Way to go, keep up the great work! Almost at the finish line



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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"oh happy day" iris the little brown box full of a miracle.

i'm so happy for you as you get your last botte...woohoo



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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That brown box contains the recipe of your successful journey! I couldn‘t be happier for you, Iris. At least not until you get that coveted SVR12! That day is coming soon, too. Just keep your eye on that prize and continue to do things as well as you have. That Dragon has already “left the building” and these last 4 weeks are simply cleaning the house, for your healthy liver to reside happily ever after!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Thank you!! thank you!  for those home stretch blessings! Much appreciated smile !

I cannot stop weeping t The last bottle of Harvoni just arrived! Hope package! Box of potential miracles! Soul renewal! Life line!,  this little brown package is about the most lovely shade of Earth I have ever had the good fortune and luck to behold!  And right on time to be charged in the full moonlight once again. Everything has come together so perfectly, the timing couldn't have been any better. That must mean success! Right!?

Here is my smiling delivery guy, I could scarcely see through the water in my eyes to sign the little board. Oh fraptous day! Caloo calay!

Blessings, Iris Dragonalmostgonefly

20180820_100211.jpg



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Keep going Iris!  You'll slide into home base in a matter of weeks.  You're really maxing out now, and the meds are clogging up, but it will get better after!  We're proud  of you.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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happy,happy downhill slide iris



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Awe shucking husks you guys, that's awfully sweet. 

Yea! Warrior on! LoL...And then she slids into a lump on the couch....

The little dollies are for a craft fair in October, I'm being pretty optimistic about having the energy for this so wish me luck, (it will require leaving the house at 5:30am, my innards aren't ready to leave that early!!) I hope I can manage. It's a long drive. I haven't commited yet, soooooooo, we'll see.

Aaaaaaannnd here is today's update:

As any halfway marker would have it,  the rest of the trip, like Tig was saying  is downhill, coasting,  free ride, clutch in neutral...I  think I will refer to it as the home stretch. That's it. I want to go home. Home to myself, before I was all tor up. 

So this is the first pill on the OTHER side!:

20180812_093448.jpg



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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First and foremost HURRAY HURRAY HURRAY

UND....   you are kicking virus a55. 

And second...those corn dollies are absolutely wonderful! I love seeing them all dancing and exclaiming their joy about your results. Super creative.

Sorry to see that rash, but glad to see youve figured out how to overcome that with your lap protector towel (because you simply MUST keep making those lovelies)

 

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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The little corn dollies are super cute!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Congratulations Iris, the time has flown.

Sorry to hear about your rash, I guess sweat mixed with perhaps your husks is the culprit but keep an eye on the rest of your body to see if it spreads. Rashes were one thing I was told to watch out for whilst on treatment, but in the heat you are experiencing I expect rashes are common. I know that even though I am an allergic type person I do get more of these things when I am sweating a lot.

I do love your little dollies. Never seen them before, they are just gorgeous. What do you do with them?



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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20180811_092832.jpg

!!

 

yea, that also might be a reaction to the sun the other day? some calamine and yes a towel while corn husking the dolls.. they are so cute



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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WOOHOO! That’s a real milestone in treatment. From now on you’ll coast downhill into the Harvoni Station, EOT-Ville!

I wonder if there’s something on those corn husks that you’re sensitive to. That’s definitely a form of contact dermatitis. Do they have a prickly surface that may have caused an abrasion? If that’s what it is, hopefully it’ll clear up quick.

 

Congrats on reaching the halfway mark, Iris! It’s going by fast



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Thank you again biggrin 

So here's the up date...TODAYS BEAN WAS THE HALFWAY MARKER, WOoooooooHOooooooooooo!!!

20180811_092832.jpg

And I have a weird rash. Which I wonder if it was in relation to the corn husks from my corn dollies I mentioned about over in "slug in peanut butter" (I have been making them in my lap) I have never had such a reaction and I have been making them for a week now. Last night I opened a new package, maybe...huh, I just don't know. I was going to say sprayed, but they're supposed to be food grade for tamales. It doesn't itch, more like raised welts with some acne overtones. Corn reaction? Or stuff on them? Oh well. I'll put a towell on my lap. I'm on a roll!

So here's a pic of the rash:

20180811_085351.jpg

 

Aaaaaaand here is some of the corn dollies:

20180810_102923.jpg

Bb, Iriss



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Fantastic new Iris biggrin.gif You must feel just great, particularly since things haven't been good for you on the home front.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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WAY TO GO IRIS You beautiful warrior queen!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Nice!!!!Iris

Seeing undetected never gets old here.

Way to go!!!



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Wonderful news, Iris!!! I had forgotten the feeling of waiting for labs. It's nerve racking!  But, you got them and they're great! May I have this happy dance?

As my specialist explained it, the treatment continues after good initial successful testing because some sneaky viral varmint could be hiding in the deep, or be in the process of replication.

I know you have been having a hard time lately, but it looks like you are about to unload some big problems.  Those numbers foretell a rise in health and wellness.  For now, just slog through the treatment, and try to see the side effects as a temporary condition.

When it's all done, you can use your survival super powers



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Iris,

I just mentioned on the Harvoni Train thread, that I was anxious to hear your results and here they are! This is fabulous news!! Totally expected (in my mind, lol) but outstanding to see it on paper. Congratulations, Warrior Queen! You will see ZERO for evermore...



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Yea! Thank you, You guys have been very supportive, I appreciate that. 
It felt like a long labor actually, The blood draw was over a week ago, I felt like I was drumming my fingers on the table, forever. Whew. Glad that first wait is over, now for the second baby eh?!

BB, Iris

 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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:

iris, this is such great news. even all the stress you've been under and those little magic beans are still working

i'm so happy for you biggrinbiggrinbiggrinbiggrinbiggrin

and yea, that was quick results. awesome!



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Wow iris,

Howdya get the results SO fast!? 

VIP's deserve their good news and deserve it quick-time too.

Lovely news, labs and numbers. All will be right in the world - you'll see. Happy for this day for you Iris.  biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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 aaaaAAAAAAAANNDD*** Drum roll please***...tadadadadadadadadadadada, BOOM! clang, tcshhhhhhh TA-DA! 

we have results, and they are..UNDETECTED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I'm still having a bit of trouble digesting this, is it true?, is it really real?, how can that happen in such a short amount of time after it being there for so long?, I'm beginning to wonder how this wonder-drug actually works. If we are still unable to give blood that give me pause to think it still lingers....somewhere, but where? Is it like the containment facility on Ghost Busters???

eeeeek, I worry way too much, well you know what happened on Ghost Busters....

So this is the low down.....

AST: 18 (range 10-35) normal-this one was usually normal or in the 40's to 60's

ALT: 20 (range6-29) normal- this one was always slightly elevated

biggrin all other tests in the liver function panel were normal biggrin

CBC: all normal

AFP: 3.9  (ref range<6.1) normal- which has been as high as 11, but I have heard ,to be considered a threat, it would be in the hundreds.

HCV RNA, Quantitative real time PCR:                                                                                                                                                                     <15 Not Detected (IU/mL)                                                                                                                                                                                    <1.8 Not Detected (Log IU/mL)

Before treatment my bloods in April were: VL was 8,550,000 and the Log @ 6.93 I also had a slightly elevated red blood cell count, and my glucose was just borderline as it had been for several years now, I could stand to loose a bit of weight, I'm 5'4" and 167lbs. Which I seriously thought I would loose a pound or two considering all this water, and lack of ale, which I haven't missed a bit. It's been a refreshing journey of cleansing,...almost... Now if I could just get away from Jack in the Box tacos! I get them like once a week now that I don't feel like cooking much. *sigh*

One thing that was slightly elevated was my blood pressure, like 138/82? (right around that), anyway mine is so low normally. I wondered how stressful the wait in the office must have inadvertently had on my anxiety?, not to mention they were short staffed and I spent much of my wait in the hall because the waiting room was full. My lady NP that convinced the insurance co. to treat me was on vacation, bummer, I really wanted to share this with her, Instead I had the head Dr. who I hadn't seen in several visits, he was excited for me, explained the need to treat the full 12 weeks, and we shared some photos, He said call if my symptoms become unbearable,  which they really aren't, I was the last one out yesterday. Late night, On the way home I pulled over to really get a good look at the results, only then did I have a moment to cry with a million thoughts racing through my head about the WHOLE JOURNEY from the time I was first diagnosed, all the time spent in libraries, days I spent distressing, people I feared infecting, times I considered suicide, and now ...will this really stick??? Oh geeze, there I go.... I still had to pick up A new bag of "lactated ringers" for the cats sub cu. fluids on the way, daughter was at my house waiting for me, (she does the cat watering while I hold the cat down), which was GREAT!

At least I had someone to share my good news with!!!! Then my Mom called biggrin Then my girlfriend e-mailed me to squeal, Then Mr. was like, "Huh".

You guys were right! I am Surprised      

Blessings from grateful Iris

 

 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Good Tuesday Iris,

It was a BIG day biggrin and I am glad it is done now. Accomplished a fair bit today m'lady - milestones are piling up around here for you! Take a few breaths, try to rest, re-focus, wait for the rewarding lab results, take them in stride and keep on going, one step after the other - you know everything you need to do. Proud of you. smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Im still rooting for you too Iris, along with everyone else here who genuinely cares about your sweet little self!

ps: I pray for you every day. please stay away from that monster. 



-- Edited by Hoodietree on Wednesday 8th of August 2018 12:13:51 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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i'm so excited for you iris



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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I know you’re going to amazed at the results! Let us know as soon as you get some updates. These drugs work fast and if you’re not already undetected, which happens, just look at the LFT’s. They alone will tell you how well things are progressing. It’ll be one of those OMG moments! 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Well it's Tuesday once again, besides all my regular counseling,

I have my appt with the hepatologist about my 1st bloodwork today!!!! SO freaking anxious.                                  my appointment is at threeeeeeeeee,, weeeeeeee.............



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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iris, i'm so glad you have a support group and counselor and that you are staying focused on managing things so you can get your treatment completed.

and it's so good to hear that the universe slowed him down a bit right now

be well friend. 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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You guys are great I appreciate the suggestions, I have thought about hiding them but like I discussed earlier on we only have one room in the house with ac, the living room, and he is in there all the time. It was almost 90 degrees in the back of the house last week. I can't tell you this hadn't crossed my mind. Oi. I just gotta pray he don't care about that. Apparently in his fury he has wrenched and old injury in his neck, and he can barely move. He may have gone to the hospital to get drugs this am. I don't know I've been gone all morning and now he's asleep. it's only 2 in the afternoon now.

I'm excited about my labs, they did CBC, liver panel, PRC RNA, Afp. They took 5 tubes though so maybe I'm missing something. I'm uncomfortable making a profile with Quest so I guess I'll wait till my appt. to find out the results. Kinda like having a baby! Will I have birthed positive results? I'm nervous I seem to have had a bit of a rough time of it. My mom wants me to report about the extreme weakness in my legs and back, almost to the point of falling down, but the weird sides come in waves it seems. The neck thing is still an issue now and then, super stiff spasms and then gone and sore throat here and there. I told my mom it very much reminds me of when I first was ill 40 whatever years ago except no stomach ache, that may be helped by the marijuana. Back then I was like a lead weight on the couch for like 3 months.

This was a busy morning, I go to a domestic violence group and after that to a one on one counselor every week. Tuesdays wear me out. 

BB, Iris

(edit)

Hey C I just missed you,... his family is of no help other than he may be able to go to his moms, his dead beat brother has already moved in on her with his two young sons, there's not a lot of room. She is a hoarder. I have just been too freaking nice for too freaking long, I'm aware of all the shelters and what not, I'm just a big chicken ****. I probably shouldn't have confronted him, but neighbors taking retribution for his bad actions can affect me and the house. I feel I have to protect the house as well. He has threatened to burn it down, but then he was so high on downers, he passed out. he will probable kill himself some day, and I have wasted most of my life trying to save him



-- Edited by Iris Dragonfly on Tuesday 31st of July 2018 06:32:15 PM

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Wish there was a better (more convenient for you) "interim" solution to the problem. Like a-closer-to-your-locale place you could be at, until you get this problem of him, sorted. ,

Is it posible, that you two might reconsider and end up staying/ living in the same house, perhaps under slightly different terms, perhaps this has happened before where it felt you were "near" ending your relationship as you know it, but then it turned out you two have decided to stick it out? Or, are you sure you and he are definitely done.

If so, if that is the direction you intend on going right now, then the work and steps involved will require you be "near" your house, so you can safegaurd it, and possibly be near to the courts (if required) to do what is required. You need to be near to home if your community contacts and interests/work/church things are important to you and a necessary draw to you. If you CAN just drop everything you could try to camp at your Mother's place long term (with your animals I guess), and work at getting him to leave from 200 miles away, but ... distance is difficult to work from.

It's too bad it is such a difficult thing to do, to orchestrate finding yourself another place for you to live - nearby - (and to home your cat, and birds, and turtles) to avoid him for the short term.

Keep thinking about your friends offer (the one with the new big house)?

Check out local community emergency safe houses, just in case, as a fail-safe, as he seems too volatile for my comfort level. You mentioned "addict"? Is he in midst of an addition problem? Great (NOT)!

Are you on good terms with his family? Can they be of any useful assistance in "certain" ways, perhaps such as convincing him the best thing would be to vacate the home/leave the relationship? You spoke of him perhaps going to live with his Mother? 

Are there any other "ties" to consider, that are going to make it difficult for you and he to make "a clean" break? Such as financial/dependent ties, where you must still be in contact? You are going to have to pave the way(s).

Tired and under duress, but still you are doing a very fine and valiant job Iris, under trying circumstances. You ARE going to get through all of this, and the past will be past, and MUCH better things are in store for you my dear - I just know it! Rest when you can, and just keep going. C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Tig


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Iris,

What he said...    



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hi Iris

Unfortunate situation. I would advise keeping your beans hidden. Mr. sounds like the kind that would flush them on you just to be a p***k. I hope you sort things out . Remember right now you come first. 

Mr. should thank his stars that ribavirin wasn't part of your treatment cause he might have been deceased by now. furious

 

Best wishes for you 



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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hi iris, so glad you got bags backed just in case. it sounds like have a good plan

what did they test for in your labs ? how exciting.....i know it will be good news for you



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Tig wrote:


Mr. doesn't sound entirely grounded in common sense sometimes. You be cautious and if you see trouble brewing, you grab your bottles of magic beans and get the h*ll out of there. 


 More like he was born without a common sense gene. My bags are always packed, Mostly. Decided I couldn't make it to moms. Gonna wait until I can stay for a longer period, in about 2 weeks. I'm tired.

So I visited the Vampire today. Same young man as last time. He is pretty funny and that lightens things up a bit. He uses a butterfly needle on me, my arm is pretty poked up from the continual blood tests, 3 times a year for 40 what-ever years. Found that thing hurts less and leaves a smaller hole. They can only access through my left arm, the right just does not work evileye 

Now for the waiting....tic tic tic tic tic. I see the Hepatologist next Tuesday. Oh anxious week.

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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I'm sorry you're having to deal with all of this BS right now (or ever), Iris. Maybe the bangers next door will take care of the problem for you? God forbid, but your Mr. doesn't sound entirely grounded in common sense sometimes. You be cautious and if you see trouble brewing, you grab your bottles of magic beans and get the h*ll out of there. You don't need that kind of grief in your life.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Thank you guys, it's all so complicated...tramatic bonding and all. Messes with my esteem. The truck was my fathers passed along to him after my dad died.  We are the only ones in the house, besides the old cat, we have 2 turtles and two ringneck doves. I have asked him to leave and recently told him to please stay at his moms but he won't leave. The house belongs to my mother and she is contemplating selling it. Mr was supposed to be doing improvements, but the kitchen and bath were like hell, he hasn't done a thing since that (2006) other than mow the lawn and water like a maniac until we are into 4 tier billing. doh  im very angry at his disregard for other peoples property, and ya I realize I can't control the actions of another but when it comes to perhaps getting sued I cannot sit by and say oh poor addict, I won't confront you, BALONEY,  (by the way this is not the first time this sort of thing has happened it gets much worse and Id rather not rant any further at this time) I may go to mom's for a few days but the church has an event this weekend so I'll need to be back by Friday. I can stay at a friend's, she is moving to a large house this weekend and said I could have a room, but I really don't like imposing. My daughter has like -0- room at her place, unfortunately. And that would be weird with her boyfriend around. I dunno, this is stressing me out which seems to make me feel more ill. My back can hardly hold me up I feel so weak. That's one reason I don't want to pack stuff and drive all that ways to moms. (aprox 200 miles) but I have a feeling I'll go anyway, after my 1st blood works since starting treatment Monday morning. I really would like to stay home, I have my own car (new used certified) that is currently undergoing an oil consumption test...supposed to drive 1200 miles and bring it back, heck I just went 3000 miles all over the southwest!  Oh sigh...I'll  go now



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Oh Iris cry.gif What an A-Hole!!!! This is definitely not what you need while on your treatment or recovery. I do hope you are able to sort something out and find yourself some peace promptly. Its been 4 hours so hope you have managed to calm yourself down.

On the positive - one  bottle of Magic Beans down already, with few problems in themselves, so that is very good news. nod.gif You will be Hep C Free before you know it.

I just hope everything in your personal life has improved when we next hear from you. Positive thoughts coming your way. relax.gif

 



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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kudos to you iris for starting the new bottle inspite of the chaos around you.

yes, start calling around to see what you can do about 1.keeping him out, or 2. you getting out till you can get your place to yourself.

it is always sad when one persons insanity hurts everyone around them. i pray you get some peace, and not from a heart attack.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Iris,

When one is not able to control another, or the actions of another, when the actions of the offender is impacting you and others negatively, removal of the offender from the situ (or just temporary separation of the parties) IS an answer (one answer) - but it may only be transient/temporary and or may NOT happen in a timely fashion.

Another temporary option is to have the impacted people (you) leave the proximity of the offender, keeping yourself out of the way of witnessing and being the recipient of the unpleasant actions of the offender.

Complicating matters would also be ... if there are any other people living in your place, aside from you and him? Pets? If so, then you have to take into account others in the household too, in regard to seperating yourself from him.

Do YOU have another place to go (nearby)? Can you move your cat with you, or give it to your daughter for care. Are you legally able to drive (you mentioned you had to take a remedial driving class?), and do you and he share only one vehicle?- who's vehicle is it and who drives the vehicle? Below you spoke of him driving "Dad's" truck (his Dad or your Dad?), so, do you each have your own vehicles?, and are you able to drive yours? I hope he does have a vehicle of his own. This makes being apart easier, as is, if you are also BOTH legally able to drive. I hope he has freinds or family or a place he can decide to go to.

IF you have the transportation means, and a place to go, at minimum, I would keep considering the possibility of removing yourself from his proximity when he is operating in a unpleasant un-controlled way.

As disruptive as this may be (to you and your life/work) to have to remove yourself from your home to solve this immediate/current situ, it is an option (temporary for you), to resolve a unpleasant episode/period, until a time, in the future, when the problem is more permanently solved.

It's very inconvenient, and it should not have to be so, but I would pick a safe place to go to, not too far away, so you can still try to carry on your normal routines of life, as is possible.

Does he have any other place to go? His own friends, family, vehicle, etc? Makingeit very easy (enticing/desirable, to him) for him to leave (his decision, where he would personally decide this is a better option for him), would seem best.

Sorry Iris, tough situ, not pleasant, wish i could think of something helpful that would help for sure and fast. C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Well, good and bad news today.

1st pill from the round 2 battle bottle is down the hatch just when the Mr. pulled up and pushed the neighbors car with his truck...because he don't like anyone parking in front of our house. So what? It's a public freaking street! I yelled at him,  the neighbor saw him push her car, I hope she calls the police but they are gang members so that's doubtful. Then he tore out of here so hard and fast in dads old little truck I was sure he would drop the tranny right there, or crash or hurt someone. I don't have the energy for this, I called the Sheriff to see about changing the locks, I have to have a restraining order first, court closed today, don't know if I have the energy for that now. But in this moment...Right now,  I'm so frigging mad, I fear a heart attack,  so it feels a little better to get some of this off my chest.

Dang



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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new bottle on the horizon



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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Yeah!! One bottle of magic beans down, two to go! Last night was a full blood moon, so it imparted mega magic on those beans. They likely glow in the dark! Dragon power has no strength, it’s like kryptonite on lizards, ha, ha!

I found your shower head company and found all of that information very interesting. I wondered about the cartridges and how long they last. Looks like 6-8 weeks on average and that seems pretty reasonable for what it provides. Lots of different kinds of heads and aromas. I might have to consider that as a gift to myself, lol! And my wife of course! wink

Keep up the good fight, Iris! You’re a third of the way to the Hep C free life you’ve been after for so long. Drink that water and then drink some more...

                                                     



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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