Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Harvoni beans and Me
Tig


Admin

Status: Offline
Posts: 8986
Date:
RE: Harvoni beans and Me
Permalink  
 


Okay, it took me longer than I thought to find these hiding amongst the Clouds,  but here’s my memory! One Interferon injection per week, two Neupogen injections weekly, 6-200 mg caplets of Ribavirin daily, for 7 months and 12 Victrelis capsules daily for 6 months... Ugh! I’m so glad you don’t have to do that now and glad you were able to wait to get the good stuff. None of it is or was easy, but the results are still the same! You will prevail and it is worth it!

GLORIOUS!!!

 

 



Attachments
__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Ok 5 here it is....I really like that BBQ dragon banner Tig, that made me smile.

ONE WEEK LEFT!!!  Well, 5 days!!! I will be done by the 22nd of Sept....the Autumnal Equinox, that's very special and significant to me, I'm so blessed in the timing of this.

Iris Dragonfly

20180916_095034.jpg



Attachments
__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

I wonder if this in part is why I'm all emo lately. It's been such long journey and I want to collapse into joy, but think I should wait for the one year test for that. I wish I'd stop crying, I guess I want soooo badly for this to work.
Awe, I'll see if the device will wake up now.



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

pill box! pill box! pill box!... the masses are rallying wanting the pill box!!



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

Iris,

Young lady, you send that photo to whatever device will get it on this forum and post it! If you want my personal email, just let me know and I’ll do it for you! That is a powerful photo that will be placed into Hep C history for all of your fellow Warriors to savor.

I want you to enjoy every single second of this victory and you MUST believe me, it will be YOUR victory! You deserve this and you have earned it. Let us dance around the victory fire and stars with you... 

I’m going to find the photo of my final “Dart”, just to show you how important it is to remember these final moments, in the life of this thing we call, The Dragon. Give me a few to find it in the Cloud. Everything is in the “Cloud”, lol!

5F60615E-A132-44A6-8ACD-126483F0D11E.jpeg



__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

one week left? . hang in there while the sweet daa does it's last mop up



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Thanks guys, you have no Idea how good it is to hear from you all :) All my other blood work has been normal, I'll look for the Alt and Ast but they were within the normal range.

I wanted to post a pic of my pill box and the last week, (the pic is in my device, I'm on the laptop) But now it is two days later and I dunno, I'm feeling the moment has passed.

BB, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Senior Member

Status: Offline
Posts: 375
Date:
Permalink  
 

Congrats Iris!! 

Im so happy for you and Im truly inspired by your remarkable journey. 

Thanks and rock on with your beautiful self!



-- Edited by Hoodietree on Monday 10th of September 2018 10:25:46 AM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

Congratulations, Iris! I knew in my core that you were going to be successful. I just felt it was never in doubt and your results are proof. Now, two weeks to the finish line and the only thing you’ll have to look back on, is how hard you fought to finally obtain treatment. Keep going and leave that Dragon in the rear view mirror!

 



__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 494
Date:
Permalink  
 

Nice!!!



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



Guru

Status: Offline
Posts: 593
Date:
Permalink  
 

Iris sweetie,

I could weep tears of joy for your wonderful news.

You have been through soooooooo much to get that UND and you soooooo deserve it.

I also had VLs throughout my treatment and between that and the the lower/normal liver function tests... it was a good motivator to comply with all of the Dr.s orders/rules...(and to not throw my bottle of evil ribivaron in the garbage)

Did they do your ALT and AST? If so how are they looking?

Its great that you are motivated to clean, nothing as awesome as a fresh start.

xox



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

WOW, good deal! Happy for ya Iris. Couldn't git much better! So glad they are not cheaping out on the VL testing for you - I always appreciated knowing what the results were as I went along. Lucky you, you got three on-treatment VL's without even having to ask for them! I only did 8 weeks of treatment, but I had lots of VL's done, only because it was a trial. Got any ALT/AST's to go with that UND?

Glad you are feeling OK/up about things, wish i could conjur up a cleaning spree round here! 

Won't be long now - you're alllll-most done Iris! Yay! biggrin C. 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

I will do another test at 12 weeks. I'm down to TWO WEEKS of meds left. Unbelievable.
Actually feeling pretty good, I've been on a mad cleaning spree!
Love you all!, Iris

__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

YAY Iris. UND, UND - and that's just the way we do it! RIGHT ON!!! So glad you got those 2 UND's under your belt - feels good to see them doesn't it - yer doing it fer sure! Lovely. CONGRATS on UND#2. Rest a little easier tonight. biggrin

So, you got a 4 week VL and this 8 week VL, does this mean you will (or will not) get at 12 week EOT VL, in addition to these two.

How ya been feeling? smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

whoohoo!

biggrinbiggrinbiggrinbiggrin



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

It's official !!!

8 Weeks UNDETECTED !!!!!!

 

          

, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Thanks you two, forgot to mention...I had my 8 weeks blood test today. so I'll have some numbers by next week to report! yea!

bb, Iris

__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

iris , things seem to be flowing easier for you. yay! so glad you are enjoying the last leg of the harvi pills



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

Yeah, Iris! I like the positivity in your message and know things will continue to get better as the weeks and months progress. You’ve done very well and buckled down when you needed to. You got this, I’m certain of it! The end of the line is just ahead, Harvoni Station. Prepare to disembark, SVR-Ville will be your final stop!



__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Well, time is going by much quickly-er than I expected. Have been super busy in the last couple weeks after the house ursurpers finally moved and prepping for the the craft fair and cleaning my house like a crazy person for an event here on Sunday (yesterday) I also took a hike with some friends to a little hill out in the Santa Monica Mountains for a Moon viewing Saturday night.  It's only about 2.5 miles round trip but that wore me out quite a bit after sitting on my butt for 2 months! The thing that has amazed me in these last couple weeks is... I feel Better. The lead weight seems to have lifted and, I don't know if this is my huge imagination but my blood feels "cooler"?

The Coast home does thus far feel breezy!

So as Tig said I guess I'm onto the clearing house bottle! Sweeping all the remains of those nasty buggers out, least one should spring back to life, >>growls and snarls<<  Ewe, like a cockroach, bleh. Viruses are strong little dudes, they don't want to die either, it's like a parasite. Eh just like the herpes virus for any of you that are sufferers of that lovely virus may have noticed they feel a little "friskier" just before and during a breakout...this viruses way of spreading the love evileye

Was so busy I didn't get a chance to share the "blossom into health" photo of the first pill from the last bottle.!!!!!!!!!! (The tablet doesn't take very good pictures anymore for some reason) I loved the way the rose is close in color to the pill. DOWN THE HATCH!

Thank you for all your good words and support blessings, Iris

20180826_095527.jpg

 



Attachments
__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Senior Member

Status: Offline
Posts: 375
Date:
Permalink  
 

Iris Dragonfly wrote:


The last bottle of Harvoni just arrived! Hope package! Box of potential miracles! Soul renewal! Life line!

 

Yay Iris I am so happy for you!!! Way to go, keep up the great work! Almost at the finish line



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

"oh happy day" iris the little brown box full of a miracle.

i'm so happy for you as you get your last botte...woohoo



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

That brown box contains the recipe of your successful journey! I couldn‘t be happier for you, Iris. At least not until you get that coveted SVR12! That day is coming soon, too. Just keep your eye on that prize and continue to do things as well as you have. That Dragon has already “left the building” and these last 4 weeks are simply cleaning the house, for your healthy liver to reside happily ever after!



__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Thank you!! thank you!  for those home stretch blessings! Much appreciated smile !

I cannot stop weeping t The last bottle of Harvoni just arrived! Hope package! Box of potential miracles! Soul renewal! Life line!,  this little brown package is about the most lovely shade of Earth I have ever had the good fortune and luck to behold!  And right on time to be charged in the full moonlight once again. Everything has come together so perfectly, the timing couldn't have been any better. That must mean success! Right!?

Here is my smiling delivery guy, I could scarcely see through the water in my eyes to sign the little board. Oh fraptous day! Caloo calay!

Blessings, Iris Dragonalmostgonefly

20180820_100211.jpg



Attachments
__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Moderator

Status: Offline
Posts: 733
Date:
Permalink  
 

Keep going Iris!  You'll slide into home base in a matter of weeks.  You're really maxing out now, and the meds are clogging up, but it will get better after!  We're proud  of you.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

happy,happy downhill slide iris



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Awe shucking husks you guys, that's awfully sweet. 

Yea! Warrior on! LoL...And then she slids into a lump on the couch....

The little dollies are for a craft fair in October, I'm being pretty optimistic about having the energy for this so wish me luck, (it will require leaving the house at 5:30am, my innards aren't ready to leave that early!!) I hope I can manage. It's a long drive. I haven't commited yet, soooooooo, we'll see.

Aaaaaaannnd here is today's update:

As any halfway marker would have it,  the rest of the trip, like Tig was saying  is downhill, coasting,  free ride, clutch in neutral...I  think I will refer to it as the home stretch. That's it. I want to go home. Home to myself, before I was all tor up. 

So this is the first pill on the OTHER side!:

20180812_093448.jpg



Attachments
__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 593
Date:
Permalink  
 

First and foremost HURRAY HURRAY HURRAY

UND....   you are kicking virus a55. 

And second...those corn dollies are absolutely wonderful! I love seeing them all dancing and exclaiming their joy about your results. Super creative.

Sorry to see that rash, but glad to see youve figured out how to overcome that with your lap protector towel (because you simply MUST keep making those lovelies)

 

 

 



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



Senior Member

Status: Offline
Posts: 375
Date:
Permalink  
 

The little corn dollies are super cute!



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Congratulations Iris, the time has flown.

Sorry to hear about your rash, I guess sweat mixed with perhaps your husks is the culprit but keep an eye on the rest of your body to see if it spreads. Rashes were one thing I was told to watch out for whilst on treatment, but in the heat you are experiencing I expect rashes are common. I know that even though I am an allergic type person I do get more of these things when I am sweating a lot.

I do love your little dollies. Never seen them before, they are just gorgeous. What do you do with them?



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

20180811_092832.jpg

!!

 

yea, that also might be a reaction to the sun the other day? some calamine and yes a towel while corn husking the dolls.. they are so cute



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

WOOHOO! That’s a real milestone in treatment. From now on you’ll coast downhill into the Harvoni Station, EOT-Ville!

I wonder if there’s something on those corn husks that you’re sensitive to. That’s definitely a form of contact dermatitis. Do they have a prickly surface that may have caused an abrasion? If that’s what it is, hopefully it’ll clear up quick.

 

Congrats on reaching the halfway mark, Iris! It’s going by fast



__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Thank you again biggrin 

So here's the up date...TODAYS BEAN WAS THE HALFWAY MARKER, WOoooooooHOooooooooooo!!!

20180811_092832.jpg

And I have a weird rash. Which I wonder if it was in relation to the corn husks from my corn dollies I mentioned about over in "slug in peanut butter" (I have been making them in my lap) I have never had such a reaction and I have been making them for a week now. Last night I opened a new package, maybe...huh, I just don't know. I was going to say sprayed, but they're supposed to be food grade for tamales. It doesn't itch, more like raised welts with some acne overtones. Corn reaction? Or stuff on them? Oh well. I'll put a towell on my lap. I'm on a roll!

So here's a pic of the rash:

20180811_085351.jpg

 

Aaaaaaand here is some of the corn dollies:

20180810_102923.jpg

Bb, Iriss



Attachments
__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Fantastic new Iris biggrin.gif You must feel just great, particularly since things haven't been good for you on the home front.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 375
Date:
Permalink  
 

WAY TO GO IRIS You beautiful warrior queen!



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Senior Member

Status: Offline
Posts: 494
Date:
Permalink  
 

Nice!!!!Iris

Seeing undetected never gets old here.

Way to go!!!



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



Moderator

Status: Offline
Posts: 733
Date:
Permalink  
 

Wonderful news, Iris!!! I had forgotten the feeling of waiting for labs. It's nerve racking!  But, you got them and they're great! May I have this happy dance?

As my specialist explained it, the treatment continues after good initial successful testing because some sneaky viral varmint could be hiding in the deep, or be in the process of replication.

I know you have been having a hard time lately, but it looks like you are about to unload some big problems.  Those numbers foretell a rise in health and wellness.  For now, just slog through the treatment, and try to see the side effects as a temporary condition.

When it's all done, you can use your survival super powers



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

Iris,

I just mentioned on the Harvoni Train thread, that I was anxious to hear your results and here they are! This is fabulous news!! Totally expected (in my mind, lol) but outstanding to see it on paper. Congratulations, Warrior Queen! You will see ZERO for evermore...



Attachments
__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Yea! Thank you, You guys have been very supportive, I appreciate that. 
It felt like a long labor actually, The blood draw was over a week ago, I felt like I was drumming my fingers on the table, forever. Whew. Glad that first wait is over, now for the second baby eh?!

BB, Iris

 



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

:

iris, this is such great news. even all the stress you've been under and those little magic beans are still working

i'm so happy for you biggrinbiggrinbiggrinbiggrinbiggrin

and yea, that was quick results. awesome!



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Wow iris,

Howdya get the results SO fast!? 

VIP's deserve their good news and deserve it quick-time too.

Lovely news, labs and numbers. All will be right in the world - you'll see. Happy for this day for you Iris.  biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

 aaaaAAAAAAAANNDD*** Drum roll please***...tadadadadadadadadadadada, BOOM! clang, tcshhhhhhh TA-DA! 

we have results, and they are..UNDETECTED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I'm still having a bit of trouble digesting this, is it true?, is it really real?, how can that happen in such a short amount of time after it being there for so long?, I'm beginning to wonder how this wonder-drug actually works. If we are still unable to give blood that give me pause to think it still lingers....somewhere, but where? Is it like the containment facility on Ghost Busters???

eeeeek, I worry way too much, well you know what happened on Ghost Busters....

So this is the low down.....

AST: 18 (range 10-35) normal-this one was usually normal or in the 40's to 60's

ALT: 20 (range6-29) normal- this one was always slightly elevated

biggrin all other tests in the liver function panel were normal biggrin

CBC: all normal

AFP: 3.9  (ref range<6.1) normal- which has been as high as 11, but I have heard ,to be considered a threat, it would be in the hundreds.

HCV RNA, Quantitative real time PCR:                                                                                                                                                                     <15 Not Detected (IU/mL)                                                                                                                                                                                    <1.8 Not Detected (Log IU/mL)

Before treatment my bloods in April were: VL was 8,550,000 and the Log @ 6.93 I also had a slightly elevated red blood cell count, and my glucose was just borderline as it had been for several years now, I could stand to loose a bit of weight, I'm 5'4" and 167lbs. Which I seriously thought I would loose a pound or two considering all this water, and lack of ale, which I haven't missed a bit. It's been a refreshing journey of cleansing,...almost... Now if I could just get away from Jack in the Box tacos! I get them like once a week now that I don't feel like cooking much. *sigh*

One thing that was slightly elevated was my blood pressure, like 138/82? (right around that), anyway mine is so low normally. I wondered how stressful the wait in the office must have inadvertently had on my anxiety?, not to mention they were short staffed and I spent much of my wait in the hall because the waiting room was full. My lady NP that convinced the insurance co. to treat me was on vacation, bummer, I really wanted to share this with her, Instead I had the head Dr. who I hadn't seen in several visits, he was excited for me, explained the need to treat the full 12 weeks, and we shared some photos, He said call if my symptoms become unbearable,  which they really aren't, I was the last one out yesterday. Late night, On the way home I pulled over to really get a good look at the results, only then did I have a moment to cry with a million thoughts racing through my head about the WHOLE JOURNEY from the time I was first diagnosed, all the time spent in libraries, days I spent distressing, people I feared infecting, times I considered suicide, and now ...will this really stick??? Oh geeze, there I go.... I still had to pick up A new bag of "lactated ringers" for the cats sub cu. fluids on the way, daughter was at my house waiting for me, (she does the cat watering while I hold the cat down), which was GREAT!

At least I had someone to share my good news with!!!! Then my Mom called biggrin Then my girlfriend e-mailed me to squeal, Then Mr. was like, "Huh".

You guys were right! I am Surprised      

Blessings from grateful Iris

 

 



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Good Tuesday Iris,

It was a BIG day biggrin and I am glad it is done now. Accomplished a fair bit today m'lady - milestones are piling up around here for you! Take a few breaths, try to rest, re-focus, wait for the rewarding lab results, take them in stride and keep on going, one step after the other - you know everything you need to do. Proud of you. smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 375
Date:
Permalink  
 

Im still rooting for you too Iris, along with everyone else here who genuinely cares about your sweet little self!

ps: I pray for you every day. please stay away from that monster. 



-- Edited by Hoodietree on Wednesday 8th of August 2018 12:13:51 AM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

i'm so excited for you iris



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


Admin

Status: Offline
Posts: 8986
Date:
Permalink  
 

I know you’re going to amazed at the results! Let us know as soon as you get some updates. These drugs work fast and if you’re not already undetected, which happens, just look at the LFT’s. They alone will tell you how well things are progressing. It’ll be one of those OMG moments! 



__________________

Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

Well it's Tuesday once again, besides all my regular counseling,

I have my appt with the hepatologist about my 1st bloodwork today!!!! SO freaking anxious.                                  my appointment is at threeeeeeeeee,, weeeeeeee.............



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 1172
Date:
Permalink  
 

iris, i'm so glad you have a support group and counselor and that you are staying focused on managing things so you can get your treatment completed.

and it's so good to hear that the universe slowed him down a bit right now

be well friend. 5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 1070
Date:
Permalink  
 

You guys are great I appreciate the suggestions, I have thought about hiding them but like I discussed earlier on we only have one room in the house with ac, the living room, and he is in there all the time. It was almost 90 degrees in the back of the house last week. I can't tell you this hadn't crossed my mind. Oi. I just gotta pray he don't care about that. Apparently in his fury he has wrenched and old injury in his neck, and he can barely move. He may have gone to the hospital to get drugs this am. I don't know I've been gone all morning and now he's asleep. it's only 2 in the afternoon now.

I'm excited about my labs, they did CBC, liver panel, PRC RNA, Afp. They took 5 tubes though so maybe I'm missing something. I'm uncomfortable making a profile with Quest so I guess I'll wait till my appt. to find out the results. Kinda like having a baby! Will I have birthed positive results? I'm nervous I seem to have had a bit of a rough time of it. My mom wants me to report about the extreme weakness in my legs and back, almost to the point of falling down, but the weird sides come in waves it seems. The neck thing is still an issue now and then, super stiff spasms and then gone and sore throat here and there. I told my mom it very much reminds me of when I first was ill 40 whatever years ago except no stomach ache, that may be helped by the marijuana. Back then I was like a lead weight on the couch for like 3 months.

This was a busy morning, I go to a domestic violence group and after that to a one on one counselor every week. Tuesdays wear me out. 

BB, Iris

(edit)

Hey C I just missed you,... his family is of no help other than he may be able to go to his moms, his dead beat brother has already moved in on her with his two young sons, there's not a lot of room. She is a hoarder. I have just been too freaking nice for too freaking long, I'm aware of all the shelters and what not, I'm just a big chicken ****. I probably shouldn't have confronted him, but neighbors taking retribution for his bad actions can affect me and the house. I feel I have to protect the house as well. He has threatened to burn it down, but then he was so high on downers, he passed out. he will probable kill himself some day, and I have wasted most of my life trying to save him



-- Edited by Iris Dragonfly on Tuesday 31st of July 2018 06:32:15 PM

__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Wish there was a better (more convenient for you) "interim" solution to the problem. Like a-closer-to-your-locale place you could be at, until you get this problem of him, sorted. ,

Is it posible, that you two might reconsider and end up staying/ living in the same house, perhaps under slightly different terms, perhaps this has happened before where it felt you were "near" ending your relationship as you know it, but then it turned out you two have decided to stick it out? Or, are you sure you and he are definitely done.

If so, if that is the direction you intend on going right now, then the work and steps involved will require you be "near" your house, so you can safegaurd it, and possibly be near to the courts (if required) to do what is required. You need to be near to home if your community contacts and interests/work/church things are important to you and a necessary draw to you. If you CAN just drop everything you could try to camp at your Mother's place long term (with your animals I guess), and work at getting him to leave from 200 miles away, but ... distance is difficult to work from.

It's too bad it is such a difficult thing to do, to orchestrate finding yourself another place for you to live - nearby - (and to home your cat, and birds, and turtles) to avoid him for the short term.

Keep thinking about your friends offer (the one with the new big house)?

Check out local community emergency safe houses, just in case, as a fail-safe, as he seems too volatile for my comfort level. You mentioned "addict"? Is he in midst of an addition problem? Great (NOT)!

Are you on good terms with his family? Can they be of any useful assistance in "certain" ways, perhaps such as convincing him the best thing would be to vacate the home/leave the relationship? You spoke of him perhaps going to live with his Mother? 

Are there any other "ties" to consider, that are going to make it difficult for you and he to make "a clean" break? Such as financial/dependent ties, where you must still be in contact? You are going to have to pave the way(s).

Tired and under duress, but still you are doing a very fine and valiant job Iris, under trying circumstances. You ARE going to get through all of this, and the past will be past, and MUCH better things are in store for you my dear - I just know it! Rest when you can, and just keep going. C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

«First  <  1 2 3 4  >  Last»  | Page of 4  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.