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Post Info TOPIC: Hoodies Epclusa journey starts 7/26/18


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LOL made me smile again Tig!!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

Tig


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You know what, I reversed the numbers! Numerically dyslexic I think. My impression stays the same, they are well within normal limits and fluctuation within those limits is perfectly normal. Do I need to get out my 8 Ball again?†wink†Not to worry!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Tig in truth my alt is 2 points higher this time but Im determined not to sweat it. Off to yoga but I dont feel like going. Pushing myself.†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Im smiling now Tig, thanks for your awesome encouragement. Nap time for hoodie TTYL. Hugs to all.†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

Tig


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Donít let your mind go into places like that, Hoodie! Both enzymes are lower than they were, albeit both normal, they are very good nonetheless. Itís a win when our LFTís are normal, a BIG WIN. Your baseline VL was relatively low and could be why your prelim enzymes were down. Itís not always the case, but very often we see a corresponding elevation in both, when there is a viral load flare. You have no worries, trust me...†

If your concern gets too much to handle, let me know and Iíll whip out my Magic 8 Ball. It has never been wrong! Let me show you, just to comfort you. Iím asking, ďIs Hoodie, golden?Ē

See!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

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†OK I just Checked for new messages from Kaiser and it seems that I do have my test results except for a viral load which I think that they are gatekeeping.†

My ALT is 25 and my AST is 21, Which isnt much different from what they were before so of course now I am mind****ing everything.†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Ahh, the poop report. †Try thinking of it in the same way you would if HepC weren't in the picture. †Immodium for the big D and fiber for the big C, for example. †Again, by nature, we monitor this process so closely that every sneeze is cause for concern. †What we know is that changes will happen during and after treatment. †Focus on the big picture (when possible) and try not to take it too seriously (when possible) as it all will pass (so to speak). †I know, it'a scary.

You are doing great Hoodie. †It's just hard to relax when you're on a roller coaster, isn't it? You've given your own best advice - Hang On!

I can't wait to see the labs.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED

Tig


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Hey Hoodie,

IĎm excited to know what your test results will be. The one thing youíre going to notice are the improvements in your liver function tests. If youíre undetected, thatís an excellent sign, but donít be surprised if it isnít completely undetected. One thing will be apparent if it isnít, is the dramatic decline in your viral load. I let everyone know that an early undetected test is great, but doesnít mean much if it isnít. It will be.†


I mentioned in the Constipated page, the big D isnít uncommon with these DAAís and you can check with your doc for permission to use something like Imodium, if it doesnít let up. Avoid high fiber foods while youíre having the problem, just donít go in reverse and get blocked up again.†



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

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Thanks Cheddy thats very sweet of you to say

Everything seems to be doing a 180 for me right now.

Where before I was constipated now I have diarrhea

Where before I could sleep 12 hours a day I actually had trouble sleeping last night and only got about five hours.†

Maybe this is due to the power of Epclusa. I think its doing its job and Ill be cured soon.†

So I cant complain. BUT along with the energy comes a feeling of anxiety which SUCKS.†

Im just holding on for the ride at this point †

I got the on-treatment bloodwork done on Friday 8/17 so I should know pretty soon, probably in just a couple days, if Im undetected.



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Hey Iris and Hoodie. †I love the way you two are taking care of each other. †

What a team - the whole to of us, too.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED



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Iris Dragonfly wrote:

†I don't know if you meditate but I'm trying some affirmations and visuals within the meditation that has me well and full of health life. It's a bit of struggle sometimes because of the PTSD but little by little right?

Blessings, Iris


Thanks for the blessings Iris

Why yes in fact I do meditate! †I have this app called Insight Timer on my iPhone and there are tons of guided meditations and affirmations. I really love this one guy named Kenneth Soares. Check it out if you can! I think its only $1.99 or something. Its totally worth it. Let me know if you get it, we can friend each other and recommend guided meditations and stuff. Its pretty fun. Anyone here who wants to be my friend is more than welcome. Or not! Im not trying to promote it. A bunch of my AA friends use it tho and it can be really motivating.

yeah, I hear you on the PTSD. No fun at all. You doing ok? Hows everything at home, getting better I hope?†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Hey I get it, trying to get it all done, right?

I get that fear, what if, why does 'what if' even have to exist??? And that's a really good question, what are the variables to relapse? Is it specific to a certain genotype? male/female? geographic area? duration of infection? duration of treatment? where are the studies??? Is anyone researching this?

Hop on the roller coaster girl! lets go for a ride! Up and Down and a little twist and turn, exhilarating! and then a little nauseating! Whee Oooo, Ugh. then all of a sudden >PFssscht<(air brakes!) and then the real healing begins, we'll shake off the drugs, jump in a pool, ocean, lake or river and be washed clean. I don't know if you meditate but I'm trying some affirmations and visuals within the meditation that has me well and full of health life. It's a bit of struggle sometimes because of the PTSD but little by little right?

Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Thanks for your wonderful update Tig! Have fun with those little rascals



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

Tig


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Hey Hoodie,

YouĎre right, donít overthink these things! A little is okay, but donít let it keep you up at night, lol! One day wouldnít have mattered, but youíre right, following treatment by the book is what we should all strive to do. That removes any question.†

Iím still here with my daughter and the grandkids. They do keep me running! Itís about time to get them up and start the whole day again. I donít know how my daughter does it by herself!†

Oh, here comes my grand daughter tromping down the stairs! The day has started before my first cup of coffee.... ready-set-go



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Water report and a question about relapse

Yes, I have been drinking at least †a gallon a day. Its not hard for me, though, I actually like drinking water and staying hydrated. Or maybe its just the one thing in this crazy world I feel like I CAN control

Im reading here about peopke who for some reason the DAAs are not successful ... or the virus comes back (wtf virus, dont be a jerk just leave!). Do we know why that happens and/or how to prevent that scenario? Is it just how certain bodies/genotypes respond? Is there ANYTHING I can do to improve my chances for success? Continuing to avoid alcohol frex? Ive asked my hep/GI doc and the NP and the HepC pharmacist (who looks approximately 12 years old btw) and they all say theres nothing to do. Just take the medicine as directed.†

Do they really not know how relapse happens?! Are 10% of us really just unlucky?! I wish there was a way to ensure success. Im frustrated by this.†

ETA my heart goes out to all of us still suffering † and happy Friday!



-- Edited by Hoodietree on Friday 17th of August 2018 08:17:37 AM



-- Edited by Hoodietree on Friday 17th of August 2018 08:27:18 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Hiya Tig, thanks for asking!†

Things are ok. I had that one great day, and Im really hopeful that those great days will start stacking up. Im super hopeful

I went and picked up my 2nd round of Epclusa today because the prescription was ready 1 day early. I could have gotten my first round of on-treatment blood work done today while I was there, but I realized that my ppwk specifically states to get that done on 8/17 (tomorrow) and what if I got the blood work done and it was not favorable, you know? Then I will have wished I had waited until the proper day. Apparently I just really love overthinking things and making multiple trips to Kaiser! . Also, I really need to get a life.†

How is everything in your world? You spent some time with your little grandson? That sounds really lovely !!



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

Tig


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Hey Hoodie,

How goes it girlfriend? Iím hoping youíre continuing to have more Ēbetterď days, than sh***y ones. Are you keeping up with your water intake? Chug a lug Sister!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

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Thanks Cheddy! That is really interesting how we monitor ourselves so closely for any and all ups and downs when were sick and on treatment. I will be so happy when one day I wake up and find that Im no longer putting myself, my moods, and every little ache/pain under a microscope. Thanks for your kind encouraging words!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Hoodster, †

Interesting to hear from so many how closely we monitor our day to day on and around treatment. †I don't think I do that as much in my "normal life" but sure did back then. †

Back then (note rearview mirror) many moods and moments seemed eternal and permanent and sometimesl unbearable. †Really intense sometimes (could have been Riba?) †Speaking for myself, the whole experience was indelible, in a good way - strength, compassion, durability, more. †And look at the friendships. †Who knew that "Virtual strangers" would become valued friends.

I hope the good days will propel you forward and this whole business will take on the perspective of an 8 week (?) journey, after which you help others keep perspective.

You're attitude is great!!

Bestest of wishes, for you.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED



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Thank you Tig Iris Cheddy and EVERYONE

Interesting to read that it will go up and down. I guess I was expecting just a pure upward spiral. Sigh. Today isnt quite as great as yesterday. Must be feeling the the contrast between having a GREAT day vs just a normal day. At least its not a BAD day. Ill pray to God to Dog and all the dieties that my Bad days are in the rearview mirror for the foreseeable future.

Peace out † TYYL, will check back later.†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

Tig


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Hi Hoodie,

Glad youíre back on track and all things are better in your world! The FMLA is there for a reason and thereís no reason not to consider it if your energy levels drop to non productive levels. People get sick, people seek treatment and people need time to regain their strength, thatís what the act was designed to provide you. Take advantage of it if necessary. Donít wait to stumble before reaching out for that support!†wink

6236FCE1-C1DE-4585-BCA6-3BBDAE35181D.png



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

Signature Line Set Up/Abbreviations† †Payment Assistance



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oh hoodie! there is no such thing as melodramatic here on our HepC forum

and wow.. pms on top of daa's... omg,omg,omg!†cry

i'm so happy to hear you had good day and are still planning to get that fmla in your hip pocket in case you need it for next months pms... or other

5



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Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Good to hear you won't have to tell the boss!
I've noticed so much ups and downs with my meds, I can't imagine what this would be like with a monthly thrown in there, Ouch and puke.!
But that is probably it, still take your moments away from the madness when you can.
You go girl! Boom!
bb, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Terrific, Hoodie, that you are feeling so much better today. †Sounds like you are learning to live with the ups and downs. †Keep it UP!



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED



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UPDATE

I feel terrific today. Got my period before work at like 6am and I went all day with tons of energy - without even takng a nap in my car at lunchtime!!

I wonder if a lot of my fatigue and maybe even some of my brain fog are attributable to being peri-menopausal + HCV positive. †Im betting that combination is a special little circle of hell.†

So I apologize for being so melodramatic yesterday, yall I just did not feel good at all. You know that feeling of deeep fatigue coupled with the foggiest brain south of San Francisco? I really felt low. I knew I was being melodramatic and probably should have waited another day before posting that because today, Im literally a new woman!

:knocking on every single piece of wood that I can find:

No need to tell my boss YAAAAY!!! I was dreading that.

Thank You Thank You Thank You Thank You FOR YOUR AWESOME SUPPORT AND CARING †

Edited to add:†

Canuck wrote Don't play the stretching game of going until you break - hitting the proverbial brick wall, try being pro-active, and formulate a plan, in case you want to play a sick card with your boss in "some way".

What wording is already written on that note you got from your PCP?

This is really good advice. It was a verbal phone appt with my PCP the marvelous Dr Davis who I love. In a weird alternate universe he is my soulmate. Sadly that universe is not the real actual universe but I digress.†

Thanks for the pep talk Canuck and 5. I will plan to get that FMLA ppwk filled out so I can have it in my hip pocket if I need it. But I am optimistic for the first time in 18 days! maybe I wont need it, yay!



-- Edited by Hoodietree on Monday 13th of August 2018 11:30:45 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Ill give it one more week. If I dont feel confident by this time next Monday Ill say something to my boss. Thanks for your replies Canuck and 5!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Hey, Isn't that funny hoodie! (Well, not FUNNY FUNNY, but weird/cooincidenta/funny. You posting this today and I was just recently wanting to ask you "how" work" has been going, how YOU were managing with work - and then ... you post about it! I had already decided I was going to wait until after Monday, maybe Tues or mid-week to ask you how things were going for you what with working and all, but now i don't have to wait - we have a pretty good idea it has not been easy and what bits are hard for you.

So, I cannot disagree with 5 one iota - you know best what your boss is like and what your co-workers are like - what it might take (words you "choose" to use/what "exact phrases" to say to them) to safely satisfy them. If your quest is to get them to be understanding that you are feeling under the weather, not able to be "on" 100% as usual, then make a plan about what to say to them that will work for you and still maintain your privacy and avoid stigmal judging. If you are battling an illness, they can either be understnading and cut you some slack, be on your side, should you wish some time off, or concessions - whatever it is that YOU decide WOULD help.† Maybe you don't need to address your co-workers hardly at all? - maybe it is just your boss you need to deal with for the most part - perhaps plan your explantion to him alone? - again, if you can see how he could be of some assistance to you (time off, being understnading, or cutting you some slack). Decide what it is you need and want, and devise what it is you are going to say to get it.

Don't play the stretching game of going until you break - hitting the proverbial brick wall, try being pro-active, and formulate a plan, in case you want to play a sick card with your boss in "some way".

What wording is already written on that note you got from your PCP?

If you are no good at formulating the right language - try some phrases (like 5 was suggesting) - maybe just that "your doc put you on an anti-viral until October" and you may not feel well on them, it may affect your performance.†

Then again ... you may start feeling like you are getting used to the epclusa in the next couple/few weeks, and will be able to muster through better in Sept/Oct.

Decide how you are going to hedge your bets and cover your arse (to the necessary perhaps varying degress) with your boss and co-workers. Would it really be the end of the world if you fall behind in the short term? Don't YOU be your own worst enemy and force yourself to perform under duress, when it would not be that tragic if things did not go exactly to plan (work plan) just for a short while.

Think on it a bit.

Consider this, rather than waiting and having this meeting with your boss at 1:30, perhaps ask to speak to him for just couple minutes at morning coffee time, or maybe first thing in the morning - just try to get a couple minutes with him prior to 1:30 - explain breifly that you just wanted him to know you've been put on some anti-viral medication that has made you feel not very well, that it has really knocked the ---- out of you, and that you apologize if it has affected your job performance, hopefully this will not happen further, and that you can bring him a doc's note if necessary, just in the event that you become feeling unwell enough that you need a day off, but that you hope he will have some patience with you for the next little while.†

You have got yourself worked up into a bit of a snit, and feel backed-up into a performance corner, a competitive self-employed corner, lots of pressure cooking going on in there, release some relief valve - it would be great if your boss had some understanding and cut you a bit of slack. You may be a more valued commodity than you realize at work, a valued long-term commodity worthy of some boss consideration.

The sides you experience may end up being really quite survivable, but with the self-imposed added stress you are going through it is too much to deal with - use this opportunity to try to cut yourself some slack.† C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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since your pcp is already talking about that being a mistake, is it possible that they can give you a note off from work?

you don't have to say what it is.. fighting an infection, trying to figure out what's wrong.... work does not have to know under the law.

i had to take some time off and even tho i told them, i could have just had the notes.

you are in life saving mode and that is a good thing so slug on and just lay down and take it easy every possible moment



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Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Hey guys, Feel like a slug in peanut butter As our dear iris so eloquently describes it.†

Need some encouragement to keep putting †1 foot in front of the other. Feeling so damn tired. I need my energy back soon. Made a huge mistake at work on Friday and my boss has scheduled a meeting for tomorrow at 1:30.

I have not told my boss that Im undergoing treatment. My PCP told me that he had not seen any good results coming from that kind of transparency- just a lot of stigma and judgement.†

Huge deadline coming up at work in October, on the same day that Im supposed to complete treatment. And they keep putting other meetings in front of that deadline so I cant actually work on my project and Im falling further behind every day.†

I wish I could state accurately what Im going through and how I feel. I dont want to sound so dramatic all the time, but Im trying not to minimize the very real **** that Im going through. Argh I know that that is really Not a good explanation, does anyone know what Im talking about?! How Im feeling?! Am I truly going insane!?

This is all my fault, I could have postponed treatment. But I feel like that would have been stupid. And now that I am experiencing side effects I may have to come clean with my boss. I think people will say that I probably should do that but I have made up my mind not to be so transparent with people who hold my fate in their hands. My AA program has taught me to be rigorously honest, but the A stands for anonymous And Ive made that mistake before in terms of blowing my anonymity at work, so my new methodology is to look out for number one at all costs and †hold my cards close to my vest contrary to my natural tendency.

When you look at my numbers, Im actually really quite healthy. This might just be a mind over matter thing its possible I will be hugely successful in October. I always have been in the past even though its like cramming for finals and if I fail I lose my job and my livelihood and my insurance and my treatment options



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Holy cow, I thought Parvo only affected dogs. Awaiting your results, hope everything will be fine.

your doing great, the brain fog is a wonder eh?, ummm good times.
BB, Iris

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60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Some addl details re: parvovirus test

I was complaining to my doctor about joint pain in my hands and feet so he told me he would test me for autoimmune disorders like rheumatoid arthritis, etc. †so thats why I was tested for parvovirus. It was the only positive result from a gazillion tests they did †

Tig provided an NCBI article whic states: //By the time old age is reached, most individuals demonstrate seropositivity for this virus (5, 13).†//

I really think this is nothing, but Ill try to remember to talk to my doctor about it soon.†



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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hoodie, that's priceless , so glad you came to realize that your ounces were off and now you are on the right path with the water.



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Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO

Tig


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Ha, Ha! Itís okay Hoodie, I understand completely! Did you want to post the same thing twice? The ďforceĒ is strong.....†wink

9DB1F38C-7FA8-4DC0-A568-2BC64570705F.png



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Don't panic, nor feel bad Hoodie - it's just math. We (obviously) were all asleep at the wheel as well!, all of us let that one go slipping by us uncountered. And yet we all know and can add, blame the fog for everyone's lapse in attention to details. I can't tell ya how many times I have painstakenly wrote out and added up and multiplied out oz's/cc's/mLs, cups, pints, qts, litres, gals, imp and US (adnauseum) to make it clear how much a gal is! And that is dangerous territory for me as I have NEVER been good at math and never will be. Water and how much is another frequent flyer topic. That is why we first started using those pis of the gal jugs, I thought that that has to be one good simple way to "show" somebody, how much is much!

For example this jug of water is definitely too much, it never made our preview.†Image result for drinking from a 5 gal jug

It's the goldilocks paradox, not too much, not too little, juuuuuust right. heehee wink†C.

Now, everyone, get up off your sofa's, stop working, driving ... go and pour yourself a great big lovely fresh tastey invigorating, thrist quenching, mind, body and soul soothing rejuvenating gal jug of water and enjoy.††



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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Hoodietree wrote:

Oh my goodness, I WAS WRONG - MEA CULPA!!†

Friends, Im an idiot. I posted in another thread around here some advice to a new member. I said and I quote //a gallon of water is 64 ounces and Im drinking 75 ounces a day so Im good.//

But actually a gallon of water is 128 ounces!

Will report back if fatigue improves upon DOUBLING my water intake as of today.†

I really want to blame brain fog for this one, I feel like an ever-lovin idiot! †LOL!

blehevileyedohnodisbeliefyawnhmmawwblankstarewinkconfusefuriousbiggrincrysmile



-- Edited by Hoodietree on Sunday 5th of August 2018 03:40:42 PM




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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Oh my goodness, I WAS WRONG - MEA CULPA!!†

Friends, Im an idiot. I posted in another thread around here some advice to a new member. I said and I quote a gallon of water is 64 ounces and Im drinking 75 ounces a day so Im good.

But actually a gallon of water is 128 ounces!

Will report back if fatigue improves upon DOUBLING my water intake as of today.†

I really want to blame brain fog for this one, I feel like an ever-lovin idiot! †LOL!

blehevileyedohnodisbeliefyawnhmmawwblankstarewinkconfusefuriousbiggrincrysmile



-- Edited by Hoodietree on Sunday 5th of August 2018 03:40:42 PM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

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Hey Chuck,

HereĎs a link I sent to Hoodie. It helps to describe Parvo a bit clearer.†



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

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Ya, sorry, not familiar with the parvo test results in your bio.

I tried looking normal ref ranges up for these, but can't find a current reliable guide pertaining to B10, but the B19 igm would appear negative though, at less than 1.1 iu/mL? - jes guessin though - you really should let the doc decipher all these things for you. Were there no "normal" ref ranges (written right on your lab report) to go along with you results? C.†



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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Hey Hoodie,

Elsewhere today you wrote of GI troubles and fatigue, and, about fatigue below.

When in doubt about taking anything with your DAA, always default to finding out from your doc (like you tried to do), and/or a pharmacist and/or refer to the monograph (http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/epclusa/epclusa_pi.pdf), and/or use a drug checker perhaps one like this one (https://www.drugs.com/drug-interactions/sofosbuvir-velpatasvir,epclusa.html).

Like i was writing to Woodie the other day (he had the opposite gastric problem as you) but regardless of which ways each of your gastric pendulums have swung, whether these gastric changes are a result of the DAA's, in all likelihood they can be combated/counteracted in short order.

Like you say, it is a little odd, what with the good amount of water you are easily able to tolerate and take in, and in an ongoing increased intake fashion, I did not expect to see you become constipated. But it would happen to me as well while on treatment. As you will see in Woodies thread where we were discussing diarrhea and constipation, I already had a pre-existing tendency to constipation so i cannot necessarily blame the epclusa/vox for continuing bung-ups, BUT I do very much believe that the need for water in the body is deceivingly strong when were are taking these DAA's - if you ever had a tendency to become quickly dehydrated or constipated in the past, this tendency could be contributing to what has occurred now.

Rule out some other seemingly minor contributory factors as well that may have helped to push you over the edge into the bunged up zone - decreased physical activity, extreme heat, diaphorisis, eating something that is know to constipate people. If any of these factors might have added something to the dilemma, try to correct them.

I had to be vigilent with the water, fruit and fiber (every day, without fail) - I wasn't eating large hoards of meat, but I found a really heavy bolus of protein meat meal like that could help bung me up for sure. For others they say cheese can bung them up. I took additional metamucil-like powder in my cereal (often shredded wheat) every day to try to prevent bad bung-ups. My ongoing "on-treatment" diet had to be LOTS of (really high) high-fibre diet and water, or else! If I screwed up on just one element, say ... traveling in the car all day to get to an appointment, then staying over out of town, I could easily become dehydrated, before I knew it† ... and would pay for it for getting on the too-dry side.†

Once you are at that bunged up stage (you will figure it out, what is needed in the immediate, and then in an ongoing fashion, through trial and error) but also give some consideration to the humble glycerine suppository - on occasion this lowly little thing helped me from time to time and facilitated getting me going when I was stuck!††

You and others had lots of good ideas of how to unbung yourself, try the least offensive, effective method that you think will work for you.

Like Tig said the stronger fatigue feelings you have right now may pass, IF the increased fatigue feelings is a result of the new-to-you DAA's working within you, it may be a stage, you may (later) easily get to feeling quite OK while you are on Epclusa, everyone is dif. - wait and see. The constipation issue is also a wait and see, if you fix EVERYthing else and have NEVER EVER had a prior tendency to constipation then I would say perhaps you will have to remain vigilent with your diet and intake right through treatment to prevent further bung-ups. I had profound pre-existing pre-treatment fatigue, unfortunately I did not realize any improvement in fatigue while on the epclusa/vox, but that was just me - everyone IS dif.†

Hope things start improving quick for ya. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)

Tig


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Thanks Hoodie! Iím putting you in my address book, under HELP!†biggrin† I do appreciate all the help and friendship everyone is always willing to give. We have the best people here! YouĎre all considered family.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

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Thanks Tig. If I can help Ill be more than happy to!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

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Done deal! I can move entire threads, just not individual posts. They have a weird merge function that doesn't like moving single comments. Of course it could be my limited knowledge of most things IT, lol! Maybe I can put you on the payroll? wink Glad I could help...



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

Signature Line Set Up/Abbreviations† †Payment Assistance



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Hey Tig, Would it be possible to move this thread to the On Treatment area? †Just curious, if its easy to do, Id like to do it but if its a pain in the butt then never mind Thanks in advance either way



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Canuck said: I know you said you were having troubles with energy (prior to starting the epclusa?), but I take it the fatigue is worse now?

Yes fatigue has always been my main symptom of Hep C. But even as a youngster I have always loved my sleep and rebelled against my moms you can sleep when youre dead mantra.†

I do feel like the fatigue has been worse this week but it could also be a combination of that plus now I have permission to really take care of myself thanks to all of you



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Hey hoodie,

Good for you. You are doing such a good job with everything. Water dept - check. Making sure you get all the labs/tests and immunization you need - check. Listening to your body re: fatigue and modifying sleep and exercise accordingly - check. I am glad you rolled up your yoga mat just for the moment. Guard your energy, dole it out with care, especially that you are working.†

One week done already! I know you said you were having troubles with energy (prior to starting the epclusa?), but I take it the fatigue is worse now?

I too had fatigue prior to treatment. While I was on treatment my fatigue certainly did not decrease one iota. Lucky are those who do start to have some degree of feeling better or more energy before treatment is over (it can happen)!, just didn't for me. It took me quite some time to see the fatigue improve, but it did and does. Everyone is different. Early days for you, pace yourself and see, you may yet gain some energy as you go along.

Don't fret and worry and push yourself to get things posted just for us, good that you got all these labs and tests done/accomplished, results will be forthcoming, post when you have spare time, extra time and extra energy - we are not here to make extra work for you! Altho you know we are most interested in you, your well being and all your labs, etc., we are happy to be patient and await the results when they are conveniently available.

Between deciphering what the U/S technician was trying to say, and what the radiologist might glean from reading your U/S, it should prove interesting what everyone sees. A giant kidney!, well, maybe it was just a few ounces too many in the water dept? heehee

For now, just do what you are already doing (so well), conserve your energy - portioning it out for work, getting as much rest as your body is demanding, and good on the water. You are taking good care of number one.

Yes, you could start an "On Treatment" thread, but you would have to ask Tig how to move all this thread over there (if that's what you meant) - I don;t think moving large threads over can be done or done easily.†

Later, C.

uh, did somebody say "beans", like ... kidney beans or sumpin?††Image result for waterlogged kidney



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



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hooodie, i'm so glad you like it†biggrin!

and good to hear you are honoring your body by sleeping and resting



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Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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::DYING LAUGHING 5!!!::



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Related image†....hahahaha, kidney photobomb†biggrinbiggrinbiggrin



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Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Question: should I move/copy this thread from the New Members area into the On Treatment Area? Probably doesnt matter but I did have a hard time finding it to post tonights update. Oh well. ::



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



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Tomorrow will be 1 week on Epclusa!

no side effects so far, except fatigue. Monday night I wend to bed at 6pm and slept through till 6am. I was so exhausted after work that I gave myself permission to take my pill 1.5 hours early and then I crashed out hard. It felt gooood to sleep so long! I have been averaging 9-10 hours a night of sleep, other than the epic 12 sleepfest, LOL

I am drinking about 1-1.25 gallons of water a day. Ive never found it difficult to drink lots of water. The only difference now is that I am tracking it.

I went to a new yoga class on Tuesday after work and could only complete 1/2 the class. I was simply too tired. So as I rolled up my mat the instructor asked if I was ok. I told her I have a tremendous amount of fatigue but I will definitely come back to her class and try again when I have more energy. She was very sweet and understanding.†

Still need to get the HBV vaccine.†

Got a ton of lab results will post them soon. Noticed that they either didnt give me an AFP test or they are keeping the results to themselves. Will ask about that in my 4-week follow up.

Oh I got the ultrasound but havent heard any results/analysis. I got a picture though so Ill try to remember to post that. My kidney is shown prominently in the foreground its hilariously large looking, like its photobombing my liver - HA!! I asked a ton of questions of the technician durin the u/s and he said there was a lot of bloodflow and big giant blood vessels so I guess thats good.

thats all for now, nighty nite



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†

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