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Post Info TOPIC: Mavyret and Me


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RE: Mavyret and Me
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Thanks Cheddy,

1979 was when I got it .I was diagnosed in 2000.They offered me clinical trials but I couldn't get myself to commit to experiments.Really glad I waited,hope my liver forgives me.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Nice numbers, Shemp!  

40 years! Talk about waiting.  It must have been a shock when you even found out that you could be treated at all.

Really good news and good work, Shemp. Gear down and coast on down that hill..



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Thank you Iris,the good part about my Doc is I can steer him pretty easily.He doesn't object to my requests.5 more weeks till EOT and it's getting easier.This is a good day.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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    sweet music! CONGRATULATIONS Shemp, very glad for you!!!

Weirdness with the dr. thank goodness he was wrong.

Onward! 

Bb, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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Anytime my friend! Here you go I just asked it if you’re on your way to SVR. The answer is clear!

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thanks Tig,5.It's really is a feeling I'm still trying to get a grip on.Tig ,do you think I can borrow that magic 8 ball?There's this powerball thing I've been working on.It might help.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


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Congrats, Shemp!! I knew it, my Magic 8 Ball told me so. I love that thing, it has never been wrong. Those are some mighty good numbers and of course that last little thing, “Undetected”, is the HCV Holy Grail! I’m glad you’re not on the road right now, you would’ve had to pull over or wreck, lol!

I’m thrilled to hear your great news, Brother. It’s all worth it!  

F358D600-4B94-413E-8DD1-9D55F9A995A1.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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shemp :w00t. , isn't it the best feeling ever??????????????

and yes... laugh and cry. it is that good!



-- Edited by 5-1-18 on Friday 2nd of November 2018 07:20:33 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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I got Hep C via transfusion in 1979 after a car accident left me bleeding out of pretty much everywhere.40 years I've lived with the beast.But today the results are in.

 

ALT   12

AST   18

HCV RNA Quantitative    NOT DETECTED

I don't know whether to laugh or cry.I do know in this case Shakespeare is wrong.Parting is not sweet sorrow.And I hope the door hit ya really hard on the way out.Thank you all for your help and support.You have become part of my new life.That won't change.

 



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Canuck,

The reason my Doc gave me for doing bloods at 6 weeks was he put me on treatment for 12 weeks instead of 8.Guess he figured it was half way.As far as being sleep deprived goes,I don't sleep well to begin with.Mavyret seems to make it worse.5 1/2 or 6 hours is about the best I can do.Once I begin to wake up it's over,there's no going back to sleep.I did use the Ativan once in a while for stressful situations,like driving in New York city.It helped .I see I just got an e-mail from my lab.I'll keep you posted.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Aw, that's a bugger, when yer waitin', and ya think "yay the labs have arrived" and then .... nope! (worse yet, add in a negative false-alarm, and then  it's ... just go back to waitin!). I always hated these waiting parts.

I thought it was a little funny that your doc was going to do your first on-treatment labs at week 6 (versus at week 4) but, that doesn't matter so much, weirder still was that he was only going to do a VL? at the 6 week mark, and he was not planning on doing LFT's at the same time? confuse, so, I think that was very good on your part to to expressly request that he also do the LFT's.

Your LFT's should have been back by now (I think), these VL's seem to be returning more and more quickly nowadays, but generally the LFT's have always seemed to arrive back the quickest, and usually surface within days and often arrive back before the VL's return. 

Shouldn't be much longer though before you get some good news coming back to you.

So you said you were sleep-deprived .... cuzzzzz... why?, insomnia?, worried/waiting for results?, just wired for no good reason?, how did it work out BTW using the ativan - did you have to avail yourself upon it very many times to relax?? Did you take the ativan like a "sleeping pill", or, how did you end up best utilizing it.

I recall how I agonized over getting my lab results back in a timely fashion, even some of the very first assessment ones, not just the on-treatment or post-treatment ones. One time the lab completely missed taking a sample and I was going crazy waiting for the results to return (I actually had to figure that one out for them!), another time the staff (for the longest time) just did not know where or how to look to find the results that were there! (argh!), another time ... bloods drawn in one part of my Province (in one health jurisdiction) never routinely get forwarded out to a different doc, if that doc is in another part of the Province (in a different health jurisdiction) - a specific request has to be made or else the info will never travel! Another time, for the life of me I could NOT understand why my first VL and GT came back missing the GT, I had been fretting over what the load would be - dreamt about it, a nightmare that it was one million!, results came in ... 10 million, bugger, and no GT!, man ... I was  frustrated, I kept going back to reception and asking and asking for "when does the GT part arrive?", "nope, nothing has come in today" she kept saying, "nope, not today either" she would report ... while i waited for the non-returning GT to return, I kept studying the big dismal-looking 10 million VL number on the page over and over, sigh!, funny though, when i noticed ...  way, way far away from every other typed word on the page, separated away from the main body of info on the page, standing alone, all by itself, were 2 keystrokes .... no heading, no capitalization, no explanation - just this way-up-in-the-corner (in a vast sea of otherwise white mostly blank paper), a tiny  "3a". Duh, and boo.

You can look forward to good news, right shortly, it makes the wait all the more rewarding.

Are you off work for a while now?? Can you stay home and rest up a bit, or, after you get your good news are you going to go out again? How are you physically feeling now? I am really hoping the last half of your mav is going to go faster and easier for you.  smile C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Tig.

Ya we can go with that.And snowbirds are migrating back.I noticed a lot more volume at the lab.But,for that one fleeting moment I was whistling zip a dee doo da from my,well you get it.So far it's been the high point of my day.I'm guessing a couple more days.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


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Hey Shemp,

Funny, but not funny! I can feel your pain and aggravation. That seems a cruel way to start someone’s day. Is this the first time you used their portal? Could be it was the first message notifying you the portal access was now active and listed your previous results. Let’s go with that! I know your coming results will be far better than the pre treatment numbers. It shouldn’t take more than 3-5 days to get them back. Stand by....



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Picture this if you will.It's 5 am.A man sits in front of his laptop.The pale light illuminates his bloodshot,sleep deprived eyes.It's the only light in the house.He checks his e-mail.There is one from his lab saying the results of his bloodwork are in.What sort of magic is this, he wonders.He only had blood drawn 3 days ago.Could it be that the lab people were this efficient?He logs into his lab account.It says results from tests on 10/29.Oh happy day.He begins to read.ALT high AST high Fibroscore unchanged V/L unchanged.(deflating balloon sound here) Heeey... wait a minute.He scrolls back up to the top of the page and finds..... the date of the test is actually before TX.Way to go lab.They sent the same results from 2 months ago.Oh well,he did have that Christmas morning feel,if only for a moment.He'll keep you posted.Thanks for letting me vent.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Thanks Tig,

GREAT to have ya back.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


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Hey Shemp,

I just got back, too. I‘m glad to be back... What a trip! More info on that later. I’ve got some catching up to do around here. 

I know you’ll be pleased with the blood test results. They always show significant improvements and that alone is a great morale booster. Stand by to crest that hill and hit the Jake! (Just to let them hear you coming, ha!) The ride down is a lot easier to your finish line.



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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  World travels?... that must be some truck wink biggrin

better days! yeah! keep on trucking!

bb, Iris

 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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 Thanks for checking in Shemp, good to hear from you! glad you're feeling better  



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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welcome back shemp, so glad you are having more good days than bad



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Hi y'all

Just got back home from my world travels last night.I have my 6 weeks bloods today.It seems to be getting easier but I still have an off day now and then.I'll keep you posted.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Oh lucky you Shemp, not that we want you to need them....so still opt for you to go to a fine dining place with Tig biggrin

I had to take my pills every 12 hours so no Tums for me for 3 months.... but...hcvfree makes it  worth it. smile



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Iris,

There are plenty pf women your age driving trucks.My wife was my co-driver for 12 years.She's 4'11 100 lbs and she could truck with the best of them.Go for it.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Nothing wrong with Dairy Queen.  I love the kale and artichoke shakes.  'Glad your packing fresh food.

Best.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Canuck,

My sides seem to be getting better.Just finished my last delivery in Boston so I can put my feet up for a day or two.The world won't end if I hang up the keys for a while longer.There will just be a few less cars in my driveway.I appreciate your concern.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Hey Observer,

My Doc says I can take tums or prilosec as long as it's 12 hours after my meds.Guess I need to dust of the crystal ball.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Tig,

If you're going to Atlanta,there's a great BBQ joint on Marrietta St. just down from the CNN building.Check it out



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Hoodie, 

you're always such an inspiration.Sometimes I feel like Mel Gibson in the Road Warrior.Glad you're feeling better though.Happy EOT !!!



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Cheddy,

I did stock the fridge in my truck with lot of fruits and veggies.And plenty of water.Whats wrong with Dairy Queen?



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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5-1,

Great to hear from you to.I trust all is going well.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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I always wanted to be a truck driver, there was a school of trucking when I was around 17-18 advertised on the tv all the time but my parents said girls don't drive trucks and wouldn't pay for the school. It still is a fancy of mine but how may 60 year old women are just starting out on that sort of work?? 

Anyway, wanted to send you my best, glad to hear you are feeling a bit better Next time you are at the junction of  CA. hwy 395 and 58, try the Roadhouse at Kramer junction, my Grandmother would always get some pie she said it was the best.

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


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You make a valid point, Obs! Guess that means we’ll be eating in the finest of restaurants. After all, we wouldn’t want to risk Shemp’s treatment with ill advised indigestion mishaps! I guess waiting four hours after eating to take a rescue antacid would be kind of painful. Ha, ha! Looks like you get to pick the place, Shemp. Make it a good one!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Ummmmm...Tig 

i dont think Shemp can share Tums with you while hes on treatment. (unless theyve changed the rules) wink

Shemp, it must be really hard to eat healthy on the road, but hopefully with 25 years of driving you must know a few good places to get a decent dinner smile

Take care

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Shemp,

Don't believe everything we say!

Speaking of less-than-ideal eateries, I have found (most of the time) I have actually enjoyed hospital food! OH dear, now what on earth could THAT tell ya! other than I am a terrible cook! I hope Tig's rig has a CB in it, then you can give him a handle like Big-Tums-Buddy and tell him where to go (heehee), I guess you always have to pack some of your own foods when you are trucking eh?  

Now about sides, according to most people, it's only the first couple/few weeks that most people have trouble with sides or getting used to DAA's. According to Hoodie and lamassu it is actually only the last couple weeks you don't notice sides, ha!, and for me ... I noticed nothing very pleasant for 12 weeks! - I just got into a routine with it and rolled with it's punches. You can do the same, keep making modifications as required, no matter how it keeps rolling out for you - you have some options you can turn to - EOT is not that many weeks away. At that milestone, you will have less and less need to have to make any modification, to have things cramp your normal style and routines. It will NOT be the end of the world if you hang up the keys again for a while. C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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NEW JERSEY?? That has to be stressing just crossing the state line, lol! Sounds like you had to take the scenic route to get there and then some. I’m heading into Atlanta tomorrow morning and picking up a Class A bus for a drive through GA, NC, WV and TN. Maybe we’ll run into each other at some gut bomb joint along the way! We can share some Tums together...

Slow and steady is the key. Don’t let them run you ragged. Take every chance you get to put your feet up for a few minutes. I hope you get some rest tonight and a decent meal. Be careful out there, Brother!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Great to hear from you Shemp!  Keep on trucking road warrior  I started feeling much much better at the 10 week mark and I just read a post from a guy named lamasu who said the same thing. We were told when we first start taking these meds that the first couple weeks can be a rough period of adjustment. For some of us that first couple weeks is prolonged for about 10 weeks, but I did eventually start feeling better and I trust you will too. Hang in there!



-- Edited by Hoodietree on Thursday 18th of October 2018 10:30:00 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Good to hear from you, Shemp.  

Are you sure you should be back to work now? You're the only one who knows the answer to that question, but I hate to hear of the stress. I hope you are still listening to your body.  Just the fact that you can make it to work shows that you've got lots of fortitude (and new treatment).

I hope you can stock up on some good healthy food. I think it might have been Tig who said truck stops are the best places to eat.  He's a fan of comfort food and Dairy Queen. Kale salad is probably not on his menu.  Right, Tig?! (just playin' with our bro).

Drive well, and take it as easy as you can.  There's an ending to all of this.

Ch



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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good to hear from you shemp. keep on truckin'



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



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Hey Tig,

Just got to my office on NJ.Had to take the scenic route through Nashville Tn.The things you do for money.I have to admit it's a little more physically demanding than I thought.I'm staying hydrated,road food sucks.Whoever said the best place to eat on the road is a truckstop,had no tastebuds.The stress is kicking in and I'm happy my Doc gave me that prescription for Ativan.It didn't do much for me at home but it's paying off now.When my office wants to push me,I tell them the old me is on vacation.I've been leased on to this company for 25 years,not much chance of getting fired.I'm keeping after it.By the time I get get home it will be time for bloodwork,and another 6 weeks.I'll keep you posted.Thanks for checking up on me.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


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Hey Shemp,

I got to thinking about you today and wondered how your day back on the road is going? I hope it hasn’t been too difficult. I’m confident that a tough old Trucker can overcome most any adversity on the road, except for Snowbirds in the middle and left lanes. You know what I’m saying!

Check in when time permits and be sure you stay on top of your water intake and don’t forget to stop for a bite. Safe roads and skies, Brother....



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi Shemp,

I like that staying hydrated mantra. It works. Drinking water during treatment was healthy for me and now all I drink is water with or without gas and a cup of coffee in the morning. I now love drinking water and it keeps me feeling fresh and alive. Keep doing what you are doing! I like that you are listening to yourself and following your own beat for each day. Good for you!!

 

ps



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Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, VL 4/8/12 weeks - UND, 90 day SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND at 13 weeks and 6 months!

Club Zero Member.

PoloSilver

Tig


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We’re glad to have you with us, Shemp! Just take it easy, Brother and check in anytime. One of us is always checking in and will keep an eye peeled for your next update. Just remember, No Texting and Driving! Ha, ha! I know you see too much of that already, so I know you don’t have any part of that anyway. It amazes me to see how many people do, craziness...

Good luck, buddy!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Thank you all for the kind words and encouragement.My better half has been more than supportive and understanding.(I've been a bit cranky lately) But as the saying goes "until you walk a mile in my shoes"You guys have done a lot of walking. I truly appreciate you all.When I leave home I spend 99% of my time alone.It's nice to know I can just log on and be among friends.I'll keep you posted.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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Hi there, Shemp.  Good to hear from you.  Your common sense is such a great asset.  You're doing an excellent job of treating yourself.

This is really a good thread, so good that I can't add much, but I echo the thoughts.

Thanks for stopping in.  I hope you can continue to do so.

Best to you, Shemp.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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I admire your choices about listening to your body, looking after yourself, taking time off work when you needed to.  And I totally agree about the water...its a really good habit that I developed during treatment that I still practice....maybe not quite so much since my treatment but a heck of a lot more and more regularly than I ever drank it before. 

Safe travels friend.



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Congrats on starting bottle number 2 Shemp! 

You have shown a lot a good judgement and common sense and understanding, why you are doing so well i think - drinking water well, taking good care of yourself, stopping work when you need to - all important. 

Just take it as easy as you can easing back into the workload again - you will know what to do and when (and why) - just make sure you are always number one - you are doing an exemplary job on everything that has been thrown at you thus far, i have every confidence in you that you are going to get through all of this just fine. 

I like your new mantra - me too, that water was a foreign friend in my early life, even though i knew better. Funny the things that teach us important lasting lessons - like ... how there really are nice people in this world, and that many of them are found right here! wink C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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good luck at work shemp



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO

Tig


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That's an excellent report, Shemp! Made my evening to hear your upbeat tone. That's what it's all about, Bro, that and a few thousand of your fellow Dragon Slayers to cheer you on. We have the best bunch of friends anywhere. Kind of oddly nice, to have people you barely know, turning out to be the best you ever will.... I love this place!

Don't push it and I'm glad to hear you've found some things that will keep the blood flowing and mind sharp. You're absolutely right, keep your hydration program up and don't wear yourself out under any circumstances. Do your best to stay rested (as well as a Trucker can, right?) and don't miss any of your medication. Keep that in your log book, too!

Check in when you can and be careful headed up the road. It's a mess right now!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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It's been a while since I've checked in here.I think it was around my 12th day of Mavyret.I'm now on day 28,56 more to go.I can't say it's been a breeze,but it seems to be leveling off.At first it was more bad days than good but it seems to be turning around.My brothers and sisters on this forum,you have taught me so much.I know without you all I would be truly lost.I went back to work yesterday and by the weekend I'll be headed off to the northeast.I learned a little exercise helps get the blood moving makes me feel better.I'm not saying go run a marathon,but take a walk it helps.STAY HYDRATED is my new mantra.I used to hate water,now it's kinda growing on me.I know there's not many here taking Mavyret,but if you are and you find this place I'll try to give you answers.We're here to see each other through.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


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I’m glad you let dispatch know you’re out of service for the time being. I imagine with all the flooding and road closures right now, the road would be particularly stressful for you. You don’t need stress right now. Listen to your body and all that common sense you’ve learned over 1.5M miles. You’ll know when the time is right. I think you’ll start coming around in a week or two and if you feel up to that, maybe a short haul would be possible. Avoid the heat, that seems to be the most difficult thing to tolerate during treatment. Always have some water with you, wherever you’re at or headed to. 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Tig,

I can't tell you how much your advice and encouragement means to me and all the other newbies just starting our treatments.I can't imagine what you must have endured back in the day when treatments were experimental.I keep holding off my office(they're trying to load me) but I've been honest with them.I don't think I'm ready to go back to the grind yet.Maybe next week.Oh by the way it's a Freightliner not a Kenworth.I bought her new back in 98'.1,500,000 miles and still going strong.We're just two old timers driving toward the sunrise.Thanks



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

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