Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Mavyret and Me


Guru

Status: Offline
Posts: 804
Date:
RE: Mavyret and Me
Permalink  
 


take it nice and easy shemp; rest,food, water and good self talk



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks for the tip Obs.I'll be up all night thinking of words.Tig,in your case you could name all the different types of welding.That should keep you busy.Back to work today after a month off.I still don't feel like working but that powerball thing just ain't working out for me.I just wish I could put two days together where I felt the same.I would like to welcome all the newcomers to the forum.This place will make your journey much easier.It did for me and countless others.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

What do we do if we can’t spell? Now I’m awake.... wink



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 450
Date:
Permalink  
 

I read about the coolest trick for focusing your mind to fall asleep...

its a little word game

you choose a word like bird, lamp or with....

then you think of as many words that start with the first letter until you cant think of anymore,

then you think of as many words as you can starting with the second letter...etc etc 

The university professor who invented it said he had hundreds of his students use it and it was amazingly affective...(I cant remember the percentage) 

I can never get past the first letter  



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



Guru

Status: Offline
Posts: 3042
Date:
Permalink  
 

OMG shemp, what you said!! ... "my mind is all over the place.It's really weird,kind of like I'm going in two directions at once.Overactive mind is an understatement"...

That's me all over, and I'm YEARS cured!! What does that mean? uh, but... mind you, maybe I was that way before I got treated too! ( uh, oh ya, I am a Gemini as well)! And how did I manage to just do all that?, between and while I had all that profound fatigue!! 

And OMG 5, what you said!! ... "freaking out is part of eot" ... , it seems I am always (still) freaking out!, oh dear, and what does that mean!

Seriously, i do not just tease you, but I am trying to make light of myself and what happens with me, these disjointed/discombooberated feelings are hard to do or understand at anytime - I'm with you, I'm just gunna go with the flow for now and see what happens next! confuse  C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

freaking out is part of eotcry



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks you guy for the advice and the kind words.I know I can always count on you.I understand I've been through a lot,and maybe thats why my mind is all over the place.It's really weird,kind of like I'm going in two directions at once.Overactive mind is an understatement.I guess I just need to learn to go with the flow.I know this too shall pass and better times are ahead.I'll try to not be so much a stranger.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

hi shemp,

my month eot was one thing after another along with the aches, pains and fatigue.

i  am about 6 mo. eot and my energy levels are better, the leg rash is gone...  i am working less and still have to get a lot of rest.

but i am cured so what ever i have to balance is worth it

i can go go go on my days off for 3 days along with 8-11hrs rest/sleep and still need one whole day of bed rest in order to make it thru my 3 day work week.

i def have to schedule the rest time or i'm no good for the rest of my ife.

i make sure and get as much done as i can on my 3 days off so i can get that one day of just rest... and i don't do much on my working days except work , or grocieries and gas up the car after work.

over the past few months i am able to do more for longer periods than i did ot; i can exercise again and i like that

my face gets a rash if i don't get the day of rest... so that's the best incentive for me

so be easy with yourself, you just went thru a life saving treatment.



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

Well said, Tig.  It does take some time to readjust and reprogram.  I was remarkably better in 4-6 weeks.

Yes Shemp, we do like having you around here. I'm really sorry to hear that you are dragging. I'm glad, though, that you went to the doc instead of assuming it's treatment related.  It may be, and may not be.

I'm not very good at sleeping either.  I don't find Ambien to be agreeable with me.  I use melatonin with some success if I don't take it all the time.  Occasionally, I use alprazolam if my brain is over active. It is meant to treat anxiety, though my brain activity is not negative or fearful, just busy. The best medicine I know is SLEEP.  But how do we get there?  Would you describe your state as one of depression?  I had to treat that post TX and wow, it really helped me reboot from long habits of malaise which were probably HCV and TX related.

I will say that I'm all better now and expect the same for you.  Don't go missing, though. You're not done with this yet.

Best to you, Shemp,

Cheddy

 

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

Hey Shemp,

Thanks for checking in. I wondered what kind of trouble you were getting in! Recovery seems to be a process. It was for me and seemingly it is for most others. Some experience an easier transition and others experience some joint discomfort and malaise. What I have noticed, is most people start to feel somewhat better 4-6 weeks after treatment. I believe there’s a period of time needed to clear the drugs and reprogram your mind and body. Think about how long you packed that beast around?

You took some powerful medication and rewrote your future health. Imagine the adjustment that your body is experiencing. It had an immune system battle going on for decades! Now it has the job of correcting the years of damage done and it takes time. Once this period of correction is well established, I think you’ll notice the benefits and improvements you’re seeking. 

Don’t be a stranger! We kind of like you around here... wink



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Hey ya'll,I've been MIA again.I don't mean to be but lately I'm feeling really out of sorts.I still haven't gone back to work since before Christmas.I really just don't feel like it.Still not sleeping well.My pc doc says I should stop taking sleep meds.Really?Then I wouldn't sleep at all.Some days I have a lot of anxiety.I don't know if it's TX related or not.Maybe it's that a month post TX I think I should be felling better than I do.Anyway,i just wanted to check in and let you all know I'm still alive and well.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

ahhaha, a shemp report

 

shemp , that is one of my biggest health probs always.... sleeping well enough cry.... but yea, 2018 saw us cured!!

may 2019 bring us all the deep  peaceful restorative sleep we deserve



-- Edited by 5-1-18 on Monday 31st of December 2018 07:29:47 PM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

Hey Shemp,

Good to hear from you, Brother! Christmas and now New Years, is being spent with my daughter, her hubs and the two grandkids. 2 and 4... They’re killing me, lol! So much fun though. It gives us a chance to concentrate on some good old, family time.

It may take you a good while to get back on track. The most important goal has been achieved, to decimate the Dragon and improve our quality of life, virus free. It does happen though, Shemp. I wish I had the answer to make it easier. I’m a firm believer that the worst days of our disease are over. We’ve been allowed to change our future. Let’s make it the best.

Happy New Year!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

Shemp,

We share that sleep pattern: dead tired, wide awake.  I've haven't been good at sleeping for a long time.  I wonder if fatigue isn' an inadequate form of rest that throws the body clock off.  I'm getting better at it but it's unreliable.  Are you getting enough sleep?

Good that the tooth has settled down.

Lots of people go MIA in December.  It's a set up.  Says so right on the calendar of traditions.

I'm glad you are getting better post treatment.  It's a long haul, alright but entirely worth it, right?

Thanks for joining us this year.  It's always good to hear from you.

Cheddy

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Hi y'all,I've been MIA.Hollidays...you know I love 'em.Been home since before Christmas,just taking it easy.I haven't had any dental problems,antibio's cleared the infection.I'm starting to feel better after TX,but still have a sleep problem.I had it before treatment so I don't think it relates.What's really strange is I feel fine all day,around 7pm I get so tired I can hardly keep my eyes open.It lasts a couple hours and goes away.I can't figure that one out.Guess it's another bump in the road on the way to normal.I really like your new avatar Tig.Wishing everyone a Happy and Healthy new year.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

No kidding! We need a current, on (or off) the Road Update. A Shemp Status Report! The holidays have scattered us a bit! I hope all is going well and on schedule, Bro!smile



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 3042
Date:
Permalink  
 

Shemp,

Just wondering how things are going (feeling) in the tooth dept (or any dept), you took a course of sulpha for your tooth (and that got all finished up now?) but did you go for the dental work - I maybe missed that bit? Maybe you haven't gone for the dental work yet?

Have you been able to have some holidays at home or have you had to do some trucking work over some of these holidays, i hope you were able to be off work, home, resting and doing dental work if and as required.

Hope you are starting to feel a bit of recovery from/since the Mav treatment? C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

Shemp wrote:

Thanks Cheddy,you guys dance and me and Canuck will watch.Tooth is better but the antibios still have me feelin down.Couple more days.Just when I thought I was done counting pills....I'm still counting pills.


 right? i had to go on antibios shortly after eot. but they either made me deathly ill or i had some kind of stomach flu....either way i stopped taking them and hoped for the best....i hadn't been that sick in years.

i absolutely had to stop them at 8 or 10 days and will never take those again. lucky for me my immune system was able to kick in and take care of the rest.

thankfully my sinus didn't get that bad this go round.

but yea, yay for the last days of the pill counting



-- Edited by 5-1-18 on Sunday 16th of December 2018 07:41:30 AM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Veteran Member

Status: Offline
Posts: 62
Date:
Permalink  
 

Hi shemp .hope you are feeling better.i also came down with bad chest coughing ect after tx think from dirty air con in a motel ,didnt improve after a week so my dr put me on anti biotics ( doxylin ) i think for 7 days. Idont like anti biotics but i feel as if i was getting worse without them coughing heaps guk ect.on my last day of anti biotics today i really hope they worked coughing so exhausting specially after tx.i actually went for a walk today ,first time in 2 weeks i felt like it .so fingers crossed chest infection will be gone ,im just hopeing tx didnt stuff my immune system up and i can start feeling normal finally.so in my opinion anybody with infections if not improving try anti biotics,iv never been a fan of them but after doing tx i didnt want to put up with infection didnt feel up to it..best wishes everybody...

__________________
D writer


Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks Cheddy,you guys dance and me and Canuck will watch.Tooth is better but the antibios still have me feelin down.Couple more days.Just when I thought I was done counting pills....I'm still counting pills.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Guru

Status: Offline
Posts: 3042
Date:
Permalink  
 

Lovely for you that you were able to  pursue and get that EOT test done. Treasure that wonderful and hard-won UND result. Let that good news carry you through until your SVR12 UND arrives - until they make you "official", but for you it has already been a done deal and we all know it - so ya, me too, can't dance, but I kick up my heels for your win fer sure!

I am so glad you asked for and got that EOT UND, it is nice feedback to have early on, it gives you a little more time to be glad, relieved, to enjoy that treatment is over, to digest things, and to reflect on all the hard work you have been through and are going through while you launched into recovery mode.

Try not to work too hard or long if you can help it - keep conserving where you can and treating yourself the best you possibly can. I'm glad you are taking care of your tooth, and the rest of you, well. Keep drinking lots. 

So, you got your UND too early for xmas, is it just "all I want for xmas" is that tooth thing then? : )

I am so glad you are sharing your xmas with a great big UND in the room. ; ) C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

We're dancing, anyway.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks guys,but you REALLY don't want to see me dance.It's like watching a train wreck in slow motion.You know a disaster is moments away,but you just can't look away.I'm just thankful to be free of hep c.And 1 step closer to being officially cured.

 

 



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

hi shemp. woohoo on the UND!

i hate antibios too. so hard on me.

you are such an inspiration



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Guru

Status: Offline
Posts: 999
Date:
Permalink  
 

WOOOOOHOOOO! 

Undetected, what beautiful music to dance to in your newly polished shoes! Gald to hear the uckies are leaving you and soon you'll be a new man, ready to rock this world! 

Blessings, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

Congratulations, Shemp!! That’s a continued sign of forward progress and tells me the future will bring the prize you fought so hard to win. My money is on Shemp, the loser in this battle is one weary Dragon. Keep taking care of yourself, stay on top of a good hydration program and break out your good boots. They’ll need a fresh coat of polish for the dancing soon to come! 



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Hey y'all,it's been a few days.Sorry to hear to hear some are still down with coughs,and sneezes.I hope you get some relief soon.I'm on my way home from the great white north and I got the results from my EOT HCV RNA Quan.today.I didn't want to push the Doc for to many tests,I get the works in 11 weeks.As expected,UNDETECTED.1 less thing to worry about.I really don't know how I'm feeling yet,still taking Bactrim for the root canal infection.I hate taking antibiotics,never agreed with me.A few more days and I'll be free of them too.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

Double good news, Shemp.  You are at the end of treatment AND you will be sticking around.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Senior Member

Status: Offline
Posts: 354
Date:
Permalink  
 

Way to go Shemp

Canuck, I think you, me, and the rest of us here have earned that knowledge the hard way and that makes it even more meaningful when we share our stress management techniques with others. We are really just reminding each other of what we already know. And with my achy breaky brain, I need all the reminders I can get LOL!

Much love to all!



-- Edited by Hoodietree on Friday 7th of December 2018 09:53:20 AM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thank you,EVERYONE.I am so thankful for having found this place.Your advice,insight and knowledge has made my TX so much easier.Now,it's time to start down a new road.My hope is that I can give back to the new members as much as I have received.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

Shemp wrote:

Thanks Lamassu,didn't hear from my doc so I called him.I spoke to his nurse and she said there was a note about my HCV RNA Quan.He said he thought it was pointless because I had been undetected at 6 weeks.But,he also said he would put the order in so I can get tested tomorrow.See that didn't hurt Doc.I'll keep you posted.


 



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Senior Member

Status: Offline
Posts: 450
Date:
Permalink  
 

Congratulations on reaching EOT Shemp  

 



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



Guru

Status: Offline
Posts: 3042
Date:
Permalink  
 

Big agree Tig, Shemp doubly deserves this EOT VL good news. Not only for the good-news-feedback-reward at this stage, but also just for being diligent and putting in the effort to pursue it and get it when it was not being offered at EOT! Good for you shemp, I can't wait to hear the good news. The result will be a great moral booster. smile C.

Hoodie, We are of like mind about stress and self-care, no one can take better care of number one than number one, my musing below only mimicked what you have been saying on other threads. wink C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

Congratulations on completing treatment, Shemp! Well done my friend. I know the news will be good and progress, always forward. Even though that EOT viral load isn’t necessary, the application of the test at this moment, is the prize we all worked so hard to achieve. It’s a great morale booster. You deserve it!

F49D38DB-7E63-441C-BE69-B404F4A5126F.png



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 354
Date:
Permalink  
 

Canuck said:

I am of the mind that there it is more a connection to the depletion of a bodies normal healthy reserves/defences (too stressed), more so than a direct connection between post-treatment maladies and the DAA drugs only.  Therefore, I am a big believer that we have to keep drinking well, eating well, getting good rest and treating ourselves as good a possible after cure.

I couldnt agree more. Stress management is a critical component of health. Along with taking good care of our physical bodies, we must not neglect neglect our minds and spirits  



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks Lamassu,didn't hear from my doc so I called him.I spoke to his nurse and she said there was a note about my HCV RNA Quan.He said he thought it was pointless because I had been undetected at 6 weeks.But,he also said he would put the order in so I can get tested tomorrow.See that didn't hurt Doc.I'll keep you posted.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Senior Member

Status: Offline
Posts: 147
Date:
Permalink  
 

Congrats Shemp! I had a feeling you have a failing root canal, also sometimes when a post is put in after the root canal to be able to build up the tooth for the crown the post can cause a root to fracture under stress. If that happened you would have to have the tooth pulled. That is why I am getting an implant and crown done. Keep bugging your liver doc for a lab order for that EOT viral load. It is going to say undetected but it is so nice to see it on paper:)



__________________

Male, 65, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thank you ALL so much,I couldn't have done it without ya.Lamassu,you win the prize.Dentist says I have an infection in the root canal.Tig,they're really not expensive if you keep going to a new one and telling them you're there for the free consultation.Just kidding but, I would feel better if he wore a mask and held a gun.Just when I thought I could be med free for a while,he put me on bactrim for 10 days.I hope it helps.I'm leaving for my last trip of the year on Sat.AM.I hope everyone is finally getting over all the ailments that have come up in the last few weeks.I havn't heard from my gastro yet.I'll bet if he went through TX he would be testing.Guess he's just following the script.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Guru

Status: Offline
Posts: 3042
Date:
Permalink  
 

Yay Shemp, done!, finally, EOT! ... that certainly was a long haul for you (sorry, weak truckin joke) - all those weeks and months of prep, then the 12 weeks of treatment, not to mention all the "extra" hardships you had to work through (symptoms you felt/working/flu/now dental) - it IS a LOT of overall stress we can go through to get this cure, and then there is still this recovery period we all seem to go through (some of us longer, some of us shorter), but, thank goodness recovery IS inevitable now. During recovery you will start shedding the stress, bad feelings and with your HCV gone you will regain more wellness and a healthy balance once again. Give it some time, it is so wonderful you have been cured, it will pay dividends down the road, you'll see. You made a very good investment in you.

Lam brought up that dental things CAN just happen, anytime, one does not need to be on DAA therapy to have a weird dental issue crop up.

Weird things, things going off kilter, new pesky afflictions can be "just us", just because we are not 100% up to snuff after enduring this 12 weeks of strong drug treatment, after being under such stress, waging and winning a great viral war, fighting so hard, for so long, under trying and depleting conditions, duressed, I think that the arduous endeavours, depletions of our energies, those alone sometimes helps to tip us beyond defending ourselves from colds, flu's, infections, etc. post-treatment (for a while anyway). We can only expend so much, then we tend to cave to something or other - it seems to happen. I think for most of us, in the weeks and months post-treatment, we progress exponentially with recovery. 

I am of the mind that there it is more a connection to the depletion of a bodies normal healthy reserves/defences (too stressed), more so than a direct connection between post-treatment maladies and the DAA drugs only.  

Therefore, I am a big believer that we have to keep drinking well, eating well, getting good rest and treating ourselves as good a possible after cure.

Very good you asked for the EOT VL! I certainly hope heard and understood your well-put comment about having enough to worry about - that should be a point that i hope he takes good note of! I appreciated/appreciate knowing every one of the many VL's I have ever had done!

I am so glad you are done - huge milestone. biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

That's right, Shemp.  I did have to have a silver post pulled out and replaced after inflammation set in some years later.  By now you probably have the picture from your dentist.

Last pop tonight, eh.  Excellent.  I'm glad you called for the EOT to cut down on the worries.

How are you feeling otherwise?  Still feeling overmedicated.  Tomorrow actually is a new day.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 804
Date:
Permalink  
 

shemp, i had swollen gums post tx. , all my teeth felt bad.

congrats on eot and asking for an early quant.

hang in there shemp, you really are doing very well with all of this.



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.13weeks=UND + 6 months =UND: CLUB ZERO



Senior Member

Status: Offline
Posts: 147
Date:
Permalink  
 

Congrats on finishing treatment today! Root canals can fail and infection can set in (happened to me) but you would probably have some swelling. Also could be another tooth acting up so glad to hear you are getting checked out today. I have had a lot of dental work done so have experienced some complications. Had a tooth break in two last year and am now getting an implant and crown done. I don't know what is going on with these treating physicians making patients wait until EOT + 12 weeks to learn the viral load. After suffering through months of DAA therapy they should respect we all want to know if we are undetected at end of treatment!



-- Edited by lamassu on Wednesday 5th of December 2018 09:40:24 PM

__________________

Male, 65, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

Welcome to the last day of treatment, Shemp! It’s a wonderful thing... I hope the tooth is going to be manageable and less painful following your trip to dental rescue. Dentists, gotta love em! Too bad they aren’t affordable wink



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 354
Date:
Permalink  
 

Hooray for EOT and best wishes on both your viral load AND your root canal situation Shemp. Excellent self care!



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks Cheddy,A root canal removes the nerve but they also insert a post into your jawbone.I believe thats where the pain is coming from.I have an appointment a couple hours from now so I should be enlightened.And yes (drum roll please)no more beans after tonight.Doc wants me to wait 3 months for HCV RNA Quan.but I called his office yesterday and told them I have enough to worry about so can I have one this week.I should know tomorrow.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

Yes, that is strange because a root canal is intended to remove the nerve.  However, there are associated reasons such as infection.  Google: painful root canal years after.  Sounds like a happy go lucky trip to the dentist may be coming up.

Isn't it great to be over the flu!?  Next, no beans, and a readjustment. 

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

Thanks Tig,the reason I think it might be DAA related is it comes on out of nowhere,hurts for a while and then just disappears.Really strange.Here's to the first of many revelations.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED

Tig


Admin

Status: Offline
Posts: 8672
Date:
Permalink  
 

Hi Shemp,

You’re the first to mention dental issues with the new DAA’s. The old drugs, Interferon in particular, caused terrible problems. It attacked the supporting bone and many of us lost or broke teeth. I don’t think Mavyret is doing the same thing, but wonder if there isn’t some nerve involvement or inflammation secondary to treatment, which is responsible. HCV also is known to do the same thing.

I’m just throwing stuff at the wall, wondering if it’ll stick. If you know what I mean. I do know, the next several weeks and months will provide you with additional revelations. Seems like that’s the period when we discover the improvements and differences of being Hep C free can provide. I hope as you progress with recovery, there will be more noticed improvements, than questions. 

Good luck at the dentist!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Veteran Member

Status: Offline
Posts: 96
Date:
Permalink  
 

I'm over the flu and way past the what if's.Today I take my last three magic beans.I do have a question about DAA's and teeth.Years ago i had a root canal and never gave it much thought afterwards.Since I began TX there have been times where that tooth would just start to throb.It would last a few minutes and go away.In the last couple of weeks it became more frequent,and now that I'm at the end,it's almost constant.There just doesn't seem to be much info out there about DAA's and their effects on teeth.I have an appointment with the dentist today but it just seems really strange.



__________________

62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



Moderator

Status: Offline
Posts: 551
Date:
Permalink  
 

That should make things better.  I can hardly wait myself.  

I don't know which is worse - a case of the What Ifs or the flu but they will both be over soon.

Keep resting.  



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

1 2 3 4  >  Last»  | Page of 4  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.